ANA Discussion Forum

General Category => AN Issues => Topic started by: deb minor on October 28, 2009, 07:53:15 pm

Title: newbie here just glad to talk with others like myself
Post by: deb minor on October 28, 2009, 07:53:15 pm: Hi I'm a newbie, Just found your site today.Sorry but glad there are people out there like myself that can give others support and advice.
Title: Re: newbie here just glad to talk with others like myself
Post by: wendysig on October 29, 2009, 06:09:48 am: Hi Deb and welcome.

I'm sorry to see you already been through so much. What type of treatment did you have for your AN previously and are you considering treatment again or just watching and waiting for now? Feel free to ask any qustions or just vent. We are here for you.

Wendy
Title: Re: newbie here just glad to talk with others like myself
Post by: leapyrtwins on October 29, 2009, 07:14:15 am: Hi Deb.

Glad you found us too ;D There's nothing like being able to connect with others who are, or have been, in the same boat.

Give us a little more detail about your ANs, please. I noticed you had (or have ?) two. Does that mean are you NF2? Have you had treatment or are you watch and wait?

Jan
Title: Re: newbie here just glad to talk with others like myself
Post by: Jim Scott on October 29, 2009, 02:21:20 pm: Hello and welcome, Deb ~

Thanks for joining us - although I'm sorry to learn that you've needed two surgeries and experienced post-op difficulties. We're always eager to offer our support and whatever advice may be appropriate to other AN patients. We're all too aware that having an acoustic neuroma is a relatively rare condition and we know that support is often hard to find, so, using our collective experience and our very personal understanding of the issues involved with an acoustic neuroma, we try to help AN patients, both newly-diagnosed and 'veterans' (like you) whenever the opportunity presents itself. I look forward to your future participation on our forums and I hope your AN-related problems can soon be lessened or resolved.

Jim
Title: Re: newbie here just glad to talk with others like myself
Post by: Vivian B. on October 30, 2009, 12:45:18 pm: Hi Deb,

Welcome. Sorry you had to join us but very glad you did. There are so many of us here now that I am beginning to wonder about this condition being so rare like they say.

Vivian
Title: Re: newbie here just glad to talk with others like myself
Post by: CHD63 on October 30, 2009, 05:30:36 pm: Hi Deb .....

I am so glad you found this forum. You will find it full of understanding and empathetic friends. Tell us a little more about your AN journey. It sounds like you have had more than your share!

Clarice
Title: Re: newbie here just glad to talk with others like myself
Post by: suboo73 on November 03, 2009, 04:41:03 am: Hi Deb,

Welcome to the Forum - there are FANTASTIC folks here, as you have found out!
I hope you find some relief from your headaches & such.

Sending thoughts and prayers your way.

Sue
Title: Re: newbie here just glad to talk with others like myself
Post by: ppearl214 on November 03, 2009, 01:43:12 pm: Quote from: suboo73 on November 03, 2009, 04:41:03 am

...there are FANTASTIC folks here

Sue, am I included in on that comment? ;)

Hi Deb and welcome. You've had a tough journey, but we're here to help if we can. Glad to have you here and if we can be of help, just let us know.

Again, welcome.
Phyl
Title: Re: newbie here just glad to talk with others like myself
Post by: deb minor on November 04, 2009, 06:10:58 pm: very glad there is a place for us! I think sometimes people in general don't understand that just because we still look the same, we don't feel the same as we used to. One of my big issues was that I had a new grand baby that I wasn't comfortable with holding and trying to walk d/t my poor balance.
Title: Re: newbie here just glad to talk with others like myself
Post by: suboo73 on November 04, 2009, 07:18:20 pm: Deb,

Wish i could make it so you could hold your grand baby...i imagine that is very frustrating.
But i bet you will find your own way to be near that precious bundle of joy!
I am so glad you are here and hope you find support and comfort from this Forum Family.

Sincerely,
Sue

-------------------

PS Phyl - FANTASTIC form family, including some FANTASTIC moderators- what more can i say?! ;D
Title: Re: newbie here just glad to talk with others like myself
Post by: lori67 on November 04, 2009, 08:36:30 pm: Welcome Deb and congratulations on the new grandbaby!

Grandma's aren't supposed to walk around with the baby - that's what mom is for! Grandma is supposed to rock the baby and snuggle and just sit and enjoy that little bundle of joy! You probably did enough walking as Mom. Now it's time to relax! :)

Lori
Title: Re: newbie here just glad to talk with others like myself
Post by: CHD63 on November 05, 2009, 03:45:32 pm: Hi Deb .....

I can identify with holding the grandbaby! Even at 19 months post-op, I am a bit uneasy walking and holding a squirmy 9-month-old (our youngest grandbaby) so I do as Lori said, I snuggle and cuddle while sitting/rocking or get on the floor and play with her. I let her mom or dad do the walking/lifting ..... I feel safer that way.

Have fun loving in a creative, but safe way.

Clarice
Title: Re: newbie here just glad to talk with others like myself
Post by: Tricia (horsekayak) on November 07, 2009, 01:16:44 am: Hi and welcome to the best place to be if you need to talk.

I'm newly diagnosed myself and wading thru all kinds of issues. The posts and responses you'll get here will help you center yourself, educate yourself, and be yourself...
I'm glad to make your online acquaintance, and hope to get to know you via the forum.

You will learn so much here, and i really encourage you to sit and work through all the areas in the forum, and read the comments, etc. Amazing folks lurk in these online halls !!!

You really are not alone; that might sound a little trite, but it is the truth, and it is one thing that keeps me going through this roller coaster of emotions related to the AN experience.

Tricia