ANA Discussion Forum

Treatment Options => Radiation / Radiosurgery => Topic started by: phantagrae on June 14, 2013, 12:20:31 pm

Title: How much does GK or CK really cost?
Post by: phantagrae on June 14, 2013, 12:20:31 pm
I know that most of you who have had some sort of radiation treatment have had the benefit of some kind of insurance, so it might be hard to tell what the "real" numbers are.

I'm looking at trying to seek treatment without insurance coverage and it's very daunting and confusing.

I know that most states have some kind of program, especially if you are low-income or have no insurance, but I believe I may be over the income threshold, and technically I have insurance--just not the kind that's going to pay for anything.  I have no radiation treatment coverage.
But, if I use a state program, then I believe I would have to have my treatment done in my home state.  While there are GK facilities here, there is no CK in Arkansas, that I know of.
From what I've read, I think that CK might be my best hope for preserving my hearing, so that's what I was hoping for.

I'm a little confused about trying to talk to the folks at Barrow in AZ, because I ended up talking to someone at St Joseph's Hospital--but they are somehow connected...

Anyway, the self-pay numbers I was quoted were approximately $72,200.00 for GK and more like $85,000.00 for CK.  She said they'd ask for about 20% as a downpayment, and then do payments over a year.

I don't even know how to process that.  I know that at my local hospital, they gave me a self-pay discount for my MRI of about 70% off of the total, but I don't know if the numbers quoted above include a discount, or if those are just the raw numbers for what the procedure costs before insurance would normally apply.

Should I have had my primary care doc call in my referral instead of trying to figure this out myself?

I have friends and family who have said they're willing to help contribute toward my costs, but $90,000.00???

I want to get the best treatment I can, and I don't want to just go with the cheapest available option, but I don't know what to do.  I know that not everyone has the option of going out of state, and many people have successful treatment at their local hospital.
I was just hoping that I could work this out.  I just had no idea how expensive it all is.  And I don't even know that it would be all that much cheaper to have it done locally, anyway.

 :(  ???
Title: Re: How much does GK or CK really cost?
Post by: arizonajack on June 14, 2013, 01:05:52 pm

I'm a little confused about trying to talk to the folks at Barrow in AZ, because I ended up talking to someone at St Joseph's Hospital--but they are somehow connected...


That's because the Barrow Neurological Institute is a division of St Joseph's Hospital so the charges from St Joseph's will be for the facility, the equipment and whatever hospital staff members are involved. Doctors who are not on staff but have privileges and are involved in the procedure will bill separately.


Anyway, the self-pay numbers I was quoted were approximately $72,200.00 for GK and more like $85,000.00 for CK.  She said they'd ask for about 20% as a downpayment, and then do payments over a year.

I don't even know how to process that. 


Neither do I.

The VA paid for my GK but I was able to get a copy of the account statement that was used to generate the charges from St Joseph's:

ECG 343.00
MRI 2928.00
Contrast 160.00
Staff Radiation Oncologist 3991.00
Staff Physicist 3140.00
Gamma Knife 9710.00
Some Misc Charges 459.00

Total 20731.00

Neurosurgeon:
Initial Consult 400.00
Gamma Knife 3500.00
Head Frame 600.00

Total 4500.00

Neurotologist:
Initial Consult 469.00
Gamma Knife 2531.00
Post GK Office Visit 82.00

Total 3082.00

The VA, of course, paid a significantly reduced amount but I don't know if those gross charges are the same for self pay or different for contract pay.
 

I know that at my local hospital, they gave me a self-pay discount for my MRI of about 70% off of the total, but I don't know if the numbers quoted above include a discount, or if those are just the raw numbers for what the procedure costs before insurance would normally apply.


You might try asking for a written statement of costs and discounts. Good luck with that, though. I had a ***** of a time even getting basic information even after it was all done.


Should I have had my primary care doc call in my referral instead of trying to figure this out myself?


