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41/2 mo Post Op,,,

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Captain Deb:
I've had terrible problems with post-op headaches, but I got alot of my balance back before they kicked in because I started walking like a maniac as soon as I could after surgery. I went into surgery as a very athletic person and a 5 mile 3x a week runner, which helped me regain my balance so well.  At 8 weeks, I was walking almost a mile by myself--slowly, but surely.  My headaches got really bad about 6 to 9 months post op, although I did have some pretty bad ones shortly after surgery but they were sporatic.  Danny, I sure would have a long talk with your surgeon about your pain control issues.  Sometimes opioids cause more pain than they relieve, particularly with long term use.  It's called rebound pain.
 
My surgeon ordered a CT scan and an MRI just to rule out a "cryptic CSF leak" to explain my headpain. Didn't find one, though.
I now see a headache specialist at a headache clinic and for the most part am off any pain meds and am on preventative non-narcotic meds with an occaisional Imitrex injection. He diagnosed me with cluster headaches--check out http://www.clusterheadaches.com
Good Luck
Capt Deb 8)

Danny2006:
Thanks Everyone for the replys,
It is good not to be alone in this.
I will try to get back in to ANA more often. I need the support I think.....
Thanks Danny

Crazycat:
Hi Dan,

  Just read through your post. My God! What you're going through!
You say you had a facial nerve neuroma. Did they sever the nerve? It sounds as if you're slowly getting control back so they couldn't have severed it. That's great news though! It's going to take time to feel better.

Please keep in touch,  Paul

Jim Scott:
Danny:

I'm so sorry to read of your ongoing post-op hassles.

I'm also 4½ months post-op (Retrosigmoid surgery) but without the complications you're experiencing.  You certainly have my prayers and wishes for a resolution of your problems.   I only wish that every AN patient could have my (mostly) 'positive' experience and relatively good outcome.   I consider myself extremely blessed.   

Danny, please do not despair...things will get better. How you are today doesn't necessarily mean this is the way you will always be, as other AN patients can verify.  As you must already know by now, many post-op complications do resolve themselves and/or can be overcome.  Try to maintain a 'fighting' attitude and don't succumb to despair, much less, depression.  That will not get you where you want to be.

I truly wish you the very best for the future.   

Please stay in touch.


Jim

nancyann:
hi Danny - alot of us seemed to have gone thru this 4 1/2 months ago!    I just got back from Balance Therapy, my 1st session.  I have right facial paralysis, & 1 month after AN surgery had a gold weight put in along with lateral tarsal slip.  my eye doesn't close all the way even with this, but it is a great improvement from how it looked before.   I am going to start Acupuncture and laser treatment for the facial paralysis while waiting for a repeat EMG in January -  what can it hurt except my pocketbook?  Luckily, even with all this I was able to get back to work 2 months post op - I really pushed myself (like Capt. Deb) with the walking, etc.   
Keep the faith!!!  Nancy

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