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AN Community => AN Community => Topic started by: Pooter on May 08, 2008, 09:10:19 am

Title: Pooter's surgery updates
Post by: Pooter on May 08, 2008, 09:10:19 am: Good morning all! This is Jenni, Pooter's wife. I just wanted to update you all as I know that you have become a second source of support and in a way family these last few weeks. I cannot thank you enough for not only the support and friendship you have provided Brian, but for the knowledge and wisdom as well. You were able to talk to him about things (and understand things) that I cannot possibly grasp no matter how hard I try because I simply have not gone through it in the ways that you all have.

Although he did not sleep well last night, he was in great spirits this morning and was ready to get this show on the road so to speak. He went promptly into surgery
(after kissing me under the mistletoe in the hallway) at 7:30. At 9:10, we got the first update from the OR nurse. They had gotten started at that point and all is going well. I will update throughout the day as I hear more from the OR nurse. Until then, keep praying...
Love,
Jenni
Title: Re: Pooter's surgery updates
Post by: Debbi on May 08, 2008, 09:26:56 am: Jenni-

So glad you are posting for Brian. May I be the first to say that all thoughts and prayers are aimed his way this morning. Brian has had such a good attitude, I am confident he will do well. My husband would tell you to just brace yourself for your first look at him post op - rumor has it that he won't be at his best! :) That being said, my hubby told me I had never been more beautiful to him!

I know you are in for a long wait this morning. I feel I had the easiest part of the surgery since I was blissfully unaware. Just keep good thoughts and know that all Brian's Forum friends are cheering you BOTH on!

Will check back later and await good news!

Debbi - recovering in NJ...
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 08, 2008, 10:14:48 am: Jenni -

thank you SO much for letting us know what is going on. I'm glad that we were, and are, able to support Brian - and you - during this difficult time in your lives. I am confident that things will go very well for Brian; like Debbie said, he has a great attitude - plus he's in the hands of very capable doctors.

Things will be rough at first, but each day he will feel better and make progress and he will find your love and support invaluable.

Please keep us updated when you can and let Brian know that we are pulling for him.

Stay strong; I'll keep you both in my prayers,

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on May 08, 2008, 10:20:48 am: Hello again. The OR nurse just called out with another update and although there is nothing new to report, no news is good news and I wanted to share the good news! Brian is doing well and they will update me in a couple of hours again. It's a strange sensation to be going through something so traumatic in my life and not have him here beside me. Although I know I have the support of friends and family, it is just odd not to have him by my side. So many husbands and wives don't feel that emptiness when the other is not there, and I am thankful I actually have that. It reinforces the thought that he is meant to be here, beside me, and he will be again soon in a few hours (although maybe not looking his cutest). ;) I will update when I get more information.
Jenni
Title: Re: Pooter's surgery updates
Post by: Brendalu on May 08, 2008, 10:29:12 am: Jenni,
I've got my pirate sox on for Pooter. Prayers and good thoughts coming your way and Pooter's. In a very short time he will be a postie!
Hugs,
Brenda
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 08, 2008, 10:47:46 am: Jenni~
I know that this waiting is the toughest for you -- I'm sorry you are having to edure this. Glad to hear that things are going well so far. Methodist is where I had my surgery 12 years ago. Wonder if there is still a nurse there (on regular hall) named "Velma" -- she was my savior!!! As I told Brian, if YOU need someone or talk (or vent) to in the coming days or weeks, please contact me!

K
Title: Re: Pooter's surgery updates
Post by: lori67 on May 08, 2008, 10:47:57 am: Jenni -

Thanks for taking the time to update us. Brian is lucky to have you by his side - even if it's not physically at the moment. It'll all be over soon. Then you can take a deep breath and relax, finally. I am convinced that surgery day is harder on the loved ones than it is on the patient. At least the patient gets to sleep through it all.

I'll be thinking of you both today and waiting to hear the good news!

Lori
Title: Re: Pooter's surgery updates
Post by: ppearl214 on May 08, 2008, 11:19:51 am: Jenni,

thank you so very much for keeping us updated. I know your nerves may be on edge, but know that we are all cheering on the dear "Pooter" (and YOU!) from near and far..... sending good vibes from me to you all!

Thanks again!
Phyl
Title: Re: Pooter's surgery updates
Post by: Jim Scott on May 08, 2008, 12:38:12 pm: Hi, Jenni:

Thank you so much for posting updates on your husband's surgery.

We all know how stressful this time is for you and we really appreciate your making the effort to post messages on this forum on Brian's behalf. I'm certain that with his relative youth, good health and good attitude as well as your solid support and obvious love to see him through this, he'll do well and be back with you in no time.

Stay strong and know that many people you've never met are thinking and praying for Brian today and for you, too, Jenni, as you endure this trying time. Although we welcome updates, your attention to your husband as he comes out of surgery is paramount. We'll understand if it takes awhile between postings. :)

Jim
Title: Re: Pooter's surgery updates
Post by: Syl on May 08, 2008, 12:53:59 pm: Hi, Jenni,

I understand that the day of surgery is much more difficult for the family than the patient. Hang in there.
I'm praying for the both of you.

Syl
Title: Re: Pooter's surgery updates
Post by: Pooter on May 08, 2008, 01:01:47 pm: OR nurse called again and Brian is doing well. They didn't have a time estimate at this time, but she said anesthesia and surgery are going along as expected. I should hear more around 3:00 or so.

To those of you that don't want this much information, then just wait until tonight and look back. :) I just know that some of you sit on pins and needles and knowing that he is doing fine might bring you some comfort. I will update whenever I hear something. Not only do I want his new "family" to know, but he would be very upset with me if I didn't keep you guys updated all the time. Thanks again for the support for both him and for me. We really appreciate the prayers.
Jenni
Title: Re: Pooter's surgery updates
Post by: Sue on May 08, 2008, 01:39:12 pm: Sending my thoughts and best wishes your way also. I can't even imagine going through all of that and having to wait so long. The families are the heros in all of this. You have my utmost admiration. Forehead kisses and massive huggles to you and to Pooter.

Sue in Vancouver WA USA
Title: Re: Pooter's surgery updates
Post by: LADavid on May 08, 2008, 01:47:19 pm: Hi Jenni

Thank you so much for the update on Brian. Please keep the updates coming. Soon he'll be in ICU looking for ice chips.

David
Title: Re: Pooter's surgery updates
Post by: Debbi on May 08, 2008, 02:17:41 pm: Jenni-

No such thing as too much information, at least for me. I am so glad to hear that things are going well - it is a long surgery, which makes it much harder for you.

BTW, I know what you mean about that amazing connection with your husband - and I suspect that you will find that this experience brings an even deeper level to that already immense connection. I didn't think I could possibly love my husband more, but I do ... (Sorry, if I am being too mushy...blame it on the AN.,..)

Hopefully by now Brian is in Recovery and you've had a chance to see him (and for him to see you!) I can tell you that your face will be the most welcome thing he sees - I couldn't wait to see my husband and parents.

Sending lots of positive energy your way...

Debbi
Title: Re: Pooter's surgery updates
Post by: ppearl214 on May 08, 2008, 03:09:18 pm: *runs in to give off more healing vibes....*

good vibes, good vibes.....

Hang in there Jenni... and truly... thank you!
Phyl

*runs back out*
Title: Re: Pooter's surgery updates
Post by: Pooter on May 08, 2008, 03:31:07 pm: The shift has changed at the hospital and so I got to talk to the OR nurse and the anesthesiologist. Both reported that he is doing well and they are taking out the tumor as we speak. They have already taken out the "inside" and they are working on the "outside" right now. The monitors on his face have been great and there has been no damage at this point to the facial nerve (a concern of his). I know this can change, but at this point, it looks like all is well with that. Although they were hesitant to give me a time, they said they were thinking he would possibly be out of surgery around 7:00 and that I would receive another update around 5:30. I will, of course, keep you all updated as well. Keep the prayers coming.
Jenni
Title: Re: Pooter's surgery updates
Post by: Debbi on May 08, 2008, 04:04:58 pm: Prayers flying to you and Brian! Hang in there - it is almost done... Brian's AN will join "Ethel" in tumor purgatory!

Debbi
Title: Re: Pooter's surgery updates
Post by: Mary 117 on May 08, 2008, 04:13:34 pm: Debbie,
Hang in there. It's a long day. Take care of yourself. Sending hugs and wishes!

Mary
Title: Re: Pooter's surgery updates
Post by: MaryBKAriz on May 08, 2008, 04:17:03 pm: Hearts and prayers are being sent your way. Thank you for keeping us posted, Jenni!

Mary
Title: Re: Pooter's surgery updates
Post by: Pooter on May 08, 2008, 04:40:46 pm: The new OR nurse came out to update and Brian is doing great. They have now removed 1/3 of the tumor and they are now estimating they will be done between 8:30 and 9:00. I should be getting another update around 7:30. I will, of course, keep you all updated as well. Keep the prayers going... only a few more hours left until I can see my honey and watch him resting in his ICU bed. :) I miss him!

What's up with the pirate socks and adventure btw? ;)
Jenni
Title: Re: Pooter's surgery updates
Post by: Tamara on May 08, 2008, 05:03:34 pm: Jenni,
Wow, one heck of a day for you! Hang in there - it's almost done! You are in my prayers.

Hugs,
Tamara
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 08, 2008, 05:14:09 pm: Jenni~
I know that you will just be so glad to see Brain, but know that the first look after such a long surgery can be a bit intimidating. I think that the thing that bothered my sweet hubby and mom the most was how PALE I was. Dave said I was literally the color of the sheet. His sister was a recoery room nurse so she tried to prepare them but Dave said it was still a shock. Don't want to scare you just warn you!
Prayers still coming your way!

K
Title: Re: Pooter's surgery updates
Post by: ppearl214 on May 08, 2008, 05:38:18 pm: Jenni,

Do you know just how lucky Brian is to have you in his life? Thank you SO very much for these updates. I hope you have had some food and I can imagine your appetite is just about out the window about now, but please remember to take care of yourself as well.

Sounds like the OR team is on top of everything and that's terrific they are keeping very in the loop of what is going on.

Pirate sox.... adventures.... ok.... if you stay in "AN Community" where this thread is... look for the "Good Morning" thread... if you have time, read the first 4 pages of it... it will give you an idea... :)

Signed,
Phyl, the cursed cruise director of the PBW -- One of many mateys to scallywag Pooter!
Title: Re: Pooter's surgery updates
Post by: Pooter on May 08, 2008, 06:56:08 pm: Brian is out of surgery and in recovery! I have not seen him yet as he is still waking up, but I wanted to update you all. The surgeon was able to get ALL of the tumor. The facial nerve appears to have no damage (but of course we will know more as he wakes up and is able to respond to us). He has for sure lost the hearing in his right ear (but we expected that). All is well though and he will be headed to ICU soon. I will update tomorrow as I have more information. Thanks for all of your prayers and support throughout the day. You have definately been a source of strength for me (just as Brian said you all would be.
Jenni
Title: Re: Pooter's surgery updates
Post by: Debbi on May 08, 2008, 07:09:41 pm: I am SO happy that Brian is through the surgery! I can't believe how long it took - can't imagine how you must have felt during those long hours, Jenni.

I'm off to NYU to have my sutures removed tomorrow morning, but will check in here as soon as I can. Give Brian my best and prayers to you both.

Thank you so much for keeping us updated.

Debbi
Title: Re: Pooter's surgery updates
Post by: Glenda on May 08, 2008, 08:13:59 pm: Jenni,
You are a wonderful person to update all of us here. The love you and Brian share is very special. You are both blessed to have each other. I am so glad for you both that the surgery is over. What a long day for you. Praying that Brian does really well and heals fast. Try to get some rest and take care of yourself too!
Sending many well wishes your way!
Glenda
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 08, 2008, 08:32:56 pm: Jenni -

thank you for updating us all day long. I'm with Debbi - IMO there's no such thing as too much information - and it was wonderful that you kept updating us - especially with so much on your mind.

I'm glad to hear that Brian is out of surgery and in recovery - and I'm delighted to hear that his doctors removed the entire AN. I have the same situation as he does - entire tumor removed, SSD (single-sided deaf).

I'm hoping that Kimberly's surgery also went well today. I'm anxious to hear how she's doing.

Tell Brian welcome to "postie-land" for me :)

Jan
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 08, 2008, 08:36:01 pm: Jenni~
Give Pooter a big "WHOO-HOO" for me (on 2nd thought - not too loud!!) ;D

K
Title: Re: Pooter's surgery updates
Post by: Larry on May 08, 2008, 08:36:32 pm: Down under is cheering Pooter on.

Thx for the updates Jenni.

Laz
Title: Re: Pooter's surgery updates
Post by: sgerrard on May 08, 2008, 10:13:54 pm: I think that is the first full-blown play-by-play I have seen on a surgery in this forum. Very cool! 8)

Thanks Jenni for making the effort, It is great to have you share it with us. Have a great reunion with Brian, and best wishes to you and the new postie.

Steve
Title: Re: Pooter's surgery updates
Post by: Debbi on May 09, 2008, 04:50:05 am: Good morning, Jenni - and Brian!

I hope the first night passed well and uneventfully. Brian, if you hear many strange sounds in your deaf ear, don't worry. I actually heard loud drilling sounds, and voices - probably a combination of tinnitis and drugs! All I get now is a little chirping on occasion. Just get through today as best you can - you are surrounded by love, which is the best medicine of all.

Jenni, keep your strength up - you are a HERO!!

Debbi (off to get my sutures out!!!)
Title: Re: Pooter's surgery updates
Post by: Brendalu on May 09, 2008, 05:19:07 am: Good Morning!
I hope Brian rested well and you too, Jenni. I'm putting my pirate sox in the washer. Welcome to the world of the posties. Continued prayers and good thoughts coming your way.
Hugs,
Brenda
Title: Re: Pooter's surgery updates
Post by: ppearl214 on May 09, 2008, 05:41:38 am: Jenni,

thank you SO very much for the updates! Great job and I know its very appreciated here. As you can see, we rally for each and every one of us AN'ers (as we, lovingly, call ourselves) and thrilled that Brian did well. I hope you got some sleep and please give the "Pooter" a high-five from me... and tell him he's off the grog for now.... but a mug of it is awaiting his return! :)

Congrats, Postie-Brian!
Phyl
Title: Re: Pooter's surgery updates
Post by: Melissa778 on May 09, 2008, 06:25:48 am: Jenni thanks for all fo the updates, I'm sure it also helped you pass the time. Glad to hear all went well. Looking forward to hearing how he is today.

Melissa
Title: Re: Pooter's surgery updates
Post by: Pooter on May 09, 2008, 09:22:12 am: Good morning all! Brian is still recovering in ICU, but the doctor mentioned possibly putting him in a regular room today. He was nauseous last night, but other than that, did well through the night. He is still very groggy this morning, but was awake enough to want a kiss and to answer questions. He keeps falling asleep (but then again I expected that with all of the drugs he was on in surgery). I will continue to keep you all updated and will print and read your posts to him later today or tonight (assuming he is feeling well and will understand what I am reading). As soon as he got into recovery he apparently started talking and the nurse asked me who Kyle was. She said he was asking about him all the time (this is our son). It was nice to know that as soon as he woke up he was thinking about people and things that were important to him. :) Anyway, I will update later this afternoon or this evening. Keep the prayers coming... they have worked miracles thus far.
Love,
Jenni
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 09, 2008, 09:50:34 am: Jenni~
Will do ~ glad the night was OK...
;D
K
Title: Re: Pooter's surgery updates
Post by: LADavid on May 09, 2008, 10:38:32 am: Hi Jenni

Thanks again for all the updates. Brian sounds very normal following surgery. I said some pretty strange things in the first two days -- and I thought I knew what I was saying. Please tell Brian that we're all thinking of him.

And Melissa, since you're next up, well someone be keeping us updated next week?

David
Title: Re: Pooter's surgery updates
Post by: MaryBKAriz on May 09, 2008, 11:06:33 am: Brian and Jenni,

What a great team you are!

Jenni, I was checking in often yesterday to see if there were updates. It was so good for us out here also to hear how things were going. I liked the frequent updates. Brian, you done good!!!!

Thoughts and prayers continue your way.

Hope we can get updates on you Melissa. We are also cheering you on during this wait time.

Mary
Title: Re: Pooter's surgery updates
Post by: Melissa778 on May 09, 2008, 11:08:14 am: Not sure, my husband is pretty compuer illiterate....I may try to get my sister or a friend on board to help out with this. We'll see....

Glad to hear Brian's night went well.....

Melissa
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 09, 2008, 11:22:21 am: Jenni -

from what I recall of my own surgery, Brian is recovering normally. He will be tired for quite a while. Brain surgery, like any major surgery, takes a toll on your body; plus it takes a while for the anesthesia to leave your system. I was only out for 7 1/2 hours, but I was tired for weeks :)

Melissa -

it's probably kind of inconvenient, but if your husband isn't comfortable with posting or isn't able to, perhaps he would agree to call someone from the forum post op just to let them know that you are doing okay. It doesn't have to be a long call, just something to tell us that you are out of surgery and doing fine. The forumite (thanks for this term, Phyl) he calls could then post to let us know that everything is status quo.

Besides being a rather impatient group of people (myself included), we care and worry about you.

Jan
Title: Re: Pooter's surgery updates
Post by: Joef on May 09, 2008, 11:54:51 am: the first few weeks ... the only time I was awake was to eat !!
Title: Re: Pooter's surgery updates
Post by: Debbi on May 09, 2008, 11:58:46 am: Yay for Pooter!!!! I am so glad he is okay and resting - probably the best thing he can do now is rest and heal. Tell him we are all cheering him on!

You can also tell him that I got my stitches out today, just to help celebrate his successful surgery.

Keep us posted - really do love getting the updates and knowing that Brian is doing well.

Debbi (stitchless in NJ...
Title: Re: Pooter's surgery updates
Post by: ppearl214 on May 09, 2008, 12:07:43 pm: Quote from: Joef on May 09, 2008, 11:54:51 am
the first few weeks ... the only time I was awake was to eat !!
...and I've seen you eat!! LOL! ;D
Title: Re: Pooter's surgery updates
Post by: Pooter on May 09, 2008, 07:14:51 pm: Brian is doing well this evening, although still very sleepy and groggy. It is taking awhile to get the drugs out of his system. This is concerning me much more than his doctors (which I guess is a sign that it is normal). Anyway, they talked about keeping him in ICU another night, but the last report I heard was that they were wanting to go ahead and move him to a regular room tonight. I have mixed feelings about it. I know they monitor more closely in the ICU, but then again, I know he will sleep better without all the respirators, beeping, nonstop people talking, etc. I guess if he is in a regular room then I will stay up all night staring at him to make sure he is ok. :) I kind of like him. ;) I will update more tomorrow. I am hoping the report will be that he is very spunky and ready to just jump out of bed... ok maybe not jump out of bed just yet (although he did sit in a chair for about an hour this morning). Granted, he dozed off the whole time, but he got out of bed at least. Still not interested in eating (2 crackers and a little water is all he had today). I guess that is normal... once again, a concern, but nothing that anybody else seems to be worried about.

I did tell him that he had been officially welcomed to "postie land" and that everybody's pirate socks were dirty and I got the cutest little crooked grin out of him (the only time you can really tell that they were even near his facial nerve is when he smiles and eats).

Anyway, until tomorrow...
Love,
Jenni
Title: Re: Pooter's surgery updates
Post by: nancyann on May 09, 2008, 07:28:07 pm: Hang in there Jenni. Like 'Joef' said, he WILL be sleepy for at least a couple of weeks, if not more, it is normal.
Also normal is the decreased appetite. I lost 15 lbs in less then a week.
His body is working overtime to heal, the surgery is like being hit by a mack truck.
Little by little, he will regain stamina.

And, with all the stress you've been under, I suggest when you both get home, you'll need some naps too ! !

Continued healing to Pooter. Keep a peaceful heart Jenni.

Always good thoughts, Nancy
Title: Re: Pooter's surgery updates
Post by: lori67 on May 09, 2008, 09:04:33 pm: Jenni -

Sounds like all went well. Of course you're going to keep an extra eye on him to make sure he's okay - we figured you would! I'd trust the doctors and nurses. The nurses in the neuro units are used to these kind of things so they'll know if anything is unusual.

Thank you so much for keeping us up to date. Like Jan said, we do worry about each other around here. (maybe that's where this grey hair is coming from....).
I hope you're taking some time to get some rest yourself (we worry about family members too!) - sounds like Brian will be home before you know it.

Hope you both get a restful night tonight (ha ha - like you can get any rest in a hospital!).
Lori
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 09, 2008, 10:14:26 pm: Jenni -

by now I'm hoping you are getting some much needed sleep and will be reading this in the morning.

Don't worry about Brian not getting the necessary care he needs in a regular room as opposed to ICU. From experience I can tell you that they regularly check in on you - and wake you up - no matter what kind of room you are in. Every time I was lucky enough to fall asleep it was only a matter of time before someone work me up to check my vitals or ask me how I was doing. The one exception to this was my neurotologist who came in one morning while I was sleeping but chose not to wake me. Instead he returned later that day to see me. What a guy 8)

Not having much of an appetite post op is normal, at least it was for me. I don't know about Brian, but I had a lot of nausea, plus lots of times things just don't taste right after AN surgery. In addition, he was intubated for many hours so his throat may be sore from that. Try to encourage him to eat though, since he'll need his strength in order to start walking around. And most docs will make sure their patients are walking around fairly often before they will let them go home.

Jan
Title: Re: Pooter's surgery updates
Post by: matti on May 09, 2008, 11:31:46 pm: Hi Jenni,

Thank you for the updates. Tell Brian to get well quickly, as his duties aboard the PBW await.

I know how stressful and scary this is for you and totally understand what it feels like having your hubby go through something so traumatic. Don't forget we are always here for you.

Don't worry, Brian will be fine...we promise!!

hugs to you both,
Cheryl
Title: Re: Pooter's surgery updates
Post by: ppearl214 on May 10, 2008, 04:39:11 am: Jenni,

If our stinky, dirty pirate socks got a crooked smile out of him.... then, our goal has been achieved! ;D

Thank you SO Very much for taking time to keep us updated.... hoping you are also resting and taking care of yourself. As you know, you are also part of the AN Family and looking out for you as well.

Pls tell the "Pooter" that the mug o' grog is awaiting his return to on-board ship activities and we are awaiting his return to the PBW. Sounds like Sick Bay will issue a dr's note for him getting out of swabbing the deck!

Hang in there!
Phyl
Title: Re: Pooter's surgery updates
Post by: Debbi on May 10, 2008, 05:55:54 am: Hi Jenni and Brian-

Yay - two days post op!! I can't believe Brian was already sitting up in a chair! I didn't get to do that until it had been 48 hours - tell him - "Way to Go!!"

Yes, food intake is important. However, you may find that he wants only specific things (in my case, veggies only). And, as others have said, somethings might taste weird to him. Soft food was definitely on my agenda because of the sore throat, and the inability to operate my mouth well.

I will be checking back today to see how Brian is doing - really do love the updates. And, I suspect that Brian will enjoy reading/hearing the posts from everyone - I know that I enjoyed that immensely. I'll join him with a crooked little smile, okay?

Debbi - sending all good things your way
Title: Re: Pooter's surgery updates
Post by: lori67 on May 10, 2008, 08:58:12 am: And there's always room for Jello... I think I ate more of that in the time I was in the hospital than I have in my whole life! Sure feels good on a sore throat though.

Oh, Phyl....that mug o' grog was for Brian? Ooops...guess I shouldn't have finished it off....Well, Brian and Jenni, if you're in Chicago at the symposium next year, remind me I owe you a beer. ;)

And Brian - GET OUTTA BED!!!!! ;D

Lori
Title: Re: Pooter's surgery updates
Post by: ppearl214 on May 10, 2008, 09:23:17 am: Hey Lori! You're buying in Chicago!?! YAY! We have it in writing! YAY to the rest of us that is going to be there! :D

*runs like heck*
Title: Re: Pooter's surgery updates
Post by: Mama R on May 10, 2008, 09:25:38 am: Congratulations to Brian & his famliy on being official 'Post People' .. Don't forget to send a picture of his bonnet!
Title: Re: Pooter's surgery updates
Post by: lori67 on May 10, 2008, 09:28:44 am: No problem, Phyl... with all these AN related money making ventures I've come up with lately, one of them's bound to pay off... when they do - then I'm buying! And if they don't, Jan can just pick up this tab... I'll get the next one... promise... :-*

Lori
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 10, 2008, 11:55:21 am: Lori~
My new money making scheme is to design and patent tape (like the BIG ole piece I have to wear on my face) that are FUN & CRAZY designs like zebra, flowers, leopard, etc. What do you think??

K
Title: Re: Pooter's surgery updates
Post by: lori67 on May 10, 2008, 12:03:45 pm: I think that just might work...don't tell the folks at Band Aid though - they may think we stole their idea! :D

Can you put makeup over the tape so it "blends in"? :D
Title: Re: Pooter's surgery updates
Post by: Pooter on May 10, 2008, 02:21:23 pm: Saturday update for you all...

Brian is a little more "with it" today, although still very groggy and not himself. All he wants to do is sleep. He is not interested in eating, talking, listening to books, etc. It is discouraging for me, but I am just trying to support him in whichever way he needs me to. He says he is not in any pain though. He gets dizzy when he does the exercises moving his head from side to side (to be expected), but this does not make him nauseous. He is complaining about the double vision though (something he was not anticipating). He is very frustrated (and seems scared) by it. He wanted me to turn off the TV this morning because it was too much. Did any of you have this and if so how long should I expect it to last? He says the double vision makes him nauseous as well. There are times he tells me it goes away, but most of the time it is there (and I am not sure if he is "hiding" some of it to not make me worry so much). They mentioned making him walk at least to the bathroom today and sitting up again. He was not excited about that idea. His catheter is out though, as is the drain on his belly. Anyway, any advice on this portion of his recovery is most appreciated. Please keep the prayers coming. Lots of scary woods to still walk through.

On a humorous note, Brian has not sung the ABC's or done any of the really strange stuff I have heard of others doing when coming off of the drugs, but he was humming the other day and said something about the "Princess Batty Wench". He said he was there. I thought he was crazy and then I looked on the discussion board. Gave me a good smile. :) I will update more tomorrow.
Love,
Jenni
Title: Re: Pooter's surgery updates
Post by: Jim Scott on May 10, 2008, 02:39:33 pm: Hi again, Jenni:

The latest report sounds good. :) Judging from our collective post-op experiences, I believe that Brian is responding fairly normally, so far.

After my surgery, I couldn't get any food down for days, until a very determined ICU nurse said she wasn't leaving the room until I ate something on my dish. It took a Herculean effort, but I did - and within another day, my long-lost appetite was back. We had quite a reunion. I was in ICU for 4 days, even though I was doing fine (walking the halls by Day 3). I found out that they didn't have a room for me and my surgeon didn't mind my remaining in the ICU, although, at over $5,000. per day, I doubt my insurance company liked it so much. Still, they paid. Doctors orders and all that.

Brian will be groggy for awhile but he'll come around. We all do - at a somewhat different pace - depending on the length of the surgery, the amount of anesthesia received and our own recuperative powers. I took about 2 full days to want to do more than sleep and rest. However, by Day 3, I was bored and began sitting in a chair, then, by Day 4, walking the halls (with my wife's help) then, with a PT nurse who evaluated my ability to navigate on stairs, etc before signing off on my release. I was officially released by noon of Day 5. I was still pretty drained when I got home but I came around within a few more days, although I still took naps (which I had never done previously). When two weeks had passed since my surgery, I pestered my neurosurgeon to give me permission to drive, again. He did and I never looked back, including driving 60-mile round-trips to and from the hospital where I received my 5-day-a-week FSR treatments (for 5 weeks) just three months later. No problem.

I can only speak for myself, of course, but even though I had a complication-free recovery, I feel I'm much better now, just about two full years post-surgery, than I was immediately after - or even two months after. It's a slow but deliberate healing process. Sort of like a scar that slowly but surely fades over time. With Brian's relative youth, general good health, positive attitude and his solid support system (you, Jenni) I think this is going to work out fine, even if he finds a few little 'bumps in the road' along the way, which I hope doesn't happen.

