ANA Discussion Forum

Watch and Wait => For those in the 'watch and wait' status => Topic started by: ANGuy on July 28, 2015, 06:23:53 pm

Title: No Growth
Post by: ANGuy on July 28, 2015, 06:23:53 pm

I just got back from Duke for followup MRI, hearing test, and consult with Dr. Kaylie.  When Dr. Kaylie walked in, he had three trainees (interns?) and his nurse with him.  So five of them walk in and I say "you guys look like you aren't going to let me leave".  When I was on the job and and WE entered an interview room room like that, you can bet the dude wasn't leaving lol.

No, he said, everything is unchanged, hearing and MRI same as last time, so unless I had any questions, there wasn't much to say.  So, for anyone trying to keep score, I had sporadic symptoms starting in  '06 or so.  About 15 months or so ago I had sudden hearing loss that resulted in me going to an ENT and subsequent MRI showing 1cm tumor.  The hearing quickly recovered on it's own to what it probably was before the sudden drop and I would rate that as "good" (not great mind you, but functional and any loss is not noticeable to me other than through a hearing test).  Two followup MRI's have shown no growth, so my WW continues for as long as I can ride it out. 

Next MRI and hearing test is scheduled for 6 months unless there is a sudden change in symptoms.  If that shows no change, he will schedule me for 12 months between MRI's.

Title: Re: No Growth
Post by: Janey on July 28, 2015, 09:58:01 pm

Congratulations on the good report!

Title: Re: No Growth
Post by: mcrue on July 29, 2015, 01:17:01 am

Awesome! My ENT claims if it doesnt grow within the first 5 or 6 years then it will likely never grow, but these AN's are unpredictable, hence the reason for the lifetime MRI's.

Congrats on your good news!

Title: Re: No Growth
Post by: ppearl214 on July 29, 2015, 04:58:12 am

Congrats on the good news.  Wishes for continued wellness.

Phyl

Title: Re: No Growth
Post by: MG on July 29, 2015, 06:02:32 am

Awesome news ANGuy! I hope you can continue on your W&W train.

Good luck,
MG

Title: Re: No Growth
Post by: mac84 on July 29, 2015, 06:16:38 am

Fantastic!  Hope all continues as it has.....

Title: Re: No Growth
Post by: ANGuy on July 29, 2015, 06:32:47 am

Thanks for the kind thoughts!

Title: Re: No Growth
Post by: CHD63 on July 29, 2015, 06:39:10 am

ANGuy .....

Congratulations on the stable report ..... always what we like to hear!

Clarice

Title: Re: No Growth
Post by: NYLady on July 29, 2015, 07:12:42 am

That is great AN Guy!

Always get anxious around MRI time and when the news is good, the relief is fantastic!  Wishing you continued stable reports.  Best to you.

NYL

Title: Re: No Growth
Post by: mcrue on August 01, 2015, 10:39:35 am

http://acoustic-neuroma.info/wandw

Title: Re: No Growth
Post by: ANGuy on August 01, 2015, 01:37:12 pm

Quote from: mcrue on August 01, 2015, 10:39:35 am

http://acoustic-neuroma.info/wandw

I think that page is a good, concise, summation of what WW should be.  I am approaching all of this exactly as that page recommends, but I couldn't describe it so succinctly.

Title: Re: No Growth
Post by: Sheryl on August 01, 2015, 08:48:14 pm

Wonderful news ANGuy - keep chasing me - I'm almost at year 14!!!
Sheryl

Title: Re: No Growth
Post by: MG on August 08, 2015, 07:00:50 am

Good article ANGuy. Thanks for sharing.

MG

Title: Re: No Growth
Post by: leapyrtwins on August 09, 2015, 11:02:26 am

It's always wonderful to hear great news!

Congratulations!   ;D

Jan