ANA Discussion Forum
General Category => AN Issues => Topic started by: satman on October 22, 2007, 09:08:47 am
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hey everybody, I have a question ,Most of you know my story but to make
a long story [a real long story] short .I had the cranial nerve jump back in august
and lately I have been feeling some weird things going on in my cheek and I'm
not sure what it is. It feels like a rubber band or something snapping me.
It's hard to explain the exact feeling.
Has anybody ever felt this ,and if so what is it ?
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I think this is good news. I think it means the nerves are beginning to work. I've had similar feelings, almost like getting an electrical shock, as my face has been healing.
Jean
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thanks jeanlea , thats close to the feeling ,it,s alost like
I'm getting popped with a rubberband or something.
when you got it how long before you noticed movement ?
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Hey Super Duper Trooper “8� Satman, ;D
Sounds like you have “Facial synkinesis�
Here is the definition
http://www.answers.com/topic/facial-synkinesis?cat=health
Read what the ANAC (Canadian AN group) says about the facial nerve
Go to this link
http://www.anac.ca/en/dischargeTreatment.shtml
Then Click on “Facial Nerve Information� link
Here are a couple of similar threads on our own ANA forum
http://anausa.org/forum/index.php?topic=5084.msg47996#msg47996
(I am thinking that these sensations are a “good� thing. I think you and “Yardtick� should have a celebration and serve up carrots sticks at AN forum party… here
Read this one (re Yardtick’s post)
http://anausa.org/forum/index.php?topic=5152.0
I had this weird lip twitching and now I can purse my lips, blow kisses ;) and even drink from a straw now (this was around 4 weeks post op) … unfortunately since then I have not had, facially, anything exciting happen and still have the full facial palsy here at 8+ weeks.
When I DO start to get the nose twitches and cheeky rubber band snapping -I plan to have a big ole celebration here on our ANA forum.
The key is to talk 8) about this, don’t get depressed about it … and try to maintain a sense of humor. ;D Laughter can be amazing medicine.
Bring on the rabbit nose twitching… start prepping the carrot sticks…LOL
Signed the impatient patient ::)
“4� :)
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Hi Satman,
My nerve was not cut during surgery even though I had total paralysis on one side afterwards. I started feeling the "shocks" right after surgery, but I didn't have any movement until three months after surgery. My first movements were only measured in millimeters. Now I'm 25 months post-surgery and have a decent smile. I still get the twinges so I hope I will still gain more movement. Sounds like you are on the right path. I wish you good movement in the months to come.
Jean
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Jean,
Oh I like reading these stories... SO pleased to read you are smiling :)
Bring on the "twinges" ;D
"4"
(The impatient patient)
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Same thing here..about 8 weeks post op. Every time I get a facial "tingleing" or little electial shocks I seem to get a little more movement back. Immediately after surg. I had no movement but it improved quite rapidly with facial exercises, except for my mouth, which has improved but at a little slower pace. I had dry eye for about the first 5 weeks, now pretty good, no tears and some numbness around the eye. All in all, it seems like the shocking is good. Yeah, I will take more little shocks. For me it means more healing. Hope it means the same for you.
Claudia
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I have not had the surgery. I do know that when I am having healing going on in my head that is how it feels. It makes you jump from your sit.
I have gone through some good ones the past 3 weeks.
I am 2 years 6 months in recovery. This last week I went to a dentist because for 2 weeks after a plane trip my left side of my jaw and teeth were really hurting.I had no sinuse problems, and the dentist said he couldn't find anything wrong. By the time I saw him the pain had subsided. Then a couple of nights ago , not only with the firing in my head , I all so got up in the middle of the night feeling like I was on a rocking ship. I couldn't stand. I had to grab onto the wall it felt so weird.
I am blaming it all to nerve healing.
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Thanks everybody, as usual I knew you guys
were the ones to come to.
Let the shocks and the good times roll !
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I know this may sound strange, but I have these shock feelings in my deaf ear. Anyone experience that? I never know when it is going to do it. It doesn't hurt, just scare's me. I just had my MRI, and no sign of regrowth. It does it several times a day. Just thought I would ask the experts here. Thanks, BB
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sorry bb,i personally have never felt that,but the day is young.
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BB.
I had the shock in the AN ear start up 3 weeks prior to my surgery.(My hearing was declining rapidly around that time)
Now at 9 weeks post op (today!) I still have this. I notice it every night when I try to settle down to sleep.
Maybe post this under "hearing" and see if there is a reponse from others. I would sure like to know what it is too...
My surgery report indicated that some tumor residual was left there to preserve balance ... gee I hope it is not re-growing. I am due for my 3 month MRI.
4
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Good morning 4, thanks for the previous
links, I found it to be interesting reading.
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Satman,
My story is very similar to Jean's. I was not cut but the tumor compressed my nerves. It does take a while but it does improve. That is def a good sign. Everytime Jean posts a picture she looks better and better she is a mjor inspiration for me not to mention everyone else in this forum, including yourself.
Chri
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Thanks Chris , I to put so much faith in everyone here
including yourself.
I have been keeping up with you progress for quite some time now.
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I still cant get over that you had an 8cm tumor. When I saw my MRI's I was in total shock and mine was only 5.5. I saw you now have the eyeweight. That was a pretty easy procedure eh? Not even in the same ballpark as what u had b4. Anyways, I hope all is well and I look forward to watching us improve.
Chris