Thanks again for conscientiously posting the updates. I'm certain Brian will appreciate that as well as his 'family' that reads them with interest as they come in. As my (young adult) son might say: "You rawk, Jenni!" :)

Jim
Title: Re: Pooter's surgery updates
Post by: Debbi on May 10, 2008, 05:05:55 pm: Hi Jenni-

I am sorry that Brian is having the vision issues - I didn't have that, but I am srue you'll get some response from those who did.

I would expect that his body is still trying to recover from all the anesthesia he had on Thursday, not to mention the length of the surgery. My surgery was only 5.5 hours, and I felt like total hell (oops) for the first 24 hours or so.

And, yes, there may be some fear there. There are a lot of new - and unwelcome - sensations at first. Noise sounds so different, and of course with the dizziness/blurred vision things look different too. I think the brain has a hard time for awhile trying to process so many different sensory inputs, while also trying to heal itself. That's just a layman's opinion, of course.

And, I know how you must be feeling - to see someone you love in pain or discomfort and not be able to "fix" it is probably one of the most heartbreaking feelings I've ever known. Take some time for yourself, okay?

Tell Brian that my whole family is following his recovery. My folks are staying with us during my recovery, and every time they come in the house they ask "Is there anything new on Pooter?" I think when you have an ANer in your family, it gives you a special connection to other families in the same situation. Just let him know how much he is in people's thoughts and prayers.

Keep us posted, Jenni - it sure helps.

All the best,
Debbi
Title: Re: Pooter's surgery updates
Post by: Kate B on May 10, 2008, 05:50:33 pm: Hi Jenni,

Thank you for the update. I didn't get the double vision after my surgery. I remember TV bothering me before my surgery though when I was first diagnosed. It was then I learned just how often the screen changes..some outrageous amount of frames per second.

I found it helpful to set goals. For example if they want him to sit in the chair tomorrow, a goal might be to sit in the chair for a short time and then to do it two more times during the day. I did that with walking too. The goals have to be connected to what he is able to do, but it helped me during the healing process and to realize that I was making progress by the increased activity.

Each day he should get more strength back.

Kate
Title: Re: Pooter's surgery updates
Post by: Debbi on May 10, 2008, 06:13:36 pm: I totally agree with Kate on the goals. They can be tiny goals, too - even something simple like eating a piece of toast (or a jello) - it is important to feel like you are taking control of something.

Let Brian know we are all cheering for him and know he is going to do fine - yep, Brian Rocks!

Debbi
Title: Re: Pooter's surgery updates
Post by: jerseygirl on May 10, 2008, 07:12:58 pm: Hi, Jenni,

I had double vision after my both AN surgreries. I don't remember how long I had it after the first one which was 20 years ago but after the second one I was able to look at myself at day 7 post surgery. On day 10 I was logged in to Internet and was surfing away for the lack of something better to do. Double vision, was explained to me, can be a side-effect of AN surgery if the tumor is big enough to involve brainstem and certain cranial nerves that control the eye. In my case it was but I do not know how big Brian's tumor was and what it involved. Tell Brian (and yourself!) not to worry. Double vision is usually quick to go away. It is very rare for it to linger. I am really glad he is in no pain! This takes a long time in my experience (from the first time only, though). I hope this info helps. It really sounds like Brian is doing well so far!

Eve
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 10, 2008, 08:14:17 pm: Quote from: lori67 on May 10, 2008, 09:28:44 am
No problem, Phyl... with all these AN related money making ventures I've come up with lately, one of them's bound to pay off... when they do - then I'm buying! And if they don't, Jan can just pick up this tab

Gee, I'm late to log on today and already Lori's volunteering me to buy the drinks ??? I'll definitely be at the symposium but I'm thinking that Steve will want to buy all the drinks for everyone, so I don't want to insult him or make him feel bad by offering to do so myself ;D

Anyway, back to the topic at hand.

Jenni -

I remember feeling exactly the way you are describing Brian, so don't be too concerned about his behavior. I had double-vision for 2 or 3 days post op - I thought I told him that, but he probably forgot. The double-vision can be very annoying and downright upsetting (scary, really) plus it does add greatly to the nausea. It is a side-effect of the surgery. I was told that in some cases it can be permanent, but I thankfully wasn't one of those cases. I'm confident Brian won't be either. I remember I kept looking at everybody with one eye closed - I even watched the TV that way when I could stand to watch it at all. With one eye closed, the double vision didn't exist. As far as I know, the doctors can't give Brian anything for the double-vision, he just has to wait it out. Hopefully it will be gone in a day or two.

The dizziness is normal too and is probably why Brian isn't exactly ecstatic at the prospect of getting out of bed and walking - even to the bathroom. The nausea may also be keeping him from wanting to be too mobile, but moving into a chair is a good step. Hopefully as his nausea subsides he won't be so leery of walking around.

Jan
Title: Re: Pooter's surgery updates
Post by: cindyj on May 11, 2008, 09:24:00 am: Hi Jenni,

I join everyone else in wishing Brian well - so glad the surgery is behind him, but know the first few days are so hard. I hope the nauseousness goes away soon - it can often be worse than pain. We're all cheering him on to recovery!

You take care too,

Cindy
Title: Re: Pooter's surgery updates
Post by: Tamara on May 11, 2008, 10:03:02 am: Pooter & Jenni,
I have been checking in daily to see how you are doing. Hope to hear from you when you have a chance.

Hugs,
Tamara
Title: Re: Pooter's surgery updates
Post by: sgerrard on May 11, 2008, 10:04:58 am: Quote from: leapyrtwins on May 10, 2008, 08:14:17 pm

Gee, I'm late to log on today and already Lori's volunteering me to buy the drinks ??? I'll definitely be at the symposium but I'm thinking that Steve will want to buy all the drinks for everyone, so I don't want to insult him or make him feel bad by offering to do so myself ;D

Yeah, Jan, you are a real mind-reader, that is just what I was thinking, I am so glad you took my feelings into account. Thanks a bunch. ;D

Go Pooter!

Steve
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 11, 2008, 10:07:37 am: Just wanted to tell others, in case you didn't see it, that Nicole's mom posted and told us that she is doing well after her surgery.

Guess we're just waiting for news of Kimberly now. Let's keep her in our prayers.

And, Steve - you know I was only thinking of you. I knew how disappointed you'd be if I offered to pick up the whole tab. But it seems you are off the hook. I heard from Lori earlier today that she's had second thoughts and has decided that she just couldn't live with herself if she didn't pay for everyone.

Thank you SO much, Lori ;D

Jan
Title: Re: Pooter's surgery updates
Post by: lori67 on May 11, 2008, 10:07:48 am: Jenni -

Like everyone else mentioned - this is all normal. I remember having no interest in tv, books, music, small talk or anything in the days following my surgery. That anaesthesia just does a number on your body and it takes a while for it to work its way out of your system. I can remember one day my husband and my sister came to visit me before he took my sister back to the airport to head home and I chatted for about 5 minutes and then just said "I'm sorry, I just have to sleep now". I just really couldn't stay awake. I felt bad because my sister was leaving that day, but your body has a way of letting you know what it needs, and mine needed to sleep.

Once he feels up to short trips to the bathroom, the distances will get longer and longer. Progress can seem really slow, but it happens. All of us here have learned patience through all this - and for some of us, that was not an easy thing to learn!

You're doing a great job! I'm sure he'll buy you something nice when he's back on his feet again - you deserve it!

Lori
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 11, 2008, 10:08:40 am: Oh, forgot to say - a very big wish for a great Mother's Day to you Jenni ;D

Jan
Title: Re: Pooter's surgery updates
Post by: LADavid on May 11, 2008, 10:26:16 am: Hi Jenni

Thanks again for the update. Maybe Brian needs his guitar. As far as what he is experiencing, I was a bit fortunate -- at least in the hospital as far as the dizziness and double vision. I thought I was "fine". But the one thing -- as everyone else has said, I was very tired. While I appreciated guests, I could only handle company so long. And even the second day at home, I fell asleep on the kitchen floor while making breakfast. Nap attacks will happen for the first month. The one thing I have learned that I never had before is Patience. The recovery is a very long process for some that is only measured in very tiny successes. As I have picked up from the long-time pros on this forum, you do get better -- it's just impossible to see when it's measured day to day.

Say hi to Brian and Happy Mother's Day.

David
Title: Re: Pooter's surgery updates
Post by: Pooter on May 11, 2008, 06:32:03 pm: Thanks for all of your comments and advice. Today was a great Mother's Day all things considered. Brian asked this morning for something to drink and went through 3 apple juices in about 5 minutes. He then asked to go to the bathroom and told me he wanted to walk. We walked to the bathroom together (although slowly) with no problems. He sat in the chair two different times today as well (for about 2 hours total). He reported that the double vision is better today, and at times it was not there at all. He ordered dinner, but I went with the kids for a few hours today while his Mom was there, so not sure if he ate or not. I shall see in a few as I am on my way back to the hospital to spend the night with him. He is not in any pain still, but complaining about being sleepy and sore all over (OR table and a bed for three days can do that to you I am sure). I also got a nice surprise at home yesterday afternoon. I got flowers delivered from guess who! He arranged to have my favorite (tulips) sent for Mother's Day weekend. Even with all of his stress, he was thinking of others... so typical of him. :) Anyway, all is well given the situation. I will update later (although not as often I am sure as progress is slower at this point). I will let everyone know when he is released from the hospital.
Love,
Jenni
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 11, 2008, 06:46:16 pm: Jenni -

sounds like Brian is right on target as far as his recovery goes. I had no pain post op either - didn't take pain meds - but I was stiff, especially my neck from being turned to the side for so many hours so the docs could remove my AN. This too shall pass. I'm glad the double vision is getting better, it will probably be nonexistent in another day or two.

It's so great that Brian thought to order you flowers for Mother's Day before his surgery. Very sweet :)

Thank you for all your updates these past few days. It won't be long before Brian is updating us himself.

Jan
Title: Re: Pooter's surgery updates
Post by: Kate B on May 11, 2008, 08:28:10 pm: Jenni,

If Brian sat in the chair two times today and walked to the bathroom, it ups the ante for tomorrow:-)
Each day you report, I hear progress. Yeah!

I was surprised myself by the lack of pain after surgery, but for me I didn't have any. If Brian hasn't had any at this point, he most likely won't.

Kate
Title: Re: Pooter's surgery updates
Post by: Debbi on May 12, 2008, 07:09:35 am: Way to go, Brian!!! When you start asking for food, and to take walks, you've just turned a major corner - I am so thrilled for you! I suspect you'll be getting eager to go home soon - that first night in my own bed was beyond blissful. Of course, if you miss all the hospital sounds, maybe you can have Jenni rig up some beeps and alarms during the night ;). Or, maybe your bad ear can produce some interesting sounds to keep you amused. Okay, I'm being silly - I am really so veyr happy to hear that you were feeling better yesterday.

And, you get lots of gold stars for remembering mother's day and ordering Jenni's favorite flowers (tulips are my favorite, too, Jenni!)

I'm cheering you both on from NJ - keep us updated, Jenni, when you can. And, Brian, when you're ready, look forward to hearing from you, too (but don't push it.)

Debbi - smiling in NJ
Title: Re: Pooter's surgery updates
Post by: Pooter on May 12, 2008, 10:37:39 am: Hello all. Brian was up and walking again this morning and actually went through a bowl of cherrios and a few strawberries. He had some juice as well. He has one concern at this point that maybe you can all help me with. He is still very slow with his speech and he told me he felt "mentally retarded"... like he was not as smart as he was last week. I reported this to the doctor and he said that was not typical, but it could be the steroids. Did any of you have this concern as well? He remembers things from the past (birthdates, vacations, names, etc.), but he is not "all there" yet. The fact he is aware he is slow at this point seems good to me, but this is all new to me and I don't know what to expect. The only drugs he is on at this point though are the steroids, stool softener, and Nexium. Please advise. Thanks.
Love,
Jenni
Title: Re: Pooter's surgery updates
Post by: MaryBKAriz on May 12, 2008, 10:59:09 am: Hi Jenni,

I don't have answers but I am cheering you two on.

It seems as long as he was under, it would take awhile to get all his wits back, but I don't know. I do think it sounds good that he is realizing he is not up to his ole self. Also if he is not eating or drinking up to par yet, I would think that make a difference also. Then the steroids I have heard can do all sorts of interesting things. Hang in there. He is in good care with you. Tell him Hi for me.

I am sure others will have some insight.

Take care of YOU, too! :)

Mary
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 12, 2008, 12:24:52 pm: Jenni~
I was under for 14 hours and I did experience all of that. I am no doctor, but I think that the longer you are under, the longer it takes to get everything back. It is not that his brain isn't functioning, it is just still in a fog from all of the medicine on surgery day(didn't I read somewhere that it is like 10 days for every hour under?? or did I make that up?). It will take a while to get rid of all that & be out of the fog! He is doing great - I know it is hard being patient, but really, that is all you can do right now. We are all SOOOO proud of Debbi and her quick recovery, but I hope he is not comparing himself to her -- she wasn't under near as long as he was (I don't think). EVERY AN is different -- you cannot compare any two!!

Keep up the improvements!
K
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 12, 2008, 12:25:14 pm: Jenni -

I didn't have a problem with slow speech, but because everyone has different experiences post op it may be perfectly normal. As Mary said, he was "under" for quite a while and if nothing else, anesthesia can cause brain fog ::)

As you know, there have been some on this forum who burst into song regularly after their surgery, I talked like Mickey Mouse for several days; no one knows the reasons behind these things. I'd imagine that Brian will move past this stage soon. I hate to keep saying "give it time" but there's a lot of truth to that suggestion.

Jan
Title: Re: Pooter's surgery updates
Post by: lori67 on May 12, 2008, 12:56:49 pm: Jenni -

I had the slow speech thing for a little while too. I knew what I wanted to say, but my mouth wasn't cooperating, so it felt like it was hard to get it out. And then occasionally the wrong word would pop out - still does sometimes today. Please tell him not to feel bad about it - it was a huge surgery and it just takes time to get back to where you were. I'm sure he's still the genious he was before the surgery (must be pretty smart to think ahead to sending flowers. My husband didn't have brain surgery and I just went today and bought my own flowers.)

He's making progress - it's just a lot slower than what most people are used to - but it's still progress.

And Jan.... Lori who???

Lori (the broke one...)
Title: Re: Pooter's surgery updates
Post by: LADavid on May 12, 2008, 01:30:57 pm: Jenni
Someone who is more versed in this like Jim Scott can give you a technical reason for the slow speech. I do know that cognitive thinking is affected by brain surgery. I'm five months from my surgery and I still find myself stuck for a word. I remember what it was like trying to carry on a conversation three months ago -- I felt like a combination of the Village Idiot and Quasimoto while staggering aimlessly around. Please tell Brian that it does get better. I don't stagger around as much ;). Seriously, as I said before, this takes time and patience. Nothing improves day to day but in month to month or even longer. But as the forum pros will attest, things do get better.

Please keep us posted.

David
Title: Re: Pooter's surgery updates
Post by: ppearl214 on May 12, 2008, 01:37:56 pm: Quote from: LADavid on May 12, 2008, 01:30:57 pm
I do know that cognitive thinking is affected by brain surgery. I'm five months from my surgery and I still find myself stuck for a word.

Hey Jenni,

Please give that "Pooter" of your's a BIG old huggle from me! :)

In follow up to David's comment, the medical community and ANA have recognized that an AN (and related treatments) can cause cognitive issues... so much so, there were discussions/workshops at last year's ANA Symposium in Philly covering the topic. The ANA may have info relative to this particular conversation and what was said at the symposium (as well as those on this forum that attended last year's symposium that may have sat in on the talks re: cognitive issues).

Just a possible avenue to think about... and don't forget, you get some rest too! hang in there!
Phyl
Title: Re: Pooter's surgery updates
Post by: Cheryl R on May 12, 2008, 01:50:21 pm: Jenni. I had mid fossa surgery on April 17th. I am not the usual ANer here as I have NF2 and this was my 4th surgery. My previous ones were on the right and I was with it right away. This one was on my left. I had some problem with swelling or some type of difficulty where I was out of it and forgetful for 3 days. I then improved and was to the usual type of recovery. It is a weird feeling when you don't feel quite right mentally. I did improve but even now can be forgetful of some words or when I told someone. I was warned pre op that this could happen with it being left sided surgery.
I think he will improve faster than you think esp once he gets off the meds and up more and past the tired stage. He may feel not quite right for a couple weeks. I would worry more if he was doing it and had no clue it was happening. Every single surgery that I have had has caused me to feel a bit different. I was one who did well each time and this times event luckly was only for a short time. I was one who was next to deaf and I now have improved hearing so feel very lucky.
Hang in there. It all will improve in time. Cheryl R
Title: Re: Pooter's surgery updates
Post by: Jim Scott on May 12, 2008, 02:51:54 pm: Hi again, Jenni:

Brian sounds as if he is progressing nicely. Eating, drinking, walking to the bathroom and sitting in a chair are big steps for a recent post-op AN patient. The slow speech is not necessarily something to worry about, although I'm sure its annoying to Brian. I concur with the other posters that the long period under strong anesthesia is likely the culprit. Like most, I was a bit groggy post-op but I 'pushed through' it and, almost as soon as I got home, (well, the next day) I was on the computer, using my brain, my hand-eye coordination and exercising my cognitive abilities. I was fine - but it took a few days. If Brian is anything like I was, he'll be impatient to return to normalcy. He can use that as his motivation to do whatever he has to do to 'get back'. You'll have to be his 'monitor' and, let me warn you, Jenni, Brian may chafe at being 'watched'. I did and I wasn't too nice to my wife when I felt she was 'stifling' me with her watchfulness. I later realized she was simply trying to look out for me and keep me from 'overdoing it'. I profusely apologized to Tina and, being a saint, she easily accepted my apologies. Two years later, we can laugh about how impatient I was (to be 'normal' again) immediately post-op. You and Brian will too. Meanwhile, thanks for the updates. We're thinking and praying for you both.

Jim
Title: Re: Pooter's surgery updates
Post by: HeadCase2 on May 12, 2008, 04:01:09 pm: Jenni,
It's not surprising that Pooter isn't feeling up to snuf yet. One of the things early on post-op is the need for more sleep and not gettting much. The brain is working overtime trying to learn how to use the new vestibular input, and working on general balance. This by itself can be taxing. This combined with the effects of the steriods, which can make it difficult to ever reach a deep sleep state, or sleep for very long-- not to mention that a hospital environment is not a great place to try and get uninterrupted rest. Pooter will feel better once he is home and can get the rest he needs.
Regards,
Rob
Title: Re: Pooter's surgery updates
Post by: lori67 on May 12, 2008, 04:49:43 pm: Oh, come on Rob, 15 minutes at a time is pretty good uninterrupted rest! That's about all I got when I was in the hospital. Until the anaesthesiologist came in for his daily rounds one day and I asked him to please anaesthetize all the nurses so I could get some sleep. I think he might have because the didn't bother me for a while.... :D

Lori
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 12, 2008, 05:02:22 pm: Quote from: ppearl214 on May 12, 2008, 01:37:56 pm
Quote from: LADavid on May 12, 2008, 01:30:57 pm
I do know that cognitive thinking is affected by brain surgery. I'm five months from my surgery and I still find myself stuck for a word.

In follow up to David's comment, the medical community and ANA have recognized that an AN (and related treatments) can cause cognitive issues... so much so, there were discussions/workshops at last year's ANA Symposium in Philly covering the topic.

Thanks for this info, Phyl.

Like David and Lori, I also find myself stuck for a word and I still have times when I'm thinking one word, but another pops out of my mouth. Sometimes it really amazes me to hear what I just said ::)

I wish I would have been at last year's symposium; this is a discussion/workshop I would surely have attended. I wonder if these issues last forever or go away in time? Anyone who attended the symposium know?

Lori - great idea about anesthestizing the nurses so patients can get some rest. I wish I could have anesthestized my neurosurgeon. He's a great guy - absolutely love him - but every morning like clockwork he would stop in about 6:30 a.m. to see how I was doing. I kept telling him that he could stop in later in the day, but he would have none of it :(

Jan (way broker than Lori)

Is broker even a word ???
Title: Re: Pooter's surgery updates
Post by: Tamara on May 12, 2008, 05:20:47 pm: Another thought - if he is used to caffeine daily, and is now not getting it, he may be foggy from that too. Even without surgery of any sort, I feel dull without it.

Well Wishes!
Tamara (caffeine addict)
Title: Re: Pooter's surgery updates
Post by: Debbi on May 12, 2008, 06:05:12 pm: Hi Jenni (and Brian)

I would have to think, like others have said, that all that time under anesthesia would be contributing. I was fuzzy for several days and was only in surgery 5.5 hours - Brian was more than double that amount of time.

I also have to think that steroids may be playing a role. They definitely interrupted my sleep patterns, and that can mess with memory pretty significantly. Also, remember that even normal stress can affect memory - and if this isn't stressful, I'm not sure what is!

I think patience is the hardest thing right now - for all of us who are post surgical. Tell Brian not to be too hard on himself. If it helps, my recovery has not been bump free either - last two days were close to the worst I've had. But tomorrow is another day.

Hugs to you both,
Debbi
Title: Re: Pooter's surgery updates
Post by: ppearl214 on May 12, 2008, 07:28:23 pm: Broker Jan,

Contact the ANA office... I believe there are notes or videos or such that cover last year's symposium. The office can tell you what they have specifically to the workshop on cognitive. I, myself, would like to know was well... sometimes words are in my head faster than I can process verbally or in writing. I figured... that's just me.

Phyl

Quote from: leapyrtwins on May 12, 2008, 05:02:22 pm
Quote from: ppearl214 on May 12, 2008, 01:37:56 pm
Quote from: LADavid on May 12, 2008, 01:30:57 pm
I do know that cognitive thinking is affected by brain surgery. I'm five months from my surgery and I still find myself stuck for a word.

In follow up to David's comment, the medical community and ANA have recognized that an AN (and related treatments) can cause cognitive issues... so much so, there were discussions/workshops at last year's ANA Symposium in Philly covering the topic.

Thanks for this info, Phyl.

I wish I would have been at last year's symposium; this is a discussion/workshop I would surely have attended. I wonder if these issues last forever or go away in time? Anyone who attended the symposium know?

Jan (way broker than Lori)

Is broker even a word ???
Title: Re: Pooter's surgery updates
Post by: Cheryl R on May 12, 2008, 07:47:48 pm: If you look on the homepage under items for sale, you will see what workshops from the symposium are for sale from Cambridge Transcriptions. Other years are also available.
Cheryl R
Title: Re: Pooter's surgery updates
Post by: sgerrard on May 12, 2008, 08:00:10 pm: Quote from: Pooter on May 12, 2008, 10:37:39 am
Brian was up and walking again this morning and actually went through a bowl of cherrios and a few strawberries. He had some juice as well. He has one concern at this point that maybe you can all help me with. He is still very slow with his speech and he told me he felt "mentally retarded"... like he was not as smart as he was last week.

If he is eating cheerios and complaining, he is doing fine. :D

Seriously, his awareness of slow speech is a good thing. I think the number K was referring is about 1 day of recovery for each hour under anesthesia, so he is entitled to several more days at least. AN's and anesthesia do have an impact on mental function; the good news is that almost all of it can be recovered.

I'm with Tamara - I bet once he is off the steroids and has a fresh cup of coffee in him, he'll be as good as new. ;)

Steve
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 12, 2008, 08:16:48 pm: Thanks, Phyl & Cheryl R. I'll definitely contact the ANA about symposium notes.

Jan
Title: Re: Pooter's surgery updates
Post by: kimberly on May 12, 2008, 08:17:50 pm: Hi Jenni -

Thank you for the updates on Pooter. We both had surgery on the same day, although my AN was about half the szie of his. It sounds as if he is starting to feel better and I'm happy that he is on his way to recovery. I am having the vision problems myself but they gave me some visual fixation exercises to do with index cards( so far they are just annoying and make me sick to my stomach but they assure me that eventually this problem will go away). I am not interested in reading or tv or too much of anything that involves focusing for any amount of time, this seems to be the norm for a lot of people. It takes forever just to write this little paragraph but again all of this gets better in time. :) It is wonderful that you are there to encourage him and be supportive to him as he recovers.

He is very fortunate to have you and a caring family in his life :) Please let him know that I am thinking about him and look foward to saying hi when is feels up to it.

Thank you ,

kimberly
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 12, 2008, 09:17:23 pm: Kimberly~
So great to hear from you - glad you are doing well. We were all wondering about you! :)

Steve~
Thanks for correcting me -- I always get things mixed up - especially if it involves numbers! LOL!

K
Title: Re: Pooter's surgery updates
Post by: LADavid on May 13, 2008, 06:41:44 pm: Hi Jenni

It's late on Tuesday and hadn't seen anything from you today on Brian's recovery. Those cobwebs clearing out a bit? Don't worry if they haven't. I'm 5 months post and I just had a loopy-head walk to the store.

Tell Pooter we said hi. And please let us know what's going on when you get a chance.

Thanks
David
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 13, 2008, 10:27:27 pm: Maybe Jenni hasn't had time to post because they let Brian go home today.

Just speculation on my part - I have no confirmation of this - so don't anyone start any rumors :D

It would be great though if he was released. Maybe we'll be hearing from Brian himself soon.

Hope things are going well Jenni & Brian.

Jan
Title: Re: Pooter's surgery updates
Post by: Boppie on May 13, 2008, 11:50:31 pm: Jenni and Brian, My surgeon was Dr. Vrabec, also. My tumor was the same size as Brian's. So far I have read your post op posts and Brian is coming along at the same pace as mine, too! The steroids made me a little wacky and my tongue was numb so I couldn't eat much at first. My stay in ICU was much the same as Brian's, but without the nausea. Maybe they have a check list achievement scale for AN patients there at Methodist. :D

Brian is doing well, I think. Day 4 is the turn around, as I remember. Brian should keep up with the stool softeners at home, too! Sorry... ;D
Title: Re: Pooter's surgery updates
Post by: Pooter on May 13, 2008, 11:55:02 pm: Ok..so, the rumors of my demise are greatly exageratted. :D I cant see very good, but can see well enough to read (and understand most of it) to thank you all very much for the well wishes.. The right side of my face is slower than I nornally like but its getting better. it has taken me 15 minutes to type what normally takes about 5 seconds to type. Thanks to you all for keeping Jenni company during all this. I will be back to normal in no time. For now, I will just blow in your general direction and hope i am right. ;)

i am home now but still not all there.

Thats all i can muster right now. Jenni will be home with me for a few days and i am glad for that. "See" you all again soon...

Brian (hopefully my typing is better than my site about now) :D
Title: Re: Pooter's surgery updates
Post by: Boppie on May 14, 2008, 12:07:51 am: Okay Brian, keep up the eye lubricating drops. Use the thicker drops at night if necessary.
Stay out of the Houston winds for a while.
Get the wrap around sun shades on.

By day ten you'll be feeling soooo much smarter and cooler. 8)
Title: Re: Pooter's surgery updates
Post by: ppearl214 on May 14, 2008, 05:36:01 am: POOTER!!!!!!!!! Welcome to postie-hood! Great to hear from you!!!!!! Onward and upward to wellness... and pls give Jenni BIG hugglez! She did a great job keeping us updated!!!!!!!!

Congrats Brian!
Phyl
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 14, 2008, 06:18:15 am: Brian~
GREAT to hear from YOU that you are home! We'll be in Houston for a Dr. appointment/Memorial Day...MAYBE we can all get together?? I'd love to meet you & Jenni.
:D
K
Title: Re: Pooter's surgery updates
Post by: HeadCase2 on May 14, 2008, 06:38:16 am: Pooter,
Congrats on being home. If you're back on the computer 6 days after brain surgery, you're doing very well, even if it may not seem like it. I hope you continue to recover quickly. Enjoy the uninterupted naps, they're your brain's way of recharging after the hard work of compensation for hearing and balancing input changes.
Regards,
Rob
Title: Re: Pooter's surgery updates
Post by: kimberly on May 14, 2008, 07:24:13 am: Hello Pooter!
Welcome home :) Good to see you are back. Glad to hear you are doing well.