I don't know that it would have made any difference in finding out what it would cost. Doctors generally have no clue as to how much they, or anybody else, charges because they have billing services that take care of all that and all they care about is how much is in their paycheck and not where it comes from.

I don't think you will ever get a straight answer about the cost until you get the bills.

I once tried to scope that out for a colonoscopy several years and the final bills were about twice what everybody was telling me on the phone.

Title: Re: How much does GK or CK really cost?
Post by: rupert on June 16, 2013, 07:50:37 pm
If I remember correctly, my GK procedure in 2010  was right around $80,000.   If you're not using insurance I think you can use the barter system and come to some agreement on the price.  Usually a lot lower.   This may require negotiating with the doctor and all parties involved seperately.
Title: Re: How much does GK or CK really cost?
Post by: Nannybee on June 17, 2013, 04:06:05 pm
The charges submitted to my insurance company were around 85,000. Procedure was just done in April.
Title: Re: How much does GK or CK really cost?
Post by: mesafinn on June 17, 2013, 04:57:56 pm
There is a large distinction between "insurance pay" and "self pay."  For example, when I heard from Stanford about CK, I was given an insurance amount and then an amount that was 40% less if I was paying out-of-pocket.

Each place I contacted had various rates depending on insurance coverage, co-pays, and no insurance.

CK will cost more than GK.

GK across the U.S. ranges in price (for completely out-of-pocket) between 20-50k.  If someone is quoted more than that, keep looking.  There are high-quality places who will do it for as little as $20,000.
Title: Re: How much does GK or CK really cost?
Post by: robinb on June 24, 2013, 11:27:52 am
Well, after going back and forth with my insurer we are 99.99% done with getting what they will pay.

There "really" is no straight answer to what any procedure "really" costs.

The real question is what does it "really" cost each individual out of pocket.

However, for those less fortunate that must pay all costs out of pocket, I would recommend trying to negotiate all expenses down to what the hospital and docs have agreed to accept as "allowable charges".

This too will vary from insurer to insurer. I offer the following from my own personal experience with Dr. Lunsford's team at UPMC:


Doctor/Facility                               Total Charges   Allowable charges   Deductible      Copay   CoInsurance   other amounts not covered   Member Responsibility
UPMC PRESBYTERIAN SHADYSIDE (SD   $54,344.00    $23,787.38                  $800.00           $10.00    $1,187.70    $21.73                                    $2,019.43
UNIVERSITY OF PITTSBURGH PHYSIC   $3,741.00    $1,047.00                  $0.00           $60.00    $0.00                   $0.00                                    $60.00
UNIVERSITY RADIOLOGISTS             $868.00                   $236.71                                 $0.00           $0.00    $0.00                   $0.00                                    $0.00
UNIVERSITY OF PITTSBURGH PHYSIC   $1,030.00    $304.00                                 $0.00           $0.00    $60.80                   $0.00                                    $60.80
UNIVERSITY NEUROSURGICAL   $15,598.00    $4,181.25                  $0.00           $0.00    $0.00                   $0.00                                    $0.00
UNIVERSITY NEUROSURGICAL   $203.00                   $107.00                                 $0.00           $60.00    $0.00                   $0.00                                    $60.00
UPMC PRESBYTERIAN SHADYSIDE   $39.25                   $29.25                                $0.00           $10.00    $0.00                    $0.00                                    $10.00
                     
        TOTAL                         $75,823.25    $29,692.59                 $800.00           $140.00    $1,248.50    $21.73                                $2,210.23




My point in making this available for all is to show that the hospital and docs billed a total of over 75k, but AGREED with my insurer that would accept just under 30k. So is this what it "really" costs? I don't know.

At the end of the day, what each of us cares about is what it "really" costs us personally. In my case, I consider it very fortunate that my out of pocket is $2,210.83.

If anyone wants more details/info just send me a PM.

PS - sorry for the layout but I could not figure out how to upload an excel chart.
Title: Re: How much does GK or CK really cost?
Post by: phantagrae on June 25, 2013, 02:32:04 pm
Thanks to all who responded, either her or in PMs.

