ANA Discussion Forum

Pre-Treatment Options => Pre-Treatment Options => Topic started by: fbarbera on November 22, 2010, 09:58:40 am

Title: What Questions Do You Have For AN Doctors?
Post by: fbarbera on November 22, 2010, 09:58:40 am

Hello All,

I am starting a project of interviewing major AN doctors and having them address the questions faced by new patients about choosing a treatment.  I am in the process of compiling a comprehensive list of questions that I will ask each doctor.  My intention is to address directly the major questions and concerns  that us AN patients have when we get diagnosed and need to decide on a treatment and a medical team.

I would love your support and assistance with this project. 

If you are able, please email me a list of all the questions you would like addressed by doctors in connection with selecting a treatment.  These could address the surgery/radiation decision, post-treatment, risks and side effects, etc.

I hope this project is of benefit to our AN community and appreciate your input.

Thank you!

Francesco

Title: Re: What Questions Do You Have For AN Doctors?
Post by: CHD63 on November 22, 2010, 12:05:35 pm

Francesco .....

I am assuming you are including the questions listed on the ANA web site:  http://anausa.org/questions_for_physician.shtml

They are the ones I used when interviewing physicians pre-treatment.

Clarice

Title: Re: What Questions Do You Have For AN Doctors?
Post by: leapyrtwins on November 22, 2010, 10:34:20 pm

Francesco -

I was going to suggest contacting the ANA for their list, but I see Clarice has beaten me to it  ;D

Jan

Title: Re: What Questions Do You Have For AN Doctors?
Post by: Tumbleweed on November 22, 2010, 11:26:21 pm

Hi, Francesco:

It's good to see you posting here again.

Here is a link to the questions I had soon after I was diagnosed three years ago:
http://anausa.org/forum/index.php?topic=5783.0

Some of the questions may not be helpful or relevant. I was not totally up-to-speed about all my options back then. But I guess that's kinda the point.

Best wishes,
TW

Title: Re: What Questions Do You Have For AN Doctors?
Post by: ppearl214 on November 23, 2010, 05:34:00 am

Francesco!!!!!!!!!!!!!!!  :-*  :-*  :-*  Oh, how I have missed you!!!!!!!!!!  :-*  :-*  :-*

Ok, I'm in the same mind process as you. I've been asked to be a guest speaker at a radio-conference in San Fran in Feb with almost the same topic. ("almost" is the key word).  I'm to give a 20 min talk (to the general assembly... oy!) talking about AN journeys, choosing a treatment option (esp radio, but not limited to), how the treatment decision was made but most importantly, the post-treatment care (the good, the bad and trust me, the fugly).  Thread in "Radiation/Radiosurgery" forum.... would LOVE your inputs!.  

I want to follow your project as well (not to copy info but just to see how folks respond on this topic) and I know you are going to do great with this.

BTW, Skype? :)

xoxo
Phyl

Title: Re: What Questions Do You Have For AN Doctors?
Post by: fbarbera on November 24, 2010, 07:59:53 am

Thank you all for your responses - very helpful!

Phyl, You are so kind - and what a great service you are providing with your talk.  I am happy to talk via Skype or phone any time!  I'll send a private email with my contact info.

Blessings to all for a wonderful Thanksgiving.

Francesco