AN Community > AN Community

Regrowth? Symptoms?

(1/3) > >>

MLB57:
Hello everyone..

Just wondering --for those of you who had a regrowth of your AN--did you have any symptoms?  I had microsurgery in 2001 for 1 CM right AN--later follow-up MRI showed re-growth --I had no symptoms at all.. I subsequently underwent 6 wks of radiation in 2007.

Last MRI was April of last year (2015) and all looked well. Just last Thursday morning (St Patty's Day) I awoke and rolled over and the room spun vigorously around.  I have been out of work since Thursday and had been taking 12.5 mg 3 times a day of Meclizine prescribed by my PCP and that was upped to 25 mg 3 times a day starting last night. I do have a tight neck muscle from the AN surgery which seems much tighter lately.

I am hoping it may just be a coincidence that I have vertigo and no relation to the AN.  (Only time I ever had vertigo like this was in 1999 and 2 years later the An was discovered)..

I have  not actually seen my PCP, only his assistant has spoken to me.  The vertigo seems a bit less severe this morning..but is still there..

So just wondering if anyone out there has had re-growth with any symptoms?

Thanks for any information you can shed on this..

Sincerely,

Mary/AKA Grammy

CHD63:
Hi Mary .....

So sorry about your new struggle with vertigo!  Not fun!

I actually never had true vertigo ..... just that awful feeling of disorientation, not knowing up from down.  Also, I did not have any symptoms with my regrowth.  Only on an audiogram before the second surgery did I find out I was losing speech discrimination (I had retained 20% of my hearing after the first surgery.).

Hoping and praying this round of vertigo for you is unrelated to the AN and is an inner ear problem with your "good" ear.

Thoughts and prayers.

Clarice

ANGuy:
The vestibular nerve should have been cut during your surgery.  That would mean that there is no way growth of that tumor could effect your balance.  Balance issues come from changes in the signal quality on the affected side.  Since you don't have any signal on that side anymore, it can't change.

Any balance issues you are having now would have to be from some other issue. 

MLB57:
Dear Clarice and AN guy,

Thanks so much for your responses.. I just got a call from my PCP office -- he wants to see me tomorrow..so I am glad of that--hope to get to the bottom of this..

AN guy, --I re-reread the OR reports and couldn't find that there, but I always thought that I was told that my balance  nerve was cut during surgery-- (I have always told everyone that I have only half a brain for balance, etc.) so thank you for confirming that --that is a relief.  I am beginning to think this may be due to my tight neck muscle..Maybe a spasm.. I can feel fullness and have more tinnitus.. In December thru February I had my first bout of sciatica and have been seeing a chiropractor plus doing exercises at home and wonder if i did something to that neck muscle.

Again, thanks to both of you..  I appreciate your quick replies.. :D

MLB57:
More drama now..Ugh!  Last 3 weeks my neck muscle on rt side (opened and I guess cut during my 2001 Retro surgery) these muscles are really tight and I have much more pressure down the right side of my face and increased noise..  But what  draws me to write here today is that I have noticed these last 3 weeks a balance issue--I walk every day. several times a day and I am losing balance.. Usta happen occasionally when neck muscles tightened but is really apparent to me now as I try to walk a straight line.  And these neck muscles pull my head and that is what I believe causes me to lose balance.  But also I have started to experience light-headedness.. Went to ER last week..all work-up okay.. Discharge papers call lightheadedness "Dizziness"  interesting.. So I get these almost daily spells of lightheadedness,, goes away but balance still not right..

I e-mailed Dr Loeffler who responded back that he was not too concerned but has his staff order an MRI for next week the said "just to be extra safe".. (My next MRI would have  been April of 2018)..

So I am relieved yet anxious..I had FSR 6 yrs after surgery due to tumor re-growing.. so if I need more treatment..well..I don't want to think about it..   Thankful I can have the MRI as it will tell the story..


Will update as I know..

Mary/AKSAGrammy :o

Navigation

[0] Message Index

[#] Next page