ANA Discussion Forum
Watch and Wait => For those in the 'watch and wait' status => Topic started by: Gearbox123 on May 25, 2017, 11:00:18 pm
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Hey Everyone, I hope everyone is doing as well as they can? It's been a long time since I posted. My vestibular Swannanoma is only 6mm, 5mm, 4mm last year measurements and have had it for 5 years Watch and Wait . I can't take the balance issues anymore, the pain and pressure are still there but my Balance is just really bad, so I have,to get this done. I am using Dr. Kondziolka @NYU for Gamma Knife June 8th.I have complete faith in his work and his reputation is top notch. I am not nervous but curious about the days after ,because of my Balance issues, I'm just hoping that it won't get worse because I hear that the nerve can swell pretty good which is my only real concern. I have been working out to strengthen my body and I am now retired so I can rest as much as needed , which is great. I know everyone one is different but was curious about anyone with balance issues pre and post Gamma Knife and there recovery time? Thanks and God bless!
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Did Dr Kondziolka say that Gamma Knife will improve you balance or is "everyone different". What are the chances of improvement? What are the changes that things will get worse?
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I had GK with Dr K when he was in Pittsburgh. His reputation as top notch is an understatement, not only with GK but as a brain surgeon. I assumed you talked over your balance issues with him. Sometimes these things can be worse when they are small. The nerves don't swell. In some people that have radio surgery the tumor can swell some. This may or may not cause any different symptoms. After my GK procedure on a 2.6 by 2.2 cm AN mine didn't swell at all. Good luck to you
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Thanks for the replys. Yes Dr. K went over everything hopefully it will be a successful procedure and my balance will improve over time. He mentioned how the tumor might swell or even grow a little bit after Radiation but then shortly after that it should shrink or at the least not grow, that's the hope. Thanks again for the reply and good wishes. All the best!