Post-Treatment > Facial Issues

Suggestions?

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Kaci:
Thank you all for your responses and suggestions. I am going to NY for Botox consult next week. A few years back I was going into NY for the Botox I did it twice there but I wasn’t consistent because of the travel. I decided to try someone in CT but the injections made me feel like I did when I first had the surgery it was awful. I was back to not being able to hold air in my mouth, if I tried to use mouthwash for example it just spilled out and I was back to talking funny I had to hold my lip. I was so frustrated but thankfully it wore off.  Lessened learned it was not worth saving on the travel so I’m going back to the experts and will now try to commit to the every 3 month schedule as you all have seemed to have success with it. Hopefully starting PT again too, I stopped with the high copays but I know it’s important. Some days the dry eye is awful but most days I can tolerate it. The synkinesis I think is the hardest part, you just want your face to relax!!! I’m sure the Botox will help that. I do not qualify for any hearing device unfortunately. Still not used to that, I avoid going to a lot of places knowing I will struggle. I’m curious if others have issues with brightness from the sun I haven’t seen anyone mention that. For me, if the sun hits my face it pulls even more and the synkinesis acts up more. Thanks again for listening and I will update.

donjehle:
Thank you, Kaci, for updating us on your plans.  I hope it goes very well for you next week.  It does make a huge difference if you go to the best experts or someone who happens to be closer.  I wish that everyone who reads these forums could understand that.  It is better to spend the money to travel to the specialists who know what they are doing than to 'save' money for someone located nearer and then spend more money in care in the long term.  Your post is so helpful!  Thank you so much for sharing!

gbly:
Kaci,
Good luck!  Please keep us posted.

Concur with don, sometimes it is important to actually pay so you get the correct results.

Interesting on the sunlight, I too was noticing that the other day, and then that side of the face gets all squinty....so yes I have noticed it but had not realized it until I read your post.

Please keep us posted.
gb

Kaci:
UPDATE! I went to NYU and they started the process to have insurance approve the Botox, see how that works first. The facial surgeon discussed a surgery that would involve the nerves & muscles not sure I want to do this curious if any of you have done a surgery like this to help with the facial paralysis? I was interested in a face lift type surgery to even things out she wasnt against it but explained like lifting the eyelid for example you need to be careful because it already doesnt fully shut and dry eye....she also explained that the one side is still always going to pull tighter I am used to it but just want to cosmetically look better

donjehle:
Thanks for the update, Kaci!  I was wondering how it was going for you.  I am sure that some on these forums have had the surgery for their facial paralysis (or even a number of surgeries).  They can comment and tell you their experience.  Keep us updated on what you finally do!

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