ANA Discussion Forum
Treatment Options => Microsurgical Options => Topic started by: TaraT on February 23, 2009, 02:12:07 pm
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I posted in another thread and wanted to reintroduce myself. Thanks to Steve, SteveK and Mitch for your comforting words. SteveK and Mitch -- It is nice to hear about your experiences in Pittsburgh. Steve -- I love the hat!
I had been lurking around here for over a week and got up the courage to post and here is my story: My name is Tara and live in Somerset, PA. I am 38. I was diagnosed with a right-sided 2 cm AN on 1/7/09. I was referred to Dr. Chen in Pittsburgh. I was told by my ENT that he is one of the best. He is wonderful. On Thursday, I have to go to the Pittsburgh Hearing and Balance Institute for some testing. I am meeting with Dr. Aziz later in the day. I am going to have translab surgery and it is scheduled for 3/24/09 at Allegheny General Hospital. This whole diagnosis was a bit of a shock. I have never heard of it before. It is kind of weird though because when you start talking about it you find more people that have heard of it.
Prior to being diagnosed, I had ringing in my ear for about 2 years and slight hearing loss. I thought it was because at the time I was doing medical transcription. In 10/08, my tongue got tingly and the family doctor said it was nothing. I went to an ENT in 12/08 and told her about my tingly tongue and the right side of my face was a little numb and she sent me for an MRI and here I am. The decision for translab sounded to be the best option for me.
29 days and counting. My family has been great. Everyone is going to help out with our 10-year-old. He is really my greatest concern. As long as he is taken care of is all that really matters to me. I pretty much just told him I have to have surgery and I won't be able to hear out of my right ear and he will have to speak up beause he loves to mumble.
Well, I look forward to getting to know all of you. Take care!
Tara
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Welcome, Tara, to the little group that no one WANTS to be part of but is wonderful none the less! I know it is a bit shocking at first, but it will all turn out OK in the end! Feel free to ask any questions here - we are very open to ANYTHING and just really want to help you make it thru this journey!
K
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Hi Tara and welcome.
Sounds like you've had a lot thrown your way all at once, huh? I've been there! I'm glad to hear your family is being so helpful and I'm sure your on will do okay. I have 4 kids and they all seem to have survived Mom's trauma. My 17 year old son tends to mumble too, so if nothing else, I've broken him of that habit a bit. He knows I can't hear him, so if he doesn't want to have to keep repeating himself, he'd better say it clearly the first time!!
I have a niece named Tara - she was only 1lb at birth - and now she's in the Marine Corps - so Tara's are fighters! ;)
Hang in there and keep us posted!
Lori
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Tara:
Welcome!
I didn't know either what an AN was until I got one. It has certainly changed my life. Change can be good or bad. I choose to make mine good. There are good days and there are bad days. But as time passes, the good one outnumber the bad.
I too look forward to getting to know you, and you will find that there is an immense amount if information and experiences to be shared on this forum.
Take care.
Syl
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Hi, Tara! Welcome to the site. You've already taken care of what most of us thought was the hardest part of this whole AN thing, making your treatment decision and scheduling your surgery! If you have any questions as you wait for Mar 24th, do let us know. We'll help as best we can.
Good luck and hope you'll stick around with us,
Cindy
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Hi Tara -- welcome from an old Pittsburgh boy. As I mentioned in the other thread, I was born in AGH -- just about the time you're having surgery -- 60 years ago.
You found a good place here for advice and support. I had a Translab too. And as dad who has had hearing problems for 20 years, I have raised a 26 yo daughter who developed a booming stage voice -- she had to compensate over the years.
You'll also find on the Forum a number of young parents who had surgery -- they can give you help on how to deal with children as you go though the surgery and recovery.
Best wishes -- we're all here to help.
David
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BTW, please make sure to put your surgery date on our calendar -- you can find the link on my signature line down there:
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Welcome Tara!
Glad you found us... sorry you have an AN. We understand and are here for you.
Michelle ;D
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Tara, welcome....sounds like you're well on your way having already gotten your diagnosis, surgery technique, and surgery date. I'm sure you'll do well. Ask any questions on this site. There's a great group of people here who can help or point you in the right direction.
Patrick
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Thank you so much for the welcome everybody. I was grinning from ear to ear when I saw all of the support. You guys are great. It is a terrible bump in life and it is so nice not to do it alone.
Tara
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Hi, Tara:
Forgive my tardiness at responding to your introductory post. I'm pleased to learn that you seem to have things well in hand. We've all been through the initial shock and awe at finding out that we have a benign tumor in our head. However, as you can see, many folks have been through this and come out just fine. The surgery has risks, as all surgeries do, but it's necessary and effective. I underwent both surgery and radiation, and I did just fine. I was also a quite a bit older than you but suffered no complications or ill effects from the surgery or the subsequent radiation. I trust you'll have a similar experience.