Kimberly
Title: Re: Pooter's surgery updates
Post by: Debbi on May 14, 2008, 08:11:31 am: Oh, Brian - I was so thrilled to see your post!!!! And, so glad you are home. Lide everyone else has said, just be patient with yourself and give it time. I am still taking two hour naps every day and sleeping long each night - the body needs rest. I know you must be enjoying being home in your own bed, surrounded by family - that is the best medicine of all.

Hi Jenni - and thanks again so much for keeping us all posted.

Be well,
Debbi
Title: Re: Pooter's surgery updates
Post by: LADavid on May 14, 2008, 10:13:37 am: Hey Postie
Welcome to this side. Glad to hear you're at home. Please thank Jenni for us -- she was great. I know you feel like you've been nailed by Mike Tyson. It does get better. So get some rest and enjoy a brainbooger-free life.

Later
David
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 14, 2008, 10:49:21 am: Pooter -

I'm so glad I was right - you are home! Bet that feels much better than being in the hospital.

Thanks for taking the time to personally send us a message - Jenni was doing a wonderful job, but it's incredible to hear from you :)

Your recovery sounds pretty typical. You'll find you get a little better each day.

Keep up the good work,

Jan

BTW, Rob (HeadCase 2) - nice picture :D
Title: Re: Pooter's surgery updates
Post by: MaryBKAriz on May 14, 2008, 11:53:38 am: Hi Pooter and Jenni,

So good to have you back, you postie, you! You did a great job on the post.

Jenni, you are a doll and I am thinking about you every day.

Hugs to you both!!!! Or even better, hug each other for me. ;)

Take care,

Mary
Title: Re: Pooter's surgery updates
Post by: MaryBKAriz on May 14, 2008, 12:02:03 pm: Hi Kimberly,

How are you doing today?? I have also been thinking so much about you! Hope you are doing better and better.

Take care,

Mary
Title: Re: Pooter's surgery updates
Post by: lori67 on May 14, 2008, 12:35:32 pm: Hi Pooter and welcome home!

I found my typing got better once I could see straight again, and it took me about an hour to answer one e-mail. Then I'd need a nap. It gets better.

I'm glad Jan wasn't going around starting rumors... again... you know how she is..... :D

Feel better and thanks to Jenni for the updates.
Lori
Title: Re: Pooter's surgery updates
Post by: Pooter on May 14, 2008, 01:15:02 pm: Well, I got on to update you all this morning and it seems my little patient could not stay away and logged on last night. He is not exactly the best patient as he wants it all now. I will walk in the bathroom and tell him to wait for me, and I turn around and he has followed me! He is very independent and of course it makes me nervous. I am always the one to worry about the CSF fluid, the sneezing popping something open, etc. I worry about the worst and he is always the one not to be worried (not always a bad thing, but I want him to be cautious and aware of how he is feeling so I can report to a doctor if there is anything abnormal). He is getting around much better today and even wanted to get cleaned up. As expected, he is taking a nap, but I am thankful for that... I know he needs the rest. Thanks to all of you for your continued support for him in all of this. You will see less and less of me as I am sure he will want his "name" back in here without me butting in! :) I will update as needed though.

Glad to hear you are doing well Kimberly! :) We were wondering about you.
Love,
Jenni
Title: Re: Pooter's surgery updates
Post by: Sue on May 14, 2008, 01:16:08 pm: Glad you are home, Pooter, and getting some much deserved proper rest in your own bed. I hope you are feeling better soon.

Sue in Vancouver, WA
Title: Re: Pooter's surgery updates
Post by: lori67 on May 14, 2008, 02:07:19 pm: Jenni -

As a nurse, I can attest to the fact that men do not make good patients (most of the time). However, the worst patients are definitely nurses! :D

I'm glad he's up and around - and clean. I hope you'll see more and more progress in the days to come! Try not to worry TOO much. He sounds like he's doing great.

Lori
Title: Re: Pooter's surgery updates
Post by: Jim Scott on May 14, 2008, 02:48:24 pm: Hi Brian and Jenni:

Brian sounds pretty much like me when I was just home from the hospital. Impatient and somewhat heedless of anything going wrong from over-activity. "I'm fine" was my usual response to my ever-patient wife's questioning of my need for a nap, whatever. My wife says I drove her crazy (worrying about me) but I foolishly (long since admitted and apologized for) saw her concern as 'hovering' and 'smothering'. Fortunately, I had no post-op complications and our marriage survived my grim determination to resume a normal life about 20 minutes after leaving the hospital. Today, two years post-op, I'm fine. Brian will be too.

Be patient, Jerri....he's a guy. We do this. It's genetic. ;)

Jim
Title: Re: Pooter's surgery updates
Post by: cindyj on May 14, 2008, 03:07:10 pm: So glad you're home, Brian. It's always so good to get out of the hospital and home to your own bed, chair, etc. But do take it easy as everyone is recommending, difficult as it is for you men. As Jim said, it's a genetic thing w/ you men.

Take care,
cindy
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 14, 2008, 04:15:37 pm: Well, I'm neither a man nor a nurse, but I was a terrible patient once I got home.

My mom, who was my caretaker, would tell me I couldn't do certain things and as soon as her back was turned, I'd do them anyway ;D

Once she had to leave the house for some reason and left me in the care of my daughter - age 11 at the time. I had to bribe my daughter to let me do things that my mother told me I couldn't do. Daughter was happy; I was happy; my mom was none the wise. Where there's a will, there's a way ;)

Jan
Title: Re: Pooter's surgery updates
Post by: Mama R on May 14, 2008, 06:42:12 pm: I'm a woman and carry that gene!! And....felt a bit smothered by caretakers and wouldn't even let them stay with
me after I got home for the hospital. (I was gentle/kind about it) So all you males...don't take it to heart!!
Title: Re: Pooter's surgery updates
Post by: sgerrard on May 14, 2008, 10:44:44 pm: Hi Brian and Jenni,

Nice to see that you are home, Brian. Now be good, and listen to Jenni. :D

Jenni, I wanted to let you know that if you want to stick around on the forum after Brian is all better, you are more than welcome. We like having nice people around. :)

And just for the record, we men have no problem whatsoever taking it easy when it's necessary - it's just never necessary. ;D

All the best,

Steve
Title: Re: Pooter's surgery updates
Post by: LADavid on May 15, 2008, 12:30:09 am: Hey Jenni

I echo Steve. You were awesome through all of this and we hope you stay in touch. You're a good person and I can tell that you and Brian deserve each other. You guys rock. And as I have said before, if you have any questions or concerns, fire away. There is nothing too silly here for a wise answer.

Thanks for caring for one of our family.

David
Title: Re: Pooter's surgery updates
Post by: Mama R on May 15, 2008, 06:42:44 am: Ditto to LADavid's comment!
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 15, 2008, 06:59:46 am: Jenni -

just wanted to reinforce what the others said. You're welcome here any time. You're definitely one of the family :)

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on May 15, 2008, 02:12:49 pm: Hi everyone! I just wanted to say hi.. Thanks to everyne who keeps Jenni in line. I will try to get on later. Love ya lots!!!!

Brian
Title: Re: Pooter's surgery updates
Post by: Debbi on May 15, 2008, 02:22:35 pm: Hi Brian -

Good to hear from you! I just got up from my afernoon nap (just can't seem to give those up yet) and was happy to see that you've been up and online. Remember to take it easy - and don't scrimp on the naps!

Debbi ( yawn...)
Title: Re: Pooter's surgery updates
Post by: ppearl214 on May 15, 2008, 02:23:31 pm: *runs in, gives Jenni and Brian drive-by huggles, runs back out!* :-*

wooooosssssshhhhhhh!
Title: Re: Pooter's surgery updates
Post by: Jim Scott on May 15, 2008, 02:29:58 pm: Hey, Brian!

Good to see you around. I'll look for your post later, if I'm logged on. Take it easy. :)

Jim
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 15, 2008, 03:24:31 pm: Hey, Pooter! Glad you stopped by. Come back soon!

Now, get some rest :D

Jan
Title: Re: Pooter's surgery updates
Post by: lori67 on May 15, 2008, 04:28:52 pm: Pooter -

Yep, we've been keeping Jenni in line. Woooohooooo - what a trouble maker she is! :D

Hope the healing is going well!

Lori
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 15, 2008, 11:14:37 pm: So Pooter, truthfully, it was like a Mack truck, wasn't it ???

But don't worry, it's in your rearview mirror now.

Jan
Title: Re: Pooter's surgery updates
Post by: LADavid on May 16, 2008, 01:03:31 am: Jan
Love the Mack truck review mirror analogy. For all you future posties, this is a good way to look at things. Ya get hit with a Mack but it's over and done and it's time to move on with things like recovery and life.
David
Title: Re: Pooter's surgery updates
Post by: Tamara on May 16, 2008, 05:35:30 am: I'd like to request a light pickup truck, please...

Tamara
Title: Re: Pooter's surgery updates
Post by: lori67 on May 16, 2008, 10:31:32 am: Tamara -

We'll keep our fingers crossed for a Mini Cooper for you! Or is that a Cooper Mini. Either way... ;D

Lori
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 16, 2008, 10:41:48 am: I think it's Mini Cooper, but what do I know - I currently drive a really boring van :(

My children are under the false impression though that I will buying each of them a Corvette for their 16th birthday. I definitely have to have a long talk with those kids ::)

I just wondered what Pooter's take was on the Mack truck because when I mentioned it to him pre-surgery, I think he thought I wasn't serious. Why anyone would think I'm not always serious is beyond me ;)

Jan
Title: Re: Pooter's surgery updates
Post by: lori67 on May 16, 2008, 10:51:59 am: Jan? Not serious? Who could ever think that!!

But I can't believe you're not going to buy your kids Corvettes! I mean come on - they're only twins - not quadruplets! :D

I remember telling my parents I wanted the same thing when I got my license. Guess what I got? A "Vette" alright - but it was a Chevette - not a Corvette.
Ah, my Dad.. quite a joker.

But don't feel bad, Jan... I have the really boring van too - after much protest...my husband promised me after all the kids move out I can get a Lambourghini. I think I should have gotten that in writing because I'll probably end up with another Chevette or something. :'(

Lori
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 16, 2008, 10:58:14 am: Lori -

writing is the way to go on all promises made by husbands who mean well :D I think you missed the boat by not getting him to sign a contract LOL

I have promised myself a green Jaguar before I die - which means I'll potentially have to live to be 105 to realize that goal. By then the DMV will probably not want to renew my license :D

Actually when I found out I was pregnant - many years ago - I was hoping for triplets! Don't know what was on my mind, but I'm glad the good Lord had enough sense to only give me twins.

Jan

PS - maybe if we sweet-talk Phyl she'll mention to the powers that be at the ANA that the moderators need a few cars. Say like a Lamborghini and a Jaguar ;)
Title: Jim's car choices
Post by: Jim Scott on May 17, 2008, 07:38:28 am: Quote
maybe if we sweet-talk Phyl she'll mention to the powers that be at the ANA that the moderators need a few cars. Say like a Lamborghini and a Jaguar ;)

I'll take the Jaguar (XK model) in British Racing Green and the Lamborghini (Gallardo model) in bright red, thanks. Oh, and with gas at $4. + per gallon, I'll require an ANA gas credit card with very high spending limits. :D

Jim
Title: Re: Pooter's surgery updates
Post by: Debbi on May 17, 2008, 09:09:58 am: Jim, Willie wants to know if he can drive your lamorghini? ;D

Debbi - race-car drivers wife...
Title: Re: Pooter's surgery updates
Post by: Tamara on May 17, 2008, 09:42:48 am: You know ladies, the van does NOT have to be boring! I have orange flames on my (otherwise boring) green van. Makes it a cinch to find in the parking lot, plus the kids think I'm cool(!?)
My husband had a bumper sticker made that says "Tam's Dragon Wagon" - helps me find it from the rear!

Pooter - hope you log on soon!

Tamara
Title: Re: Pooter's surgery updates
Post by: lori67 on May 17, 2008, 12:20:31 pm: Tamara -

You ARE a cool Mom! I'm sure my little ones would think I was too, if I had my van painted pink with Barbies on it! :D Maybe I'll do that to my Lambourghini. I won't be able to afford the gas to put in it anyway - might as well make it look nice in my driveway...

Lori
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 17, 2008, 02:00:40 pm: Lori -

it looks like we may not have to sweet talk Phyl after all. Jim Scott is catching on to this ANA Moderator's Perks thing very nicely ;) Perhaps we should start hanging out with him :D

Tamara -

never thought about flames - you're a cooler mom than I am :)

I really don't mind the van. It's good to cart around my pre-teens - plenty of room for when I have to separate them and they can each take a friend or two. It works very nicely for us at this point in our lives. By the time it's paid off, my kids will both be starting to drive and I can downsize and get something that fits my personality much better. By then Jim Scott will have had the Jaguar for a few years and he might be willing to let me have it cheap!

Pooter -

where are you ??? It's been a few days and I know you need your rest, but we miss you :(

Hope all is well and that you post soon,

Jan
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 17, 2008, 04:25:30 pm: FLAMES...now that is cool...I just have personalized plates that say: "GIRLY*S"!!!! ;D

K
Title: Re: Pooter's surgery updates
Post by: Jim Scott on May 17, 2008, 04:28:10 pm: Quote from: Debbi on May 17, 2008, 09:09:58 am
Jim, Willie wants to know if he can drive your lamorghini? ;D

Debbi - race-car drivers wife

Only if he washes it and puts gas in it..lots of gas...and don't change the settings on the radio! ;)

Jim
Title: Re: Pooter's surgery updates
Post by: sgerrard on May 17, 2008, 11:01:44 pm: I've been working on the moderator transportation budget. With Phyl getting the private jet, we are going to have to set a limit of one car per moderator. I'm thinking Jim will get the Lamborghini, so I will take the Jaguar. We can trade once in a while.

The only snag so far is that by my calculations, the ANA membership dues will be going up to $2,500 per year. Are you guys okay with that? ;D

Steve
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 18, 2008, 12:41:44 pm: Quote from: sgerrard on May 17, 2008, 11:01:44 pm
The only snag so far is that by my calculations, the ANA membership dues will be going up to $2,500 per year. Are you guys okay with that? ;D

Works for me - as Lori told you, I'm independently wealthy LOL

Oh, and you'll have to be sharing that Jag!

BTW, where is Pooter??? Hope he's doing okay!

Jan
Title: Re: Pooter's surgery updates
Post by: lori67 on May 18, 2008, 01:11:30 pm: Wow. $2,500 a year.... that's a bit out of my budget... Hey, Jan - can I borrow $2,499?

Hopefully, Pooter is enjoying his weekend and he's just too busy for us anymore... :'(

Lori
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 18, 2008, 01:15:02 pm: too busy for US??????? what ?? can you do that???

K
Title: Re: Pooter's surgery updates
Post by: Debbi on May 18, 2008, 03:45:33 pm: Pooer, where are you, man??

The crew of the PBW is getting restless...

Debbi
Title: Re: Pooter's surgery updates
Post by: Tamara on May 18, 2008, 08:12:03 pm: Quote from: Debbi on May 18, 2008, 03:45:33 pm
Pooer, where are you, man??

That'll show him - he ignores us and we'll change his name to Pooer :D

(No offense Debbi - I thought it was cute!)

Tamara
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 18, 2008, 08:54:35 pm: Quote from: Tamara on May 18, 2008, 08:12:03 pm
That'll show him - he ignores us and we'll change his name to Pooer :D

:D :D :D :D :D :D :D

Lori, I'll float you a loan anytime ;)

Jan
Title: Re: Pooter's surgery updates
Post by: Debbi on May 19, 2008, 07:37:36 am: I'm still blaming Ethel for thise things (they left her toes behind, so clearly she's still up to no good...) ;D ;D
Title: Re: Pooter's surgery updates
Post by: Pooter on May 19, 2008, 10:32:57 am: i'm here. i've been enjoying the weekend with my family and church with them on Sunday. It was a bit of a first trip but it was good for me. Four guys from the YMCA group came to see me which was good. It was good to cut loose with them and plan a guys-only trip....shhh...;) I'm still a bit slower but gaining strength each day. i only keep up with this thread but it keeps me busy. Come see me when you are in town Kaybo. :)

Talk to you all soon.

Brian
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 19, 2008, 11:02:10 am: Brian~
I was sondering about that...are you going to feel like meeting somewhere? What part of Houston are you in again??

K
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 19, 2008, 02:33:35 pm: Pooter -

so glad you've surfaced and you're doing well! I was getting a little worried about you ::)

Jan
Title: Re: Pooter's surgery updates
Post by: Jim Scott on May 19, 2008, 03:02:26 pm: Hey Brian:

Good to see you back, even if only to 'pop in' and let us know you're doing O.K. Now, 'don't be a stranger'. :)

Jim
Title: Re: Pooter's surgery updates
Post by: cmp on May 19, 2008, 05:42:05 pm: I've totally missed this thread up till now (first time I scrolled down this far on the home page, I guess!), and just wanted to say how glad I am that you came safely and successfully through your surgery, Pooter, and are recovering so nicely! That's just grand!
:)

Hope every day finds you a little stronger (and steadier!)

Carrie
Title: Re: Pooter's surgery updates
Post by: LADavid on May 20, 2008, 12:33:31 am: Hey Brian
How's the guitar playing in the postie world? Good to see you back. BTW, you have a very cool wife. She was really great during your surgery. Ya got a good thing going.
David
Title: Re: Pooter's surgery updates
Post by: ppearl214 on May 20, 2008, 05:45:44 am: *runs in, gives Brian a BIG ole' healing huggle.... goes over to Jenni, gives a major supportive huggle, runs back out to head to work* :)
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 20, 2008, 06:15:21 am: OK...so maybe I feel a tad sorry for myself b/c there is no support group here or I never get to go to the fun brunches, BUT I get to meet up with Pooter and Jenni in Houston this weekend...(if it all works out)
;D ;D ;D ;D ;D ;D

K
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 20, 2008, 08:59:21 am: K -

that is SO cool 8)

Take pictures for your blog.

Thanks,

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on May 21, 2008, 11:00:13 pm: Well I have my first follow up tomorrow. Hopefully i will get these stiches out. Sleeping on one side still sucks. ;) Thanks to all who have kept me and Jenni in line. I am still slow on my right but the whole tumor is gone (what they tell me anyhow)!! I still lurk and still sleep a lot but notice my strength is getting more and more. I dont regret the surgery at all!! Thanks again to all. I hope it all works out kaybo. Peace y'all!! Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 21, 2008, 11:03:08 pm: Brian -

I'm almost 1 year post op and I don't regret my surgery either. It's a great feeling not to regret or to second-guess yourself, isn't it?

Glad being a postie is going well for you.

Jan
Title: Re: Pooter's surgery updates
Post by: Jim Scott on May 23, 2008, 02:14:32 pm: Brian:

Glad to learn that you're recuperating nicely and feel good about your surgery. I'm sure you'll be back at full strength in no time.

Unfortunately, sleeping on one side may be necessary for awhile. I couldn't sleep on my left side (my 'surgery side') for many months following my AN surgery, because the incision and, more importantly, the skull was healing and sensitive to pressure. I finally got a softer pillow, which helped. After about a year, the healing was finished and now I have no problem lying on my 'AN side'...I even have my firmer pillow back.

I hope the stitches come out on schedule and without drama. Hang in there. :)

Jim
Title: Re: Pooter's surgery updates
Post by: lori67 on May 23, 2008, 07:58:14 pm: After 15 months, I still have trouble sleeping on my AN side. I can for a little while, then it gets uncomfortable. The softer pillow helps though.

And on the bright side, when sleeping on my good side, I don't hear a thing!! :D

Lori
Title: Re: Pooter's surgery updates
Post by: Sue on May 25, 2008, 11:56:07 am: Hello Pooter,

So glad you are doing well and that everything is okay. Yes, I agree - no drama. That's the important thing. That only works in movies. Real life doesn't need any more drama than we normally deal with in the course of the day.

As for the decision making....it's hard! That's the hardest thing I think about all of this is making sure of your decision to whatever treatment (if that's an option, of course) and then hoping and praying that you don't regret whatever it is that you did. It's not like painting a room and getting the color wrong. You can sure do that over again. But not this. It's such a relief when it's all over with and you think - well, that turned out okay and boy I'm happy with the way it's turned out. But, heavens, getting to that point can be traumatic! At least it can be for me!

So happy it's all working out in your favor, Pooter! Yay!!

Cheers from Vancouver, USA

Sue
Title: Re: Pooter's surgery updates
Post by: Captain Deb on May 28, 2008, 01:10:57 pm: So grab your glass, mate
and raise a toastie!
Our scallywag, Pooter,
is now a Postie!

Congratulations on putting the Mack Truck astern! The smooth patch of ocean awaits! We got your innertube ready over on the GM thread! Blender sports for all! (Except for yours truly who's the designated driver.)

Love Ya!

Capt Deb(http://i235.photobucket.com/albums/ee60/Captdeb_photos/pirate_parrot_flying_md_clr.gif)
Title: Re: Pooter's surgery updates
Post by: kimberly on May 29, 2008, 06:04:10 am: Hey Pooter -

Just inquiring on how you are doing? Is the recovery going well?

Kimberly
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 29, 2008, 06:49:34 am: Yes, Scallywag Pooter, update us please :)

Jan
Title: Re: Pooter's surgery updates
Post by: Kaybo on May 29, 2008, 06:57:56 am: I did not get to meet with Pooter & Jenni (too tired Friday and then too many graduation activities expected to be at), but I did talk to him on the phone. He sounded good and had a good Dr.'s appointment...Hope we can catch up to them next time!

K
Title: Re: Pooter's surgery updates
Post by: Pooter on May 29, 2008, 10:29:10 pm: I am doing okay. I read the threads almost every day even if I don't post. I still have a weak right side but it is gaining some strength each day. Stiches are gone....YEA!!!! i still battle fatigue each day. Like today. I slept a lot. I have a lot planned this weekend (a birthday party saturday night, and a concert sunday night) so we'll see how it is Monday. I still have some balance issues and I am slower than I wanna be but much to be expected. Overall, I am doing well..

I didn't get hooked up with Kaybo, perhaps next time...

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on May 29, 2008, 10:40:29 pm: Pooter -

If you're reading the threads, I'm sure you know the pirates have been looking for you - something about needing wind in their sails ;)

Glad to hear the stitches are gone. The fatigue is very normal and takes a while to overcome, but you'll get there. The balance issues should get better in time - the body usually adapts sooner or later. Did your doc give you vestibular exercises to do? I found they helped my balance a lot. My doc also offered to send me to physical therapy if I felt I needed it. Give it some time, but if things don't improve the way you think they should, you might want to ask your doc about PT.

Don't overdo it this weekend; get some rest,

Jan
Title: Re: Pooter's surgery updates
Post by: LADavid on May 30, 2008, 04:46:18 pm: Hey Brian
I just started vestibular training several weeks ago. My surgery was in December, I was doing balance exercises the hospital gave me, but I was going no where. The Physical Therapist helped me realize that the exercises that I was doing were generic and not right for me. I'm starting to see some changes now. I believe that if I had seen a PT about six months ago, I would be fine today and I wouldn't have developed synkinesis in my face.
Give it a few weeks, then I would look into a PT.
By the way, from what I recall, I slept through December.

Best wishes
David
Title: Re: Pooter's surgery updates
Post by: Debbi on May 30, 2008, 05:50:42 pm: Hey, Brian!

Glad to hear from you - and glad you are continuing to recover well. As everyone else has already say - just don't overdo it!

As for fatigue - for me, that has been the hardest thing to anticipate. I literally set out to do something feeling like I have all the energy in the world - then, suddenly my body just decides that it's had enough and .. Wham! I have to rest. I am still having a hard time gauging how much I can do, and consequently tend to overdo fairly often. Fortunately, I am able to take frequent naps, which is a big help. Of course, my little setback last week hasn't exaclty helped on the fatigue front - I think the heavy doses of antibiotics are also making me tired. However, I feel better each day!

I can't believe you are going to a concert - I'm impressed! Have a fun weekend, Brian and say hi to Jenni for us all!

Debbi - plugged in to my IV again...
Title: Re: Pooter's surgery updates
Post by: Captain Deb on May 31, 2008, 12:52:02 pm: I hope you are going to a Buffett concert! What with all the coconut bras being distributed over on the PBW!

Hey, do you have a treadmill?
I found it to be the absolute best balance retraining device on the planet. Walking slow and doing head turns and focusing your eyes on different objects in the room--you also have the grab rails at first and then as you get less wonky, you can begin letting go. You can also walk sideways and back wards on the thing. I made up a whole 45 routine I'd do when I felt well enough to go to the gym. Folks looked at me sort of strange, but I thought it was the boots and cutlass and all.

Anyhow have a great weekend. Poot us up some wind!

Capt Deb(http://i235.photobucket.com/albums/ee60/Captdeb_photos/pirate2.gif)
Title: Re: Pooter's surgery updates
Post by: Brendalu on June 02, 2008, 07:36:17 am: Capt Deb,
You've got to try Wii Fitness, it rocks! I think I may actally be able to walk a semi straight line and and not fall over!!
Brendalu
Title: Re: Pooter's surgery updates
Post by: Pooter on June 03, 2008, 09:33:49 am: Ok, minor setback...I still went to the concert (3rd row pit tix bought before the AN was known had something to do with that), but the incision started swelling a little bit. I emailed a pic to the doc and Jenni talked to him and he seems to think that it could be CSF under the skin. Its not leaking anywhere else so that is good. For now, I have a homemade bonnet made of gauze and ace bandage. We will see how that goes and watch it. I have another follow-up 6/12 to check progress, etc..

Has anyone had a CSF leak under the skin? Did the pressure bandage at home help? Or, did you have surgery to fix the leak? Any experience would be helpful..

Brian
Title: Re: Pooter's surgery updates
Post by: Kaybo on June 03, 2008, 11:18:49 am: Oh no, Brian. So sorry...I will keep that in my prayers. :o

BTW, what was the concert?

K
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 03, 2008, 01:24:07 pm: Sorry, Brian, I have no experience with CSF leaks - under the skin or otherwise. But I'm hoping that everything works out okay for you and that this minor setback is just a small bump in the road to recovery.

BTW your "homemade bonnet" sounds quite interesting. Don't forget about the photo contest. Post a picture for us - but only if you feel comfortable with that. No pressure :)

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on June 03, 2008, 02:00:01 pm: Heh, I didnt get a pic of the first one so perhaps I will get a pic of this one. The concert was Tim McGraw and Jenni will never wash her hand again.. ;)

Hopefully the homemade bonnet will do the trick. I have been tired and not so hungry today but that can be attributed to being busy the last few days also and not sleeping well last night becuz of the bonnet... I will update when I know more.

Brian
Title: Re: Pooter's surgery updates
Post by: Debbi on June 03, 2008, 04:39:39 pm: HI Brian-

Sounds a little like what I went through a few weeks ago, atlhough mine was not a CSF leak. Not to be gross, but is there any drainage from the incision? Are you running a fever at all? As you probably know from reading my posts, mine turned out to be an infection - I emailed pics to the neurotologist over the course of several days, as well as phone and email discussion.

Please keep us posted on this - I hope that it turns out to be something simple - not CSF or an infection!

Debbi
Title: Re: Pooter's surgery updates
Post by: Pooter on June 03, 2008, 09:44:21 pm: I dunno what it is to be honest. Just around the incision its getting "puffy". The doc seems to think it is a CSF leak under the skin since it isnt leaking anywhere else. I am not running a fever or anything. My AN side is getting stronger and I am getting some movement back on that side. I suppose for now we will keep the homemade pressure bonnet on and see where that goes. Jenni is tired of worrying about me (she is sleeping on the couch currently). I just wanna get back to "normal" and get back to life. I see some progress (except the puffyness around the incision site) but its not fast enuff for me. I slept alot today, but its been a busy few nights for me. I will update more later and I will try to get a pic up soon. :)

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 03, 2008, 09:50:04 pm: Pooter -

regarding your anxiousness (is that a real word?) to get back to normal - I can tell you that it's a common feeling post op and I can relate to it 100%.

All I can say is have patience. I know that's not easy - patience is not something I normally have - but it's necessary.

Focus on the progress you've made so far; it will make you feel better :) Recovery can be a long road, but you are well on your way.

Jan
Title: Re: Pooter's surgery updates
Post by: Jim Scott on June 03, 2008, 10:25:13 pm: Brian:

Its no surprise that Jan gives you some good advice.

