ANA Discussion Forum

AN Community => AN Community => Topic started by: arianhrod333 on July 19, 2010, 06:55:04 am

Title: A follow up and advice for newbies.
Post by: arianhrod333 on July 19, 2010, 06:55:04 am
I originally joined becaue my ENT thought I might have an AN. Its always disturbing when someone tells you there might be a tumor in your ear, go home and wait. At the time I didn'thave insurance and wasn't sure what to do. Thie resources on here helped me find a way. After it was discovered that I didn't have an AN my ENT told me to go home, the hearing and balance issues would probably go away and, if not, I could always come back. Jerk. Lol. Several bouts of vertigo, a few falls, shin pain and several tests later, I'd had enough. I sucked it up, signed up for insurance I really can't afford, and now have a doctor with 30 yrs of experience behind him. They tested my balance with the ENG (failed miserably) and was able to diagnose me with BPPV. So how does this help those of you with possible AN's? I've learned that with patience, a loud demanding voice, and following your gut instinct you can get answers. I've also learned that digging in and facing the possibilites is far less scarier than not knowing. If you have an AN and have found this group know that you have a family in these ppl. No worries, just lots of faith.  :)
Title: Re: A follow up and advice for newbies.
Post by: Jim Scott on July 19, 2010, 12:11:34 pm
arianhrod333 ~

Although I'm sorry to learn about your BPPV (Benign Paroxysmal Positional Vertigo...try saying that 3 times, quickly) I'm relieved that you don't have an acoustic neuroma.  The ENT was clueless and, apparently, a bit insensitive to your problem.  However, I'm delighted that you were able to access medical insurance and, eventually, find a good doctor that was able to offer you a diagnosis.  Your advice for 'newbies' is apt and appreciated.  We thank you for your contributions to these forums.  Stay well.

Jim
Title: Re: A follow up and advice for newbies.
Post by: suboo73 on July 20, 2010, 05:01:48 am
Hi arianhrod333!

Well, it sounds like your ENT must be related to the first two i saw!  ;D

Anyway, it was really great that you posted your experiences so other newbies can learn faster and skip the endless waiting game.
[Been there, done that!]

I believe that knowledge is power, so i am glad you are getting to the root of your own problems with BPPV.
Best wishes that you can get some help and learn what you can do for this condition.

Sincerely,
Sue
Title: Re: A follow up and advice for newbies.
Post by: Captain Deb on July 24, 2010, 07:59:09 pm
Just wondering if you've had a contrast MRI, which is the only definitive way to rule out an AN.

Capt Deb
Title: Re: A follow up and advice for newbies.
Post by: SML on July 31, 2010, 10:10:43 am
Thank you arianhrod333 for posting this thread. Because of you I was able to diagnose what was going on with me (BPPV) very quickly.

My husband Rich had just read this thread while researching for his “this week” update and after finding out a little more about BPPV, realized the symptoms for Benign Paroxysmal Positional Vertigo were exactly the same symptoms I was complaining about.

Because of you I was able to keep a cool head and not panic.

My doctor just confirmed I have BPPV and I am using the Elpey maneuver to try to move those crystals.

Information is a powerful thing! Thanks again!