I just talked to someone in Dr Shetter's office at Barrow and she essentially told me to call back when I had the $100,000+ (the number she quoted me) or when I had acquired major medical insurance.
Or to apply for local state aid and have my treatment done here.

 :(

Also, am I wrong to feel a sense of urgency about getting treatment?  I feel like I want to get it done--I was hoping for mid-July--because I want to try to put a stop to it before I have any real significant damage to my hearing.  So far I've been very fortunate, but I almost feel like I've got an invisible bomb in my head.  I can't see it to tell whether or not it's growing or whether it's doing damage to my auditory nerve.

My hearing seems to be unchanged for now, but my trigeminal nerve has been affected for probably a year now, with the symptoms more apparent in the last 6 months or so.

I don't want to rush into anything, but I don't want to wait until I start to lose my hearing (something this woman actually suggested...!  ::) ) before I get treatment while I'm trying to scrape together some money (including money to pay for major medical out of my own pocket.)

 ???
Title: Re: How much does GK or CK really cost?
Post by: nftwoed on June 25, 2013, 04:59:05 pm
Hello;

   Do the Drs. have a sense of urgency? One thing to remember about making a person wait to acquire that much money, or some guarantee of pmt, is that Barrow has the equipment already purchased, the Dr(s), techs, nurses on are already on staff and being paid anyhow. I'm unsure how that thinking strikes you.
   Beginning a hearing loss is no small matter and in this country, can be overcome at other facilities, I believe.
   If it were me, and there was indeed some urgency, I'd appeal to other Tx providers and definitely not the billing dept. first, but directly to the Dr.
   Re, your envisioning CK as superior; Maybe, or not. Each case is individual. Theoretically, maybe CK has a hearing sparing edge, but not overwhelmingly so. 
Title: Re: How much does GK or CK really cost?
Post by: mk on June 25, 2013, 05:52:28 pm
Excuse my ignorance, but are these numbers for real??  :o

My understanding from all the medical literature is that radiosurgery costs much less than conventional surgery. The numbers that I have heard about surgery say for example from HEI are about $100,000. How could GK or CK have a similar cost?

Also from what I know the cost for this surgery in some European countries, if you pay out of pocket is around the equivalent of $12,000-$20,000. The same is true for Canada (although we don't really see the amount, so I don't know an exact figure).
Assuming that the equipment/personnel/hospital stay etc are similar, how is a cost of $80,000-100,000 justified?

Sorry, but I am completely shocked.

Marianna



 

Title: Re: How much does GK or CK really cost?
Post by: terisandler on June 25, 2013, 06:42:32 pm
Not sure, MK, but I had 5 CK sessions and those alone were about $85k with insurance discounts knocking it down to about $55k.  Then there were charges for doctors, radiologists, MRIs, CT scan and if I totaled it all I am pretty sure the total billed to insurance was $100k+.  Amazing! 
Title: Re: How much does GK or CK really cost?
Post by: phantagrae on June 26, 2013, 01:45:31 am
Excuse my ignorance, but are these numbers for real??  :o

My understanding from all the medical literature is that radiosurgery costs much less than conventional surgery. The numbers that I have heard about surgery say for example from HEI are about $100,000. How could GK or CK have a similar cost?

Also from what I know the cost for this surgery in some European countries, if you pay out of pocket is around the equivalent of $12,000-$20,000. The same is true for Canada (although we don't really see the amount, so I don't know an exact figure).
Assuming that the equipment/personnel/hospital stay etc are similar, how is a cost of $80,000-100,000 justified?

Sorry, but I am completely shocked.

Marianna

Yeah, I think the $100,000 amount supposedly includes everything.

For me the hearing issue is paramount in that as a professional musician I want to choose the treatment that will have the least impact on my hearing.  From what I've read here and elsewhere, CK may indeed have only a slight edge over GK, but I don't want to gamble.