I was also very impatient about getting back to normalcy following my surgery...so I did. However, two years later, I'm far better than I was a few weeks post-op, even though I was functioning fairly well by then. Time heals and...believe it or not...flies. Honest.

Jim
Title: Re: Pooter's surgery updates
Post by: kimberly on June 04, 2008, 05:22:03 am: Hey Pooter -

Im curious if the puffiness went away. I too get this puffy swollen thing kinda next to and under my ear, but it comes and goes. The swollen area is about the size of a golf ball. I notice it more in the evenings and attributed it to doing too much activity. It usually happens every evening. I haven't called my doctor about it, now I'm wondering if I should. I noticed that daydreamer posted that she had a similiar issue.

Thank you,

Kimberly
Title: Re: Pooter's surgery updates
Post by: Debbi on June 04, 2008, 06:32:43 am: I agree with Jan and Jim - this requires a lot more patience than most of us normally have! I guess the good news, Brian, is that your surgeon seems to think this isn't an emergency - and that's definitely good! I had my own hand-crafted pressure bandage for a few days, too - not sure if I got a pic of it or not. Basically, it was an ace bandage and a gauze dressing wrapped artfully around my ears/head - designed by none other than Willie. Maybe we shoudl compaire pictures?

I also agree w/Kimberly that I notice swelling more later in the day - along with other assorted tender spots and random pains in my head/neck. Everything, including the facial droopiness, seems to get worse when I am tired. Naps seem to help. :-\

Keeping my fingers crossed for you Brian...

Debbi
Title: Re: Pooter's surgery updates
Post by: Pooter on June 04, 2008, 11:07:05 pm: Thanks to everyone for the responses. The "puffyness" is less today after my homemade bonnet has been on more than not the last couple of days. Perhaps it was just swelling or perhaps its a CSF leak under the skin. I dunno, but it appears to be less today. I also see more movement in my face on the AN side and I have more strenth on that side in general. I guage it by my typing using my right hand, which was non-existent a week or so ago but much more today/tonight. Again, progress no matter how slow it may be. I have another appt with the doc 6/12, and I am aiming to get clearance to drive and/or work at least half a day.. I have a week to progress futher than I have already... I will update on the "puffyness" as time goes on and what the doc says when I see him next week.

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 04, 2008, 11:31:13 pm: You're doing well, Pooter.

Keep up the good work ;)

Jan
Title: Re: Pooter's surgery updates
Post by: Jim Scott on June 07, 2008, 04:26:14 pm: Brian:

Good to see you steadily progressing. I'm hoping your June 12th doctor visit brings good news and the lifting of some restrictions...like on driving.

Thanks again for keeping us updated on your progress.

Jim
Title: Re: Pooter's surgery updates
Post by: Pooter on June 07, 2008, 11:16:29 pm: Thanks all! I am getting better each day; I can "feel" it. The puffyness is steadily going down. I am getting more and more facial movement back. I am getting come-and-go headaches though now. I don't know if it's associated with the puffyness, the surgery, or what. I feel like there is alot of pressure in head or eyes when they come on. Anyone else have that? I'm getting better (headaches aside) slowly but surely. Hopefully, I will contnue to get my face back and continue to feel better, and hopefully the swelling and headaches will go away soon. Being SSD and the tinitus haven't been an issue for me so far, but I haven't been out much. Perhaps they will be affect me more when I get out more. *shrug*

Brian
Title: Re: Pooter's surgery updates
Post by: sgerrard on June 07, 2008, 11:55:31 pm: Hi Brian,

You seem to be reporting "more and more" facial movement, which is great news, it would suggest that you have the temporary kind of facial issue, which should resolve in a few months. It sounds like you are ready for your first "mall experience," which will be a bit of a shock, but you'll get over it, and it will get better every time you venture out into the world. I imagine the headaches are just part of the big adjustment you are going through.

It is good to see that you are coming along. I know it seems ridiculously slow, but before you know it you will driving to work like everyone else, and wondering why you were in such a hurry to get back to it. :)

Take care,

Steve
Title: Re: Pooter's surgery updates
Post by: cindyj on June 08, 2008, 10:21:07 am: Hi Brian,

Good to hear that you can feel that you are getting better each day! Will be watching and hoping it continues for you - don't over-do, though :)

Cindy
Title: Re: Pooter's surgery updates
Post by: Pooter on June 09, 2008, 08:52:37 pm: Thanks all!! This is two close-up pics of my homemade bonnet taken a few nights ago. I just got around to uploading 'em from my camera and using Photoshop to combine them. :)

www.briandcampbell.com\Images\bonnet.jpg (http://www.briandcampbell.com\Images\bonnet.jpg)

I have even more movement of my face than is shown, but you can at least see that it's affected for now. I will post more as time goes on and I get even more. ;)

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 09, 2008, 09:01:51 pm: Pooter -

nice bandage, and you say you made it yourself? Very impressive - I think you may have a future in nursing ;)

This is a little freaky, but I have a brother who could be your identical twin :o Seriously. He is bald and with your bandage that covers your hair, you look very similar.

Thanks for sharing. Glad to hear you're doing well,

Jan
Title: Re: Pooter's surgery updates
Post by: er on June 09, 2008, 10:21:20 pm: Pooter - you look pretty good for just having surgery.
I still had bad drupe even after 6 months. I do like your bonnet
eve
Title: Re: Pooter's surgery updates
Post by: Debbi on June 10, 2008, 07:33:34 am: Brian-

LOVE the bonnet! You look very cool! Maybe you could have a career in rapping...

Your face actually looks really good - I wouldn't be able to tell there's anythign amiss when you aren't smiling. ARe you able to get any movement on your mouth? Can you blink? (Sorry, I have an insatiable need to know how others are faring with the numbness!)

You look grreat!!

Debbi
Title: Re: Pooter's surgery updates
Post by: LADavid on June 10, 2008, 09:59:17 am: Hey Brian
You're looking good. Especially your eye. It doesn't look like you should have any problems with it. Can you close it yet? And yep, you got that good ol pirate grin.

David
Title: Re: Pooter's surgery updates
Post by: Pooter on June 10, 2008, 10:14:14 am: Haha...I will pass on the nursing gig, but thanks!! I feel good today. I have my 7 year old home with me this week and we're going to a birthday lunch (someone from work is driving since I haven't cleared yet to drive yet). She's been good and let me lay down when I need to. She's a good girl..

Thanks to all that said I looked good. If I don't smile, talk or eat then you can't tell. ;)

To answer your questions, Debbi: I get some movement of my mouth. I bite my upper lip when I eat, but I am able to get around that. I can blink my eye. With the exception of the first few days, I don't get dryness in my eye at all. That's good, I guess. I have a little numbness on my scalp near the incision, but that's it I think. Thanks for saying that I look good. Like it or not, I compare my progress to your own. ;)

David: Yes, I can close my eye. Until I smile, talk or eat (or you see the incision or wrap), you can't tell. That's good, I guess. And, yep I definitely have that pirate grin. ;)

Thanks all! :)

Brian
Title: Re: Pooter's surgery updates
Post by: lori67 on June 10, 2008, 11:19:00 am: Brian, I think you look great.

You know, if you put one of those "do-rags" over top of that bandage (you know - the ones the bikers wear..sorry still having flashbacks to that Bike Week in Daytona a few years back..) you'd never know anything was wrong!

Lori
Title: Re: Pooter's surgery updates
Post by: Debbi on June 10, 2008, 02:07:34 pm: Brian-

sounds like you are doing GREAT! I still have lots of numbness all over the right side of my head, and not tears at all in my right eye yet - and then there's that pesky pirate smile... Funny that you bite your top lip - in my case, I have to watch that I don't inadvertently suck my lower lip into my mouth while eating (upper lip stays pretty much where it is supposed to.)

I am quite impressed - and envious - that you are blinking! That's huge. I still can't quite get my right eye closed all the way - I'm sure i look quite freaky when I try - too bad it's not halloween!

Really glad you are doing so well, Brian. You'll be driving in no time, meanwhile, enjoy having a chauffeur. And, enjoy the time with your daughter!

All the best,
Debbi - flashing my pirate grin...
Title: Re: Pooter's surgery updates
Post by: nancyann on June 11, 2008, 06:33:32 am: Brian: I am so happy to see your face is almost back to normal - you look great ! ! (bonnet & all ! !).

Always good thoughts, Nancy
Title: Re: Pooter's surgery updates
Post by: Pooter on June 12, 2008, 08:38:34 pm: Thanks for the comments, all! I had an appt today and here's the latest:

I'm on a diruetic (sp) to reduce the swelling near the incision. My doc thinks that there is pressure being built up in my skull for some reason (scarring of the brain perhaps) and my head is producing too much CSF (hence the swelling and headaches). The diruetic (sp?) will reduce the amount of CSF being produced which should allow things to heal, reduce the swelling and headaches by default. I hope so, anyhow.

On other things, I continue to get movement of the muscles on my AN side which allows for more and more movement on that side of my face. My balance is getting better and not too bad given that surgery was 5 weeks ago. Aside from the come-and-go headaches, I feel really good and have for a few days. I still battle fatigue especially in the afternoon (after being up all day, showing up at the office for a baby shower for one of my friend's and his wife, then immediately to my doc appt, I was WIPED!!!).

My doc lifted essentially all restrictions (still no contacts till I'm "normal" but that's ok). He wants me to take it slow, but he said I could drive and work if I felt up to it. The current plan is to work 4-5 hours from home each day next week followed by 4-5 hours each day at the office the following week. After the next two weeks, I will make a determination with my working schedule. He wants me driving short distances and with someone at first, but then working back to driving long distances and by myself. That's probably a good thing. ;)

Overall, it was a good visit. Thanks to EVERYONE who offered words of encouragement and helped me get this far. I couldn't have gotten this far without this board and each of you. Thank you doesn't seem like enough, but it will have to do for now. :)

I read here alot even if I don't post. I will update more as I get it.

Brian
Title: Re: Pooter's surgery updates
Post by: Debbi on June 13, 2008, 06:35:41 am: Wow, Pooter - mostly all great news! Hopefully the diuretic will help with the swelling. It's unnerving to have somethign like that (as I know all too well) and definitely slows down the overall recovery. I'll continue to keep fingers and toes crossed.

Working from home sounds like a great way to get back into the groove. I work from home all the time, so easing back into work has really been very easy for me. I work in the mornings and try to leave the afternoons free to accommocate my need to nap. ;D I sure know what you mean about feeling wiped out in the afternoons! When everyone talked about fatigue, I honestly had NO idea what it was really like!

Hope you have some fun things planned for the weekend - and don't do anything to make your head swell! ;) As soon as I finish my morning IV cocktail, I'm heading out to see if I can't get the youngsters at Verizon to help me figure out my blackberry...

Debbi
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 13, 2008, 07:08:05 am: Pooter -

glad the doctor is doing something proactive for your swelling. Is it uncomfortable?

From the rest of your post, it sounds like you are right on track. The fatigue will be with you for a while, it just takes time to get rid of it; rest when you can. The balance and the muscle movement will most likely continue improving. Your plans for driving and work are good plans - take it slow and see how it goes.

Thanks for the update,

Jan
Title: Re: Pooter's surgery updates
Post by: ppearl214 on June 13, 2008, 07:31:11 am: Brian,

sending continued wellness wishes to you! Didn't think I'd forget about you, did you? Hang in there!
Phyl
Title: Re: Pooter's surgery updates
Post by: Jim Scott on June 13, 2008, 10:25:41 am: Brian:

I have to echo the previous comments that, aside from the swelling issue, which is being addressed by your doctor, I'm pleased to learn that your recovery continues apace. Sounds like a very reasonable plan for driving and working. Easy does it. The fatigue will subside but, as Jan corrected observed, it takes time. Just want you to know that we welcome your posts and appreciate your thanks. It's sort of a mutual admiration society. ;)

Jim
Title: Re: Pooter's surgery updates
Post by: Pooter on June 13, 2008, 04:17:19 pm: Hey all..

Jan, the swelling in and of itself is slightly uncomfortable, but not any more than anything else. What is more uncomfortable than anything is the headaches that go with it. They can be debilatating at times.

Debbi, I hope to get back to working full time at the office and fatigue isn't a huge factor. Thanks for the well wishes. Back at you!

Phyl, I know you've been busy with the bloke, shirking your responsibilities, running all over the world, etc. It's all good! ;)

Jim, thanks! Driving and working again is just a step back to "normalcy" for me. I won't over do it but I feel the need to get back to both. :)

Brian aka Pooter...
Title: Re: Pooter's surgery updates
Post by: Pooter on June 13, 2008, 10:46:08 pm: Ok, so I'm now on the new med and it sucks! I took it about 6pm (right at 5.5 hrs ago) and luckily we had dinner right afterward cuz one of the "possible" side effects was "changed taste". I normally don't get ANY side effects from meds (I look at the literature just in case though). I got a Coke that I intended to nurse this evening after dinner and within 2 hrs of taking the new med my Coke didn't taste like Coke at ALL!! I can't describe it, but I can just say it is different tasting. I guess I should feel lucky that is the only side effect, but still! I've been counting myself lucky for having very little numbness, metal tasting food despite the face not working as well (or at all) even if I haven't said it on this board. Now, I've been lucky with all the effects of surgery (even though at times I don't feel lucky) but the change in my taste because of the med really stinks! The swelling and associated headaches haven't gone away yet (I didn't expect them to), but the change in taste came on pretty fast. BLEH!

Anyhow, I'm done venting... Thanks for "listening".

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 13, 2008, 10:56:59 pm: Brian -

to put it bluntly changed tastes do suck! Post op I had both metallic mouth and freaked out taste buds, so I can relate to what you're going through.

Just remember, this too shall pass; so hang in there ;) How long do you have to take the meds?

Jan
Title: Re: Pooter's surgery updates
Post by: Cheryl R on June 14, 2008, 07:16:31 am: What med are you on? Nurses are always curious so just had to ask.
I totally understand how annoying it would be as I am just over 8 weeks post op with still some dry mouth at times and poor taste of alot of food. This is after my left side surgery. I had very little problem with my previous rt sided surgeries. Alot of food tastes bland. I tried a Chinese buffet the other day for the first time again and got by but it didn't taste like usual. Pepsi is alittle better than at first. Iced tea isn't bad.
Sometimes some side effects of meds go away in time but not always.
Cheryl R
Title: Re: Pooter's surgery updates
Post by: Kaybo on June 14, 2008, 08:25:52 am: Pooter~
Sorry that you have experienced a change in tastes, but hopefully this med. will help your head problem and you won't have to be on it long.

K
Title: Re: Pooter's surgery updates
Post by: Debbi on June 14, 2008, 09:23:03 am: Bummer, Brian. Hopefully the taste will correct soon - in the meantime, maybe chocolate would help? Hopefully the headaches and swelling will start to improve over the weekend - I'll be keeping fingers crossed. These setbacks are really frustrating, aren't they? Still, it sounds like you are doing really well in spite of having the swelling (hey, does that mean you have a swelled head???) :D

Let us know how you do over the weekend!

Debbi (I'd wink, but I can't...)
Title: Re: Pooter's surgery updates
Post by: Pooter on June 14, 2008, 08:05:18 pm: Cheryl, I'm on Acetalzolamide 125mg (or something like that).

All, sorry about the vent. It just set me off. The rest I can deal with but food is something that I actually enjoy. Yes, I've lost 20 pounds or so, but I wanted to lose them anyhow. :) The taste is better today. I don't know if I getting used to it or what, but it appears better today. I took the new med 3 times now (twice a day) and so far today the taste is only a little changed. The swelling APPEARS to be less today, but better when I leave the wrap on. Not to mention that its still tender where the swelling is and gives me a pretty sharp pain when pushed. The wrap seems to help with that too.

My boss (one of the co-owners) is supposed to come see me tomorrow, but we'll see. I saw and talked to him at the shower a bit. The father-to-be is his BIL and the Accounting/HR manager, so it wasn't shocking that he was there. I'm supposed to work 4 hrs a day from home next week followed by 4-5 hrs a day at the office the following week so I'm sure he wants to guage my mobility and all that a little closer. I hope he isn't too critical since I have only 2 full days left of vacation time (found out today). We shall see how it all goes.

Anyhow, thanks for letting me vent especially about something so petty. :)

Brian
Title: Re: Pooter's surgery updates
Post by: oHIo on June 14, 2008, 09:12:10 pm: Pooter...you are NOT being petty. You are on Diamox (trade name). It is known to cause taste issues. You may also find yourself in the bathroom a lot more because it is a diuretic. Be sure to increase your fluids intake. Diamox can cause you to become dehydrated and you can also develop a headache (due to the dehydration). There was mention on one website about taste alteration, especially with carbonated drinks. I find that interesting. Since my surgery, I cannot drink carbonated drinks. They all taste flat and nasty.

I am not on Diamox, but I still have a lot of taste issues. Initially everything tasted like metal. Now it tastes like extremely salty metal. Yum.

Do you work in a company large enough to qualify for FMLA, unpaid leave if needed? I went back to work sooner than I would have liked because I ran out of paid vacation/sick leave. I was able to work my 10-12 hour shifts, but I couldn't wait to get home and lay down at the end of the day that first week.

Hang in there. Hopefully this will be a temporary situation.
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 14, 2008, 09:49:37 pm: Quote from: oHIo on June 14, 2008, 09:12:10 pm
I am not on Diamox, but I still have a lot of taste issues. Initially everything tasted like metal. Now it tastes like extremely salty metal. Yum.

oHIo -

this is exactly what I experienced post op. But at some point it all went away and everything was back to normal again. I don't recall exactly how long it took, but it was definitely gone by 9 months post op. When I had this issue someone recommended taking zinc to help my taste buds. I did try it and my taste buds did get better. However, I don't know if the zinc really had anything to do with it.

Pooter -

vent when you want to - we all understand and it's one of the things we are here for. We've all had our moments and I know from experience that venting makes one feel better ;) Don't despair, better days are ahead.

Jan
Title: Re: Pooter's surgery updates
Post by: Boppie on June 14, 2008, 10:17:47 pm: I complained at every meal about the bad tastes and off taste of practically everything except chocolate. This went on for 7 months before I got relief. Then by 9 months I saw big change. I think my complaints were boring for my husband. He was the only one listening. The problem just slowly vanished. At the same time I battled dry mouth, eye and nose running while I ate. I wondered if I was watching my own pay back for not having lost the smile and blink. How frustrated we can get.

Go ahead, vent! Venting gets the air cleared.
Title: Re: Pooter's surgery updates
Post by: Pooter on June 15, 2008, 01:11:22 pm: YEA! I feel much more "normal" now! I just drove for the first time in over a month! Granted it was a short distance, but it was very free-ing! What a great Father's Day present! The swelling is down "quite a bit" (according to Jenni). So, the med must be doing its thing. Thanks for the tips about water. I almost drank a whole water in church today! Then we went to one of our favorite places to eat! THEN Jenni pulled over and let me drive home!! :) :) :) Oh what a happy day! And what a difference a day makes for my attitude!

Thanks all! :)

Brian
Title: Re: Pooter's surgery updates
Post by: Boppie on June 15, 2008, 01:58:27 pm: Brian, I am glad to hear your celebration. ;D Happy Father's Day.
Title: Re: Pooter's surgery updates
Post by: Kaybo on June 15, 2008, 03:06:02 pm: Brian~
What a great thing!! I know that made you feel better! Glad the swelling is down!

K
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 15, 2008, 09:50:34 pm: Brian -

congratulations on the driving milestone ;D Well done!

Have you had the occasion to mow your lawn yet? I only ask, because yesterday when I mowed mine, I was remembering the first time I did so post op. All the walking around in circles had me so dizzy that I was thankful I had the lawn mower to hang on to :D

Jan
Title: Re: Pooter's surgery updates
Post by: sgerrard on June 16, 2008, 12:15:59 am: Back in the driver's seat. Very cool. 8)

Steve
Title: Re: Pooter's surgery updates
Post by: Pooter on June 16, 2008, 07:29:42 am: Thanks everyone! It was good for me to get behind the wheel again! It felt good and a feeling of power to me.

Jan, haha! The lawn! I haven't done the lawn myself in YEARS! It really plays havoc with my allergies so we pay to get it done. It gives us more time with the kids and my allergies don't suffer for it. :)

Brian
Title: Re: Pooter's surgery updates
Post by: Cheryl R on June 16, 2008, 08:18:34 am: Is your taste doing any better? Don't feel bad about venting. We sometimes can put up with a lot but if something new is added than that is what sends us over the edge and makes us very frustrated. My taste and dry mouth issue is what is bugging me the worse as never had it so bad before.
Getting back to a normal lifestyle helps so much and esp if a guy can't drive would be hard. Good to know you are starting again.
Cheryl R
Title: Re: Pooter's surgery updates
Post by: Debbi on June 16, 2008, 08:46:48 am: Yay on the driving, Brian! That is such a BIG milestone! I still get a little thrill when I get behind the wheel. The fartherst I've gone at this point is about 20 milies, but that's enough for now in one trip. Don't think I am quite ready to brave NYC driving yet ... ;D

Debbi - spitting sutures...
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 16, 2008, 09:14:26 am: Quote from: Pooter on June 16, 2008, 07:29:42 am
Jan, haha! The lawn! I haven't done the lawn myself in YEARS! It really plays havoc with my allergies so we pay to get it done. It gives us more time with the kids and my allergies don't suffer for it. :)

Pooter -

glad I could provide you with a laugh ;D

I used to have the lawn done, but post divorce it's a luxury I just can't afford anymore. Plus, some weeks it's the only real exercise I get LOL

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on June 16, 2008, 12:48:32 pm: Cheryl: The taste is better but not great. You are right that Coke seems flat. Bleh! Back to tea and water for me! Thanks for letting me vent. I know others with more serious issues are saying to themselves "well, *I* have *this* going on that is much worse". True and I keep my issues quiet for the most part but I was irked. Could you tell? ;)

Debbi: Yeah, I saw that you've been driving for awhile. That's great! I only went a few miles on the first trip. Luckily, I go into work later than most and I don't have to be in traffic all that much. I don't think that NYC driving is near in my future either. ;)

Jan: You always make me laugh. Prior to surgery, the only exercise I got was walking back and forth to my office. Being the IT Manager means that I get all kinds of things that take me out of my office. Other than that, nothing to speak of. I was happy with that. Between surgery and the meds I've lost about 20lbs. Heckofa way to lose weight fast, but I wouldn't recommend an AN to anyone. ;) Speaking of divorce, is now a good time to mention that Jenni and I have been divorced for a couple of years now? I moved back home after 18 months or so and I was planning a trip to Vegas for us both when this AN thing came along. You'd never know we were a divorced couple by the way we act online or in person. I refer to her still as my wife to everyone I know (and those that I don't). I'm glad we were where we were at the time of the AN. I can't imagine going through all this alone. Those of you who have gone through it alone have my unyielding admiration.

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 16, 2008, 01:38:30 pm: Brian -

I'm glad I can make you laugh - it's one of the reasons I stick around here ;D

As for you and Jenni - although I'm personally opposed to marriage - I think the two of you should say "I do" again. Naturally I don't know either of you personally, but from the posts here you seem like a great couple. So either you really are, or you both did a damn good job of fooling us ;)

Whether you choose to tie the knot again or not, it was incredible that Jenni was - and still is - there for you during your AN journey.

Jan
Title: Re: Pooter's surgery updates
Post by: Debbi on June 16, 2008, 05:02:55 pm: HI Brian-

Well, no matter what the "legal" relationship, it is very clear that you and Jenni have a great friendship and that you care deeply about each other. What else matters?

Adn, BTW, I think your recovery has been quite impressive! Probably has a lot to do with your great attitude...

Debbi
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 16, 2008, 08:36:52 pm: Debbi -

just had a thought. One of these day we'll have to stop by Pooter's house. I'll cut the grass and you can trim the bushes :D

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on June 17, 2008, 07:27:31 am: Haha..that would be great! We have a fairly small yard and few bushes, but you're more than welcome over to do both! ;)

Thanks for the words of encouragement regarding Jenni, Jan and Debbi. I was in the middle of planning a surprise trip to Vegas for us both including a trip by the "Texas Wedding Chapel" when the AN thing came on. I had to come clean about the plans to Jenni when I got the MRI results. You're right that nothing else matters but having a good relationship, great friendship, and caring about each other. She's been heroic during all this and I've told her that in so many words (she also lurks on this board from time to time.. Hi Jenni! ;) ) We will say "I do" again one day. It's only a matter of getting through the current crisis (AN).

I worked from home yesterday (all this week actually). It was good to get back. We're a small-ish company (about 200 total employees or so) but we're fairly advanced technically so there's LOTS to do daily. I'm working from home 9-1 daily to accomodate my schedule. I can still nap if I need to later in the day! ;) I'm supposed to go to the office part time next week. After that, we'll see. I'm gonna call / email the doc today, cuz I still get a little leakage from the wrap especially when I sleep. Perhaps it's the angle or something (Jenni got me a couple wedges to elevate me and help me sleep). Anyone else have long-term leakage (it looks like blood) from their incision? I'm 5.5 weeks post-surgery so I expected the incision to be well on the way to healing by now. It's only scabby where I get the swelling. Anyone else have this? What was it? Any ideas?

Thanks,

Brian
Title: Re: Pooter's surgery updates
Post by: Kaybo on June 17, 2008, 07:39:36 am: Brian~
I don't have any experience with the leaking scar - hope that you get that under control soon. Hopefully it is just another step in the healing process...
As the whole marriage/divorce thing, I have a strong belief that God wants us to be married (& I know that you have a strong faith too) BUT I am just happy that you two have rediscovered each other! Dave's parents were divorced for over a year (I'm a little unclear about the time since I wasn't in the picture yet & it is not really talked about! I NEVER sent them an anniversary card until they celebreated 50 b/c I didn't know which day to send it on!! LOL!!) and I can definitely say that they have a much stronger marriage now. You have a rough "season" and you are weathering it together - what a wonderful thing!

K
Title: Re: Pooter's surgery updates
Post by: Debbi on June 17, 2008, 09:40:31 am: Brian-

As you know, my leaking was mostly infection related - although I am now getting a little blood where a piece of the scab came off last night (sorry, gross). Leaking does seem to be more of a problem at night. I still put a gauze dressing loosely over the incision every night - partly to protect it (and my pillow) and partly so that I will know if there is any drainage. I'd definitely talk to the doc about it, though. At this point, I wouldn't take any chances with any leakage.

I was touched to hear about your plans to surprise Jenni with a trip to Las Vegas - so romantic. And, although you've had to alter those plans, I suspect that you will find that when you do say "I do" again, you will be even closer. This whole AN thing really lets you see each others inner self - and in the case of you and Jenni, I'm thinking it is ALL good. You just seem like a wonderful couple. Sorry, am I being mushy? I do that a lot lately...

It's good to be back at work, isn't it? EVen though I am still only working part time, it is just such a good feeling to be doing something "normal." Just don't push yourself too much!

Debbi - still spitting stitches...
Title: Re: Pooter's surgery updates
Post by: lori67 on June 17, 2008, 01:22:32 pm: Um, how can I get in on this lawn mowing/pruning deal? Since Brian is lucky enough to have a lawn boy (I should get one of those), maybe Jan and Debbi can swing by Nashville and do my yard!!

I tried mowing for the first time since my surgery a few weeks ago. It probably would have been easier if we didnt live on a giant mountain (okay, it's more like a hill). I got 3/4 of the backyard done and then quit. James came home from work and I was quite proud of my accomplishment and the first thing he says is "why didn't you finish?". I just gave him "the look" and said "because I had brain surgery last year and I shouldn't have to mow the lawn in the first place!". Men....

