Post-Treatment > Post-Treatment
A/N has Grown a lot after CK 2 yrs ago
bjhk:
I had another MRI April 27
The a/n has grown a lot and Dr now wants me to see a neurosurgeon for a consult
He said no more radiation
Originally he told me I was too old for surgery
Balance is terrible, I now have to use a cane in the apartment
Regular cane, someone said a quad can might be better
Outside apt use walker and scooter
Has anyone else had recurring symptoms ? ALL MRIs were good until this one
I also have facial spasms, neurologist says Botox every 6 months wil help
BUT cousin started facial spasms 2 yrs ago and she doesn't have ANA
she thinks it must be hereditary
mwatto:
The Dr Chang video in our webinar library has the view that the first 5 years after radiation are about response. Certainly the first three years pseudoprogression can cause swelling. I wonder if its worth getting a second opinion? Also consider things such as sulforaphane, low dose aspirin or bromelain - basically keeping inflammation down. A lot on AN growth and inflammation. Even stress can promote inflammation and growth. There are also new trials. I have read metformin may help and honokial. I also take full spectrum CBD and I have tried LDN.
bjhk:
Thanks
I have used baby aspirin for years
Webinar is not allowing me to enter library
I says account not found, yet there is an account listed
Who do I contact about this/
I started more PT today
bjhk:
I see many videos in webinar but none mention Dr Chang
what is the date of his webinar?
thanks
mwatto:
Hi Dr Changs video is defintely there its under radiation. Contact the admin- its the most informative video I have ever watched on AN and I am in Australia. I had CK 4 years ago. Paul Wellen a memebr here was told failed radiation but it was in fact pseudoprogression. He chose to wait and monitor and it shrank. Just wanting you not to stress- I have been there - but maybe get another professional opinion. I will try find the link to Changs video
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