General Category > AN Issues

Thinking a lot about surgery and the facial nerve

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catlover:
Hi,
Thanks for all support! I haven't been thinking so much about the surgery today, thanks to all of you wonderful people!  :) :) It's amazing how much support you always get on this forum when you have wonders, questions and feel pure fear. Thanks! It really helps me and I always feel better and handle my feelings in a different and more positive way afterwards. You are such great folks all of you!  :) :) :)

To Alicia I would like to say welcome and it seems like we are in the same situation - waiting, wondering and being afraid now and then. Most of the time i rely on the doctors that they always do their best to help us, but sometimes, like the other day, I just start wondering what if and then the feelings are stuck in a negative whorl and then it's time to chat on the forum! Don't misunderstand me, it's okey to chat about positive things too, of course!  :D

I wish you all a good day tomorrow! (It's 11.10 pm in Sweden and I'm going to bed)

Hugs from Helene  :)

MAlegant:
Hi,
I had a large tumor, retrosigmoid and no facial damage.  I have very slight weakness but only I notice it and I'm still hoping it will resolve.  If not, that's fine, I can deal with it.  Of course facial paralysis is a big fear, but it's almost always temporary and in the event it isn't, there a lot of procedures out there that can help.  Be well.
Marci

Abdul G.:
Dear All,

I am so sorry to hear there are many people had been diagnosed with AN and after the operation had the facial nerve issues.

Well, first 2001 I started to feel fullness in my both ears. Than continued to feel on my left one. Thanks GOD the right one was saved, somehow.
After that fullness leaved to whistle. I went to ear DR. and they all said I am healthy and all looks in order.
But I was so annoying with the feelings I got in my left ear. And the said thing NO BODY told me to get MR scanned.
Until that time I was the healthiest person and never gone to doctor and never stayed at home due to any of illness (of course thanks GOD)

Than 2005 I advised to another DR who my cousin. So, he confirmed and I have scanned. After scanning been told to visit a brain surgery
So, we got the news on spring of 2005 that I do have 3cm tumor and been called AN located on my left side of Cerebellum.
He was good man and he didn’t worried me. And I were at the age of begg. of 30’s. and advices I should be getting operated soon or later.
And I had to do it when I am young cause the older you get the risky I have for operations and could be dangerous for many things if I keep
It inside.

We waited the right time and started to search a good doctor who can do it with success.
I went to a doctor and he looked at my scan than looked at me. I never forget this look and made me dying at this moment.
He told me the riskiness. After he examine me I quickly left and I was sooooooo down while I was walking on the street and on the way going home.
Than we found a BETTER specialist who had done many operation with success of  AN. Mr. Necmettin Tanrıover (May GOD bless him) in ISTANBUL.
So, he calmed me down and the way he examined me and treated me was great and made me to TRUST him so much. Well this is so important that
You TRUST to your doctor. When the time came I guess it was 7th of JAN, 2007 had my surgery. Operation started 08am and finished 19pm…
The reason took so long (I guess) either they worked SO SLOWLY to reach the tumor to kill it and/or it was a university hospital and I have signed that
My operation may be showing during the lessons and can be filmed.

So, the operation done and I have stayed a night at the intensive care room. I was on my conscious remembering and seeing all. The pain I was feeling
Due to long time laying there my right chest and right hips (I think they laid me down on my right) was burning and killing me.
Thanks GOD all was OK and next morning they carried me to my room. My DR came and gave me the water to drink and stood me up for a short while
And he said operation went well and all is secured in there. 

Of course before the operation he told me what I may get after the operation like facial & hearing nerve  damages. So, he said their 1st aim to keep the facial
Nerve in one piece and they would cut the hearing nerve is necessary to keep save the facial nerve. Because the tumor was holding both nerves and
to take the tumor off we would sacrifice one of it. And that should be hearing nerve. So they did. But during the operation the facial nerve damaged so much
and got thinner this is way now I am having this paralyzing issue. Of course its DEVELOPED since operation. Cause I remember I couldn’t eat and chew
and I was always biting my lips and tongue…. I do it even now but not as much as before 

So, after 7 yrs THANKS GOD I am fine strong and healthy. But I still feel the operation on my back. And Paralyzing is still on my left side of my face.
Thanks GOD I am a MAN so I can leave beard to cover it  its more obvious when I am shaved.  Of course before operation I had balance issues
And its all gone after the operation.

Well, now a days I am thinking how I can get recovered my facial nerve and get it working. I do have a friend in Paris and he had same issues
But his doctor made another operation that took off his tongue nerve and bound with face nerve so his face 90% was cured and shaped.
But he lost the movement of one side of his tongue. Of course its better than loosing the look  but he also told me that they could split the
Nerve in to two part and they can still keep the tongue nerve and bind the other part to the facial nerve to work it out.

SO ALL I WANNA KNOW TO SPLIT THE TONGUE NERVE IN TO TWO PARTS AND KEEP THE TONGUE NERVE AND BIND THE OTHER TO THE FACIAL NERVE
TO GET WORK OUT BOTH PARTS.?

Thanks for your kind listening and helping and advising us….

Cheers,
Abdul G.

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