ANA Discussion Forum
General Category => AN Issues => Topic started by: campbellmerlin on January 29, 2016, 11:43:14 am
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It's been almost 5 years since my gamma knife treatment. I have the constant tinnitus which I expected, complete hearing loss in right ear (also expected), off balance, dizzy, all of the above. But I am recently becoming very crabby with no patience for people (especially my 90 yr old mom. Being in small spaces with noise or continual talking drives me nuts. Can't go to restaurants because of background noise annoying me. Watching TV has become weird because if the actors have an accent I cannot understand them at all. Anyone have this kind of extra-special weirdness going on?
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Hi campbellmerlin .....
I did not have radiation treatment for my tumor, but welcome to my world! :(
It has become a real exercise in patience dealing with these issues. Every morning I get up and tell myself "Today you will not let these things bother you." Sometimes it works and sometimes it doesn't. I do find that when I push through it and stay busy, it is better!
Thoughts and prayers.
Clarice
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Hi Campbellmerlin -
I'm right there with you! I'm coming up on 3 yrs post treatment and the tinnitus literally drives me mad. My husband has given up trying to understand why I'm so depressed and I've stopped looking to him for support. After all, I look fine from the outside & why can't I just get over it?
Dealing with the balance issues, constant distraction of the screeching inside my head and now a recent abrupt drop in my hearing has me questioning if life is worth living. Like you, I have stopped going to restaurants and parties. The closed captioning feature on TV is the only thing that allows me to watch TV.
Crabby would be a polite way to describe myself lately! I long for silence and find myself envious of the people close to me who can do normal things that I used to take for granted and can no longer do.
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Watching TV has become weird because if the actors have an accent I cannot understand them at all.
I have that problem. Along with that the dialog is often overshadowed by the background music or noises.
I mentioned that to my audiologist recently and she got me the Phonak TVLink to match my Phonak hearing aid in my almost good ear. The TVLink transmits audio from the TV directly to my hearing aid. The audio bypasses the TV's crappy speakers and the dialog comes over crisp and clear, even accents, and the background music and noise not as noticeable.
I've had it a few weeks now and it's been working great.
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I have had the privilege of bad hearing and tinnitus and it getting better again.
I was definitely crabby with bad hearing and tinnitus.
Hearing can cause this crabiness. If you don't have a CROS hearing aid or by the sounds of it BiCROS I think it is worth investigating..
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If it's 5 years and you are still dizzy it maybe worth investigating Gentamicin treatment for your AN side which will permanantly disable your vestibular nerve on your AN Side.. Sounds like it's still working and remains upset
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It’s always there, howling away in my left ear. The one I’m supposed to be 100% deaf in. I don’t think any of us can ever escape it, but I’ve learned after six years how to effectively ignore it. By the way, tinnitus is our brains playing tricks on us. Remember, we’re deaf in ’that’ ear.
Take Care ;)
Doc
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Hi Campbellmerlin -
I'm right there with you! I'm coming up on 3 yrs post treatment and the tinnitus literally drives me mad. My husband has given up trying to understand why I'm so depressed and I've stopped looking to him for support. After all, I look fine from the outside & why can't I just get over it?
Dealing with the balance issues, constant distraction of the screeching inside my head and now a recent abrupt drop in my hearing has me questioning if life is worth living.
I feel you. Tinnitus can certainly be life changing, especially for those who experience Tinnitus at a "catastrophic" level.
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Tinnitus = crabby
Single sided deafness = crabby
Balance problems = crabby
Hearing loss in non AN ear = crabby
Hearing aids can help mask tinnitus, allow you to hear on your AN side with a CROS hearing aid. And improve your hearing with a BICROS hearing aid on your non AN side.
Vestibular therapy can help with balance. But if it gets unmanageable a gentamicin injection into the ear drum may possibly be the answer.
Hopefully if you tackle each of these problems you may be less crabby
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Tinnitus = crabby
Single sided deafness = crabby
Balance problems = crabby
Hearing loss in non AN ear = crabby
You left one out:
Getting old and having other things go wrong = crabby. ;D
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Hi Campbellmerlin,
Wow can I relate to you - crabby especially with your 90 year old mom!
My 90 year old mom has been loosing her hearing for the past 3 years and it is now quite severe. I am 61 and have been wearing my Phonak BiCros very successfully for the past 2 years. You would think that watching me adjust to wearing a hearing aid would motivate her to try one as well. Can you imagine how crabby I got when she told me last month that she doesn't think she's old enough yet to start wearing a hearing aid! Yup...crabby comes with the territory some days.
Cathie
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Hi Campbellmerlin,
Wow can I relate to you - crabby especially with your 90 year old mom!
My 90 year old mom has been loosing her hearing for the past 3 years and it is now quite severe. I am 61 and have been wearing my Phonak BiCros very successfully for the past 2 years. You would think that watching me adjust to wearing a hearing aid would motivate her to try one as well. Can you imagine how crabby I got when she told me last month that she doesn't think she's old enough yet to start wearing a hearing aid! Yup...crabby comes with the territory some days.
Cathie
Let her wear yours for a couple of days. ;)
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Crabby is a choice. I will not comply.
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Crabby is a choice. I will not comply.
Well said!