Lori
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 17, 2008, 01:35:57 pm: "Men" - sums it all up for me :D

No offense, guys ;)

Maybe we should add lawn services to the ever popular garage surgery business and employ all the masterminds that Debbi was referring to. If any of the masterminds should happen to have an accident while mowing and pruning, we could just roll them into the garage for surgery. How is James at re-attaching toes and fingers? :o

Jan
Title: To mow or not to mow
Post by: Jim Scott on June 17, 2008, 01:58:41 pm: I'm fortunate (and was prescient enough to know the extent of my physical ambition) to reside in a condominium where my monthly maintenance fee pays for, among other things, professional groundskeeping services so I don't have to deal with the dreaded lawn mowing chore that so many seem to find so onerous. However, the exchanges between the homeowners either struggling to mow their lawn (Lori), grudgingly mowing it out of financial necessity (Jan) or paying others to do it (which is, in effect, what I do along with Brian, who pays directly) are amusing. Thanks. :)
Title: Re: Pooter's surgery updates
Post by: Debbi on June 17, 2008, 02:48:31 pm: Uh Oh - looks like the Garage Surgery Shop is going to need an HR person. Any takers? And, we really need a catchier name ... something with a multi-national flavor since it is obviously a diverse and sophisticated company...

Brian, see what happens when you leave for awhile? A bunch of crazy people take over your thread...

Personally, I am using the brain surgery thing as a reason not to get anywhere near the lawn mower/tractor - ever. Jim and Brian, I'm with you - this is something other people should do. In my case, the "other people" is my beloved husband...

Debbi
Title: Re: Pooter's surgery updates
Post by: cindyj on June 17, 2008, 04:08:38 pm: Glad you're feeling more "normal" Brian - know it must be good to drive again. Is the taste still coming back? To have Coke taste bad, would be quite tragic to me - hope it's not too long before you can enjoy the full flavor and feel the fizz of that great drink!

Will be very interested to see if you guys do come up w/ a new name for the Garage Surgical Center...

Jim, I have to tell you, "thanks" for expanding my vocab today - you used the word "prescient" in your last post here and I had to look it up to get the meaning as I had never heard it before...yet another thing I have learned here on this forum!

Hope things do continue to improve for you, Brian,

Cindy
Title: Re: Pooter's surgery updates
Post by: Kaybo on June 17, 2008, 04:16:20 pm: I am always looking up Jim's words - I do think he is trying to expand our vocabularies. HOWEVER...the guy was here a little while ago to fix the dryer and he looked suspiciously like Jim Scott's photo - you know he is a tricky one with the whole name thing...do you think he is undercover all the way in Texas??????????

K ???
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 17, 2008, 05:28:09 pm: Quote from: Kaybo on June 17, 2008, 04:16:20 pm
HOWEVER...the guy was here a little while ago to fix the dryer and he looked suspiciously like Jim Scott's photo - you know he is a tricky one with the whole name thing...do you think he is undercover all the way in Texas??????????

K - that is priceless! You may have just solved the "Jim Scott Mystery" :o

Brian - we hijack threads all the time; but you seem like the kind of guy who would understand. I hope the taste buds get better soon - it's been a while since mine were "weird" but I distinctly remember what that was like. My biggest taste disappointment was chocolate. I worship chocolate, but post op I had absolutely no desire to eat it because it just didn't taste the same :( Thankfully that passed :D

Jim - I do cut the grass because of financial reasons, but I just wanted to clarify that I don't do it grudgingly. I actually kind of like it. I prune bushes also and except for a nasty encounter with some irrate bees a couple of years ago, I like that too. But I will say that I cook and do housework grudgingly :D

I think we should leave the name of our enterprise up to Lori. She usually has some great ideas!

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on June 17, 2008, 09:05:07 pm: Haha.. Hijack away! I love the banter! ;)

The taste is coming back and seems to only really affect cokes.. Bummer that! At least I like other things to drink. Jenni gets this great sweetened iced tea from WalMart! Luckily I drink that and water most of the time these days. The swelling is WAY down (at least with the bonnet on) and seems to be headed in the right direction. I'm not out of the woods yet since it comes back after the wrap has been off for awhile but it seems to come back less...If that makes senese. I still get headaces, but they aren't near as intense as they used to be. Let's just say that I can tell when the pressure is up and when the swelling is up. I don't like the headaches, don't get me wrong, but they're not as debilitating as they once were. I feel better today aside from knowing when the pressure is up. We are headed in the right direction at least.

Some ppl from our Church came over and sat for awhile. We talked and prayed over me before they left. It was good for me (on both points). Jenni was at the store with the kids so she missed them, but I understand the need to get to the store. We were out of tea, apples, and almond snickers (that I put in the freezer!!) afterall. ;)

I often wonder what Jim is saying with his big words. Maybe he does moonlight under cover out of town, Kaybo! I noticed he doesn't admit or deny it at all. Hmm... Let's keep an eye (and our good ear) on him. One of these fine days he'lll slip up. ;)

Jenni's a great woman! It bears repeating that she's been heroic during all this. As I said, we will say "I do" once again. I think that we've gotten closer during all this AN stuff, if that is possible. She's a keeper.. I hope she knows that (Hi Jenni!!!!).

For now, it's a daily climb back into the saddle so to speak. Thanks for the encouragement all!

Brian aka Pooter...
Title: Re: Pooter's surgery updates
Post by: lori67 on June 18, 2008, 09:09:12 am: Brian, you're so sweet! Sounds like you and Jenni are lucky to have each other.

So... Jim is actually the Maytag man.....who knew? No wonder he has time to be moderator - he doesn't get out much - you know those Maytags never break. :D

Oh, great, now I need a new name for the garage. Maybe Maytag Jim can come up with a big word that none of us understand... ;)

Jan, I wouldn't mind the yardwork so much if we didn't have giant mutant bugs here in Nashville. Before I'll even pick anything out of the garden, I have to stand there and inspect it for an hour to make sure nothing crawls on me. Blah....

Lori
Title: Re: Pooter's surgery updates
Post by: yardtick on June 18, 2008, 02:42:44 pm: Had my Maytag washer and dryer for 21 yrs and not one problem. No wonder Jim is a moderator, if he's the Maytag man he's so lonely :'(

We love you Jim ;D

Anne Marie
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 18, 2008, 07:53:43 pm: Poor Jim! I'll bet he's really regretting he told us his real name isn't Jim Scott ::)

Jim, as yardtick said, we love you - which is why we tease you so much. Poor Phyl has been putting up with this for so long; I'll bet she's glad you and Steve joined her as moderators. Which leads me to the question - why don't we ever tease Joef ???

Jan
Title: Re: Pooter's surgery updates
Post by: Kaybo on June 18, 2008, 08:17:15 pm: Where has Joef been lately? ??? Did he go on hiatus too????

K
Title: Re: Pooter's surgery updates
Post by: lori67 on June 19, 2008, 12:14:10 pm: Maybe he just doesn't want to get picked on? :D

Lori
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 19, 2008, 05:11:35 pm: Maybe, but I don't recall us ever picking on joef ::)

Do you think he feels targeted just for that very reason? ;)
Title: Re: Pooter's surgery updates
Post by: Kaybo on June 19, 2008, 07:19:52 pm: Hey Joef~
I saw a picture on the e-mail today of Addi KAYAKING yesterday at camp - I thought of you... ;)

K
Title: Re: Pooter's surgery updates
Post by: lori67 on June 20, 2008, 10:15:26 am: Maybe next summer for camp, you can send Addi to kayak with Joef! Or maybe he might like to go to Addi's camp instead!

Lori
Title: Random thoughts
Post by: Jim Scott on June 20, 2008, 10:45:34 am: Hey guys, I know most folks only tease people they like and feel comfortable with, so to speak. No problem.

I have time to be a moderator because I'm retired...but not as much time as I thought I would have because I'm also busy with other activities, including church-related responsibilities and helping my wife around the house (which I've always done).

I'm not a 'professional' writer but I'll accept any cash offers for future posts. These forums are about the only place I write, other than personal letters and a few e-mails. If I use words that send anyone to their dictionary, I apologize. I'm not trying to expand anyone's vocabulary or be pretentious. I just enjoy using the English language to express myself and write in a way that I hope is worth reading. Like most people, I tend to write the same way that I talk. It's just me. :)

All kidding about being in the Witness Protection Program aside for just a moment: many, many people know me as Jim Scott. It's like the 19th century author Mark Twain. Although famous as 'Mark Twain', his legal name (which he didn't change or hide) was Samuel Clemens. I look at Jim Scott as my professional name and use it interchangeably with my legal name, as it's easier to remember. As I said, a majority of my friends only know me as Jim Scott. Even when I inform them of my legal name, they usually prefer to call me Jim Scott. This has never been a problem.

For now, I remain...

Jim
Title: Re: Pooter's surgery updates
Post by: Pooter on June 20, 2008, 04:37:29 pm: WOW! A post by Jim and I didn't have to scratch my head once! ;)

On the poitive side, I continually to get facial movement back SLOWLY and the swelling and associated headaches have gone WAY down (so long as I leave on the wrap also and stay on the meds). I called the doc's office re: the leakage, etc and he wasnt concerned. It seems that the incision is now able to heal, so it's "letting go" now. That's good, right? On the negative side, (no offence moderators) my butt and lower back are sore. Its probably from sitting down most of the day, every day for the last 6 weeks. I also seems to be weaker than I used to be (even after the surgery). Dunno. Perhaps its just due to lack of movement on my part. I'm also now having email / website issues. I haven't gotten any email since yesterday and test email's bounce back with an error. Grrrrr!!! I had an email to my doc that he tried to respond to and I never got. Double-grr.. I have email (one of my other accounts) to the hosting company, so hopefully it will get resolved soon.

Overall, I'm doing well with the exception of getting a brief headache when I stand and the soreness of my back-side (that better, moderators?).. Allergies are acting up, but got clearance from my doc when I phoned to take Allegra D along with the other med I'm on. Yea! Relief of all this is around the corner, I know it! I'm done with it all about now.

Brian
Title: Re: Pooter's surgery updates
Post by: wendysig on June 21, 2008, 12:38:16 am: Briian,
I'm glad to hear your feeling better. Have you told you doc about your leak yet? The fact that there is blood in it concerns me on your behalf. It might be nothiing or it might be something. I'd check with the doc if I were you. Good luck.

Wendy
Title: Re: Pooter's surgery updates
Post by: Pooter on June 21, 2008, 07:47:49 am: I called the doc yesterday, Wendy. He's not concerned about the blood / leakage from my incision. He still thinks I have CSF built up around the incision preventing it to heal all the way. Now that the swelling / CSF build up is down, the incision can now fully heal on that part. I can only guess based on what he said and what I feel around the incision. The swelling is WAY down. Thanks for the concern. :)

Brian
Title: Re: Pooter's surgery updates
Post by: 4cm in Pacific Northwest on June 21, 2008, 09:54:24 am: Pooter,

Quoting you
"I also seems to be weaker than I used to be (even after the surgery). Dunno. Perhaps its just due to lack of movement on my part. "

Could this be from your calorie intake?

I had low energy and a neighbour, who is a dietary technician, brought over boost, ensure and carnation instant breakfast powder (to add to milk) after declaring,
Ã¢â‚¬Å“Heavens you look deathly pale and are becoming a rack of bones!Ã¢â‚¬?
Due to the diuretic I was on, Diamox, I had a reduced appetite and was losing weight like crazy. I was not aware that I was low on Ã¢â‚¬Å“goodÃ¢â‚¬? calories.

Here are some links (I am not promoting Amazon here- I just like that you can read the labels, on their website for examples, without having to drive to a store... You can window shop in your jammies ;) ... like who wants to go shopping after a craniotomy? ??? !)

Boost
http://www.amazon.com/Boost-Nutritional-Energy-Chocolate-Bottle/dp/B000KK4FGA/ref=sr_1_3?ie=UTF8&s=hpc&qid=1214060427&sr=1-3

Ensure
http://www.amazon.com/Ensure-Complete-Balanced-Nutrition-Chocolate/dp/B000AS1LDM/ref=sr_1_15?ie=UTF8&s=hpc&qid=1214060427&sr=1-15

Carnation Breakfast powder
http://www.amazon.com/Carnation-Instant-Breakfast-Nutritional-17-7-Ounce/dp/B000FIIX88/ref=sr_1_4?ie=UTF8&s=hpc&qid=1214060571&sr=1-4

I personally go with the Carnation Breakfast as it tastes just as good, it is a fraction of the cost, and I can control the milk fat content. You choose what sort of milk you mix it with: soy, skim, hormone free etc. I now start my morning off with a hot cup of this instead of coffee. This all started in my post op days when I was tired and had CSF leaksÃ¢â‚¬Â¦ and coffee still tasted disgusting due to facial nerve swelling. I still have coffee but just one cup now, later in the morning, as this first hot bevy is a more nutritious drink. Because you are taking a diuretic and now an antihistamine (also a diuretic) you will have to be careful of other diuretics you add to your diet such a tea and coffee as to protect your kidneys. Thus my neighbour suggested the energy drinks I mentioned above.

Please remember I am not a medical professional only an experienced patient who learned from my medical professionals mistakes. (My Stanford team was great it was the follow up care at home, in Oregon, which was not.) As long as you are still leaking CSF you should also stay clear of people with colds and infections. Quarantine yourself until this stops- as the leak allows direct access to the brain for bacteria still.. Take your temperature regularly until you are on the clearing. Ã¢â‚¬Å“IFÃ¢â‚¬? you spike a high fever you must get medical help right away as this could develop in meningitis. I never spiked a high fever- thank God. I am not trying to scare you but I just want you to be well informed.

Back and Butt pain
Place heat pads on your Ã¢â‚¬Å“posteriorÃ¢â‚¬? (that is a poke & tease ;) :D ;D at my cherished, well written and eloquently spoken buddy Ã¢â‚¬â€œ Ã¢â‚¬Å“ScottyÃ¢â‚¬?Ã¢â‚¬Â¦ AKA Jim Scott :-*) Ã¢â‚¬Â¦and back will help. Do NOT apply heat along "the spine" as this can cause more inflammation and increase swelling and leaks. If the incision is still inflamed you can apply ice- but not more than 12 minutes, at a time, to prevent frostbite. The bed resting is magnifying this for sure- be sure to walk daily (with a buddy to help you)

All what you complained about I too had. It does get better with time. Currently I am practicing double pirouettes on the dance floor. I can do a single but still have balance issues on the double. I would not have thought this possible last August when I had a walker, I was SO tired, my posterior and back ached and I had CSF liquid coming out of my noseÃ¢â‚¬Â¦ not to mention the morning sickness and appetite loss with the Diamox. It was a tough 9 months- and unlike pregnancy there was NOT a-buddle-of-joy at the end- however the tumor is gone now. ;D

Pooter- it does get better! Hang in there.

Keep moving forwardÃ¢â‚¬Â¦

Daisy Head Mazy :)
Title: Re: Pooter's surgery updates
Post by: 4cm in Pacific Northwest on June 21, 2008, 10:18:16 am: Ã¢â‚¬Å“ScottyÃ¢â‚¬? (and his readers)

Off topic here. Jim Scott I think you have a natural talent and gift for writing. I do not want to loose you, your time and efforts as our moderator however I really think you should ALSO write a book (reference, informational, novel or otherwise) as you are so eloquent with words. Your posts challenging me to go to on-line dictionaries ...and I think this is great. You are bringing up the mark that is making us all life long learners here. Not just in the neuroscience of Acoustic Neuroma but also in English Language. You are just the sort of a retiree that would make a huge difference in a high school English class - as a volunteer. (Ever thought of doing this?)

Speaking as a teacher and a curriculum writer hereÃ¢â‚¬Â¦ I think you and your posts are awesome Ã¢â‚¬Â¦ Please do not lower your levels. I personally find your posts intellectually interesting and healthily challenging me to expand my vocabulary.

I think our Ã¢â‚¬Å“enterpriseÃ¢â‚¬? team here is pretty awesome.

Jeff is our outdoor enthusiast who is often away kayak fishing.
Pearly Whites smile ;D keeps us well fed with treats of popcorn and chocolate that are not good for our teeth Ã¢â‚¬Â¦but we eat these because they are delicious and are comfort foods. Her huggles alone are also comfort food.
Steve is our wonderful high tech info enthusiast with a sunny disposition on a rainy dreary and overcast Pacific Northwest day
And you, Jim Scott, Ã¢â‚¬Â¦are our amazing English professorÃ¢â‚¬Â¦ who has the power to beam us UP! ;D

Do not change- we like you as you areÃ¢â‚¬Â¦ Here is a textbook for all us students to bookmark and share.
http://www.thefreedictionary.com/
My vocabulary list has increased tenfold since Professor Scotty ;) came on board.

HeÃ¢â‚¬â„¢s a keeper is our wise ole owlÃ¢â‚¬Â¦

Cheers,

Daisy Head Mazie :)
Title: Re: Pooter's surgery updates
Post by: Kaybo on June 21, 2008, 10:20:32 am: I agree WHOLE HEARTEDLY with Daisy!! Keep on keeping on Jim!! ;)

K
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 21, 2008, 10:51:43 am: Daisy -

in reference to your "off-topic" post, I couldn't agree more. Jim is a wealth of knowledge and I always have, and always will, enjoy his very eloquent, insightful posts. I am amazed by his vocabulary, his writing style, and his willingness to always rise to the occasion on this forum and help others. I hope he never changes - and yes, I think he would write an incredible book.

Jim -

on the same topic, I want to say that I hope that I haven't offended you in any way. As you said "most folks only tease people they like and feel comfortable with" which is exactly why I like to tease Lori, K, Steve, Phyl, you, and several others. I tease my doc mercilessly at times also, but I'm confident he's come to the realization that I'm just having fun with him because that is what I "require". I've also taken the time to seriously thank him on many occasions, so I'm sure he knows "where I'm coming from".

I take my fair share of teasing also and I wouldn't want it any other way - it's the way that I am. I've spent way too many years of my life being way too serious - and frankly, I've come to realize that life is too short not to live it the way I want to.

That said, if you ever feel I am out of line with my comments or teasing, please just PM me and I'll tone it down. Scout's honor ;)

Jan
Title: Re: Pooter's surgery updates
Post by: Cheryl R on June 21, 2008, 10:54:11 am: The strawberry instant breakfast is the best to me as it doesn't seem to have an after taste. The chocolate does a little. A lot of grocery stores don't carry the strawberry so may take some looking. This is something I keep on hand even before having surgery.
It is important that one has a protein intake of some kind to help incisions heal. Many of our elderly hip surgery pts always had to be reminded of this.
I am wondering too if the blood tinged drainge you had wasn't a serous type drainage as that can be blood tinged too. Then goes to more of a yellow cast.
Cheryl R
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 21, 2008, 11:05:53 am: Quote from: Cheryl R on June 21, 2008, 10:54:11 am
It is important that one has a protein intake of some kind to help incisions heal. Many of our elderly hip surgery pts always had to be reminded of this.

Cheryl -

thanks for sharing this information. My dad has had 3 hip replacement surgeries - one of his hips was replaced 19 years ago and was just replaced again about 6 weeks ago. I don't believe anyone ever told him this and it sounds like they should have. I'll have to mention this to him.

Hope you are doing well,

Jan
Title: Re: Pooter's surgery updates
Post by: ppearl214 on June 21, 2008, 11:26:08 am: Quote from: 4cm in Pacific Northwest on June 21, 2008, 10:18:16 am

Pearly Whites smile ;D keeps us well fed with treats of popcorn and chocolate that are not good for our teeth Ã¢â‚¬Â¦but we eat these because they are delicious and are comfort foods. Her huggles alone are also comfort food.

I'm lurking from time to time and trying to stay caught up on things... and I lurked and saw this.... and honestly, you make me blush...... Thank you to my/our favorite Daisy Hazy Mazie for such kind words.....

*slips the Daisy a $10 bill behind back......* Is that enough, hun? ;)
Title: Re: Pooter's surgery updates
Post by: sgerrard on June 21, 2008, 12:50:55 pm: I just love the image of Daisy doing single pirouettes, and practicing doubles. Who says ANers can't dance?

Steve
Title: Re: Pooter's surgery updates
Post by: Pooter on June 21, 2008, 01:11:53 pm: Thanks for the information, Daisy! I'll have to take them. Honestly, the soreness is MUCH less today (along with the headaches and swelling). I really think I was getting dehydrated; I made a point to have more water to drink in the last couple of days (I don't drink enough anyhow). And, I really think the leaking on the bandage was just the incision finally healing after the swelling came down. It's been 2 days since any "leakage" was on the bandage.

Cheryl: I never really saw anything but blood on the bandage. There was never more than a drop or two. I don't think it was a serious leak, but rather the incision on that part that was swollen healing finally.

Oh, and I agree with the "off-topic" post. I'll go a step further and say there are others that are inspiring with their posts in one way or another. But, the ones you listed are "keepers" for sure.

Brian aka Pooter...
Title: Re: Pooter's surgery updates
Post by: Cheryl R on June 21, 2008, 02:06:17 pm: A serous leak does not mean it is a serious one. The incision there can cause some fluid which can be blood tinged at first but as the blood clots, it becomes yellowish and more clear looking. There are several reason your body produces it. This is not the best explanation of it and I forget that some people have never heard of it if a dr doesn't describe it to them.
Jan, many elderly people do not like to eat meat as their taste buds change when they are older so other forms of protein need to be given to them. When they are healthy but may live alone,they do not always cook enough for themselves for various reasons. I have a healthy mother in law that way.
Cheryl R
Title: Who knew?
Post by: Jim Scott on June 21, 2008, 02:58:49 pm: Daisy:

Your generous, encouraging post referring to my messages was unexpected and, frankly, rather astonishing. So much so that I've sent you a PM to fully express my appreciation and some explanations that would likely bore most of our members, so I decided to keep it private.

Allow me to offer a sincere public thank you and hope that will suffice, for the time being. Now, if you'll excuse me....one to beam up!

Jim
Title: Re: Pooter's surgery updates
Post by: wendysig on June 21, 2008, 05:44:40 pm: Brian -
Glad to hear you've spoken to you doc and that the swelling has gone down. I wish you a speedy recovery with no more incidents. It seems that you've been through quite a lot and have handled it with grace under fire. People like you , Debbi and Tamara who go through real trials and stay so positive are a reali inspriation. Wishing you all good things.

Wendy
Title: Re: Pooter's surgery updates
Post by: Pooter on June 21, 2008, 10:35:39 pm: Cheryl: I don't think mine was a leak except under the skin. I didn't leak anywhere. I noticed a drop or two of blood on the bandage, but I (now) believe it was the incision on that part finally healing after the swelling has gone down. I haven't seen any blood there in several days.

Wendy: Thanks! We alll have been through alot! Brain surgery isn't a walk in the park. Some of us have more complications than others (some perm. while others not). But, we make it. That's the important thing. Every time I have a REALLY bad day, a really good day seems to follow very soon afterward. Like today, for me. I felt good and almost felt normal again. Aside from the swelling being up again a little and being tired late in the day, I felt really good. I try to remain positive, but I have my moments. I try not to let them show outwardly, but I have them. Jenni has been through ALOT and I often don't want to burden her with my crummy day or feeling. I know it will pass. It always does. This week I go back to work in the office part time. Jenni has offered to drive with me this week. She's off and I could use the extra encouragement in the truck. ;) I haven't driven very much since my surgery (about 6 weeks now) and she's nervous about me going so far, in traffic, alione. I don't blame her, I'm a bit nervous too even though I'm excited to get back to the office. We're a small-ish company of about 200 and we quite literally are like family. Did I mention that my boss (one of the co-owners of the company) came over to visit me last weekend? Debbi, Tamara, and the rest of us all have been through alot, but we will make it. Thanks! :)

Brian aka Pooter...
Title: Re: Pooter's surgery updates
Post by: Debbi on June 22, 2008, 08:49:31 am: Hey Pooter!

Glad to hear that you are feeling a bit better. It's a heck of a trip, isn't it? I think part of what gets us all through, though, is the ability to see that NONE of this is fatal. MaryBKAriz posted early today on a CK thread and she put it so very well when she said that the glass is always half full.

Maybe that is why so many of us on this forum continue to have a good attitude and a sense of humor - we can say to ourselves, yes, I have (fill in the blank - SSD, facial paralysis, Leaky incisions, etc, etc, etc) but look at all the the things I didn't get! And look at all the other blessings in my life! You are definitely one of those people. And, it's okay to have crummy days sometimes!

Debbi - still some leaky spots on my head, too...
Title: Re: Pooter's surgery updates
Post by: Pooter on June 22, 2008, 09:27:17 am: Debbi - Good today so far. Swelling appears to elevated from it's lowest point and some slight headaches, but otherwise ok. I'm taking care of the 3 yr old right now and quite possibly the 7yr old too this afternoon. Jenni left town yesterday. She got the call that a friend of the family had her 2nd stroke last week (she's really old) and they're possibly removing the venthilator today. When it rains, it pours eh? You are right on target about knowing it's not fatal (even though we all feel like it is after the mack truck hits eh?). Things could be MUCH worse than they are for me and the rest of us too! We all have those days when we feel crummy and don't think it could get any worse, but among other things this forum helps ALOT. What are the leaky spots on your head? Incision finally healing in areas that it previously didn't due to the infection?

Debbi, thanks for being you! And, thanks to everyone for being themselves.. You all have helped in your own way whether you know it or not. We all have our support systems. For many of us, that includes the people on this forum. Thanks for that!

Brian
Title: Re: Pooter's surgery updates
Post by: 4cm in Pacific Northwest on June 22, 2008, 10:03:24 am: Debbie & Pooter,

It was the people on the forum that got me through this. I also highly recommend going to support groups meetings in your locale.
http://www.anausa.org/group_meetings.html
The combination of connecting with both can really make a difference in oneÃ¢â‚¬â„¢s recovery: physically, mentally and spiritually.

Many people were encouraging to me, on this forum, and in my Portland Oregon group. :)

Now I feel my old self I really feel it is important to Ã¢â‚¬Å“pay it forward.Ã¢â‚¬? Little did I know this time last year I would be upfront and asking people very personal questions about their Ã¢â‚¬Å“PoopÃ¢â‚¬? (constipation ;) :D ), caffeine intake, exercise or even answering their personal questions of me. The ANA has a real wonderful family feel about itÃ¢â‚¬Â¦ where we can talk about these issues. In some case we are lounging on a Sunday morning, in PJÃ¢â‚¬â„¢s, coffee in hand and definitely a bed-head of hair. But hey-appearances do NOT matter here as much as good character, integrity, kindness and goodwill. I now understand is why people often write in their posts Ã¢â‚¬Å“my AN familyÃ¢â‚¬? . The people here understand things my own family cannot- as there is so much empathy - being that so many can say,
Ã¢â‚¬Å“Ã¢â‚¬Â¦been there done that- understandÃ¢â‚¬Â¦Ã¢â‚¬?
Pooter Have fun with those kids this afternoon!

We are going hiking to a waterfall (better pack my earplug or the tinnitus will be tenfold) and our kids are pumped. I would not have believed, this time last year, that I would be hiking with my kids again. Healing happensÃ¢â‚¬Â¦

Cheers,

Daisy Head Mazie
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 22, 2008, 10:14:25 am: Brian -

it's great to read that your really bad days are followed by really good days. In my experience, you are well on the road to recovery and before you know it the really bad days will be just a distant memory.

Thanks for sticking around post op to share your experiences; they are very helpful to the newbies who join us every day - plus it keeps the rest of us from wondering how the heck you are ;)

I'm so glad you're doing well ;D

Jan
Title: Re: Pooter's surgery updates
Post by: wendysig on June 22, 2008, 11:25:36 am: Brian,
I'm glad to hear you're feeling good today, although I was sorry to hear about Jenni's family friend. No one ever said life would be easy or always fun, and we have to do the best we can. Thanks for your reply and as Jan said, sharing your experiences does help the newbies. While technically not considered a "newbie" here anymore, my surgery has not yet taken place so in that sense, I am still a "newbie" to myself. Although reading about some of the experiences here can be a little scary, they way most people handle them and are inspiriational, as I have said. Most of what I've learned here has given me good insight on what I might expect (I know everyone is different though) post-op. I always feel better about things if I know what could be in store for me. I hope for the best and try to be prepared for the worst. Trying to see the proverbial glass as half full is something I've always tried to do with a pretty fair amount of success. I hope you have more good days than bad, more joy than sorrow and a smooth and steady recovery.

Wendy

P.S. Just feeling kind of philosophical today if that last sentence sounds soppy.
Title: Re: Pooter's surgery updates
Post by: Pooter on June 23, 2008, 11:10:51 am: Good afternoon all! This is Jenni again. It is true that I lurk here often. Brian will frequently post here, but doesn't always tell me what he is feeling (protecting me I know). This way I know the truth about how he is feeling and he doesn't have to "complain" to me. :) He knows I lurk, so it's all good.