I hate to give up on the idea of CK, but I may end up going with my local hospital facility and the doctors with whom I spoke earlier.  The ENT I saw in April/May called me tonight to see what I was planning to do, to make sure I wasn't falling through the cracks.  He had heard from the neurosurgeon I saw that I was looking into going to Barrow, but he just wanted to check in with me.
He did offer to talk to the CARTI clinic here (where they would do the FSR if I have it done here) because of the financial assistance they have available.
While I really wanted to do CK, I may just end up going with FSR.
I had had just a disappointing day in talking with that person at Barrow and contemplating the idea of trying to raise $100,000.00.

I'm just trying to pray about what course to take.
Title: Re: How much does GK or CK really cost?
Post by: robinb on June 26, 2013, 07:37:29 am
Many times insurance will deny; have you contested the decision to higher levels; keep doing this until you have reached the top.

Although my insurance said I was covered for the procedure, they nitpicked some of the charges, about 8k worth, as not covered. After one round of disputes, they paid them.

Also, suggest you contact Dr. Chang at Stanford and Dr. Lunsford's office (for GK) to see if their facilities have better options for private pay.
Title: Re: How much does GK or CK really cost?
Post by: phantagrae on June 27, 2013, 03:32:21 pm
Many times insurance will deny; have you contested the decision to higher levels; keep doing this until you have reached the top.

Although my insurance said I was covered for the procedure, they nitpicked some of the charges, about 8k worth, as not covered. After one round of disputes, they paid them.

Also, suggest you contact Dr. Chang at Stanford and Dr. Lunsford's office (for GK) to see if their facilities have better options for private pay.

I know my insurance won't pay for any of it because I don't have major medical and I have no coverage for radiation treatment, so there's really nothing to contest.
The main reason I was considering Barrow was that they have an AN team and are very experienced and also that they have CK, which seemed to me to be the best option for limiting damage to the cochlea (though maybe I'm kidding myself...)

If I'm treated here it will be FSR, also to limit damage to the cochlea as much as possible.

I got a call for an appointment with the doc at CARTI--he's a radiosurgeon, I believe, and I will see him on the 2nd to consult about my situation and I can talk to those people about what kind of costs I'm looking at, since I'll still probably have to do some fundraising.
Title: Re: How much does GK or CK really cost?
Post by: arizonajack on July 03, 2013, 08:36:18 pm
Apropos of this conversation, the following article appeared in the July-August AARP Bulletin:

"Lifting the Veil on Hospital Rates"

Recently released government data showing what US hospitals charge for inpatient procedures may be ushering in a new era of transparency in health care costs, which have long been closely guarded by hospitals.

Health care advocates say Medicare's decision to publish the figures could lead to greater openness in other areas, such as patients' out-of-pocket costs, and eventually may result in a more comprehensible pricing structure medical expenses.

"It helps to begin the process of examining actual charges as opposed to just the payment amounts," says Keith Lind, a senior policy adviser at AARP.

The data from more than 3,300 US hospitals included the prices they charge - and the standard rate that Medicare pays - for thousands of treatments. The figures show a wild disparity in billing rates for the same procedures.

For example, a Houston hospital charged patients $126,157 for a hip replacement, while an Applegate, Wisconsin hospital charged $26,787. Medicare pays hospitals about $14,000 for that operation.

Stuart Guterman, vice president of the nonprofit Commonwealth Fund, says the data demonstrate that hospital charges have nothing to do with the cost or quality of care. "It's becoming less and less clear what hospital charges are based on," he says. The long-term goal "should be to make hospital charges relate to what the actual cost of care is."

