ANA Discussion Forum

General Category => Hearing Issues => Topic started by: ppearl214 on April 06, 2010, 06:17:09 am

Title: Clinical Trial in AZ for Tinnitus
Post by: ppearl214 on April 06, 2010, 06:17:09 am

cross posted in CK Patient Forums (in the "Acoustic Neuroma" subforum) by Dr. Medbery:

If any of you live within 50 miles of Gilbert AZ and are interested in a clinical trial of a drug for tinnitus: http://www.clinicalconnection.com/PatientViewStudy6254.aspx
 
Phyl

Title: Re: Clinical Trial in AZ for Tinnitus
Post by: cindyj on April 06, 2010, 06:53:47 am

Darn, wish I lived in AZ...would be very interested in participating...hope someone here can do it.  Who's in AZ?  Know of Mary (MaryBKAriz).  Haven't seen her for awhile, I'll try to send her a PM to let her know about it...anyone else out there?

Cindy

Title: Re: Clinical Trial in AZ for Tinnitus
Post by: newmommyLA on April 06, 2010, 09:31:20 am

This is for neramexane, I believe.  There are locations all over the country doing this trial including Burbank, CA where I tried to participate.  I was ineligible because I'd had a brain tumor and surgery.  I've tried to participate in a number of trials, but have never been accepted b/c of my AN.  Very annoying!

Amy

Title: Re: Clinical Trial in AZ for Tinnitus
Post by: leapyrtwins on April 06, 2010, 04:41:47 pm

Hey, does anyone know if MaryBKAriz suffers from tinnitus? 

Haven't seen her on the Forum in a while, but she may be interested in this.

Perhaps I should PM her?

Jan

Title: Re: Clinical Trial in AZ for Tinnitus
Post by: cindyj on April 07, 2010, 08:23:35 am

I sent Mary a PM yesterday, Jan...can't remember if tinnitus is an issue for or or not, but sent it to her anyway...

Cindy

Title: Re: Clinical Trial in AZ for Tinnitus
Post by: leapyrtwins on April 07, 2010, 12:56:33 pm

Thanks, Cindy  ;D

Title: Re: Clinical Trial in AZ for Tinnitus
Post by: moe on April 07, 2010, 11:17:03 pm

Most people who have tinnitus and are SSD are not eligible to participate as I understand it >:(
Maureen

Title: Re: Clinical Trial in AZ for Tinnitus
Post by: jaylogs on April 08, 2010, 12:34:17 am

Hey, I am in Phoenix!!! I live in the next town over from Gilbert AND I have tinnitus...I might try this!! I'll let you all know!
Jay

Title: Re: Clinical Trial in AZ for Tinnitus
Post by: cindyj on April 12, 2010, 02:33:15 pm

Please do let us know if you get in the trial and how it goes!

Cindy

Title: Re: Clinical Trial in AZ for Tinnitus
Post by: jaylogs on April 12, 2010, 03:30:21 pm

Well...that one was short lived! I didn't even get past the first question...which was "How long have you had your tinnitus?" In my case, it's been about 4 years now.  They want people who are under a year. I guess I don't understand what difference it makes whether you've had it for 1 month or 30 years.  Oh well, better luck next time! :)
Jay