ANA Discussion Forum

General Category => AN Issues => Topic started by: Ned on May 15, 2014, 06:33:43 am

Title: Anyone had radiation and it didn't work?
Post by: Ned on May 15, 2014, 06:33:43 am

Just wondering if anyone had radiation and it didn't work and had to have surgery?

Title: Re: Anyone had radiation and it didn't work?
Post by: sandyinwisconsin on May 16, 2014, 05:25:26 am

Ned,

I had 26 treatments of FSR 3 months ago.  I'm concerned (paranoid) it won't work.
What brought you to ask this question? 

Sandy

Title: Re: Anyone had radiation and it didn't work?
Post by: Ned on May 16, 2014, 06:30:36 am

I had FSR 11 years ago and I was just curious. My tumor has shrunk about 40%, but one always wonders if there could be regrowth. How are you post radiation? My doctors ill prepared me for what to expect post treatment.

Title: Re: Anyone had radiation and it didn't work?
Post by: sandyinwisconsin on May 16, 2014, 09:45:50 pm

Ned,

When did you start having problems and what were they?  I had mine done in December of 2013.

I'm fine so far - just a little mentally beaten up.  Can  you PM me at sandyinwisconsin.  I'm always looking
for fellow FRT patients.  I found several on this website, but they are few and far between.

Sandy

Title: Re: Anyone had radiation and it didn't work?
Post by: joycebaskin on June 19, 2014, 08:26:30 am

I had cyberknife about 6 months before I had surgery I had a extremely large tumor and it took them 14 hours in surgery to remove it .  The cybserknife seem to speed up the growth

Title: Re: Anyone had radiation and it didn't work?
Post by: RhondaC on October 13, 2015, 06:34:54 pm

I had surgery for a 3.2 tumor then 26 treatments with radiation.  Now the tumor has grown back.  I will have it out again in Jan only 4 years later.  Looking back I would not have had radiation.  Surgery will be harder to remove the tumor this time around.

Title: Re: Anyone had radiation and it didn't work?
Post by: KeepSmiling on October 27, 2015, 08:30:43 am

Maybe this is off topic but not all radiation is the same. So far we had good results for my husband, who was treated with PROTON beam radiation. There are differences in the types of radiation. Maybe this will be helpful information for someone here. I hope so. Read more under the profile name of Keep Smiling.  Best wishes to all.

Title: Re: Anyone had radiation and it didn't work?
Post by: becknell on November 03, 2015, 10:18:13 am

See my post above, 10 years after treatment. My husband had GK in 2006 and has had some tumor growth since then, but not enough to require treatment.

Title: Re: Anyone had radiation and it didn't work?
Post by: Blw on February 20, 2016, 03:00:28 pm

I think the best predictor of failure is the size of the tumor. The larger it is, the more difficult it is to irradiate or remove every tumor cell. If there are viable tumor cells left, they can regrow.

Title: Re: Anyone had radiation and it didn't work?
Post by: mcrue on April 02, 2016, 11:08:29 am

Quote from: joycebaskin on June 19, 2014, 08:26:30 am

I had cyberknife about 6 months before I had surgery I had a extremely large tumor and it took them 14 hours in surgery to remove it .  The cybserknife seem to speed up the growth
[/quote

That's frightening. Was your tumor on the larger size when you had radiation?

Title: Re: Anyone had radiation and it didn't work?
Post by: RhondaC on May 16, 2016, 02:18:38 pm

I had surgery Jan 2 .2012 they took all they could on a large 3.2 tumor. 
they took 75%  than that fall I had to Radiation.   Jan 14. 2016 I had surgery again. it grew back to 3.3 size again.  Now I ,ve had 2+ weeks of in house therapy6-7 hrs a day and then out patina therapy for6weeks .he eye dr 2 times  a week. Now they tell me this is going to take over a year.  Ya I need HELP.