Treatment Options > Radiation / Radiosurgery

Time for CK

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sree:
thanks for your kind responses
I am going to meet Radiation Oncologist on friday sep 7th
I will ask him about three sessions instead of one and also
how much radiation they are talking about.
After that we will decide.
I know Stanford is another option but I don't think Kaiser
would accept it since they have a facility nearby in San Francisco.
Dr.Tse my Radio surgeon once worked at Stanford , with Dr. Chang and CK.
We've done much research for the best doctor in Kaiser for CK and everyone
suggested Dr.Tse.
we went to him for second opinion and decided to go with him.
Since I don't have any hearing in my AN ear he says to go for single session.
Tumor is still small but I am having these balance issues, spasms around
right cheek. When tumor stayed still we never thought about going for surgery
now it showing growth so decided to go for it.
I will update after my appointment with Radiation Oncologist.
Thanks   

sree:
Hi all
i keep forgetting to post this update .
I had CK done last month.
It was a single session at Kaiser, SF
Actual treatment was around 35 mins and prep etc took another 15 mins.
Doctor gave me decadron to prevent inflammation. I didn't feel anything during the
treatment. Had a headache afterwords. My head was hurting not around the AN site
but top of the head. I was concerned about this but doctor said it might be because
of the mask. Asked us to come back for MRI after 3 months.
I had this headache for 3 days, took Advil twice a day. It took care of most of the pain.
I was feeling tired for few days, eventually got better.

Thanks for all your support
I will keep posted if there is any update.

notaclone13:
Hi Sree,
Thanks for giving us an update about your treatment. Bet you are relieved to have it behind you. Wishing you a smooth recovery and the best possible outcome. Please let us know how it goes from here on.

sree:
Hi All
Update on my CK AN journey.
It’s been three months since I had CK. I don’t feel anything different from before. Doing just fine
I had follow up MRI last week. Doctor said there is no change in size or shape of the tumor.
I know three months is too soon to tell anything but I was kind of dissolved to hear about no change.
I was hoping to get some different news.
He said to follow up again in 8 , months which will one year by then.
Thanks
Sree

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