ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: mwatto on October 04, 2020, 10:30:18 pm
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Just had report on second MRI and I asked for focus on the two small cystic components specifically this time as I was most anxious re these. My AN has again shrunk slightly and is off the brainstem - AND- there are "no cystic aspects visualised" my professor said its wonderful how my body is healing and confirmed that twice in the report no cysts sighted was mentioned (I have a copy now). Its really incredible to me! Has this happened to anyone else after radiation?
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mwatto - that is great news and so happy for you. I would love to know if you are doing any particular vitamins or meditation, etc. Anything is always worth trying if it is working for someone.
GB
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Great news Michele !
Yes I had one cyst that shrank and dissipated over time after CK.
Be well,
Stella
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Hi Stella and GB - I am looking into Honopure now but I currently take boswellia, bromelain and melatonin. I also take D3 and querectin - am bad with supplements I often dont take every day. Am wondering if Honopure is ok after radiation as its an antioxidant...and radiation works through oxidisation.
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mwatto,
I had not heard of honopure, so had to look it up. From what I was reading it is good for cellular regeneration and cancer patients.
I would be curious of your thoughts after a few weeks. I am getting ready to look into Vitamin B, D, and melatonin. I am having trouble staying asleep, and wicked night sweats.
I am going through the dreaded facial palsy right now, so trying to not panic. Hoping it is the swelling from radiation and not the rapid growth not missing a beat. On steroids and Dr. Office asked from me to reach back after the holidays to get the MRI scheduled.
Did you have facial issues? Did you do exercises etc.
Thanks
v/r GB
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Hi Michele,
I remember reading about Honokiol, but Ive never tried it. Not sure about its effect on the tumor post radiation, although
this study on cells concludes "Honokiol, a low molecular weight natural product, inhibits cell proliferation and promotes apoptosis in schwannoma cells "... sounds positive.
The inhibitory effect of honokiol, a natural plant product, on vestibular schwannoma cells
https://onlinelibrary.wiley.com/doi/abs/10.1002/lary.21781
Stella
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Hi there Stella how are you doing?! Still waiting for Honopure but it was recommended here (look up Lisa M) I am also hoping it will help with sleep.
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Hi GB
I walk most days. Have had insomnia for 4 years - hence I am on Circadin and compounded melatonin troches- I use both or either or most nights. The Honopure I hope will help with insomnia as thats what I have read its most used for- the anti tumor activity is a bonus and it seems to have helped some members like Lisa M. Other than that I work on keeping all inflammation down- I take calcium fructoborate (a natural boron) I take boswellia and bromelain and also Vit D3 and PEA (palmitoylethanomide). I barely eat sugar except in fruit or very occasionally organic raw honey. I do get earache sometimes when I sleep which wakes me up but I also changed my mindset as my last MRI showed shrinking - and thats when my ear pain was the worst! No I just think oh yes all good. I dont have facial issues or balance or hearing (maybe a wee bit but audiologist says not much). The only symptom I ever had was earache why it took two years to diagnosis - essentially diagnosed myself. Yours def sounds more like swelling. Will report back on Honopure!