Please consider this site and these forums as a resource and the folks that post here as family. We want to help in whatever way we can - and no question is dumb. :)
Jim
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Hi Tara,
Welcome and congratulations in joining this friendly and very exclusive club! Your diagnosis time frame, size of AN, and the urgency of treatment is almost a mirror to me. I don't have the added stress of childcare because my wife is a whizz at keeping things organized around the house for our three kids. Of course she is an accountant too so that goes with the territory! However, just like you mentioned, we have had extraordinary support from the extended family, close friends, neighbors, etc etc. To say that these offers of help are heart warming is a gross understatement. I've been near tears with some of the offers of support. I'm sure that your 10yr old will be fine and probably entertained pretty well throughout your recovery period. Good luck and relax; spring is right around the corner. Before you know it, we will be with the kids at the beach this summer.
Good luck and best wishes,
Steve
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Hi, Tara ;D
Nice to meet you! Sorry about the AN.
My twins were 11 when I had my surgery - they'll be 13 this weekend - and they did quite well with it. I found that one of the best ways for them to cope was to keep them busy and have lots of family there for them; sounds like you've already figured that part out :)
My surgery left me SSD and I found that I just couldn't cope with the mumbling - both at home and at work - so I had a BAHA implant. It was one of the best health care decisions I ever made. So if you find that SSD isn't for you, don't hesitate to look into options.
Also, please don't hesitate to ask us anything. Most of us have been in your shoes, and we always have a lot to say :D so don't be shy!
Jan
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Tara;
Our situations are very similar, if there is such a thing with AN's. I had a similar sized AN on my right side, I'm a 39 year old male, married, no kids. It was removed 1/16/09 with translab, by Dr. Kartush at Michigan Ear institute.
My recovery was nothing short of remarkable; Out of the hospital in three days, I was at work (desk job) in two and a half weeks, full time in three. I was able to again pursue my passion, downhill skiing three weeks to the day! I hope you have a similar recovery. If your doctor has you doing any eye excerises, make sure you do them. Go into this with a positive attitude, set goals for your stages of recovery, and have a great support systme at home.
There will be fatique, nothing you can do about that other than listen to your body. Single sided deafness isn't that big of a deal, it's a little fustrating in resturants, etc. but overall it's not a big deal. I know you'll do great!
Feel free to contact me with any questions, good luck!
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Welcome Tara! I was diagnosed 3 weeks ago with a 2.1 AN and will be having translab on April 1st in Salt Lake City, UT. I look forward to getting to know you more. Its a little frightening for things to be moving this fast but at the same time I'm relieved to be moving forward, lessens the worry time, you know? I'm sorry that we have this but I'm glad to know other people to share it with. Best wishes.
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Welcome Tara! I have family in Pittsburgh (actually, Sarver just outside of Pittsburgh) and have been to the area (from North Hills to Sarver to downtown Pittsburgh and everywhere in the area). I have two small kids (3 and 9) and both took the whole ordeal in stride. My youngest actually said that a man hit me when we got into a fight (referring to my scar). Kids are resilient and yours will be too.
Welcome to the group and this forum!
Regards,
Brian
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Hi everyone! I think I am now ready for my surgery on March 24th. Well, not really but as ready as I will ever be. I went to the Hearing and Balance Institute in Pittsburgh on Thursday. I had an ENG and the technician said that the balance mechanism on the right side is pretty well damaged which is a good thing since I am having a translab. I had some other tests. I then met with Dr. Aziz, the neurosurgeon. I have to say that he is wonderful. He is so kind and compassionate. He made me feel so good. He pretty much said everything is going to be okay and I think I needed to hear that. On Friday, I went and had the preop testing done (EKG, chest x-ray, blood work) and an echocardiogram. Today, I had my physical by the family doctor. I want to say again that you guys are great. It is nice not to be "alone." Take care!
Tara
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Great that you feel comfortable with your doc. Since the balance mechanism on the right side is pretty well damaged, hopefully you have been compensating on the other side. So when you have your surgery, hopefully you won't have a big prob with vertigo post op, which is normal. I had NO vertigo/dizziness other than what I had prior to surgery, because I had compensated on the other side. Hang in there :)
Maureen
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Tara
As you know. I also had Dr Aziz and Dr Chen. Your pre op schedule was similar to mine. The tech told me my balance nerve was damaged also, but be prepared for a few days or weeks to get used to the balance issuses. I had a great outcoming and I am sure you will also. I will have Dr Chen implant a BAHA on 4/17, by then you will be a long into your recovery.
Good luck.
Mitvh
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hi Tara,
I was diagnosed with a 4 cm AN end of Jan, had surgery (translab) 2/11. I am 3 weeks post op tomorrow!!! I am doing really well, my strength is coming back and i am starting to really get into the swing of being mommy again...I have a 6, 3 and 7 month old. They have all done really well, I was even able to continue nursing the 7 month old!!! YAY! You will do great, and so will your son. Before you know it, youll be on the other side of this surgery and be able to start putting this all behind you. Hugs.
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Hi Tara,
It sounds like you are all set. All that remains is to see what adjective David comes up with for the week of March 22, when he does the weekly round up. You'll be in there, and we will be rooting for you!
Steve
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TaraT, right there with ya. I've been diagnosed with 3cm AN right side a week ago. Your surgery was 3 days ago! Hope all went well. Let us know how you're donig when you get up and running again. Best wishes.