ANA Discussion Forum
General Category => AN Issues => Topic started by: tatianne on November 08, 2006, 08:04:29 am
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Hi guys,
ive been feeling very worried lately because I think i sometimes hear ringing in my other ear. It is not constant like my AN ear and not as loud but Im pretty sure its there.(its actuakky hard to tell sometimes because my AN ear is so loud)
Someone told me that sometimes the brain transfers the sound to the other ear, has this happened to anyone ?
Right now Im worried that something is growing on my other ear. My last MRI was at the end of July which showed nothing on my other ear, could something have grown that quickly ??
My anxiety also just seems to be making it all worse.
Im almost afraid to call my doctor.
T
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My experience is that the tinnitus has been in the opposite ear from the tumor and more recently now experiencing the tinnitus in the AN ear. I was told by a Tinnitus specialist that the sound is not really in the ear but a perception of sound from the brain. Also told that the Tinnitus may not be from the AN. Now that I have completed my Cyberknife treatment I will be going back to the specialist to see if there is any hope of relieving this. I discovered that Kaiser has a team of doctors and other practioners that treat Tinnitus. They admit that treating is quite a challenge but it is worth exploring. I am sure that if Kaiser is offering this that there are other specialists out there.
Best Wishes,
Bev
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I don't have it constantly in my good ear, but I have noticed it a few times. Especially when I had a nasty cold last week. I just assume it's my brain being confused and misfiring. Maybe I'm too blase, but it honestly never even occured to me to mention it to my doctor. ;)
Katie
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thanks girls, at least i know im not alone...when im stressed i pay too much attention to my body, which in turn makes things worse(ie tinnitus)....
Bev let me know what happens with your specialist please, i would hope to find out that there is a way to get rid of this winging, whistling, cricket sounds....
krbonner, Im happy to see that you are doing so well, I havent posted much but i was following up on u during your surgery and recovery.
God Bless
T
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Darn.......and I was logging off.....to leave for the dental appointment and this subject came up. Guess what, I have had "transfer ringing in my good ear," now.......as well. I'm in the *club* big-time! My AN is now having the ringing switching back and forth. (brain-thing as, my recent MRI shows no AN in the left ear and only right ear. It doesn't happen much the BAND PLAYING in the left ear but, IT DOES HAPPEN. Darn however, I'm glad to know I'm not alone in this one as, I was worried. I don't wish it on you people but, I was wondering about this subject as well.
OK, off to the dental appointment........
Palace
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well palace i guess we are in the same boat on this one....im happy to know im not alone as well. Thanks a lot for taking time to respond before your appointment, good luck at the dentist. ;)
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I think periodic tinnitus is normal even for those without tumors. People with ANs unfortunately are stuck with it for life on the affected side (nerve damage). Although, there are some people with AN's that don't have permanant tinnitus before or after treatment. Then again some acquire it permanately followinng treatment.
You will find answers to just about any scenario right here this board. Also, I've heard others complain of having permanant tinnitus within both ears with a tumor only on one side. My MRI was perfectly clean on the other side too and I also have that brief moment of tinnitus on my good side but it is not often and goes away relatively quickly. I drink so much coffee with plenty of sugar and sometimes blame this for increase in tinnitus.
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thanks flyersfan....my tinnitus seems to get worse with coffee as well, coffee and stress.
I appreciate your comments and knowing that im not alone with this one.
You guys are great help
T
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Hi Tinniuts sufferers,
Mine is so horrible there are times I wish I could just stay asleep forever so I do't have to hear it. Good thing I have 2 young daughters that keeps me going. I have read that styess and caffine make it worse for some people, I have quit the coffee to see and it does not make a difference for me, so since the noise keeps me from sleeping I'm back on the coffee to get going in the morning. Stress sometimes can make it louder, but mine is so lound all the time it doesn't really make that much difference. ANd it's Always in my AN ear.
BevM, Would love to know what the tinnitus specialist comes up with for you besides masking with white noise and Amitriptyline. That seems to be the usual scribes. As far as I know they really don't know what to do for us. keep us posted
Patti UT
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thanks brucifer,
question, do you think its your AN causing your Tinnitus ??or maybe something else ??
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thanks a lot for sharing.
its been gradually going over to my good ear and seems to be getting louder and louder in the good ear. Im sorry that you have to live with this noise as well, but im in a sense relieved that someone else is having in both ears with only one AN.
I called my doctor to make an appointment just to be sure but hes on vacation, i can only see him Nov 29.(Im also stressing about it so im sure im making it worse)
Its kind of cool that it warns you of your rising sugar though.
Im also waiting and watching right now, keep me informed of whats going on with you.
Thanks again for you input,
T
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Patti, do you have it on both sides as well. or just your AN side ??
