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Seeking advice for finding surgical teams

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TWMD:
Hi. My daughter who is in her mid 20s was just discovered (via MRI) to have a 27x29x25mm tumor that radiologist and a neurosugeon have said is most likely a VS. I'm trying to identify other doctors to consult. She's currently in Atlanta, and has spoken to a neurosurgeon (Jeffery Olson) at Emory (and will talk to a neuro ENT there this week), since that's where she lives and where her MRI was done. She has a video appointment with Henry Brem at Hopkins later this week, and we've requested a consult with Friedman/Schwartz team at UCSD. At first Hopkins seemed  most convenient since we live nearby and she could recover from surgery with us, but after reading the forums, it sound like it's not critical to be close by the surgery location for the recovery period. So we're really open to other suggestions of teams/hospitals.  She already has severe hearing loss in one ear, but no other symptoms. Where/who else should we consider? Mayo? Other east coast/mid-atlantic area hospitals? Thanks in advance for any advice.

DanFouratt:

March 3, 2024 there was a presentation about high volume facilities put on by UCSD. You may find this helpful in your search.

I decided on the radiation treatment but had a surgeon identified.  I spoke with several surgeons across the country.  They all asked who mine was.  When I told them Dr. Brown of UNC without hesitation they said I was in great hands.  He has done these before like the presentation said is a good thing.

Good Luck on your decision journey.

Dan

donjehle:
I had my second MRI and initial consultation at Emory.  They have a good reputation.  I sought out a second opinion at the Mayo Clinic as I highly respect the acoustic neuroma team they have there.  The Mayo Clinic offers a video consultation at no charge -- so it does not hurt to touch base with them.  In my case, the doctors at Mayo completely agreed with what the doctor at Emory told me.  And that gave me a lot of comfort knowing everyone was in harmony.

Best wishes for your daughter as she continues along this journey!
Don

worshippermood:

--- Quote from: donjehle on April 14, 2024, 06:50:44 pm ---I had my second MRI and initial consultation at Emory.  They have a good reputation.  I sought out a second opinion at the Mayo Clinic as I highly respect the acoustic neuroma team they have there.  The Mayo Clinic offers a video consultation at no charge -- so it does not hurt to touch base with them.  In my case, the doctors at Mayo completely agreed with what the doctor at Emory told me.  And that gave me a lot of comfort knowing everyone was in harmony.

Best wishes for your daughter as she continues along this journey!
Don

--- End quote ---
My mother was also treated here. The team of doctors here are extremely dedicated.

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