Post-Treatment > Post-Treatment
Follow Up MRI
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v357139:
Hi all. Passed my 13th year surgery anniversary a while back. Wow has it really been 13 years already? Dr Schwartz and Dr Slattery had left in just a bit of tumor to protect the facial nerve. Just got results of my most recent follow up MRI. No sign of regrowth. No sign of tumor at all!!! Man how I stressed on this pre-surgery. I was a wreck, and that is not an exageration. It is probably an understatement.
For all those who are stressing. I know how you feel. You will get through this. I was worse than you. If I did it, you can too.
Anyone stressing feel free to email me. I'd be glad to listen. I also did a boat load of research and would be glad to share.
DZ:
That is wonderful! Congratulations!!! Glad to hear after 13 years!! Lucky 13!! I am only about two years post op (8/18/2022 Friedman/Schwartz UCSD) and a remnant was also left to protect the facial nerve. I was back doing routine things almost immediately post op! I feel very lucky. I would love to see any references/papers that have been published about regrowth that you have /recommend. How can I get? thanks! Donna
v357139:
Hi Donna. Schwartz is the best isn't he? I almost went with him and Friedman until Friedman left House. They were both very generous with their time. I'll take a look in my records, not sure I have much on regrowth. You might try simply googling Acoustic Neuroma Regrowth. Sites like Medline and NCBI are very accessible.
Here's one I found quickly:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4899411/
As I recall, the term near-total resection may not always be that well defined, as opposed to gross or total resection. Glad to discuss further if you like.
DZ:
Hi Hero- Thanks so much! Will search! And yes, although I cant really compare, my own personal experience interviewing 4 centers (i was a former health care professional), extensive searches in the scientific literature and comments from others drove me to the UCSD team (which was 11 yrs after your procedure!- there was no ucsd). Donna
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