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Facial Nerve Schwannoma - 3 year old (Philadelphia)

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Kamishawn:
Amy,

My 23 month old son has recently been diagnosed with a facial nerve schwannoma on his 7th cranial nerve. I’ve been researching online and keep coming back to this post. Would you be willing to share your experience with your daughter with me? I know this post is a few years old, hoping you are still connected on here.

Thank you,
Kami

alabamajane:
Kami,
So sorry about your son’s diagnosis.  I know that is hard to deal with as he is so young,,,

Just a suggestion,, you may want to private message Amy through the icon under her name and perhaps she will respond more quickly.  I don’t think she has been on here since September.

Best of luck in your search for the best doctor you can find.
Wishes for peace,,,
Jane

Kamishawn:
Thank you Jane! I will do that.

Kami

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