Post-Treatment > Post-Treatment

First Follow up after SRS (any)

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DanFouratt:
I went to UNC for my CK treatment. I believe they are technically excellent, however, my experience there as a customer/patient left me shaking my head at the time of service and since in my rescheduling of appointments.  I had to delay my 6 month follow up to allow for open heart surgery at Duke. The experience there was very different.  My question is has anyone not followed up with the Doctor who performed their SRS and simply went with another?  Thinking through it, I see no problem, but I may be a bit bias based on my past. 

All thoughts are welcomed as this is a big decision for me.

Thanks

Dan

UkulelesAreAwesome:
I follow up with the neurotologist and neurosurgeon who performed my gamma knife. I do a video visit with them annually. But I live 3 hours from the hospital so I have my annual MRI and hearing test done locally and the results are sent to the U of MN where I had gamma knife. I'm very happy with University of MN. I just don't like the long drive. I've had no problems with doing my MRI locally.. I think they can give you a copy of all of your MRI images and all of the medical reports.

donjehle:
Dan, I think you need to have a sense of confidence in your treatment team (and that includes the hospital).  We're not talking about placing a bandaid on a cut finger here; we're talking about your brain!  And, if any aspect of your treatment does not satisfy you, Dan, there is no harm in seeking care from another team who are willing to treat you in the manner you desire.  As my ENT told me, "Seek the best care you can when it comes to your brain!"

Best wishes on your continued journey, Dan, and thanks for your active participation in our forums!
Don

DanFouratt:
I reached out to my ENT who was the watch and wait doctor for two years and in my world of doctors the number 2 I respect the most.  (Number 1 is my cardiologist in MI who I spent 15 years visiting, who also came to my side for my recent OHS.) After dumping ENT to go radiation he was very graceful and agreed to monitor me going forward.  When reviewing my options I was speaking with another leading doctor who knew my ENT.  She stated it sounds like you are going radiation, have you told your ENT?  I said no and I do not think he will be happy.  She knew my ENT and confirmed he will not be happy.  However all that is behind us and he said yes.  We agreed to wait until after my next appointment with the Cardiologist (two weeks from today) to pick a date for the follow up.

Glad that process is behind me.

thank you,

Dan


 

DodgeAU:
Dan, in my case I did the GK in Melbourne, Australia. Since I live in Sydney, I go for the annual MRI here. Then the MRI results are forwarded to the Doctor in Melbourne who performed the procedure then arrange a video call to discuss results. So far it is working for both of doctor and myself.

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