Title: Re: How much does GK or CK really cost?
Post by: prisca on July 04, 2013, 04:54:20 am
I'm not sure that there ever could be one fair price for a procedure regardless of the hospital.  There are legitimate price differences in real estate and salaries (based on cost of living in an area).  It would have to cost more to have a hospital in San Francisco or NYC than in West Virginia or Oklahoma.
Title: Re: How much does GK or CK really cost?
Post by: Nannybee on July 04, 2013, 08:33:46 am
The physician charges were actually a minimal part of the charges. $2100 for the neurosurgeon, $3500 for the radiation oncologist, $380 for the radiologist. The biggest charges were for the actual use of the machine. I had LINAC treatment with 4 passes and each pass was broken down on the bill and averaged $14500 per pass. The charge for use of the head frame itself was also on the bill.
Title: Re: How much does GK or CK really cost?
Post by: robinb on August 23, 2013, 09:56:10 am
Just as a PS to my previous posts on this topic:

The billing dept at UPMC continued to try and squeeze more from my insurer. When they were finished, I questioned a couple of charges and those were taken off. So my final out of pocket costs for the GK procedure was $1,991.52 plus $60 for office visit consult copay and $10 for lab tests.

My ongoing MRI's are covered at 100% as well.

All in all, I am very lucky that I have good insurance.
Title: Re: How much does GK or CK really cost?
Post by: PaulW on August 26, 2013, 11:42:27 am
"I had LINAC treatment with 4 passes and each pass was broken down on the bill and averaged $14500 per pass."

This is a very important point.....

Does fractionation actually work?
Its a very good question!

Real world results between GK and other fractionated treatments are almost identical. Why?

In many countries single session LINAC radiosurgery is common place,
Why is the practice of multiple sessions so popular in the US? But not elsewhere?

There are a lot of people charging 3-5 times more for a procedure that may provide advantages.
The actual proof that fractionation provides better outcomes than single session remain thin.

Because fractionation "might" be helpful many keep doing it and charging appropriately

 



Title: Re: How much does GK or CK really cost?
Post by: Nannybee on August 26, 2013, 01:38:56 pm
Paul, My LINAC treatment was not fractionated. The Trilogy machine has the ability to do both SRS and FRS. I had SRS, but unlike GK, the machine moves around the patient in an arc with each arc considered a pass in my billing example. I had a single treatment where the machine made 4 passes around me.
Title: Re: How much does GK or CK really cost?
Post by: PaulW on August 26, 2013, 03:57:06 pm
Cool Got it... Single fraction, 4 arcs.
The prices in the US are a lot more than here in Australia.
We pay about $15500 for the entire treatment.
I shudder to think what a fractionated cost would be for 5 fractions.
I guess my concern is that we are sold on the idea of fractionation which allows operators to charge 3-5 times versus a single fraction. It is still unclear as to whether fractionation provides superior results to single fraction.


Approximate prices in US Dollars inclusive of 10% gst in Australia
Which tourists can claim back.

All inclusive prices excluding cost of CT or MRI
GK is US$ 22500
Trilogy around $15500 for 4-6 arcs
Varian Linac SRS $5000 for 6 arcs

MRI's on older machines are down to $350
MRI's on the latest machines around $900

One wonders if there was a bit more "medical tourism" if that would help drive competition and reduce prices in the US

Title: Re: How much does GK or CK really cost?
Post by: arizonajack on August 26, 2013, 04:01:09 pm
Real world results between GK and other fractionated treatments are almost identical. Why?


Same reason some people buy Fords and others buy Chevys.

They are both boxes on wheels with all of the same equipment and similar in quality and performance.

There are other analogies.

Houses, for example. Some people like brick. Some people like stucco. They serve the same purpose. Houses are boxes in which you keep your stuff. (Thank you, George Carlin.)

Food. Sushi vs cheeseburger. Both serve the same purpose and are indistinguishable when they come out the other end.

Bear with me. Only one more.

Mac vs PC.

It's a matter of perception
Title: Re: How much does GK or CK really cost?
Post by: Jim Scott on August 26, 2013, 04:15:34 pm
It's a matter of perception.

Well yes, but doctor recommendations often are determinate.  AN patients are not always knowldgable about the various attributes or risks of radiation options and some doctors prefer GK to CK and vice versa, usually based on their experience. 

