General Category > AN Issues

Anyone skilled at VNG test results? Won't hold you to it...

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arizonajack:

--- Quote from: Notanotherthing on April 22, 2016, 06:49:33 pm ---I have a phantom hand  who pushes me trying to knock me down
--- End quote ---

I never thought of that.

Guess I have one, too.

Could explain a lot.

 ;D

ppg01080:
I asked my doctor (second opinion) why I was having all these symptoms if the AN was so small. His response was that my nerves were getting tired. My symptoms are hearing loss, fatigue, balance issues, vertigo, tinnitus and taste issues. After diagnosis everything I was experiencing made sense.
You know how you feel. I hate when doctors say things like an AN wouldn't cause that. My first neurologist told me the AN didn't cause fatigue.

robertwh2:
I have not had vertigo since I left the hospital, but stumble all over the place. Had the VNG testing and no inner ear problems and then had balance testing which came back telling me that my good side balance nerve was non-responsive. I of course have since had 2 MRIs making sure nothing is growing over there.

I have visited 5 hospitals, 3 specialist, 5 other doctors, 2 rounds of vestibular PT, somewhere in the vicinity of a dozen different medications, full blown migraine diet (over Thanksgiving and Christmas UGH).... the final results are that no one can tell me why I am so tired, no one can tell me why I stumble all the time, no one can tell me why my eyes are tired, they cannot tell me why my 'good' balance nerve is not working, and they can't tell me why my nerves in general are 'hyper' per 2 Neurologist.

For me this all hit 3 years post op. I was riding my bike on gravel roads 20 miles a week and another 50 on the exercise bike. I was active and then it hit. Stumble everywhere, extreme fatigue, etc....

I tell you all of this to point out that the doctors are 'practicing' medicine. They do not have all the answers and when you are dealing with the brain and nerves, they really don't know that much. Most will try their very hard to help, but I have had 3 specialist and 2 other doctors flat out tell me they have no clue what else to try. Latest suggestion is to go to Mayo and let them experiment on me. That was 18 months ago and I have yet to call and don't plan on it.

What you need to do, is find your limits. I know what I can do to minimize the effects. I had to stop working out or trying physical therapy. They took so much out of me that I could do it but would not be able to make it through work or be any good for my wife and kids. Their is no miracle solution for some of us post AN and we need to learn to adapt. I think coming here for input may be one of your best choices. You get recommendations, can read what others have experienced, and try several things.

If you have not tried any meds yet, a simple one is Dramamine. If I remember correctly I was taking about 150% of the OTC dose.

I wish you the best of luck, I spent 18 months trying to find the solutions especially since mine hit 3 years post OP to no avail. I do pray your results are better than mine.

Blw:
My symptoms came on almost immediately, within days. I walked around like I just got out of a 6 hour happy hour. If I looked up, I almost fell over. Couldn't stand on one foot. They all cleared. The one good thing about those tests is that they are generally quantitative, and that is good data to compare similar studies in the future. I think teh rule of thumb is those nerves are so crowded in there that you can have a whole bunch of symptoms that don't make sense.

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