ANA Discussion Forum

General Category => AN Issues => Topic started by: tlmdinger on January 14, 2007, 06:59:37 pm

Title: searching for surgeon in pa
Post by: tlmdinger on January 14, 2007, 06:59:37 pm

diagnosed 3 years ago. steriotactic surgery did not work. tumor is still growing and now in need of surgeon. please help. :-\

Title: Re: searching for surgeon in pa
Post by: Obita on January 14, 2007, 07:39:48 pm

Hello and welcome tlmdinger:

I am sorry about your AN not dying.  Regrowth is always in the back of my mind.

I can't help with surgeons out your way but there are alot of easterners on here who will answer your post.  It is pretty quiet on here now, but weekdays, everyone comes on. 

Hang in there, Kathy

Title: Re: searching for surgeon in pa
Post by: Battyp on January 14, 2007, 09:11:31 pm

I don't know of any in PA but that doesn't mean there aren't any.  I'm sure someone will be a long shortly with an answer for you.  Are you able to travel?  Boston seems to have a top notch guy, House in LA, Phyl where are ya? 

Hang in there and so sorry that sucker is giving you trouble!

Title: Re: searching for surgeon in pa
Post by: ppearl214 on January 14, 2007, 09:46:26 pm

*runs in to help the cause*

Hi Tim,

sorry things are not going well for you.  You really haven't stated much, so let me ask you this?

1.  You had Novalis FSR over a certain amt of time?
2. What was your size of AN at time of treatment?
3. When was last MRI? Was it with contrast?
4.  Size of growth at last MRI?

Why is the feeling that the FSR isn't working? Is this based on your thoughts or something the doc said?

Hang in there...we're here to help.

Phyl

*blows kisses to the Irish Wench and the Battywench!*  :-*

Title: Re: searching for surgeon in pa
Post by: Catflower on January 15, 2007, 10:11:23 am

If you live close to the PA/WV state line.  Dr. Fukushima is very well known and respected in the field of AN.  He is at West Virginia University one week per month.  Your physician would need to refer you. 

Linda

Title: Re: searching for surgeon in pa
Post by: Static on January 15, 2007, 11:12:42 am

I live in PA and had my surgery done at Jefferson (the host of this year's symposium).  What area of PA are you looking for?

Title: Re: searching for surgeon in pa
Post by: chrissmom on January 15, 2007, 11:25:47 am

We live in western PA , we can recommend excellent doctors in Pittsburgn if you're interested.

Title: Re: searching for surgeon in pa
Post by: WHWT on January 15, 2007, 03:33:21 pm

If you're near New York City, there are great doctors and hospitals there.

Title: Re: searching for surgeon in pa
Post by: Battyp on January 15, 2007, 04:17:21 pm

see told you phyl would be around shortly  :-*  Looks like the PA people have spoken too.  That's what I like about this site..always someone in the know!

Title: Re: searching for surgeon in pa
Post by: tlmdinger on January 18, 2007, 02:09:12 pm

thanks so much to everyone who has responded, tough time for me right now. having another MRI on 1/23 to see how much it's grown then i guess it will be decision time. :(

Title: Re: searching for surgeon in pa
Post by: Dfcman on January 20, 2007, 10:31:41 pm

I went to Allegheny General In Pittsburgh.  I've never felt so confident in my life.  My surgeons were incredible.  I can't even beleive I was in the same room as them.  It almost felt divine.

My surgeons said they deal with about a 100 of "these" a year from all over the world.  Both big and small.  I think when I'm old and senile I think I'd still remember the Acoustic Neuroma before most anything else.  I think of it every morning when I wake up and every night when I go to bed.  For me, July was one of the craziest times of my life, but for my Surgeons...it was just another day.