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Hi Tatianne,
I too have been noticing lately tinnitus in my non-AN ear, not consistently but more randomly, as well. I wondered if b/c I have no hearing in my AN ear that it is the reason I heard it in my non-AN ear. I was actually getting worried about it too, so was glad to see your question and know that I am not the only one, so thanks for asking the question.
Mary
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me too ! . it comes and goes quickly in my good ear .. the AN ear of course its constant.
I'm not diabetic , but I can tell my blood presure is up .. my T goes up right along with it ...
after my AN sugery I thought my T had lowered a little, but remember I was on morphine and then sitting around the house doing nothing for several weeks .. I started work again .. BAMM... the T returned back to the high levels!!! .
for my new years resolution ... I'm gonna quit coffee (I drink it all day) ... I hope to bring the volume down a a little ... jeez, after a quit smoking 5 years ago .. and never thought I could give up coffee .. but then again my T was not as loud then !!
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WOW, a lot of us experience tinnitus in both ears, seems that it comes and goes in the non an ear for a lot of us....interesting anyone else ??
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What is tinnitus? Shhhhhh! Donmentionit! ;D
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Hi everyone,
I was just lurking around and saw alot of posts on Tinnitus. I'll attach a couple of articles I found which I think address the subject pretty well. According to one of the articles, approximately 36 million people in the US have some form of it ( so we have a lot of company ;)) It's source locations can be for damage in any one of four locations ( outer, middle, inner ear, and brain). The vast majority of folks have what I would term external ( outer , middle) damage caused by all the things most of us heard from our ENT's before our AN diagnosis such as loud music etc. In virtually all of our cases the tinnitus arises from internal damage to the hearing nerve caused by compression of the AN. It was explained to me that this damage to the hair follicles on the hearing nerve that transmit sound create confusion in the brain to various intensities at various times resulting in the tinnitus sound. I have been fortunate that 99% of the time mine is at a low enough level that I'm not even conscious of it unless I concentrate on it. However, I do have moments where it spikes up and really gets my attention. I can't even imagine what it's like for those of you who have those levels on a regular basis.
Anyway here are the links
Take care , mark
http://www.medicinenet.com/tinnitus/article.htm
http://www.tinnitusearringing.com/tinnitus_causes.htm
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Hi everyone:
Add another one to the list of people with occasional tinnitus in the non AN ear. It comes on very fast and goes away just as fast. I doubt it has lasted more than ten seconds. I first noticed it a couple of months after my 2 yr. MRI so I figured, why call the doctor.......my head is clear of tumors. If it keeps up, I will mention it at my 3 year follow up in May. It is not very often, maybe once or twice a month. It kind of sounds like pressure changing if that makes any sense at all.
Kathy
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Tatianne...
I have tinnitus in both ears, but especially on the AN side. I am diabetic, and my tinnitus increases in volume if my glucose levels are high. It is an aggrevating symptom, but something that I have learned to live with...
Bruce
I haven't noticed that with my diabetes.....crap, something else to worry about! :o
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Bruce, Your just always eating something wonderful. I havn't had halva in ages, Now I'll hafta go find me some even if it does turn up the volume. I'll have to pay attention to the sugar conncetion.
Patti UT
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Im new to posting hear but have been avid reader for 2 years.
I had no tinnitus prior to AN surgery but now have very loud tinnitus when background noise loud and constant very quiet T in good ear. Almost have to shut off good ear or be in dead scilence to hear it. I too thought had new one coming but surgeon and audiologist say this does happen because of how brain assigns the noise. I also think part of it is just head noise that previously I was unaware of!
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Hey Top Op Man,
Gald to see ya posting. Took you 2 years to decide to join us? me too. Kept thinking it all would go away, but I hve found great help with this group of ANers. Keep posting and sharing. We love to hear from you.
Patti UT
Oh, and by the way, I'm here to say, tinnitus SUCKS ( sorry admin, but it is the only realistic description)
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I also get tinnitus on the non AN side. Appears suddenly and will only last for a few moments, but will drown out AN side.
Just in the last few days, the tone has changed on my AN side from bell ringing to bee buzzing. I'll gladly take the bells over the bee's :'( I think I have a whole freakin swarm in my head
Cheryl
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Matti,
Maybe your swarm can coe drown out my symphony of constant high pitch ringging.
You know, the vertigo, balance, deafness and knowledge of tumor in my head might be a whole lot easier to deal with if I could just get some "quiet"
Ii hate you tinnitus"
pATTI ut
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When I'm tired (which happens quite easily now) I get tinnitus in the non AN ear. I have set up a super small aquarium in my living room and the hum of the filter actually helps to cover the sound of the tinnitus really well. Not that everyone needs to get a new hobby but I get to watch the little Betta fish which is very relaxing plus it helps drown out the noise.