Post-Treatment > Cognitive/Emotional Issues

Dementia/memory loss

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Hannahvhart:
Hello, my name is Hannah. I was 11 years old when I had my acoustic neuroma surgically removed. It was 2cm long and 11/2cm across. It was located on the left side. I am 23 years old now and I’m suffering from significant memory loss. I cannot remember names, I forget how to spell words. It’s become a big problem in my life. I was wondering if being deaf in one (or both) ears can cause some of your brain to “deactivate”” causing this memory loss. Has anyone else experienced this? Is there anything I can do to help?

donjehle:
Hi Hannah, and thanks for sharing your experience on the Forums!

I am so sad that you had to experience an acoustic neuroma as an 11-year-old!  My heart goes out to you.

Now a dozen years later, you are a veteran here on our Forums!

I am not a physician, but I am not aware of this being a common side effect of AN surgery.  Did your memory loss just start recently?  Or have you had it for a while?

Hopefully, others who have had surgery a dozen or more years ago can comment on their experience with memory loss, and if they have had any success with minimizing any memory loss.

Best wishes on your journey!
Don

Jill Marie:
Hi Hannah,  I was 36 when I had my tumor surgery and I will be 67 in a week.  I'm completely deaf in my left ear due to the surgery.  I haven't had any memory loss because of being deaf.  I hope you are able to find someone that can help you figure out why you are having memory loss.  I know I have read about others on the board having memory loss issues, hopefully as Don said some will post to give you ideas on what could be causing it and how to help alleviate the problem.

Please let us know how you are doing and what you learn.  Jill Marie  :)

Hannahvhart:
Hi everyone, thanks for your comments! I’m glad not a lot of people are struggling with memory loss. I appreciate your response very much! Every bit helps!
In response to Don, I have been battling with very minor memory loss up until the past year. It has gotten tremendously worse. I’ve went to the doctors but they haven’t had much to say on the matter. Others understanding what it is like to have an acoustic neuroma are much easier for me to relate to!

Groylance:
Hi, Hannah! I had my surgery just over 3 years ago and my memory is getting pretty frustrating. I’m 38, and worried that I won’t be able to stay in my career if it keeps deteriorating. I guess all we can do is hang in there.

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