ANA Discussion Forum
General Category => NF2 => Topic started by: marymomof3 on April 03, 2009, 06:33:44 pm
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Hi everyone. I am not diagnosed with NF2, but was at a recent appointment with my surgeon, Dr Roland at NYU, and heard about a new group they have put together for patients diagnosed with NF2. I thought it was good know, and wanted to pass the info along. I believe that Dr Roland is heading the team of doctors to collectively focus on working with patients diagnosed with NF2. I read an article (while I was waiting for my appointment) that so many patients with NF2 find it difficult to get the proper care from 1 or a team of doctors so I thought this info might help 1 person, it was worth posting it.