ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: Winkie on February 18, 2007, 07:28:00 pm

Title: Heartbeat in AN ear
Post by: Winkie on February 18, 2007, 07:28:00 pm

 Hi all - I've just located your website and happy to have found you!  I am 18 months post radiosurgery in Toronto - fractionated over 5 weeks.  Feel great with clear annual MRI's.  Next one in 2 weeks.  I've started having 'heartbeat' or pulsing in my AN ear - usually at night or at different times during the day.  I've learned to cope OK with the tinnitus but this adds a new twist.  Wondered if anyone else has experienced this?  Thanks very much.   :)

Title: Re: Heartbeat in AN ear
Post by: krbonner on February 18, 2007, 09:24:53 pm

I don't have this, but know of at least one other person here who does (Hi, Jane!).  I believe it's called pulsating tinnitus.  And it's not in your imagination!   ;)

Katie

Title: Re: Heartbeat in AN ear
Post by: vcschaub on February 19, 2007, 11:56:07 am

Immediately after surgery and for about two months, I could feel a pulse by my surgical scar. Dr. Stefan at House said it was pretty common. It is now gone.

Title: Re: Heartbeat in AN ear
Post by: oldewoman on February 19, 2007, 07:19:16 pm

I have had this for quite some time. Oddly, it was the symptom that finally put me over the edge and made me see a doctor who diagonosed the AN, but I still have it from time to time, even 15 years after the surgery. It's very real to me, and doctors have told me it actually had nothing to do with the AN, it's just something that happens to me and is harmless. It's certainly annoying when it happens. It happens more when I have a cold or a sinus/ear infection.

Title: Re: Heartbeat in AN ear
Post by: jcinma on February 19, 2007, 08:50:07 pm

Hi Winkie,
I have the pulsating tinnitus all the time. (Hi Katie!)  It is most obvious in a quiet room but I have grown accustomed to it.  I also had FSR about 20 months ago and like you did not have the pulsating tinnitus immediately. It was disturbing at first but no longer.
Jane

Title: Re: Heartbeat in AN ear
Post by: Angieshubbie on February 19, 2007, 10:45:29 pm

I have tinnitus all of the time even sometime with heartbeat.  The one thing that really bugs me, is when I put the blinker on in my car. Boy, it pulsing then. 
Angie

Title: Re: Heartbeat in AN ear
Post by: Winkie on February 20, 2007, 07:52:39 pm

Thank you everyone for your kind replies.  I have an MRI and apt with my doc in March so will bring it up then.  I really appreciate your notes.   ;)

Title: Re: Heartbeat in AN ear
Post by: Battyp on February 20, 2007, 09:10:41 pm

Funny I only notice the pulsating tinnitus when I'm trying to sleep.  It's so annoying anyone found any tricks to make it shut up so I can go to sleep?

Title: Re: Heartbeat in AN ear
Post by: Stevey on February 23, 2007, 11:01:41 pm

Not t be alarmist but pulsatile tinnitus can be related  to Hypertension and should be brought the attention or your doc, also can be nthing or a vein too close to a nerve.

Cheers,
Steve :-X :D