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Archive => Archives => Topic started by: Battyp on May 04, 2006, 11:18:57 pm

Title: Tongue numbness
Post by: Battyp on May 04, 2006, 11:18:57 pm
Has anyone else had their tongue numb after sugery?  If so did it go away?  Thanks, M
Title: Re: Tongue numbness
Post by: Raydean on May 05, 2006, 04:27:06 am
Goof morning BP

Chet had/has tongue numbness  (tumor side) since surgery and was told that it was due to 5th nerve injury.  Also told that the 5th nerve is a pretty freaky nerve that they don't mess with much.
Being you're still close to surgery  (9 months) I'm hoping that your's is a temporary thing.
Hang in there,  and wishing you all things positive and good.

Raydean
Title: Re: Tongue numbness
Post by: DeniseSmith on May 05, 2006, 06:21:08 am
My left side of my tongue was numb prior to surgery and is still numb.  My doc said it is permanent.  i have learned to ignore it.

D.
Title: Re: Tongue numbness
Post by: Battyp on May 05, 2006, 06:54:39 am
The doctors haven't gotten to permanent yet but were talking nerve graft at a year.  I've been told by a different doc that the nerve graft won't work and it's the trigimenal nerve causing the problem.  I hate the choking on my tongue feeling.  Some days it's really bad.  Wonder what makes it worse on those days.  I keep saying if it went away I'b be doing pretty good  LOL
Title: Re: Tongue numbness
Post by: Sue on May 05, 2006, 11:23:05 am
The AN side of my tongue is numb also. It feels like I burnt it on something hot, especially on the side of the tongue but not to the point of being painful, just to the point of I know it's there.  I had this before the GK, and it is still there. I remember telling my dental hygenist about this on a checkup, 6 months ago. She must have thought I was nuts, and this is because these symptoms, at least for me, have been so hard to explain. So, now that I know more, I guess the nerve endings are creating the feeling that something is seeping into my mouth on the left side - like sinus drainage, or tears and this creates, also, a kind of taste sensation. She checked me over for any damage and found nothing, because I told her I didn't want this "drainage" to be ruining my teeth. So, I have my next dentist appointment next Thursday (also hair and doctor appointment - busy day!) and I can tell them, now, WHY I had all this going on. I have, thankfully, not lost my ability to taste things, but I have noticed that some tastes are different, or diminished, or changed. Perhaps I am only tasting things on the right side now. I had some Bread and Butter pickles and I don't think they tasted as strong to me as before.  That's when I thought, maybe something was different.  I hope it goes away, for both you and me!!   :P
Title: Re: Tongue numbness
Post by: tony on May 05, 2006, 11:46:50 am
Yes lost the touch sensation on my tongue - it came back, but bit at a time, in thirds over  3-6-9mths.
nerves really can take time to mend
best regards
tony
Title: Re: Tongue numbness
Post by: Battyp on May 05, 2006, 01:33:57 pm
Sue I have that gushing stuff too!  Not sure what it is and it's not a constant thing just every couple of days it's like dam broke  LOL  I craved bread and butte pickles after surgery  LOL

Tony I'm 8.5 mos post op and haven't had anything come back on that side.  >:(
Title: Re: Tongue numbness
Post by: Pembo on May 05, 2006, 05:53:47 pm
I have a numbness in my tongue as well. It's been almost 2 years and I can say that I've had the most feeling come back in the last 6 months or so. It is still tingly but better. Hang in there.........
Title: Re: Tongue numbness
Post by: thecakes on May 07, 2006, 07:28:24 pm
  I'm 3 1/2 years post op. and I have a numb tongue on the tumor side in the back.  My dr. talked like it would go away in time but its been  years, I think its here to stay.  My mouth will feel real cold, I hate it.
Title: Re: Tongue numbness
Post by: Battyp on May 07, 2006, 07:32:39 pm
I don't feel hot and cold sensations on my left side which gets real annoying.  I want it gone!  I don't think I'm going to get what I want. I also don't think nerve grafts will make a difference. 
Title: Re: Tongue numbness
Post by: jzgirl on May 08, 2006, 10:29:17 am
Hi, I'm new here.  I had Gamma on 2/27/06. My tongue has a numb
center.Ã? can't taste much salt either. That started right after the procedure. I've got other nasty stuff happening too. I'm wondering if
I could have lived without the gamma, now? jzgirl
Title: Re: Tongue numbness
Post by: mindyandy on August 04, 2008, 10:16:24 am

Hey Sue did you ever get your taste back???


The AN side of my tongue is numb also. It feels like I burnt it on something hot, especially on the side of the tongue but not to the point of being painful, just to the point of I know it's there.  I had this before the GK, and it is still there. I remember telling my dental hygenist about this on a checkup, 6 months ago. She must have thought I was nuts, and this is because these symptoms, at least for me, have been so hard to explain. So, now that I know more, I guess the nerve endings are creating the feeling that something is seeping into my mouth on the left side - like sinus drainage, or tears and this creates, also, a kind of taste sensation. She checked me over for any damage and found nothing, because I told her I didn't want this "drainage" to be ruining my teeth. So, I have my next dentist appointment next Thursday (also hair and doctor appointment - busy day!) and I can tell them, now, WHY I had all this going on. I have, thankfully, not lost my ability to taste things, but I have noticed that some tastes are different, or diminished, or changed. Perhaps I am only tasting things on the right side now. I had some Bread and Butter pickles and I don't think they tasted as strong to me as before.  That's when I thought, maybe something was different.  I hope it goes away, for both you and me!!   :P
Title: Re: Tongue numbness
Post by: lori67 on August 04, 2008, 02:13:08 pm
Half of my tongue feels like I've burnt it too.  My doctor said it probably won't come back, but who knows?  Maybe some day I'll be pleasantly surprised.

I had to have some dental work on my good side a few weeks ago and had to try to chew on my AN side - and realized I couldn't taste a thing.  It was hardly worth the effort to chew!

Lori
Title: Re: Tongue numbness
Post by: MAlegant on August 04, 2008, 05:06:42 pm
Yup, tongue numbness, check.  My tumor was wrapped around the freaky trigeminal so I'm having lots of problems with the uncooperative right side of my face.  Only 3 weeks post-op and trying to be patient. Not my strong suit.  Patience, that is.

Title: Re: Tongue numbness
Post by: chocolatetruffle on August 04, 2008, 07:46:21 pm
same here, the tongue on my left side was numbed after surgery and i got full sensation back in the last month or so.  i could not enjoy my food for a while but now it is either too salty or too sweet, helps me reduce my salt and sugar intake i guess  ;D hang in there!!!
Title: Re: Tongue numbness
Post by: cin605 on September 21, 2008, 05:07:39 pm
my tongue is not numb but half of it is sswollen 7 there is nerve weakness on the same side that swells this is also the OPPOSITE side of surgery.Its gone down a bit but is still very weak & deviated.Very strange.i have appointment w/ nearologist sept.29.ENT saw&had no clue.
Title: Re: Tongue numbness
Post by: jazzfunkanne on September 22, 2008, 09:04:14 am
right side of my tongue is still numb and am coming up for 2 years post op