ANA Discussion Forum

General Category => NF2 => Topic started by: Susan A on November 22, 2011, 05:06:13 am

Title: NF2 webinar
Post by: Susan A on November 22, 2011, 05:06:13 am

I found this over at the nf2crew website:

NF Network (NF Inc) is pleased to present an NF2 Webinar on November 30th, 2011.  You don’t want to miss this webinar with guest presenter, and NF2 expert Dr. Scott Plotkin, MD, PhD.  Just a couple of the topics Dr. Plotkin will discuss are advancements in NF2 research and the genetic inheritance of NF2.

http://nfnetwork.org/blog/view/nf2-webinar-with-scott-plotkin-md/

Title: Re: NF2 webinar
Post by: producer on November 22, 2011, 06:04:51 am

Looking forward to this..

Title: Re: NF2 webinar
Post by: New girl on November 22, 2011, 04:53:42 pm

Thanks for posting that.  I just registered!  :)

Title: Re: NF2 webinar
Post by: producer on December 01, 2011, 04:25:45 am

I must sat I was a little disappointed with this, primarily because more than half the 1hr session went  by explaining the basics of NF2.  I thought it was going to be focused on advancements on research in NF2 but barely touched the subject.

Id imagine we need another webinar on that issue alone and nothing else.

On the other hand great to see Dr Plotkin putting in his private time to provide live information  to us, definitely appreciated.


chris

Title: Re: NF2 webinar
Post by: Archer on December 02, 2011, 10:30:42 am

I sat through the Webinar and got quite a bit of info I hadn't known.  Of course, in my case as newly diagnosed with NF2, Any info would be good and new to me.  Still learning about what this all means.  I understand ANs as I had on removed ten years ago.  Now, with one on the other side, I have to learn a new subject of NF2.