I only have a minute to post, but I wanted to thank you all not only for your continued support of Brian and his healing, but for us as a couple as well. I know it's an odd story, but I hope it all leads to a happy ending. I know right now, I am so thankful for this place in my life. God wouldn't bring me to it if he couldn't bring me through it. Admittedly, I sometimes wonder who God thinks I am and wonder how He thinks I can handle so much, but I guess I will learn that in time.

About Brian and the healing... he is getting better day by day and becoming more of the old Brian I fell in love with over 17 years ago. Due to circumstances beyond my control, I had to go out of town and left the little one with Brian and all went very well. The house, the kiddo, and Brian were all in one piece when I returned. :) Honestly, I think it was good for the two of them to get that alone time together. Kyle has been missing out on that. Also, I rode with Brian to work today. He drove to the daycare and then to work. He did an AWESOME job driving. I won't report on the parking as of yet. ;) (Hi Brian)! I hope he feels as much pride about the trip as I do.

Happily lurking until next time...
Jenni
Title: Re: Pooter's surgery updates
Post by: lori67 on June 23, 2008, 12:05:49 pm: Jenni -

As the saying goes "God never gives me more than I can handle - I just wish He didn't trust me so much!". I've felt that way many times!

I'm glad to hear Brian's driving went well (phew..). Parking... well, I have to tell you that my husband did not have brain surgery and still cannot park, so that might just be a male trait! ;)

It seems clear to me that Brian thinks the world of you, and I would say that you feel the same of him. Sometimes it just takes a little longer to figure these things out than we'd like! As long as it works out in the end, I guess that's all that matters!

And I'm sorry to hear about your family friend. I hope everything worked out for the best with that.

Happy Lurking!
Lori
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 23, 2008, 02:35:43 pm: Hi, Jenni -

thanks for stopping in and giving us your update on Brian :) We've missed you around here.

Don't worry about the parking - I couldn't park between the lines for many months post op; eventually I did it.

Hope your friend is doing better.

Jan
Title: Re: Pooter's surgery updates
Post by: Jim Scott on June 23, 2008, 02:41:29 pm: Hi, Jenni:

Thanks for both lurking and posting. Your update on Brian is extremely encouraging and well received by those of us who have followed his recovery. Your commentary on Brian's parking is amusing but, in fact his parking ability (good or bad) probably has little to do with his surgery. While I respectfully disagree with Lori that parking ineptitude is some sort of inherent male trait, I'll admit that parking a car can be a challenge for both sexes.

Your attitude remains superb and I concur with your trust in God to help you through the hard times. I have zero interest in having any sort of theological discussion with anyone but isn't it ironic that some folks always think the good times happen because they deserve them but immediately blame God when things get rough? I don't get that attitude...never have. That we're given the emotional strength and patience to endure the hard times, especially when our child, spouse or other loved one is involved is a gift that I, for one, both honor and appreciate. I'm glad that you seem to, also. Never lose that perspective, Jinni. It will serve you well.

Stay positive and supportive Jenni and feel free to lurk or post as often as you wish. After all, you're family, now. :)

Jim
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 23, 2008, 03:10:43 pm: Jenni -

found a topic that I started last year regarding parking. Thought it might be helpful for you and Brian to see what others have experienced post op.

http://anausa.org/forum/index.php?topic=4009.msg42877#msg42877

Jan
Title: Re: Pooter's surgery updates
Post by: lori67 on June 23, 2008, 04:27:57 pm: Aw, Jim, I just said it MIGHT be.... you never know... ;)
Title: Re: Pooter's surgery updates
Post by: Pooter on June 23, 2008, 05:08:12 pm: HEY! I resemble that remark! ;)

Thanks all..I do feel proud about the driving. The parking, well, let's just say I was between the lines on the first try. I was a *ahem* little bit *ahem* crooked. It left some to be desired for sure. I rarely, if ever, did this pre-surgery. So, it's not a male thing, Lori. ;)

Jenni: Even though ya lurk most of the time (except during the surgery), I still love you! So, I didn't park so well.. At least I got ya there safe! :P (Have you let go yet?!?) When ya get your own account here anyway? ;)

Lori: I surely hope God doesn't give anyone more than they can handle. Jenni has been heroic during all this. As you all know, it's not easy for any of us, but those that support us daily are great too!

Jim: As usual, a great, thought provoking post. I would expect nothing less from you. :)

Jan: Great link ya sent. I've been in the lines; just a little crooked sometimes. That's why Jenni's accompanying me. ;)

Great being at the office for a few hours today. I am the IT Manager for my company, so there is no time to sit around most days. I was a bit tired afterward, but it was good to get back up there. As stated before, we're like family up there so I, of course, had to make my rounds and get lots of hugs. ;) The swelling is down again today, which is good. Either the wrap or the med (or both) seem to be helping. Thanks for all the encouragement.

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 23, 2008, 06:46:10 pm: Brian, back to the office - cool 8)

Don't overdo it ;)

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on June 23, 2008, 06:57:34 pm: Jan -

Heh.. I'm only there 4-5 hrs a day this week. But, at least I'm back there at all. Thanks! And, I won't overdo it.. I sit when I need to, walk when I need to, and crash afterwards if I need to. ;)

Brian
Title: Re: Pooter's surgery updates
Post by: Kaybo on June 23, 2008, 08:28:05 pm: Jenni~
Glad to "see you"!!

Brian~
Just a thought...when I went back to work - I did 1/2 days at 1st and one day I would go in for the morning and one in the afternoon (I taught so I had to do set times). I realize your schedule is probably more flexible, but it was good to experience the different times, traffic, etc.

K
Title: Re: Pooter's surgery updates
Post by: sgerrard on June 23, 2008, 11:48:48 pm: Brian and Jenni, sittin' in a tree... ::)

Steve
Title: Re: Pooter's surgery updates
Post by: Debbi on June 24, 2008, 04:09:56 pm: Goodness, Steve, what a lovely voice you have! Tenor?

Debbi
Title: Re: Pooter's surgery updates
Post by: Captain Deb on June 24, 2008, 06:59:14 pm: Part of my recovery was spent with my good friend and partner in pirate crime, Capt Marge, who I sailed with for years in the Caribbean. Twice a day she insisted on laying my head down on the kitchen table, irrigating the incision with hydrogen peroxide, and gooping the thing with a coat of neosporine. Years of sailing in the tropics with limited access to medical care made us very infection-wary. My incision healed beautifully, nary a leak or a weep. All this talk of folks incisions weeping and leaking and running EEEEWWWW!!!

Pooter, Hope you are feeling better, and your energy is returning and the headaches are staying AWAY!!!

Capt Deb(http://i235.photobucket.com/albums/ee60/Captdeb_photos/pirate2.gif)
Title: Re: Pooter's surgery updates
Post by: Pooter on June 24, 2008, 11:56:19 pm: Thanks Deb! So far, so good. I actuallly left the homemade bonnet off for 7 hrs tonight and the swelling was still WAY down from where it was. I dont feel comfortable sleeping without it yet though! ;)

I'm sad to say that our friend, who's 83 btw, never woke up from the stroke. They did decide to pull the power on the venthilater on Sunday, but she breathed on her own! She always had to do things her way anyhow. ;) Anyhow, she passed away last night. We got the call about midnight that she moved on about an hour earlier. Jenni's headed up there with the 7 year old tomorrow after I go in to the office for a few hours. Then, I'll work from the house Thursday and Friday and looking after the 3 year old. Even though driving (and parking thank you!) is good, I don't yet feel comfortable picking up the 3 year old from daycare afterwards and driving home. I'm pretty pooped after being at the office and have let Jenni drive home. Anyhow, the funeral will be Friday (the day that my father that only comes to town every few years flies in from PA). So, I'll be here with the 3 year old Thursday and Friday. Jenni and the 7 year old should be back either late Friday night or early Saturday. Thanks for your prayers. When it rains it pours, eh?

Peace all!

Brian

PS Steve, I actually laughed out loud when I read your post! The 7 year old asked what I was laughing at.. Of course, I said "Nothing". ;)
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 25, 2008, 07:23:25 am: Brian & Jenni -

so sorry to hear your friend has passed away :( I'm glad that she lived to be 83 though - hope I live at least as long.

Prayers,

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on June 26, 2008, 06:42:42 pm: Thanks Jan! We certainly appreciate it..

I have been gone from here the last couple of days. I've been sidelined by a headache that won't go away! I've had it since yesterday afternoon. Last night it was really bad, and today it's better. But, between resting and wrestling the 3yr old (Jenni took the 7 yr old with her out of town) and not able to concentrate on anything but this headache, I wasn't able to work from home today. Hopefully, tomorrow will be different! Hopefullly I'll be able to work a few hours before my dad and his wife come to town and over. I dunno if I overdid it going back to the office this week, I'm dehydrated from the med, or what. Anyhow, sorry I have been gone from here the last couple days..

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 26, 2008, 06:46:30 pm: Brian -

sorry to hear about your headache. Some days are better than others, although I don't really know why that is ???

Try to relax and get some rest. Maybe your dad and his wife can be persuaded to take the 3 year old off your hands to a little while - which might give you a much needed break.

Take care,

Jan
Title: Re: Pooter's surgery updates
Post by: yardtick on June 26, 2008, 07:20:35 pm: Pooter,

I've got a doozie of a headache today. I find the weather can really play havoc on the headache meter. I feel for you.......it's going to thunder soon.......I feel it. :'(

Anne Marie
Title: Re: Pooter's surgery updates
Post by: Pooter on June 27, 2008, 09:40:05 am: Thanks Jan and Anne Marie!

I still have somewhat of a headache today, but last night was the first (and only) time I ran a fever along with it. I have contacted my doctor. Additionly, I'm always cold (with or without fever). The temp is set at 76 at the house and everyone else is comfy, but I'm freezing. Especially my hands and legs. Anyone else have that? I'm still at home with the 3yr old which is challenging enough. ;)

Brian
Title: Re: Pooter's surgery updates
Post by: Debbi on June 27, 2008, 12:02:52 pm: Hi Brian-

Really sorry to hear about the headache - hope it continues to get better. I have managed to avoid this particular complication, but I really sympathize - headaches are SO debilitating.

Very concerned to hear about the fever - have you heard from your doctor about that? Not sure what to make of the cold extremeties, although it suggests circulation problems. Please be sure to let us know what the doc says?

In the meantime, try to rest. At 8 weeks, I am having days where I am just tired to the bone - I know how frustrating it feels. Hanh in there.

Debbi - sending you good thoughts
Title: Re: Pooter's surgery updates
Post by: Cheryl R on June 27, 2008, 12:23:16 pm: I am always cold after the AN surgeries. I now remember and took winter pjs with me to the hospital. It is just recently that I seem to be doing better but some nights I still will have a problem. For a long time it was every evening. I do warm up after been in bed a while with covers while my husbnad has almost none. I never did mention it to the dr. I don't seem to have a fever with my oral thermometer. I did a while back of 99.2 when went to the dr but I had an infected big toe at the time. I had part of a toe mail removed 2 yrs ago and it has been acting up again and am debating whether the toenail again needs to be removed on the side. I am just recently off antibiotic.
Cheryl R
Title: Re: Pooter's surgery updates
Post by: Kaybo on June 27, 2008, 05:28:57 pm: Pooter~
I have TONS of family and 2 nieces that are babysitting age if I need to send them over...seriously, they are good girls - I actually have nephews too if it is a boy!

K
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 27, 2008, 05:59:42 pm: Pooter -

I have no experience with what you are describing - other than being at home with a challenging 3 year old - only in my case it was 2 challenging 3 year olds :o

As Debbi mentioned, the fever might be of some concern. I'm glad you contacted your doctor about that. Please let us know what he says.

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on June 27, 2008, 08:02:40 pm: Thanks all! I finally heard from my doctor and he gave me clearance to take OTC pain meds like ibuprofen or tylenol. My temp was somewhat elevated (98.9) before taking tylenol. After taking it, not only is the headache gone (for now) but my temp is back to normal (97.9) and I'm not as cold. Weird I know. So, everything is "normal" again after taking the tylenol.

So far, my doctor doesn't seem to be concerned with the coldness or headaches or fever. I'm not sure whether to take that as good news (that he's level-headed about it all) or bad news (that he's flippant about it all). Time will tell. For now, everything seems "normal" again. Go figure.

Kaybo: My dad and his wife came to town today, so I got a bit of a break from the little rebel. He really took a liking to my step-mom. Thanks for offering though!

Thanks for the concern all!

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 27, 2008, 11:11:48 pm: Pooter -

glad to hear you're back to "normal" ;)

Jan
Title: Re: Pooter's surgery updates
Post by: wendysig on June 29, 2008, 01:10:02 pm: Brian,
Sorry I fell behind on this thread. Sorry to hear that you had a few really rough days recently, but even more glad to hear you are feeling better. I'm sure your dad and step-mom taking charge of your three year old will help give you time to regroup. Take it easy and don't overdo it for now. Hope the next few days have you feeling better and stronger.

Sending good thoughts your way,

Wendy
Title: Re: Pooter's surgery updates
Post by: Pooter on June 30, 2008, 10:56:39 am: Well, it went from really good (pre-op), to really bad (right after op), to getting better, to worse again. While the OTC drugs have helped, everytime they wear off now my temp shoots back up.. I've run a fever since Thursday night (along with the headaches, being cold, back/neck ache, etc). I contacted my dr's office today and they now want to do a spinal tap to rule out an infection of the spinal fluid (aka menengitis). They will do that tomorrow. At this point, I don't know whether to hope that's it or hope it's not. I'm just tired of taking ibuprofen/tylenol every 4-6 hrs to keep the fever/headaches in check. Ugh! When does it stop!?!? It's one thing after another!

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on June 30, 2008, 11:03:38 am: Pooter -

sorry you are having to deal with all these "issues". Although I can understand you aren't thrilled with the spinal fluid tap to rule out infection, IMO it's definitely something that needs to be done. Someone needs to get to the bottom of the fever "mystery".

I'm hoping that the results of the tap will help your doctor decide what needs to be done to make you feel better.

Sometimes the road to recovery has many bumps - and sometimes, unfortunately, the bumps are large. Stay strong and keep the faith. You'll get through this. We're all here to support you.

Please let us know how things go tomorrow. I'll be thinking of you :)

Jan
Title: Re: Pooter's surgery updates
Post by: Syl on June 30, 2008, 11:54:35 am: Pooter,

Sorry you're having a rough time with the fever. Hope the doc can figure out what it is and soon and take care of it.

Syl
Title: Re: Pooter's surgery updates
Post by: Tamara on June 30, 2008, 12:19:02 pm: Sorry to hear of the latest development, Brian, but really, meningitis isn't something you want to fool around with, so at least you'll know one way or other. Here's to hoping it ISN'T an infection, but that they find out what the deal is.

Take care, and keep us posted,
Tammy
Title: Re: Pooter's surgery updates
Post by: cindyj on June 30, 2008, 12:22:49 pm: Sorry for this latest issue for you, Brian. Know it must be so frustrating. Hope they do get to the bottom of it quickly and start you back in the right direction of healing.

Cindy
Title: Re: Pooter's surgery updates
Post by: Jim Scott on June 30, 2008, 04:13:07 pm: Brian:

I share the regret of everyone who has posted on this latest manifestation of the post-op complications you've been dealing with. It stinks - but I know you'll pull through this, it just takes longer than we would like. A spinal tap is no picnic but in your case, probably a good idea to help your doctor get to the source of your temperature problem.

Know that you're in the thoughts and prayers of many people, Brian and we all wish you better days and renewed healing.

Jim
Title: Re: Pooter's surgery updates
Post by: wendysig on June 30, 2008, 05:52:13 pm: Brian,
Sorry to hear things are still not going well. Hopefully the spinal tap will tell the story. I imderstamd upir ambiguous feelings. Whatever the problem is, II hope teh doctor gets to the bottom of it once and for all and that your soon will truly be on the mend.

Best wishes,
Wendy
Title: Re: Pooter's surgery updates
Post by: Pooter on June 30, 2008, 07:30:24 pm: Thanks everyone. I know I'll get to the bottom of it, but it doesn't take away my frustration of having taken a few steps back in my recovery. I'm worse than I was a few weeks ago and that VERY frustrating to say the least. I'm not looking forward to the tap. But if it helps them get to the bottom of the fever, headaches, achyness, etc then so be it. I get a couple of hours of relief at a time. Other than that I'm cold and just waiting for when I can take tylenol again (that helps with the coldness too), or my fever shoots up, or I get headaches, and I'm constantly achy. I just want them to find it and fix it. As the saying goes, I'm sick and tired of being sick and tired. Thanks for all your support through everything. Good, bad, and indifferent. I'll update when I'm able to after I hear about the tap.

Thanks again!

Brian
Title: Re: Pooter's surgery updates
Post by: lori67 on July 01, 2008, 08:05:23 am: Brian -

Sorry I got in on this thread a little late, but I hope all is well and they've figured out what is causing your fevers/headaches.

I know once they figure that out and fix it, you'll be well on your way to recovery again. Another one of those "bumps in the road". Don't let it discourage you - we all seem to have had some bumps, but we come out okay in the end. You will too. Hang in there.

And I think you're right - you're having fun all wrong! :D

Lori
Title: Re: Pooter's surgery updates
Post by: Sammict on July 01, 2008, 08:18:21 am: Brian
I was sorry to hear about your set back I'm sure the doctors will get to the bottom of everything and you will be good as new soon.

I will be thinking of you and your family good luck with the tap.

Sam
Title: Re: Pooter's surgery updates
Post by: Debbi on July 01, 2008, 08:47:01 am: Hey Brian-

I am so sorry to hear about this latest bump in the road - and I can SO relate to the frustration you are feeling. I really hope the docs get to the bottom of it - and fast. An infection of any sort is nothing to mess around with. And, surely, all the symptoms you are having indicate that something is amiss.

I wish I could send you a big warm blanket of comfort right now. Instead, I'll have to settle for sending you lots of prayers and good thoughts. Please keep us updated - and tell Jenni to give you and extra hug (give her one,too - I am sure she is very worried.)

Debbi - sending all my energy your way
Title: Re: Pooter's surgery updates
Post by: Kaybo on July 01, 2008, 02:03:04 pm: Brian~
Just wondering how today went & if you knew anything yet...

K
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 01, 2008, 02:37:15 pm: Brian -

not to rush you, but I was wondering too.

Hope things went well. I've been thinking about you :)

Jan
Title: Re: Pooter's surgery updates
Post by: wendysig on July 01, 2008, 06:37:11 pm: Brian,
Just checking in to see how things went today and how you are feeling. Looking forward to your post updating us And hope you are feeling better.

Best wishes
Wendy
Title: Re: Pooter's surgery updates
Post by: Pooter on July 01, 2008, 06:56:38 pm: Hello all. This is Jenni. Brian is sleeping (and laying flat for 12 hours as instructed). We don't know the results of the test yet, but hope to find out sometime tomorrow. It is very frustrating to now know what is going on and what is causing him to become so weak and sweaty all of the time. He is just so miserable and it is evident with every glimpse of his face. I only hope this test gives us some answers and we can get him on the road to recovery soon again. Thank you all for your support during this difficult time. Sometimes I feel as if I am not a good support to him and that I drive him crazy with asking how he is all the time, but it is so scary to me and I just want him to get better. I'm ready to fatten my boy up again (since he has now lost 25 lbs) and start planning some weekend away... me, him, no hospitals!!! I will keep you all updated as I get more information.
Love,
Jenni
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 01, 2008, 08:14:30 pm: Jenni -

thanks for posting. I'm glad to hear that Brian is sleeping; I can't imagine the spinal tab was too pleasant :(

This has got to be so frustrating for both of you. I'm keeping my fingers crossed that you guys find out very soon what Brian's problem is, so the docs can work on solving it. I'm glad you have each other to lean on. You've got us, too :)

A weekend away would do you both a world of good. I hope you are able to plan something soon. Keep the faith.

Love,

Jan
Title: Re: Pooter's surgery updates
Post by: Debbi on July 02, 2008, 09:55:23 am: Jenni-

thanks for posting and letting us know how Brian's doing. I am keeping him (and you) in my prayers. Let us know what you find out - and don't let the doctors string you out over the weekend!

Debbi, keeping everything crossed
Title: Re: Pooter's surgery updates
Post by: Kaybo on July 02, 2008, 03:05:18 pm: Jenni~
I thought I posted last night but I was so tired, maybe I just THOUGHT about what I wanted to write! Thanks for updating us - I so hope that this shows some answers so that you can treat whatever and get on with your life!! Wonder if you have heard anything yet?? Y'all are definitely in my prayers.

K
Title: Re: Pooter's surgery updates
Post by: wendysig on July 02, 2008, 09:15:42 pm: Jenni -
Thanks for updating us on Brian. As you can tell, we are all very concerned for him. I hope the spinal tap give you all some answers and the doc can figure out what is wrong and treat it and soon have Briian back on the mend. I'm sure this is hard on you too and I echo what Jan said. A weekend away for the two of you would probably do you both a wolrld of good. Please keep us posted.

Wendy
Title: Re: Pooter's surgery updates
Post by: lori67 on July 02, 2008, 09:33:33 pm: Jenni - hope you're both hanging in there. This has to be tough on both of you.

Just keep thinking of that well deserved weekend away. That definitely sounds like something to look forward to.

Let Brian know we're thinking about him.

Lori
Title: Re: Pooter's surgery updates
Post by: Pooter on July 02, 2008, 10:24:32 pm: Well, we don't really know anything more, but we are closer to getting some answers. Brian was admitted back into the hospital today due to the doctor finding some white blood cells in his spinal fluid. They mentioned that it could be bacterial meningitis, but they did not have enough evidence at this point to say that it is OR to rule it out. Apparently, there are different types of white blood cells and the type of white blood cells he apparently has a really high count of indicate that there is something to do with an allergy and not bacterial meningitis. In other words, they are looking into the possibility that he had an allergic reaction to something and that eventually led to an infection. He went on the new medication on June 13th (Friday the 13th) and it was around the 16th that he started feeling really run down. We thought he was tired from going back to work part time, but looking back, I wonder if he was having an allergic reaction to the medicine and we just didn't know it. The fever did not show up until last Thursday night, but then again, infections don't begin immediately. Brian's surgeon and the infectious disease doctor are planning on letting his culture "grow" for a couple of days and see if that gives them any more answers. They also took more blood from him tonight to try and piece together the puzzle as well. For now, he is resting and hooked up to an IV with a couple of antibiotics. I will update as I know more information. Keep the prayers coming!
Love,
Jenni
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 02, 2008, 11:00:09 pm: Jenni -

thanks for the new update. It's so nice of you to think of us with all that you have on your plate right now.

It sounds like they may be closer to solving Brian's mystery symptoms. I certainly hope the antibiotics do the trick.

Keeping you both in my prayers. Tell Brian we're all thinking about him and wishing him the best.

God Bless,

Jan
Title: Re: Pooter's surgery updates
Post by: wendysig on July 03, 2008, 06:53:07 am: Jennii-
On one hand I'm sorry to hear Brian is back in the hospital, on the other if that's what it takes to get him better then I guess he's where he needs to be for now. I am leaving for vacation tonight and am not briinging my laptop with me so I will be out of touch for two weeks. Please know that you and Brian will be in my thoughts and prayers. I hope the docs discover the problem quickly and that he is soon back on the mend.

Best wishes,
Wendy
Title: Re: Pooter's surgery updates
Post by: Debbi on July 03, 2008, 09:04:54 am: Jenni and Brian-

I echo Wendy - so sorry that you're back in the hospital, Brian, but also know it is the right place to be now. This is so creepily familiar to me, unfortunately. I will hope that your outcome with the infection turns out as well as mine did (hopefully minus the PICC line).

I really know how discouraging this is, but hang in there.

I know the hospital is probably not the romantic getaway that you were both looking for this weekend, but it is the best place to be right now.

Brian, prayers continue to come your way. Jenni, take care of youself, too.

Debbi
Title: Re: Pooter's surgery updates
Post by: Pooter on July 03, 2008, 09:12:50 am: Greetings from the hospital!! Its hard to type one-handed (with the IV being at the crook my arm and being tempermental if i twich my nose wrong) but we'll give it a shot. I see Jenni has kept you well informed thus far. I feel MUCH better today. Not sure if its the lack of meds (diomox) or increase of meds (antibitics and steroids). My temp was elevated last night but not all day that I expected.

I talked to the infectious disease doctor and no culture yet. More and more it looks like a reaction to the diomox. They will probably do another tap tommow (not as bad as I thought) to be sure the infection is better. I may even get home without a PICC line (no offense debbi ;) )!! I will know more on that later.

Thanks for keeping me in your thoughts and prayers.

Brian
Title: Re: Pooter's surgery updates
Post by: Kaybo on July 03, 2008, 09:14:39 am: Hey Guys~
Well, I have to agree with Debbi that the hospital is not where you WANT to be (not exactly Cancun...) but hopefully it will provide the answers to get there (OR SOMEWHERE for a romantic get away) sooner!!

Brian~
I know it is tempting...but you DO NOT want to be part of our exclusive PICC Club...I repeat, DO NOT!! ;)

Definitely praying for you both!
K
Title: Re: Pooter's surgery updates
Post by: Debbi on July 03, 2008, 09:17:20 am: Kay's right, Brian - as glamorous and exotic as the PICC lines appear to be, I don't recommend it ... at all! Although, if you end up with one, maybe we can start a PICC line camoflauge competition... hhhmmm...

Debbi - piccless and praying you remain piccless too.
Title: Re: Pooter's surgery updates
Post by: yardtick on July 03, 2008, 09:54:06 am: Good Luck Brian,

Sending you hugs & kisses from Ontario. :-*

Get better real soon,
Anne Marie
Title: Re: Pooter's surgery updates
Post by: Pooter on July 03, 2008, 10:28:22 am: I notice my little patient got on earlier this morning as soon as I left the hospital (went to get the kids and spend a little time with them today). I was going to update you all, but it sounds as if he has already done so. I noticed he also clarified "Diomoxx" so I didn't mess it up and say "Vioxx" like I had with some of his friends yesterday. ;) He was not happy to hear that I made that mistake. LOL We will update when we know more.
Love,
Jenni
Title: Re: Pooter's surgery updates
Post by: Pooter on July 03, 2008, 02:16:16 pm: Awww!! I was *SO* looking forward to being in that exclusive club tho! I don't know what I will do with myself if I can't be part of the PICC line club! I guess I'll feel included because of the double-bonnet club. :)

I misspoke about "vioxx" a little bit. It's a pain med that was taken off the market because of liver problems, Jenni. Not exactly what I had remembered, but equally as bad.. I was thinking Vioxx was more along the lines of Cialis or something like that. ;)

So far, so good. I ate and took a short nap while Jenni and the kids were gone. A side effect of one of the meds I'm on is an increased appetite which bodes me well having lost 25 lbs. I actually went downstairs and got breakfast, came back and ordered more, then ordered and ate all of lunch. For a person who normally doesn't eat breakfast and lately has only eaten 1 primary meal a day, that's progress. I'll probably get released tomorrow, but they havent said officially yet.

Thanks for all the welll wishes and concernes. They really do help!

Brian
Title: Re: Pooter's surgery updates
Post by: Tamara on July 03, 2008, 02:39:14 pm: So glad to hear you're feeling better Brian!! I know the hospital sucks, but the food must be good at least! AND, it's much better that your problems are due to an allergic reaction than to an infection. I know you're not totally in the clear yet, but all seems to be boding well at this point.

Take Care,
Tammy
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 03, 2008, 02:50:42 pm: Pooter -

typing posts with one arm attached to an IV! Either you are addicted to this forum, or you just plain miss us :D

Glad to hear you are feeling better - and that you are eating. The nap doesn't sound too bad either ;)

I don't think you really want to be part of the PICC line club, but maybe Debbi could send you one of her "lemons" just so you don't feel left out ;D

Keep getting better!

Jan
Title: Re: Pooter's surgery updates
Post by: Kaybo on July 03, 2008, 03:01:22 pm: Brian~
I still have some IV bags of antibiotics in the fridge in the garage and a pole if you want it!! ;D

K
Title: Re: Pooter's surgery updates
Post by: Debbi on July 03, 2008, 03:06:00 pm: And, I think I may have a few supplies lurking about also - I'll box them up straight away! Sorry, no lemons, but sounds like Kay's got you covered with the bag-o-vanco :D Just in case...

