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Are there people in there 20/30's here with AN

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davebanninga:
Hi everyone,

Are there people on this board aged around 20-35 y.o  with a spontaneous AN.
I feel quite lonely at my age having this issue, i'm truly great-full for all of you sharing your experience and stories and i learn a lot from it its been a blessing finding this forum.

but i wonder if there is someone my age on this board.

I'm 29, and have a cystic AN sized 40mm i have yet to find someone my age and size, if there is any one out there contact me i would love to talk, i'm curious how you cope with things the average age is usually higher, also in my own circle of friends its usually their grandparents who have had a similar condition.

their experience is something i'm really grateful for, yet they are in a different stage of life dealing with other problems then a young adult might be dealing with, when it comes to friends and social life and work for instance.
i've also read treatment options differ with age, a young adult is more likely to be advised surgery.

Maybe there are people here that found out on a young age similar to mine, and are older now 40/50's how did your life change how did you go through young adulthood with this thing in your head.

What's the biggest size that came across this board, and if you had a big one how did you recover from surgery.

donjehle:
You are correct, davbanninga, that the vast majority of AN patients are much older than you are.  However, there are those like yourself who post on the forums that they are in their twenties or thirties and were diagnosed with an acoustic neuroma.  Generally, the treatment plan for a young person could be different than that for those of us who are elderly.  That is something to speak to your specialist about.

A lot of the time, those who are younger will post their exact age (as you did), but some will do a general, "I'm in my twenties (or thirties)" post.  Let me share with you how to find those posts:

You have to go to the Home page of the forums (as the search will not work properly from this page).  Click on where it says, "Home" on the top left of this page.  Then on the right side will be a Search box.  Type in whatever you want to search for.  You can type in "twenties" for example, and it will list every post where someone used the word "twenties" in their post.  Some of those posts will have nothing to do with what you are looking for, so you will still have to scroll through them to make sure they are relevant.  You could even search for "29" just to see if there was anyone your same age.

Not all young people post on the forums.  Many more read what is posted, but never post anything themselves.  But, nonetheless, I have seen a number of young people over the last year who were in their twenties or thirties post messages about their experience here on the forum.  Searching for the different ages from 20-39 could be cumbersome, but you will discover that you are not alone.

I wish you all the best on this journey!
Don

donjehle:
After I posted this, I went to the Home page and searched for "29", and the search results listed every "29" in the forums including dates that had the number 29 in them.  However, I did see a number of people who said they were 29 years old.  You might want to look at those posts and see what they had to say.

davebanninga:
Thanks Don, i will try that!

donjehle:
Hi davebanninga,

jordybutt is younger than you.  She is only 23.  But her story is like a lot of young people who are diagnosed with an acoustic neuroma.

Read her one post here:
https://www.anausa.org/smf/index.php?topic=25305.msg979783463#msg979783463

And then read her post today:
https://www.anausa.org/smf/index.php?topic=25334.0

She started out scared (liked the rest of us), but has really grown in her understanding of what needed to be done.  I think she is an inspiration to the rest of us!

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