ANA Discussion Forum
Post-Treatment => Headaches => Topic started by: Nannybee on August 13, 2013, 04:33:46 pm
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I had my first visit with Neurology today for headaches. Very good experience, which is refreshing after my disastrously disappointing visit at Penn neurotology. After a thorough exam and discussion of the risks/potential benefits we decided to trial Topamax.
I'm aware of the potential nasty side effects, but willing to give it a try to prevent these headaches.
Anyone have experience with Topamax?
Thanks.
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Hi nannybee,
I'm on topomax. My only side effect is that I can't drink sodas any more, they taste horrible. But since starting this med I went from 10-15 migraines a month to 3-4, which are manageable through midrin. I also lost 30 lbs.
My stepmom is also on it and she swears by it, as is my step-aunt. I guess it's our family drug, then again ours is for migraines.
Good luck!
Kristin
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Tried topomax.
Didn't help with facial pain but I got really skinny. (size 2) Currently a 4/6.
The only thing that helps my pain is Imitrex. I also went gluten free and that reduced the headaches/facial aches.
Good luck!
I have been on many Effexor, Neurontin, etc etc and didn't find relief.
Mary
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Tried topomax.
Didn't help with facial pain but I got really skinny.
I'm on topomax. I also lost 30 lbs.
I have to lose another 50 lbs. Send me some of that stuff. ;) ;D ::)
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I was on Topamax for 3 years--lost 25 lbs and helped headaches somewhat, but it didn't touch the relief I got from Botox injections! I found the Topomax very difficult to titrate onto--kept triggering emotional stuff and episodes of depressions. I had to start with the sprinkles--12 mg into applesauce at first and worked my way up to 300 mg a day.
Capt Deb (http://i235.photobucket.com/albums/ee60/Captdeb_photos/emoticon___pirate_by_anya1916.gif) (http://s235.photobucket.com/user/Captdeb_photos/media/emoticon___pirate_by_anya1916.gif.html)