ANA Discussion Forum
General Category => Hearing Issues => Topic started by: mk on May 15, 2010, 09:33:47 am
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We are all too familiar with sudden hearing loss, but has anyone heard of sudden hearing gain?
I had an episode of sudden hearing loss back in January, which was treated with steroids, and partially restored. Since then I have experienced a gradual decline in hearing, to the point where (my estimate) I would say that I had about 50% of hearing left. I definitely could not hear my fingers rubbing close to the ear, and other subtle noises. Well yesterday, after being dizzy during most of the day, I was in the waiting room for my car to be fixed and I felt that something was changing. I quickly accessed remotely my voice mail (which is my hearing test) and I realized that I could hear the messages with perfect voice recognition (a test that I was failing during the previous months). Also, I can hear my fingers rubbing, and today I heard the tiny footsteps of my son who woke up early (of course, it is Saturday) and tiptoed to our bed :). He usually startled me when he did that, because I couldn't hear him.
I am so-ooo excited about this, but it is hard to believe. I thought that whatever damage is done to the hearing nerve is irreversible, has anyone heard about damage being partially reversed especially after radiation?
This was the first good news in days, I was feeling pretty crummy after the news I got from the radiologist report that the AN "may have grown a little bit" at the recent MRI scan.
Marianna
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About one month after my CK, the ENT and audiologist did the usual hearing tests. I could tell my hearing was 'different.' Much to my surprise, they agreed - different, but better than last test in September!
I can't tell the difference. Over the past month, I've come to believe that my hearing actually fluctuates. Some days better, some days worse, but never really worse than pre-CK. I also have conductive/middle ear hearing loss, and I think maybe steroids reduced swelling/inflammation in middle or inner ear, which caused the improvement.
If I was a betting person, I wouldn't give a plugged nickel for the chances that I'll still have reasonable hearing out of that ear in 5-10 years, because there's just too many things wrong in there! But I'll take the "better" diagnosis and enjoy it for now!
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I too have sudden hearing loss in my left ear. The doctor told me that sometimes the hearing does come back but usually it is within a few months of the hearing loss. My hearing in that ear fluctuated from hearing very little to hearing nothing. They have changed medication and that has stopped the fluctuation.. Hopefully your hearing will stay, good luck.
TJ
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My hearing improved after I had proton radiation. My word recognition was still bad at 4% so I really don't understand why I can now use the phone on my bad ear at a lower volume than my good ear. The doctors don't understand either but I'm not complaining. ;D
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I'm so pleased for you Marianna. Here's to hoping the hearing remains stable or improves some more. (raises her morning cup of java Marianna's way)
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Hi, Marianna:
I am so glad to hear your hearing has apparently improved. My hearing has improved in the bass frequencies since getting CK (it got worse at first and then improved). Dr. Chang agreed this was promising and told me that sometimes hearing will improve after swelling or pressure on the hearing nerve has lessened.
My wife also tells me I ask "what?" a lot less often lately.
Good luck to you! You deserve the best!
Warm wishes,
TW
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Hi, Marianna (what a pretty name!)
My hearing nerve was stretched, along with my facial nerve, during a microvascular decompression for left-side hemifacial spasm almost two years ago. This surgery involves a crainiotomy, similar to the retrosigmoid AN removal procedure.
At my post-op checkup four days post-op I had no hearing in my left ear, and my neurosurgeon thought that it would be a permanent loss. However a hearing exam a few weeks later showed loss only in the upper register and I had 85% word recognition. I have had to adapt to the side I use for the phone, but otherwise I no longer notice the deficit in most day-to-day situations. The main exception is large crowded noisy environments such as an arena.
Sara
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Hi Marianna - that is wonderful! I am very happy to hear the news! Let's take this a sign that the bugger is dying and loosening its grip in the process :). Best wishes always.
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Hi, Marianna ~
Although hearing recovery is relatively rare, I have read of it happening, especially with AN patients that underwent radiation treatment. I'm pleased to learn that it apparently has happened to you. Congratulations!
Jim
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Thank you everyone for your kind and thoughtful responses. So, from what I have read in this thread, hearing fluctuations are indeed possible after radiation. My understanding is that this is true whenever the hearing loss is due to compression (for example a blood vessel being compressed will supply less blood to the nerve), rather than radiation induced damage, which I assume would be irreversible.
I must admit that I am not very hopeful about the long term prospects of hearing retention - but the reason I was excited about this is that it might mean that the pressure caused by the AN has eased off a bit, which would be certainly positive.
Take care,
Marianna
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Marianna, one other thing: do you take vitamin E? Some studies show it can reverse hearing loss, although the results are sketchy. It is, of course, a nutrient for the central nervous system. I've been taking at least 800 IU (was taking 1200 IU for over a year) for the past 22 months, with no adverse effects. Dunno if it helped me, but you might consider it.
The natural tocopherol blend is far superior to synthetic vitamin E, which isn't utilized nearly as effectively by the body.
Good luck and best wishes,
TW
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Marianna:
So glad to hear your news. It gives hope to us all.
Best,
Kathy