ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: bjhk on January 02, 2022, 12:50:36 pm
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My CK was in April. August 1 my balance was terrible, so my neurologist RXed PT
2x/week; it has been renewed several times
Medicare is paying, but PT says at some point they will no longer pay.
There has been some improvement but not enough to feel safe
RX renewal is due in 2 weeks, which will be 5.5 months; and luckily I see my neurologist then. I am sure he will renew, but what Medicare does may be a different story.
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Hi bjhk,
Whatever happened with your Medicare? It has been over a couple months since you last posted this. Did your neurologist renew your prescription? Did Medicare pay for it? And if so, how long did you have? Are you still receiving PT? Is it still helping you? How is your balance now?
I'm waiting for the rest of the story!
Don
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Medicare renewed my balance PT; then in January an xray showed I have a disk problem in my back, so I started PT for that and continued balance issues at the same time
my final appt was last week; I do exercises at home and use the fitness room for certain equipment
Balance is better, but I still need a walker for long walks; cane for short walks. My goal was to use just a cane, very frustrating
I see my Neurologist in June and hopefully he will prescribe more PT from medicare for Balance
My next MRI is April 25; I talk to the Dr via phone May 9 .
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Thank you, bjhk, for providing the update on what has been happening lately!
It sounds like your doctor made a referral to a physical therapist who was able to help you with your back as well as your balance.
My neurosurgeon referred me to a vestibular therapist rather than a physical therapist. He said the vestibular therapists have better understanding of vestibular schwannomas whereas physical therapists focus more on balance issues caused by aging, accidents, etc. After seeing my vestibular therapist weekly, I was eventually able to walk without my cane. At my final session, she did an evaluation and said I had better balance than most people my age who don't have acoustic neuromas.
I hope your therapy goes well. And I hope your MRI goes well, too, in the next two weeks!
Best wishes on your journey!
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No vestibular PT in our area;
good luck with your issues!
I envy the fact that you don't need a cane.
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I searched for another PT provider ; vestibular, as suggested
Contacted them, they have a machine called Alter G which is an enclosed treadmail
Has anyone tried that?
my current PT said she didn't want me using a treadmill.!
I also have polyneuropathy so my legs hurt; I only take ibuprofen or tylenol for arthritis as needed.
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I don't remember the name of the machine my vestibular therapist used, but it was not a treadmill, per se. It went somewhat around me, and the screen had many different programs including objects that were coming at me which I was supposed to avoid without losing my balance. The first time I did it, 71 objects hit me, and I avoided only 29. I also fell 5 times losing my balance completely. Fortunately, I was hooked to a halter vest with ropes from above. So, even when I fell, I did not fall far, and I did not hurt myself.
The machine my vestibular therapist used had panels on the floor which could go forward and backwards. When I stood on these panels, and they lifted my toes and then went back to normal and then lifted my heels, it was challenging to keep my balance. But week by week I kept improving. The last time I saw the therapist I avoided 100% of the objects coming at me on the screen, and I did not fall one time. My overall score went from a 28 to an 83 by the time I finished. That score would not be great for a young person, but it was very good for someone my age.
So, I don't know if it is the same machine your person referred to or not, but if so, I would not call it a treadmill. It was more hip and ankle movement than like walking on a treadmill. But the machine was designed for those with vestibular issues, and none of the regular physical therapists I saw had anything like that. That's why it was well worth it for me to drive over an hour to see the vestibular therapist. I can walk now without using a cane and without losing my balance. That was not true before my vestibular therapy. But, as they say, bjhk, your mileage may vary.
I wish you well in your journey!
Don
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Thanks,
I will check the website again and look at pictures more carefully
alterg.com
This facility is only 10 miles;
How often did you have the PT? and how many weeks/months
Did they give you home exercises also (which I am doing now)
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Alter G is something different than what I had. I am not familiar with it. I don't know if anyone else from the ANA community is.
I had vestibular therapy once a week, and I was given exercises to do at home, some every day and some 3 or 4 times a week. The exercises were on an app so I could follow them on the app. They were also timed. My vestibular therapist said she would evaluate my progress after a month of therapy. She told me that I would probably need to come for a month or two, depending upon my faithfulness in doing the exercises at home. I don't know if that was her evaluation of me and my initial condition or if she says that to all her patients.