Seriously, glad that you might get "sprung" tomorrow, Brian! And, really glad that it looks like you won't get to join the picc line club! That would be a wonderful way to celebrate 4th of July - I'll keep my fingers crossed.

Debbi, glad the picc club is staying so small...
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 03, 2008, 04:54:49 pm: Quote from: Kaybo on July 03, 2008, 03:01:22 pm
Brian~
I still have some IV bags of antibiotics in the fridge in the garage and a pole if you want it!! ;D

Kaybo -

what is it with you and Lori and medical stuff and garages? :D LOL

Sounds like you and Debbi are trying to turn Pooter into a pseudo-PICC patient :)

Very nice of you guys to make him feel like one of your "club".

Jan
Title: Re: Pooter's surgery updates
Post by: Kaybo on July 03, 2008, 05:01:03 pm: Jan~

I just want to be as helpful as I can to everyone... ;D

K
Title: Re: Pooter's surgery updates
Post by: Pooter on July 03, 2008, 07:18:29 pm: Heh... Just no garage power tools, please. :) And, do I have to post a picture if I do this? What an intiation to a club. Just don't strip me down and make me do laps in the snow. Heh That's a visial I'm sure most could do without... (sorry moderators!) ;)

Pooter...
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 03, 2008, 10:43:14 pm: Initiation photos are mandatory, sorry! :D

Don't worry, though JulieW has promised us all pics of her fat graft incision so you won't be the only one "sharing" here ;)

Jan
Title: Re: Pooter's surgery updates
Post by: Debbi on July 04, 2008, 08:48:42 am: Actually, I believe that Julie's fat graft picture is now the one to beat! I just wish I'd taken a picture of mine when it was fresh and scary. Rats. So, Pooter - what've you got for us? Clearly, we have nothing better to do on this birthday of our nation's independence...

Debbi, red, white, black and blue...
Title: Re: Pooter's surgery updates
Post by: Pooter on July 04, 2008, 09:50:17 am: Haha..What if I post pics of my fat graft scar wearing my garage-made picc line equipment? Would I win??

Debbi - Clearly I don't have much to do at times too! I'm currently hooked up again for the second time today. Having the internet has been a saving grace for me. My 7 year old got an email account (well, mommy got for her) so she could email me so I've been trading email with her while I'm here. That has helped.

I talked to the doc a bit this morning, and nothing on the culture yet. Which is good. Right now, they're going to order a follow-up spinal tap later today or tomorrow and wait for those results before they'll tallk about springing me. Right now, the leading therory is an allergic reaction to the diamox still. The level that's up is a type of white blood cell that typically suggests an allergic reaction. They want to verify it's down now that I've been off it for a bit. So, it's looking like POSSIBLY tomorrow or sunday release, but it all depends on being able to get a follow-up tap done and results read on a holiday weekend. Of course the primary infectious disease doctor along with the primary ENT surgeon is on vacation and their back-ups are following up (or supposed to; I still haven't seen the back-up infectious disease doctor but the ENT surgeon's team has come by several times even if nothing really to report).

There's the latest to chew on. Have a beer (or 3) and a burger/brat for me! Happy Fourth!

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 04, 2008, 10:56:22 am: Quote from: Pooter on July 04, 2008, 09:50:17 am
Haha..What if I post pics of my fat graft scar wearing my garage-made picc line equipment? Would I win??

Brian -

IMO if you post a picture like that, you win hands down! :D

Of course, I'm only one of the voting public here, so you'll have to wait for input from others ;)

No beer for me, but I'll drink a Diet Pepsi in your honor.

Keeping my fingers crossed that they spring you either tomorrow or Sunday,

Jan
Title: Re: Pooter's surgery updates
Post by: lori67 on July 04, 2008, 11:02:23 am: Brian,

It will be a sacrifice, but I will have that beer for you... sigh... the things I do.... :D However, I can't do the burger/brat thing - Jan will have to pick up the slack for me a bit on that one.

I will have a 4th of July yogurt for you (I just had a tooth pulled on my "good" side the other day, so I don't have anything to work with as far as solid food at the moment).

Sorry you're stuck in the hospital on a holiday weekend. Hope there are some fireworks visible out your window tonight.

Lori
Title: Re: Pooter's surgery updates
Post by: Debbi on July 04, 2008, 02:43:16 pm: Okay, Brian, my beloved Willie has volunteered to have the beer AND the brats for you - he's a giver, you know... He says it'll be a huge sacrifice, but he's willing to take one "for the team." And, that's why I love him!

So, how bad was the spinal tap? How do you compare it to... let's see... BRAIN surgery???

Keeping fingers crossed that you get sprung soon!

Debbi
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 04, 2008, 07:01:29 pm: Debbi -

that Willie's certainly a trooper! :D

Brian -

I was going to ask how the spinal tap was also, but I wasn't sure you'd be ready to "talk" about your experience just yet.

I had a bone marrow aspiration about 14 years ago and if it was a choice between that and brain surgery again, I'd pick the brain surgery in a heartbeat. The bone marrow aspiration involved no anesthesia and I found myself cussing like a truck driver. I used words I didn't even realize I knew :o If the doc would have just drugged me I imagine it would have been a piece of cake, but that wasn't an option.

Well, enough about me ::) Hope they numbed you up for the tap.

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on July 04, 2008, 09:40:32 pm: Thanks for the sacrifice! I just watched fireworks outside my room window alone, so I turned out the lights and just enjoyed them. Lori and Willie, certainly givers. Heh.

The tap actually wasn't too bad. Not having my meds all day that I was accustomed to and being cold and generally not feeling good was worse than the tap itself. The "numbing" shot they give of lidocaine at first hurt more than the tap itself and that lasted for all of 5 seconds or so. The tap itself was nothing. I felt nothing. What stunk more than anything was not having my meds and told I had to lay flat in the hospital for 2 hours before they'd let me go home and then told I had to lay flat for another 10 hours after getting home which by my count was about 2am. I slept off and on not feeling well for almost 20. That was far worse than the tap any day.

To update everyone, I should go home TOMORROW!! I talked to the infectious disease doc a bit earlier and she said it looked like to her that I had an allergic reaction to the diamox based on what she saw (report from the tap) and what she didn't see (the growth on the culture never did grow). So, rather than have me wait in here until Monday to have another tap, they took me off the IV antibiotics and as long as I feel ok tomorrow I should be cleared to go home.. YEA! The one stipulation, of course, is that I let them know if I feel bad again. No problem there cuz I felt like I'd been hit by a Beetle or something (not quiite the mack truck that surgery was, but it was pretty bad). So, I should get sprung outta here tomorrow!!

I then need to contact my doctor for a replacement for the diamox to reduce the swelling since it's somewhat back up now that I'm off the med. The steroid is somewhat taking its place for now, but they won't let me take that stuff home with me. Small price.

Jenni came up for a few hours and we had dinner together. It was cool! Followed by a co-worker and his wife (that also works there) came up for a bit. Both were cool because aside from Jenni, the kids and a visitor from Church, I have had no visitors.

Anyhow, that's the latest.. Update more when I have it.

Brian - antibiotic-less and ready to GO!! :)
Title: Re: Pooter's surgery updates
Post by: Kaybo on July 04, 2008, 10:08:36 pm: Brian~
Great to hear that you might get to go home. Are you in Methodist? My cultures (3) never grew anything either...but they still kept me on the meds - go figure - Dave & I think the Dr. was just punishing me and wanting to show that he had POWER! He was the jerk one!!
Hope everything continues to go well!

K
Title: Re: Pooter's surgery updates
Post by: Pooter on July 05, 2008, 08:12:31 am: Kaybo - The good news is that my ENT doesn't want me to stay anymore than needed. So, the orders have gone in that as long as I don't run a fever or have an issue then I'm sprung today at 3. My cultures never grew anything, which told them (in conjunction with the tap results) that it wasn't a bug. Nothing grew in 3-4 days, btw. Yes, I'm in Methodst (Jones 10th floor ring a bell?).

Thanks! Hopefully things go well and I can get sprung today! WOO WOO!

Brian
Title: Re: Pooter's surgery updates
Post by: Pooter on July 05, 2008, 08:40:21 am: Geez, I feel like such a bad wife making you watch fireworks alone. So hard to be a Mom and a wife at the same time... *sigh* Sorry Brian. Hopefully, you will be at home with me tonight. I miss you being here. :)
Love,
Jenni
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 05, 2008, 09:26:41 am: Brian -

good to hear the tap wasn't bad. I was fearful - and I wasn't even me getting the tap :P

Glad to hear you are on the verge of being sprung and will be going back home. Yea! ;D

Jenni -

don't stress about the fireworks. It is hard being both a wife and a mother, you can't be in two places at once, nor can you do everything. I'm no longer a wife, but just being a mother still brings these same challenges. Don't beat yourself up.

Jan
Title: Re: Pooter's surgery updates
Post by: Kaybo on July 05, 2008, 09:32:25 am: Brian~
YES! Jones 10th...wow! Have you encounter a nurse there named Velma? I don't know if she is still working...she was our saving grace - the only one we could understand & really took time to answer our questions! She was no "Spring Chic" when I was there, though. i would always go try to find her when I went back for appointments, but she usually worked the afternoon/late evening shift and my appointments were in the mornings. Hope your breakaway happens SOON!!

Jenni~
You do the best you can and go on -- if you dwell on things you can't change, you'll go crazy!

K
Title: Re: Pooter's surgery updates
Post by: lori67 on July 05, 2008, 10:49:59 am: Aw, Brian, if I were closer, I'd come visit!

And Jenni - you're so sweet! You know what, Brian probably would have been stressed out if you weren't taking care of the kids - so I'm sure he has no problem with you being a Mommy first! And really, watching fireworks by yourself probably isn't all that bad. Just think how much you'll appreciate watching all together next year!

Now, Brian - get outta that bed, get dressed and go HOME!
Lori
Title: Re: Pooter's surgery updates
Post by: Debbi on July 05, 2008, 11:46:19 am: Yes, Brian, get outta there! Jenni and the kids miss you and want you to come home now.

Hope your bags are packed and you are poised to make your getaway in a couple of hours. Willie said he'd force himself to have a beer to celebrate your return to the outside world - it'll be tough, but he IS a giver, you know...

Don't overdo things this weekend - especially if they are still concerned about swelling. Keeping fingers and toes crossed that it's all smooth sailing from here.

Debbi
Title: Re: Pooter's surgery updates
Post by: Pooter on July 05, 2008, 01:30:38 pm: Aww.. Jenni! I didn't make ya feel bad! The fireworks were cool, though, wish you were here too! I know you had the kids to deal with!

IV out and I'm ready to go! It won't take long to get my stuff together. No fever or other issues, so they're letting me out as soon as Jenni gets here! WOO WOO! I'll be sprung soon enough!

If Willie wants more beer and brat, have at it but save me some too! I'll be home for it soon! Perhaps one day we'll share some in person! Isn't Jim buying at the symposium this next time? Or is it someone else's turn? ;)

I'm still gonna take it easy for a few days, but hopefully I'll continue my recovery where it left off a few a weeks ago.. We'll see how that goes.

Peace all!

Brian
Title: Re: Pooter's surgery updates
Post by: Jim Scott on July 05, 2008, 04:10:04 pm: Brian:

I trust that by the time you read this you'll be home. I just hope your wish for resumed healing is granted and that you'll be done with these set-backs. Enough already!

Not sure I'll be at this year's symposium but if I am, I won't be buying unless I get a moderator raise, which I doubt will happen. Besides, I'll probably be disguised as Steve, so you can blame him for being cheap. :)

See you when we see you.

Jim
Title: Re: Pooter's surgery updates
Post by: wendysig on July 05, 2008, 05:51:27 pm: Brian,
I had about two minutes to check uyp on you from my brother's house. Two people are on line waiting to use the computer so I'll be quick. I'm so glad to hear you are doing better and iwll soon be getting out of there, from th sounds of it piccless -- thankj goodness. I'll check back when I can. People are chomping at the bit to use the computer.

Wishing you alkl good things,
Wendy
Title: Re: Pooter's surgery updates
Post by: Debbi on July 05, 2008, 05:56:31 pm: Cheers, Brian! Welcome home!!!!!

Debbi
Title: Re: Pooter's surgery updates
Post by: Tamara on July 05, 2008, 06:12:14 pm: Maybe you and Jenni can shoot off some fireworks in your driveway or backyard - better than nothing. Yes, it's illegal here too, but everyone does it anyway...

Glad you're home, and hope it's much smoother sailing from here on in...one heck of a ship, ain't it?

Still stapled and dry-headed in Wisconsin,
Tammy
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 05, 2008, 09:52:18 pm: Quote from: Pooter on July 05, 2008, 01:30:38 pm
Isn't Jim buying at the symposium this next time? Or is it someone else's turn? ;)

Actually it's Steve (he of the hat knitting) who's buying @ the Symposium.

But tell you what, Brian, if you and Jenni show up I'll buy you both one :D

Thrilled to hear they kicked your a** out of that hospital bed today.

Best wishes for a continued recovery ;D

Jan
Title: Re: Pooter's surgery updates
Post by: Debbi on July 06, 2008, 08:17:28 am: Brian-

Wendy says welcome home, too! She's celebrating your early release on the beach...or waiting in line for the computer, one or the other.

Cheers!

Debbi - (posting pictures like crazy - blame Jan for showing me the ropes...)
Title: Re: Pooter's surgery updates
Post by: 4cm in Pacific Northwest on July 06, 2008, 08:58:58 am: Brain & Jenni,

I have been off the forum for a whileÃ¢â‚¬Â¦ (you would not believe how much stuff we are getting done around the house as a result! :D)

Ã¢â‚¬Â¦Gee whiz I missed all the excitement. I regret not being on as I would have pointed out the Diamox issue and its side effects.

Oy ya ya Ã¢â‚¬â€œ what a trip. (Spinal tap- to boot :o)

Brian wrote

"I then need to contact my doctor for a replacement for the diamox to reduce the swelling since it's somewhat back up now that I'm off the med."

I am guessing you have been taken off this abruptly instead of weaned slowly. If you show any coordination issues or if the leaks return be sure to contact the doctor immediately. The abrupt wean can cause leaks again Ã¢â‚¬â€œ as it did with me. I too remember being cold and constantly requesting heat bags and blankets. The Diamox works on the kidneys so it can have your system go all over the place. Be sure to have the Ã¢â‚¬Å“pee in a cupÃ¢â‚¬? test done at your next doctor visit to make sure you kidneys returned to normal. Potassium and sodium levels can go all over the place -on that nasty drug.

Jenni wrote

"I'm ready to fatten my boy up again (since he has now lost 25 lbs)..."

The Diamox kills the appetite not to mention has you pee all the good calories out. :-\ I went down to 112lbs (I am just over 5Ã¢â‚¬â„¢3Ã¢â‚¬?) Ã¢â‚¬Â¦ and it was getting scary as I was becoming so weak. I remember those days well. (Although I would like to forget)

My neighbour (a retired dietician technician) declared,
Ã¢â‚¬Å“My goodness you are a rack of bones!"
...and returned with grocery bags of ensure, boost, etc. as she was determined to fatten me up and get color back into my face. Buy some Carnation Instant Breakfast (cheaper than boost or ensure but same nutritional value) and mix it with milk to keep the calorie intake up. Try to get more protein into you- Brian.

Keep walking and keep eating. Healing will happen.

Hang in there!

Daisy Head Mazy
Title: Re: Pooter's surgery updates
Post by: Cheryl R on July 06, 2008, 09:26:49 am: DO either of you have sulfa allergy? I had looked up the Diamox in my drug book but don't remember it saying that is is a sulfa type drug. I just Googled it and came across that. I took Diamox after my first surgery just while in the hospital with no problem. There was no taper off of it. Both of my daughters had a sulfa reaction as children so are considered allerigic now. I have never seen any other type of diuretic where can not just quit taking it.
Cheryl R
Title: Re: Pooter's surgery updates
Post by: wendysig on July 06, 2008, 09:02:29 pm: Brian,
Glad to hear you are home! Even dthough you've really been through the wringer, I was glad to hear your illness was caused by an allergic reaction rather than infection! I know it's been H@*!! but hopefully it's over! I hopeteh rest of your recovery goes much more smoothly.

Best wishes to you, Jenni and your kids!
Wendy - Celebrating your homecoming down in sunny Florida

Debbi - Hope all is well with you -- thanks for passing my message on to Brian the other day!
Title: Re: Pooter's surgery updates
Post by: wendysig on July 07, 2008, 09:11:57 am: Brian -
Glad to hear you are home! I hope you and Jenni enjoy the rest of the weekend and the rest of your recovery goes a lot more smoothly. I realllyh hope this is the last of setbacks you will experience. These ANs seem to like continue testing people even after they are gone. You seem to have passed with flying colors!!

Best wishes,

Wendy

Debbi -
Title: Re: Pooter's surgery updates
Post by: cindyj on July 07, 2008, 04:58:18 pm: Glad to see you're home, Brian. Hope you get to stay there and your healing stays in forward motion this time! You've certainly been through enough...understatement, I know...

Cindy
Title: Re: Pooter's surgery updates
Post by: Pooter on July 07, 2008, 05:27:25 pm: Hello all! It's true, I'm home now. Feeling MUCH better now. I somewhat abuptly went off the Diamox last week when I didn't take it anymore (especially when they suspected a reaction to it) and I've suffered no ill affects from being off it so abuptly. I've slept alot since being home, but that's to be expected I guess. When I'm still, I kinda feel nornal again. It's when I get up and start moving around that I feel still odd a bit. Again, that is to be expected I guess. It's getting better. No fever. No coldness. No headaches. Yea! I have a follow-up with my doctor on 7/21 at which time we'll talk about the need to go on something other than the diamox again. So far, the swelling is back up a bit, but no headaches with it so..I'm not sure what to think of that.

As I told Jenni, I didn't know really how bad I felt until I started feeling better. I tried to convince myself that I felt just a little bad, in reality I felt like smeg. I've definitely been through the wringer on this one, and I am axious to get back to healing and getting stronger again. I've put on at least 5 lbs since being off the diamox so I think that was holding me back somewhat.

Thanks for the well-wishes and for keeping me company while in the hospital. I didn't want to be stuck in there until today waiting only on a follow-up tap when I felt so good. Back to healing now. I'll try to go back part time again to work later this week and see how that goes..

Jan, deal! I'm gonna see if we can make the symposium this next summer. Hopefully, I'll be comepletely "normal" by then. We're easy drinkers, btw. MillerLite for both us us! :) There is life post-op! For now, I need to get better so that I can go camping with my daughter this year! We go to camp in September along with camping at least 5 more times this year! I have to be better; being Chief and all! They're waiting on me to go camping this summer before camp! Woo Woo!

Thanks again, all!

Brian
Title: Re: Pooter's surgery updates
Post by: Boppie on July 07, 2008, 06:27:16 pm: Go slow, Brian, go slow, go slow! Walking sessions should increase in increments of minutes, not hours. Eat good protein. Smell the flowers, look at nature, enjoy more time away from the computer. No partying! ;D
Title: Re: Pooter's surgery updates
Post by: ppearl214 on July 07, 2008, 07:13:00 pm: *runs in, give my Pooter a BIG HEALING HUGGLE....... runs back out!*

(missed me, eh? :) )
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 07, 2008, 10:23:18 pm: Pooter -

you're on. Two Miller Lites in August 2009, in Chicago :D

Make sure you hold me to that ;)

Cheers!

Jan

BTW, glad to see you back on the road to recovery. Hope this road is a short one :)
Title: Re: Pooter's surgery updates
Post by: Syl on July 07, 2008, 10:27:50 pm: Pooter,

Glad your home. Continued prayers and well wishes being sent your way.

Syl
Title: Re: Pooter's surgery updates
Post by: Debbi on July 08, 2008, 08:44:15 am: Hi Brian-

Glad you're home and on the mend again. Boppie is right - don't overdo!

Willie and I are planning on going to the symposium next year, so we look forward to meeting you and Jenni and everyone else there! Let's hope we're all healed up by then!

Hang in there, my friend.

Debbi, still healing in NJ
Title: Re: Pooter's surgery updates
Post by: ppearl214 on July 08, 2008, 09:25:15 am: Quote from: Debbi on July 08, 2008, 08:44:15 am
Willie and I are planning on going to the symposium next year, so we look forward to meeting you and Jenni and everyone else there! Let's hope we're all healed up by then!

shhhhhhhhhhh.... I'm confirmed to be there next year... although not sure if the bloke will make the trip with me..... esp. since I missed last year's due to his USA arrival from the UK. See you there! :-*
Title: Re: Pooter's surgery updates
Post by: wendysig on July 08, 2008, 03:21:18 pm: Brian,
I just stopped by briefly, mostly to check on you and Debbi since my computer time is short while I'm on vacation. I'm really glad to hear you sounding so much better and hope it continues. Try not to overdo it even though I know the temptation is there since you are feeling better. As Jan said, baby steps.

Best wishes,

Wendy
Title: Re: Pooter's surgery updates
Post by: Pooter on July 08, 2008, 03:49:24 pm: Yea! Phyl will be there giving free beer and free trips on the moderator jet!?!? Oh, happy day! Or, was that only for me and Jenni? I forget.. Yknow how the mind goes.

I am going slow.. I promise. We've lost about 25% of our work force in the last month or so, so I should get back soon.. I'm taking a few days for Jenni and me, but back at it soon enough. My current plan has me back at work part time (again) later this week. I'll adjust as I need to. Work isn't everything, but it's my home away from home. In fact, I just got off the phone with my boss and my co-worker cuz it looks like we need to lose one of my guys and we had to decide which one. That's never an easy decision. I'm anxious to move on to the next stage of my reocovery though, which involves getting back to work and driving again.

Thanks all!! Really! I appreciate it!

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 08, 2008, 05:22:32 pm: Quote from: Pooter on July 08, 2008, 03:49:24 pm
Yea! Phyl will be there giving free beer and free trips on the moderator jet!?!? Oh, happy day! Or, was that only for me and Jenni? I forget.. Yknow how the mind goes.

I think Phyl saying she's "confirmed to be there" is code for "I'm buying all the beer".

At least that's what I translate it as ;D

I'll be there myself, but I'm not "confirmed" like Phyl - so I guess I'm off the hook for all drinks except Pooter & Jenni's first two ;)

Jan
Title: Re: Pooter's surgery updates
Post by: wendysig on July 09, 2008, 07:50:07 am: Hi Jan,
Bioy, Phyl is certainly generous, paying people to agree with her, buying all the beers at the symposium, the giving never ends!! Maybe we should do something special for her!!! How about a free gift basket of some kind?

Wendy
Title: Re: Pooter's surgery updates
Post by: Debbi on July 09, 2008, 08:04:38 am: I've got some leftover surgical tape - can we use that in the gift basket? And, how about one of the surgical-glove turkeys?

ah, Phyl, you know we all love ya!

Pooter, take it easy!!

Debbi
Title: Re: Pooter's surgery updates
Post by: lori67 on July 09, 2008, 09:16:37 am: Phyl would just love that! I have some unused eye bubbles and a coupon for Refresh PM gel I can donate to the basket.

Lori
Title: Re: Pooter's surgery updates
Post by: wendysig on July 09, 2008, 10:15:54 am: Hi all,
Well, you know my surgery is just a little over two weeks away -- I'm sure I can score some freebies at the hospital, surgical gloves should be easy, maybe some masks too! I'm not sure what else I'll have easy access to. I can throw in at least one hospital gown though, it would make a stunning addition to any gift basket! I almost forgot, I can probably get a pair of those lovely disposable hospital slippers for her too since I'll be wearing my lucky bunny slippers, I won't need them myself!!!

Wendy
Title: Re: Pooter's surgery updates
Post by: lori67 on July 09, 2008, 11:27:20 am: Wendy,

Maybe you can borrow the big coat from Pooter's wife. Hopefully,she's unpacked the pockets from when she went to pick Brian up. And anything that doesn't fit in Phyl's gift basket, we can use for the garage surgical suite. Hey, maybe we should throw in a gift certificate for Phyl for one free garage surgery of her choice! ;)

Wow, we are generous.

Lori
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 09, 2008, 05:05:51 pm: Geez! You guys are feeling very generous today :D

I'm just going to sit back and see how long it takes Phyl to find this thread and comment :D

Jan
Title: Re: Pooter's surgery updates
Post by: ppearl214 on July 10, 2008, 05:55:46 am: Quote from: leapyrtwins on July 09, 2008, 05:05:51 pm
Geez! You guys are feeling very generous today :D

I'm just going to sit back and see how long it takes Phyl to find this thread and comment :D

Jan

took 2 cups of coffee this am to locate this... geesh! You all are FARRRRRRRRRR too generous! LOL!

Hey my Pooter, how you feeling today?
Phyl
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 10, 2008, 06:50:49 am: Phyl -

you didn't mention what your garage surgery of choice was going to be ???

Inquiring minds want to know ;)

Jan
Title: Re: Pooter's surgery updates
Post by: 4cm in Pacific Northwest on July 10, 2008, 07:18:16 am: Where is the symposium next year?

Daisy Head Mazy
Title: Re: Pooter's surgery updates
Post by: Cheryl R on July 10, 2008, 08:26:23 am: The 2009 symposium is in Chicago at the Drake Hotel. August 14th-16th. The hotels in the past have given a sympsoium rate and even for a few extra days so one can sightsee also. They did run out of room at the Disney World Resort so some had to stay at another resort so isn't good to wait till real late to make reservations. This won't be available until the start of next year though. There is an event organizer who does the set up of all that goes on. The website here and the newsletter will have the scheduling and registration.
Cheryl R
Title: Re: Pooter's surgery updates
Post by: 4cm in Pacific Northwest on July 10, 2008, 08:57:27 am: Thanks!

Here it is...
http://www.anausa.org/symposium.html

DHM
Title: Re: Pooter's surgery updates
Post by: Debbi on July 10, 2008, 09:07:03 am: Wendy, you should be able to score some tape and maybe even some gauze - at NYU they were tossing the stuff around like Mardi Gras beads. Had I only know, I would have scored big!

Pooter, you'd better come back soon - a bunch of crazy ANers have hijacked your thread. Not me, of course...

Thanks for the symposium info, DHM and Cheryl.

Debbi
Title: Re: Pooter's surgery updates
Post by: Pooter on July 10, 2008, 06:42:23 pm: HEY! I've been hijacked! Heh. It feels, um.. kinda good. ;)

Sorry I've been gone. I actually went to the office for a few hours today (about 6.5) and it felt good for me. I actually drove there and everything! Of course, I had my trusty sidekick with me, but I did the driving. It all isn't back to "normal" again yet, but it's getting there slowly. I felt good today (after getting into something bad yesterday) and it was good to be back at the office. I have a couple of security audits over the next few months to do along with my other dutues, and we've lost about 25% of our workforce, but things are getting back to "normal" again. No headaches, no fever, just your typical healing stuff today.

So, Drake Hotel next summer, eh? Phyl's giving away free beer and free rides on the moderator jet, very cool! Does it get any better than that?!? ;)

Brian
Title: Re: Pooter's surgery updates
Post by: Syl on July 10, 2008, 07:28:30 pm: Hi, Pooter

Glad to see life is getting back to normal. How are you with your dizzyness and balance at this point?

Syl
Title: Re: Pooter's surgery updates
Post by: Pooter on July 10, 2008, 07:53:19 pm: Syl,

Dizzyness and balance isn't really a factor for me, per se... I'm still a bit "off" but it's about is to be expected, however. I seem to be unsteadier at night or dimly lit places but it keeps getting better and I expect it to be even better in time and more practice. I rarely, if ever, get dizzy. I'm still just a bit off. If that makes sense.

Thanks for asking..