Jim
Title: Re: How much does GK or CK really cost?
Post by: nftwoed on August 26, 2013, 06:13:38 pm
Hello;

   Perhaps a desire for a market share? The comparison between the two radiation forms have not always been quite so close, have they?
Title: Re: How much does GK or CK really cost?
Post by: nftwoed on August 26, 2013, 06:18:18 pm
Hello;

   I'm not so sure it's as simple as a 'single fraction." The tumor actually receives several hits in GK, I believe.
Title: Re: How much does GK or CK really cost?
Post by: phantagrae on August 27, 2013, 04:55:24 pm
While I don't really know anything about GK vs CK vs SRS vs FSR, I don't think that my doctor is trying to scam me by offering me fractionated treatments.

Maybe I'm naive, but I think that the 30 treatments I've had have been pretty easy on my body, compared to the accounts I've heard from some people about the side-effects of single session GK.

I had the option to do 5 treatments or 30.  The doctors I spoke with, knowing I was a musician and that hearing preservation was my main goal, felt that the lower individual doses with FSR would be the best way to go easy on my hearing.
And I don't know that it's about making more money, since the clinic I'm going to is a non-profit facility, often writing off the entire cost of treatment in some cases.  I don't know how much assistance I'll receive, but they know that my puny insurance will not pay for any of my treatment.

In my treatments, I think I get "zapped" about 10 or 11 times each time--the machine rotates around, and the angle of the bed is changed a couple of times as it aims at my head from different angles.

I have only 3 more to go!! :)
Title: Re: How much does GK or CK really cost?
Post by: terisandler on August 27, 2013, 07:02:27 pm
I had 5 CK treatments and each time I went the CK machine made multiple passes to the tune of a total bill of approximately $85k.  The EOB showed multiple charges for each of the 5 days I went - apparently one for each pass.
Title: Re: How much does GK or CK really cost?
Post by: mk on August 28, 2013, 09:52:48 am
The physician charges were actually a minimal part of the charges. $2100 for the neurosurgeon, $3500 for the radiation oncologist, $380 for the radiologist. The biggest charges were for the actual use of the machine. I had LINAC treatment with 4 passes and each pass was broken down on the bill and averaged $14500 per pass. The charge for use of the head frame itself was also on the bill.

Back to the original discussion, I was able to obtain the actual breakdown for the GK costs here in Ontario, Canada that are charged to our health plan (which is run by the province):

Gamma knife treatment day $2,121.16 includes MRI with Gadolium, CT Scan, Treatment planning and Gamma Knife treatment.  Total AN related costs $5,250.60 includes all diagnosis related testing, including audiology and MRI's. Follow up MRI's, surgery and radiology consultation over a two year period and the treatment day itself.

Assuming that physician costs in N. America would be (relatively) comparable, it seems that the major difference is the cost for using the equipment. I suspect that the reason why costs for equipment usage in the States is so high, as everyone mentioned, is that the cost for capital cost recovery is factored in. i.e. different models for calculating the cost: In the States someone (a hospital, or clinic for example) makes the initial investment and pays for the capital cost for installation/initial commissioning etc., and then this cost is recovered through the span of many years, from the users.
In the other model, the cost is covered upfront (by taxpayers money), so there is no need to factor in the cost for capital cost recovery into the actual treatment. Plus the state-run health insurance plans can put a cap on what they pay for usage.
Recognizing that capital cost for such equipment must  be covered, it is then a matter of paying upfront (by the taxpayers), vs. paying afterwards (by the users).

I don't want to stir any discussion about which model is better; the point is that cost must be recovered somehow, and there are different models for doing this. I am just trying to find an explanation for the big differences reported.

Marianna


Title: Re: How much does GK or CK really cost?
Post by: arizonajack on August 28, 2013, 01:17:15 pm
Hello;

   I'm not so sure it's as simple as a 'single fraction." The tumor actually receives several hits in GK, I believe.

You're right.

It's a single session.

But the radiation is applied to the tumor in a series of "shots" aimed at different sections of the tumor so that the combined number of "shots" covers the entire tumor. The number and position of the "shots" depend on the size and shape of the tumor