ANA Discussion Forum

General Category => AN Issues => Topic started by: lmurray69 on December 19, 2006, 09:26:25 pm

Title: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: lmurray69 on December 19, 2006, 09:26:25 pm

 You all know that i got rid of my 5 DRs I had and went to house. Well now that I am home .what kind of DR do i go see.. Neurosurgeon . nero. or ent.. OR primary MD..Linda

Title: Re: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: Angieshubbie on December 19, 2006, 09:48:24 pm

I would go to a doctor that understands your problems.  One that sends you back to the MRI to make sure it has not come back.  But, whoever you go to make sure that they have your pre-opt, surgery and post-op notes.  So, they can back and look at your case (you know, everyone is different).  I know that is hard, I have 5.  I just wish that they all get together and have a party and discuss things.  It is frustrating, you get one telling you one thing and another telling you something else.

Whatever you decide GOOD LUCK!!!!

Angie

Title: Re: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: Dzimy on December 19, 2006, 11:01:50 pm

I feel very fortunate to live so close to HEI.  I have contonued to see my neurologist.  He just had me get my first post op MRI at 3 months. He mentioned getting another in 6 more months.  I think that is due to leaving approx. 5% of my AN.  My only post op situation is no taste.  Donna

Title: Re: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: Battyp on December 19, 2006, 11:20:39 pm

Hi Linda.  I know for me post op I saw my GP, surgeon, ENT, and a neurologist.  I was having a lot of problems at the time.  I'm now down to just my surgeon.  With yours being so far away you want to find someone local who will listen and understand what you've been threw and do the needed follow ups.  I know everyone's mri follow ups have been different.  I've had them at 6 weeks 3 mos, 9 mos, and my next one is two days after xmas.  Like Angieshusband said...make sure you get copies of your pre & post op notes to share with who ever you decide on.  The ent did the most good for me.  He's since discharged me and as soon as the surgeon feels I'm ready to go back to work then he'll do the same.  I was told I'd need mris' the rest of my life.

Title: Re: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: Brendalu on December 20, 2006, 06:05:53 am

Linda,
I see a neurologist and my pcp.  Mainly because they both listen.  They have all of my records and are working with me to help me understand and cope with the problems I am still having.  I also see a "shrink" and a therapist because I really have a difficult time coping with the losses.  I am not a very acccepting person.  I would say if you don't feel comfortable with the doctor in the first fifteen minutes he or she is probably not the right one for you.  Good luck!
BrendaO

Title: Re: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: Sam Rush on December 20, 2006, 10:32:20 am

ENT  to check BAHA site,   Call HEI DR. Brackmann for any other problems

Title: Re: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: lmurray69 on December 20, 2006, 01:45:43 pm

I went back to my pcp and he didnt have a clue..I am diabetic, and all he could say was well keep checkig.. My sugar run high, wouldnt you think someone would send me to a dietiction to help control. I said I am haveing head aches asked for imitrex and he said ,you dont want to take that get a aspirin..I am on blood thinners, and dont take aspirin..He told me this morning I needed a specialest. I asked him to refer me he said call around.Grrrrrrrrrrrrrrrrrr!

Title: Re: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: Windsong on December 20, 2006, 01:49:05 pm

I see my radiation oncologist. As i have other health issues i see specialists in those disciplines ;  a neurotologist; neurologist;  plus a few more plus my gp for general things. I'm an expensive patient  ;D what is that phrase? a high maintenance girl hehehehehehehe
W.

Title: Re: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: lmurray69 on December 20, 2006, 01:50:51 pm

windsong, i agree high matiance thats me too

Title: Re: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: Jim Scott on December 20, 2006, 02:55:54 pm

I'll be seeing my radiation oncologist, neurosurgeon and Primary Care Physician approximately every six months, including an MRI scan, for some time, probably another 3 years or so.  This will continue until the surgeon and radiation oncologist are satisfied that the AN shows no sign of re-growth.  I'll be getting semi-annual MRI scans for the next 3 to 5 years.  Yearly, after that.   I can deal with it.

Jim[/color]

Title: Re: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: krbonner on December 20, 2006, 03:07:37 pm

If I wasn't having continuing problems with numbness in my hand, I'd be discharged from my neurosurgeon's service.  All follow-up care (yearly MRIs, etc.) will be done through the neuro-ENT for me.  My PCP is wonderful, but she freely admits she knows nothing about ANs (I'm her first patient to have one) so is happy for me to follow-up with McKenna.

Katie

Title: Re: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: redgrl on December 20, 2006, 03:19:07 pm

Who do you turn to when you feel your ENT isn't listening?  :-\

Title: Re: What kind of DR do you see now that the tumor is gone..?ent or what?
Post by: Jim Scott on December 20, 2006, 03:49:47 pm

Quote from: redgrl on December 20, 2006, 03:19:07 pm

Who do you turn to when you feel your ENT isn't listening?  :-\

Seriously consider finding a new ENT - or simply rely on your PCP and/or neurosurgeon/radiation oncologist.