Brian
Title: Re: Pooter's surgery updates
Post by: ppearl214 on July 10, 2008, 08:46:56 pm: Quote from: Pooter on July 10, 2008, 06:42:23 pm
HEY! I've been hijacked! Heh. It feels, um.. kinda good. ;)

So, Drake Hotel next summer, eh? Phyl's giving away free beer and free rides on the moderator jet, very cool! Does it get any better than that?!? ;)

Brian

Another hijack!!!!!!!!!!!!!!! Um, giving away free beer and ride on the Mod Leer Jet? Any better than that? Um, YUH!!!!!!!!!!! If someone actually has money to pay for it!!! Doh! :)

You went to the office today, my Pooter! Good for you! A bit of "normalcy" back in your life! I love to hear it! Good for you! Say hi to your "sidekick" for me too, ok? :)

Phyl
Title: Re: Pooter's surgery updates
Post by: Pooter on July 10, 2008, 11:28:28 pm: Heh..I was wondering when you'd respond to the free beer and ride comment. Darn the luck, I guess. I suppose I need to hit up the other multi-millionaire mods eh?? I can see how royalty has spoiled you, Phyl. Perhaps they won't be so jaded yet. ;)

Yeah, I went to the office for a bit. It was a bit of "normalcy" for me amidst something so abnormal that we all share. I can't say it's all "normal" yet, but I'm only a couple of months post-op so I can't expect the world yet. But, its another step in the right direction, for sure.. Everyone keeps saying "journey" and that's truly apt for what all this has been. From diagnosis to surgery to recovery and all the bumps along the way, it's been (and continues to be) a journey. One step at a time. We all have our own "journey" through this with our own bumps along the way, but it's a journey best taken with everyone cheering you on to be sure. My hat's off to these people and this website for providing that.

Now, about that free beer and free ride on the Leer.. ;)

Brian *parachutes off soapbox*
Title: Re: Pooter's surgery updates
Post by: ppearl214 on July 11, 2008, 06:13:02 am: hoping you don't have wonky head during that parachute jump off the soapbox, dear Pooter! ;)

free ride on the Leer? I guess I haven't slipped you the $10 behind my back recently, eh? ;)

Phyl
Title: Re: Pooter's surgery updates
Post by: Debbi on July 11, 2008, 09:10:08 am: Hey Pooter!

Glad you're back at work again - it sure helps, doesn't it? How is the swelling on your head? Sounds like it is resolving, hopefully!

Thanks for taking care of the transportation negotiations for next year's symposium, Brian! I know Phyl will cave eventually....

Debbi, getting ready for my first hair cut/color in three months!
Title: Re: Pooter's surgery updates
Post by: Pooter on July 11, 2008, 07:33:11 pm: SURE! It was easy. I got Phyl to agree to pick us all up on the Leer, so it was easy! ;)

Phyl, ya haven't slipped me anything yet... uhh... i said YET.. ;)

2nd day of work with at least 6 hours each day. So far, so good. Next week, we'll try it all week (without the fever, headaches and hospital visit to get in the way this time!)

Brian
Title: Re: Pooter's surgery updates
Post by: Debbi on July 12, 2008, 12:33:13 pm: Yay, Brian - you know I'm cheering you on from hot and sticky NJ!! (wait, you're in hot and sticky TX, aren't you? No sympathy from you...)

Debbi, sporting a new "do"
Title: Re: Pooter's surgery updates
Post by: cmp on July 12, 2008, 02:00:33 pm: So glad to hear you've been steadily improving, Brian. If nothing else, this "AN journey" thing makes us into more patient people, does it not?

Almost a full day at the office, and you commuted yourself there, too--whoo hoo! Things may not be 100% yet, but that's still pretty darn close to "normal"!

Hope the trend continues for you--

Carrie
Title: Re: Pooter's surgery updates
Post by: ppearl214 on July 13, 2008, 07:22:02 pm: *runs in, slips my Pooter a $10 bill.....*

What, your job hasn't given you a raise yet for showing up so soon post surgery? :o Shame on them! ;)

Phyl
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 14, 2008, 09:23:25 pm: Quote from: Cheryl R on July 10, 2008, 08:26:23 am
The 2009 symposium is in Chicago at the Drake Hotel. August 14th-16th.

Ah, yes, the symposium. Basically in my back yard in 2009. Hope to see lots of you guys there - free moderator's jet or not :D

Glad to hear you're back to work Pooter ;D

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on July 15, 2008, 05:13:53 pm: Hey all! Yup, I'm kinda back at work now. I've put in a full day 2 days in a row so far with minimal fatigue afterwards so that's good. Thanks for the $10 Phyl, but I still wanna ride on the Mod Leer. ;) We hope to be at the symposium next summer. Lots can happen between now and then, of course, but I'd like to go.

The swelling is still there, but not as bad as it was when I first went on the med. I think it's my desk, but my shoulders and neck get super tight as the day goes on. I obviously try to get away from my desk a few times a day to give them a break. I'll keep plugging away and hopefully my co-pilot will feel better about me driving alone. So far, I only drive with someone in the car (not that they could stop something serious from happening, but it makes them feel better I guess).

I'm only here for a minute, so I wanted say "Hey" and update everyone. Take it easy!

Brian
Title: Re: Pooter's surgery updates
Post by: Debbi on July 15, 2008, 05:58:03 pm: Great to hear from you, Brian - and glad you seem to be doing so well back at work. You know the mantra, of course - don't overdo it!

Can you do some simple stretches (neck rolls, etc) at your desk to keep the tightness down? If you can do a hot compress (spritz a towel with water and nuke it for a couple of minutes) that should help too.

Three cheers for your co-pilot!

Debbi
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 15, 2008, 09:30:40 pm: Pooter -

2 full days in a row is definite progress - so is the minimal fatigue - sounds like your recovery is finally right on target ;)

Jan
Title: Re: Pooter's surgery updates
Post by: wendysig on July 16, 2008, 03:47:36 pm: Brian,
I'm glad to hear you're feeling so much better. You especially have been on my mind since I haven't been online for a week and you were just starting to feel better when I last checked on you.

Wishing you continued good health and a smooth and speedy recovery -- FINALLY!!!

Wendy
Title: Re: Pooter's surgery updates
Post by: Jim Scott on July 17, 2008, 03:15:49 pm: Brian:

Thanks for the positive update. I join many others feeling better today knowing that most of your past problems are receding and your recovery is moving forward. Your patience has surely been tested but things are definitely looking up. :)

Jim
Title: Re: Pooter's surgery updates
Post by: 4cm in Pacific Northwest on July 19, 2008, 09:14:49 am: Way to go Brian!! 8)

Heat 1st - then stretch the neck muscles 2nd ...

Keep moving forward...you have come a long way.

DHM
Title: Re: Pooter's surgery updates
Post by: Pooter on July 21, 2008, 08:52:57 pm: Well, it's official! Not only did I work full-time at the office ALL last week, I drove myself Thursday - Today. AND, I had a follow-up with my doctor today and he said things are going well enough that he doesn't need to see me for another 4 months! AND, as if that wasn't enough good news, I got clearance to wear contacts again. I haven't used drops in a LONG time so it's closing well enough to keep it lubricated and such so he gave in and let me try them. I came home from dinner for my to-be 8 year old, put the kids in bed and tried on my contacts immedidately! It's weird, kinda, but they feel better than my glasses (which before all this I RARELEY wore). Is it possible for your prescription to change on the AN side a little? I've noticed for awhile that even my glasses were a little blurry on the AN side. It's as if my prescription changed a little on the AN side! Luckily, my normal eye doc is in the same building as me, so I'lll get him to check for any changes, damage, etc as soon as I can. For now, my contacts are as good as my glasses and even better because I get to wear my normal sunglasses instead of the ones that I wear over my glasses! YEA! I'm SO excited! Life is ALMOST normal again! Soon, I'll take my to-be 8 year old camping again! I'm driving myself (in traffic even!)! And I'm wearing contacts after over 2 months of wearing glasses that I rarely wore before! Oh, Happy Day! Life is getting better by the day!

I hope everyone else is well! I haven't been on here in a bit because by the time work is done, dinner is done, bedtime for my 7/8 year old and 3 year old is done, I'm pretty wooped and just want to vedge with my bride for a bit! I just wanted to share the good news!

Brian
Title: Re: Pooter's surgery updates
Post by: sgerrard on July 21, 2008, 09:03:25 pm: Pooter, that sounds excellent! I have no idea if the AN could cause a shift in prescription, but at this point, nothing about Ans would surprise me much. Wearing normal sunglasses is especially cool. 8)

Steve

Wait, who is that you are vegging out with? Did I miss something?
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 21, 2008, 10:05:32 pm: Quote from: sgerrard on July 21, 2008, 09:03:25 pm
Wait, who is that you are vegging out with? Did I miss something?

I was wondering about that also ??? Did you guys re-tie the knot ???

I don't know the answer to the glasses prescription either, but I wanted to say congratulations on all the great milestones you've reached Brian! After doing not so well for a while, it sounds like things are finally moving along very well. You must be ecstatic! I know I am ;D

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on July 21, 2008, 10:11:36 pm: She was once my bride..And then not. Maybe, perhaps again, but I still call her that. How's that for vague? ;*) Wearing normal sunglasses is WAY cooler than the over-wear sunglasses that I have been wearing for a few months. Bleh! They have been ok given my sensitivity to the bright Texas sun this summer, but NOTHING comes close to wearing my normal ones, that's for sure! :) Did I mention the doc liked the improved movement on the AN side of my face? I still have a ways to go (I can feel it especially when I talk; certain words still come out slurred), but it's MUCH better than no movement at all that I had right after the surgery.

Thanks Steve and Jan! I am ecstatic! Can ya tell? I'm finally back on track with my healing after hitting a few major bumps in the road and it feels good!

Brian - vegging.. :)
Title: Re: Pooter's surgery updates
Post by: wendysig on July 21, 2008, 11:19:54 pm: Brian,
Congrratulations! I'm so glad to hear how well you are doing! Hope you are enjoying your vegging out time with Jenni and your kids. You deserve it. I hope the rest of you recovery is smooth and without incident.

Wendy
Title: Re: Pooter's surgery updates
Post by: Debbi on July 22, 2008, 06:15:27 pm: Hey Brian- I just did the Happy Dance of Joy for you - it used to involve twirling and leaping, now it just involves a lopsided smile! You sound so excited - and it is contagious! Thanks for sharing the great news - wahoo!

As for the vision, I'm not sure on that. However, I did ask the opthalmologist last week when he was fitting my blinkeze if I might be able to consider Lasik in a year or so - he said that it would be challenging because of my eye. I'm not really sure what that meant (and was too infatuated with the Blinkeze to ask), but I wonder if the facial palsy can cause changes in vision? Hhhmmm - another AN mystery waiting to be solved.

Debbi, getting ready to veg with my groom (okay, that sounds weird, doesn't it?) :-[
Title: Re: Pooter's surgery updates
Post by: jerseygirl on July 22, 2008, 07:40:18 pm: Brian,

Happy to hear about your progress! Way to go!

Debbi, I considered Lasik a few years ago when my eye was not as dry as now, after the second surgery, but considered "dry" nevertheless because it barely produced tears. I was turned down by a few places because of it. It was explained to me that the procedure itself tends to dry out the eyes and if one is already dry I would be extremely uncomfortable afterwards. Maybe, somebody knows more about it?

Eve
Title: Re: Pooter's surgery updates
Post by: Pooter on July 23, 2008, 12:35:04 am: Thanks all! And, thanks for the suggestions for the tightness. Today was better, so I'm not sure if I was just tired from getting back or what. I'll give it a few days and see how it goes. I also have a heat thing (heated by microwave) that my bride suggested I take to work. I may just give that a try if it continues.

I dunno about the vision thing either. I've noticed that my AN side eye tends to be dryer than my other one but I can force a good tight blink to moisten it again. I wore my contacts all day today with no problems. By the time I got home, though, my eyes were irritated a little. I probably just have to get used to my contacts again. I wore my glasses longer than I ever have in 20 years or so. Man, I've wore contacts for a long time!

Btw Debbi, "veg'ing with my groom" does sound weird; sorry. Veg'ing with my bride sounds more natural. Perhaps you should say veg'ing with my man or something. ;)

Brian
Title: Re: Pooter's surgery updates
Post by: 4cm in Pacific Northwest on July 23, 2008, 10:28:04 am: Brian,

Quoting you

Did I mention the doc liked the improved movement on the AN side of my face? I still have a ways to go (I can feel it especially when I talk; certain words still come out slurred), but it's MUCH better than no movement at all that I had right after the surgery.

I've noticed that my AN side eye tends to be dryer than my other one but I can force a good tight blink to moisten it again. I wore my contacts all day today with no problems.

YEAH! This is great news

One flagÃ¢â‚¬Â¦

Ã¢â‚¬Å“but I can force a good tight blink to moisten it again.Ã¢â‚¬?

I used to do this and now I have synkinesis. I suggest that you do NOT force any facial muscles while you are still in the nerve re-growth and re-generation stage. If your eye is dry plop in a drop- until proper blink and close action returns.

Cheers,

Daisy Head Mayzie
Title: Re: Pooter's surgery updates
Post by: Pooter on July 23, 2008, 08:11:16 pm: Hey! Who is this "bride" chick? Has she been lurking in my house unbeknownst to me? ;)
Jenni
Title: Re: Pooter's surgery updates
Post by: sgerrard on July 23, 2008, 08:18:12 pm: Quote from: Pooter on July 23, 2008, 08:11:16 pm
Hey! Who is this "bride" chick? Has she been lurking in my house unbeknownst to me? ;)
Jenni

Uh, oh... :-[

Steve
Title: Re: Pooter's surgery updates
Post by: lori67 on July 23, 2008, 08:35:37 pm: Well, I don't know who she is, but if she does housework, I may have to get one for myself! :D Clearly, the "groom" I have lurking around here does not do housework!

Brian, so glad you're doing so well! You made it over that last hurdle pretty quickly. Well, it seems quickly to me - probably not so much to you!

I'm not really too sure about the whole AN eye/vision thing, but I do know that prior to surgery I was 20/20 in both eyes. Now I am 20/20 in the good eye and 20/30 in the AN eye. I realize that's still better than most of the population, but I have to think there's some connection there.

Lori
Title: Re: Pooter's surgery updates
Post by: Pooter on July 24, 2008, 08:15:44 pm: DOH! Busted! ;*) Hey, honey! *smooch*

Thanks Lori and DMH.

The latest is that I have an appt with the eye doc on Monday. I went down there today (they're in my building; literally about a minute away) and talked to the doctor a little bit and we'll go over everything on Monday. The good news is he is young and seems to be very interested in seeing me and talking about my vision and such. Hopefully, I won't have any issues with the eye(s) and I can get a new prescription next week. Thanks about the tip, DMH, and I don't force things I don't think. I'll keep a close eye on things (get it? heh).

Brian
Title: Re: Pooter's surgery updates
Post by: 4cm in Pacific Northwest on July 24, 2008, 09:03:29 pm: RE
"I'll keep a close eye on things (get it? heh)."

:D Snort, giggle snort snort :D

DHM
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 24, 2008, 10:05:05 pm: Quote from: Pooter on July 23, 2008, 08:11:16 pm
Hey! Who is this "bride" chick? Has she been lurking in my house unbeknownst to me? ;)
Jenni

Wow, Jenni's using the big words now! Unbeknownst!

Right up there with Debbi's "besmirched" ;)

So, Brian, about the doctor. You say he's young. Is he married? (Just kidding).

Sorry, this was just too good a thread not to hijack ;D

Jan
Title: Re: Pooter's surgery updates
Post by: Debbi on July 25, 2008, 06:37:07 am: Hey, I am seeing a possibility for an AN Matchmaking service here... Jan and Brian's new opthalmologist .... hhhmmm 8) Could this be a nice add-on to the Garage Brain Surgery biz?

Debbi
Title: Re: Pooter's surgery updates
Post by: Kaybo on July 25, 2008, 08:50:55 am: Brian~
Hey! I have been away in Baltimore for my Dr. visit and then MAJOR DSL problems and been w/out the internet for over a week - I missed you guys! Sounds like you are doing GREAT!! Whoo-Hoo for you!! About the eye thing - IT CAN CHANGE! Mine changed DRASTICALLY for no known medical reason - I think they wiggled the optic nerve while they were in my head! I went from 20/400 to 20/40 - however, the permanent facial paralysis & the UNabilitity to blink correctly on a consistent basis, makes it where I really don't see much out of that eye. I might see clearly for 1/10 of a second and then it is gone. But still, it is a neat thing! I think it could go either way but definitely change. I guess that while I was still waiting the 1st year, I just EXSPECTED that my prescription would change (just never thought it would go this way). Anyway, just my 2 cents!

Give Jenni a hug for me!

K
Title: Re: Pooter's surgery updates
Post by: Pooter on July 25, 2008, 03:16:17 pm: Quote from: leapyrtwins on July 24, 2008, 10:05:05 pm
Quote from: Pooter on July 23, 2008, 08:11:16 pm
Hey! Who is this "bride" chick? Has she been lurking in my house unbeknownst to me? ;)
Jenni
So, Brian, about the doctor. You say he's single. Is he married? (Just kidding).

Jan

Hm.. I don't look for such things, but for you I will Monday.. ;)

Debbi - Anything for a buck, eh? Your as bad as Lori! ;)

Kaybo - Thanks! Glad to have ya back in the real world again! I'll let everyone knows what the doc says on Monday. It's definitely more blurry now with contacts or glasses, so I think it's changed somewhat. It's not bad, but enough to make me notice that its off.. 20/400 to 20/40 is huge! I don't know what I was, but I am anxious to hear if it's better or worse than last time..

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 25, 2008, 05:43:30 pm: Quote from: Debbi on July 25, 2008, 06:37:07 am
Hey, I am seeing a possibility for an AN Matchmaking service here... Jan and Brian's new opthalmologist .... hhhmmm 8) Could this be a nice add-on to the Garage Brain Surgery biz?

Don't count me out for that whole matchmaking thing, but I may already be taken. Seems Lori knows a nice, single doctor ;) :D LOL

Jan (not necessarily looking to become anyone's bride)

Hey, Brian, forgot to ask - was the comment to Debbi about being "as bad as Lori" a compliment or an insult ??? Be very careful of how you answer this one! LOL
Title: Re: Pooter's surgery updates
Post by: Debbi on July 26, 2008, 07:52:07 am: Well, I'm taking it as a compliment! So there! :D

Debbi
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 26, 2008, 09:05:29 pm: Right answer, Debbi ;)
Title: Re: Pooter's surgery updates
Post by: lori67 on July 28, 2008, 09:58:56 am: Aw, come on - I can't be that bad - when I make enough money, I plan on sharing it with all of you. I'm sure you've probably all spent Phyl's $10 by now anyway. :D

And, yes, Debbi, we've already looked at the AN matchmaking service. I have a VERY cute, single doc that I'm dying to set up with someone! I'd date him myself, but I have a feeling James wouldn't be too happy with that. Go figure.

Lori
Title: Re: Pooter's surgery updates
Post by: Debbi on July 28, 2008, 11:39:43 am: Hijack Alert!!

Hey Pooter - we've got your thread and we aren't giving it back until you return...

Debbi, in cahoots with Jan and Lori...
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on July 28, 2008, 10:53:11 pm: Quote from: lori67 on July 28, 2008, 09:58:56 am
I have a VERY cute, single doc that I'm dying to set up with someone!

Hey, wait a minute, you said he's mine :o Now you're offering him to the public? :o

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on July 29, 2008, 10:25:55 am: Jan, I refuse to answer whether it was a compliment or not. It's all in how one takes it and I will just leave it there. ;)

Debbi, can I have it back now? I'm here now..

To update everyone, I went to the eye doc yesterday. Overall, it was positive news. He checked both of my eyes out very thoroughly. He said that the prescription hasn't really changed in the eye on my AN side all that much (if at all), but in the course of everyday blinking, that eye doesn't shut all the way (yet). So, while I don't feel it, I have a bit of dry eye which accounts for that eye being blurrier than normal. He gave me some different contacts that let in more oxygen, gave me some instructions on wiping it down with a hot compress a few times a day, and he gave me some re-wetting drops to use during the day. He also wants me to get with my doctor and get in to see an Occupational Therapist to get more exercises to "wake up" that nerve on that side faster/better. He did some neurological tests on the nerves 2-8 and they all check out fine, which was good. He said that on a macro level, everything looks good, it's just on a micro level that some work needs to be done and fine tuned. As I said, overall positive news.

Today, as long as I think about blinking more fully and getting my eye all the way shut, things are better. It's when I get busy and forget about blinking that things get blurry again. Hopefully, that nerve will continue to wake up and I get better at blinking fully more naturally. I know; patience. ;)

Brian
Title: Re: Pooter's surgery updates
Post by: Kaybo on July 29, 2008, 11:04:45 am: Brian~
That is what happens with me - I just can not get enough blink to really rewet the eye to stop the blurries. Of course, my case is very different in that I have total paralysis.

Glad to hear the good news!!
K
Title: Re: Pooter's surgery updates
Post by: Jim Scott on July 29, 2008, 01:32:42 pm: Brian:

I'm glad to learn that your eye is basically O.K. and nothing is seriously amiss. Thanks for the update.

Jim
Title: Re: Pooter's surgery updates
Post by: ppearl214 on July 29, 2008, 02:17:26 pm: Blink, my Pooter, blink! focus! Keep blinking!!!!!!!! :) Sounds like you are heading in the right direction! FAB news! Onward and upward, Brian! :)

Phyl
Title: Re: Pooter's surgery updates
Post by: Pooter on August 03, 2008, 08:26:48 pm: I just had to share my little victory. We went to Austin for my sis's 40'th birthday party. Those of you familar with geography know that is about 2.5 hours away. I drove us all the way there Saturday and back today (in the sometimes gentle rain even).. :) :) :) That was the first time since surgery that I've driven so far. I now feel more confident driving to campouts that kickoff next month for me and my 8 year old. Small victory, but great news to me. Now, if the AN-side of my face will wake up just a little bit more to make it even easier to talk and blinking becomes more fuller, I'd be set! ;)

Brian
Title: Re: Pooter's surgery updates
Post by: Kaybo on August 03, 2008, 08:45:39 pm: Pooter~
YEA!!! What a great little test of your driving endurance! Way to go!

K
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on August 03, 2008, 11:04:57 pm: Pooter -

great milestone! ;D Congratulations!

Jan
Title: Re: Pooter's surgery updates
Post by: sgerrard on August 03, 2008, 11:18:18 pm: Nice. 8)

I'm mainly glad to see that the weird allergic reaction and all that went away, and you are back to normal recovery mode. I was wondering there for a while...

Now go easy on the pedal for a while, okay? No need to set any new speed records. ;)

Steve
Title: Re: Pooter's surgery updates
Post by: wendysig on August 04, 2008, 02:47:00 am: Brian,
Great to hear you're up to driving that distance. Every victory, big or small, is great news! Keep it up.

Wendy
Title: Re: Pooter's surgery updates
Post by: Debbi on August 04, 2008, 09:24:25 am: Way to go, Brian! That is a major milestone and one that deserves a cheer - so ... WAHOO!

Glad you are continuing to feel better. Hopefully your blink will come back soon (still waiting for mine, sigh...)

Debbi
Title: Re: Pooter's surgery updates
Post by: Pooter on August 04, 2008, 01:11:41 pm: Thanks everyone! The blink isn't normal yet, but knowing that I need to concentrate on it more helps. The fact that I know what's going on means that I know what to do about it. Consequently, things have been better in the blurry-ness department. Unless I try to smile real big, try to talk too fast or you see my new bad a$$ scar (I keep my hair almost non-existent so everyone can see it if they look), you wouldn't be able to tell I had brain surgery almost 3 months ago (3 months on Friday, did I mention that?).. ;)

Brian
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on August 04, 2008, 11:55:27 pm: Yeah, what's with that whole talking too fast thing?

I'm past the one year mark and I still trip all over my words if I talk too fast.

It's like my brain can't keep up with my mouth ::)

Congratulations on 3 months, Brian!!!

Jan
Title: Re: Pooter's surgery updates
Post by: Pooter on August 05, 2008, 10:27:02 am: Yea! Another small victory! For the first time since surgery, I jogged across the parking lot at work.. keep in mind that it was raining and in the middle of a hurricane. And, I did't fall down, didn't trip, etc... I also didn't feel anything less than "normal" when I was done. Yea for me! I just had to share. Carry on. :)

Brian
Title: Re: Pooter's surgery updates
Post by: Debbi on August 05, 2008, 10:36:13 am: Yay on the run through the parking lot! I don't think I've run at all since I came home - you make me want to run out and try it - NOT!

Bad news on the hurricane, though! Hope you are family are okay.

Debbi
Title: Re: Pooter's surgery updates
Post by: Pooter on August 05, 2008, 11:03:03 am: Yeah, we live on the extreme northwest side of the county, so we're just getting some wind and some rain. Jenni's hunkered down with both kids at home (they closed her work and she didn't know if she'd be able to pick up the kids later this afternoon), but so far we're okay. It's real slow today at work with lots of people not here, but that was expected.

You don't wanna go out and run a few laps? C'mon! Fly down here and you can do it in the wind and rain! ;)

Brian
Title: Re: Pooter's surgery updates
Post by: Syl on August 05, 2008, 11:05:58 am: Excellent news, Pooter

Jogging across the parking lot is a big deal so I congratulate you.

Syl
Title: Re: Pooter's surgery updates
Post by: cindyj on August 05, 2008, 11:18:29 am: Be careful!

Cindy
Title: Re: Pooter's surgery updates
Post by: Jim Scott on August 05, 2008, 02:46:21 pm: Brian:

Kudos on your successful parking lot run! With the long drive coming before it, you're obviously getting back to normal. Good to see that. I'm sure the other, peripheral-but-annoying issues will resolve, soon. Thanks for more proof that there really is 'life after AN'. :)

Jim
Title: Re: Pooter's surgery updates
Post by: MAlegant on August 05, 2008, 06:41:56 pm: Brian,
Small victories are huge accomplishments for some of us. Way to go. Running and driving!
Marci
Title: Re: Pooter's surgery updates
Post by: leapyrtwins on August 05, 2008, 11:06:20 pm: Wow, Pooter! Great progress! Wasn't it just yesterday that you started driving? and now you are jogging!

Milestone after milestone! It's definitely a wonderful feeling ;)

Jan
Title: Re: Pooter's surgery updates
Post by: wendysig on August 06, 2008, 05:46:43 am: Brian,
Driving, jogging andduring a hurricane too. What's next. Now that you're really on the road to recovery it seems like you're unstoppable --- grreat news! Keep it up.

Wemdu
Title: Re: Pooter's surgery updates
Post by: lori67 on August 06, 2008, 07:55:52 am: Brian,

Were you actually jogging or was the wind strong enough that it was pushing you across the parking lot? Well, either way, I'd celebrate it as a victory!

Lori
Title: Re: Pooter's surgery updates
Post by: Pooter on August 06, 2008, 10:12:46 am: Thanks everyone! And, Lori, I'll never tell! ;)

Has anyone noticed that they favor their non-AN side after surgery? I presume that gets better with time. Right after surgery, I couldn't do the minor-est of things with that side, like I couldn't type with that hand. It's MUCH better, but I still tend to favor to the non-AN side even if the other side is closer. I've also noticed that I'm generally overall weaker than before (at least it seems so). Am I losing my mind or has someone else noticed that as well? I try to force using the AN side when it's closer, but sometimes I forget because I'm in a hurry much of the time. For example, I open a door with the non-AN side (and have some minor troubles at times) even when the AN side is better, I correct a lot of spelling mistakes on the computer that happened on the AN side, and I used to be one of the fastest typist around but now I'm much slower (primarily because of correcting mistakes made on the AN side). Am I going nuts, is it just in my head, or what? I realize this is something lower on the scale of importance than, say, being able to blink, running, etc.. but, I still wonder if it's permanent or not..

Thanks to everyone for celebrating my small victory with me. I'm not 100% but I feel like I'm a lot closer than I was a month ago.

Brian
Title: Re: Pooter's surgery updates
Post by: Cheryl R on August 06, 2008, 10:28:42 am: Hi Brian, I wouldn't doubt it is AN and surgery related. Keep working away and you should improve in time. I have been more clumsy with my right hand. This started after my first AN surgery in 2001. I asked Dr Brackman about it at the 2003 AN symposium in Anaheim as the drs do mull around the crowds at times. He didn't think it was AN surgery related but I am not sure. Who knows. It never got any worse after my other rt sided surgeries.
Cheryl R