ANA Discussion Forum
General Category => Hearing Issues => Topic started by: CHD63 on March 08, 2011, 01:01:02 pm
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OK. In an effort to be fully informed ...... Two doctors have already told me I will lose the rest of my hearing, no matter what ..... as this regrowth continues to grow or when a translab is done to totally remove it. Since music (both from participating and listening standpoints) is a HUGE part of my life, I am tossing around the idea of a BAHA.
1) Since I still have 20% of my hearing in the AN ear now, I do not think I could get a valid idea of how useful it would be for music with a demo BAHA, until after my hearing is totally gone. Is that an accurate thought? In other words, would I be taking a big risk that it might not even be helpful with music?
2) How many of you had your BAHA abutments implanted at the same time as your AN removal surgery? Does that complicate the recovery process? Any greater danger of infection because of it?
3) If I had the abutment implanted during surgery by a doctor/medical facility in one location, is it possible to get the processor when I get back home in another location?
4) Since I have already had a suboccipital approach the first time around, the next would be translab ..... does that mean a problem for placement of the abutment?
You'd think I'd know these things by now ...... Little did I realize I should have been paying closer attention!!!
Clarice
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I had a translab and had the BAHA implant done at the same time. No problem! The screw/abutment was put in place, but they covered it with my scalp rather than leaving it exposed to minimize infection. I went back 3 months later to finish the "scalping" and turned on 2 weeks later. Where they place the implant depends on the thickness of your scalp. Cochlear suggests the proper location, but that probably leaves the surgeon some flexibility.
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Clarice,
I also had translab and the BAHA base done at the same time. I also had no problems. For one reason and another, I did not have the site exposed until two weeks ago. The skin over the site was too thick so they had to thin the skin before placing the attachment. I get my BAHA on the 31st of this month. I had the base put in at the same time in an effort to minimize surgery, but I still needed surgery. Anyway, I still believe that having it done at the same time is an excellent option. Best wishes.
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Thanks for the success stories! Still gathering information on the differences between the Oticon and the Cochlear. Looking especially for feedback from those of you who have the Oticon .....
Clarice
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Sorry to tell you this, but BAHA does not help much with music appreciation.
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Sorry to tell you this, but BAHA does not help much with music appreciation.
What do you mean by that? I enjoy music with my bilateral Bahas and love it.
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Through my BAHA, music sounds scratchy to me, like a weak AM radio station.
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Through my BAHA, music sounds scratchy to me, like a weak AM radio station.
I wouldn't know what the real music sounds like because I never had normal hearing all of my life. Born deaf and wore hearing aids since I was 1 year old. I learn to appreciate what I have now and got used to it.
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Sam .....
Could this possibly be corrected/improved through a programming adjustment? I can't remember when you got yours, so I do not know if they have improved that part with the latest models. Also, wondering if it has anything to do with how good your normal ear is ..... So far, my non-AN ear has perfectly normal hearing at all frequencies. I do have hyperacussis so I am most distressed in movie theatres, loud restaurants, and loud music concerts. Wonder how the BAHA will be for me in those situations?
Like Kencutus says, he has learned to appreciate what he has. I hope I can do that!
Clarice
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A leader in my DC local support group I think had her BAHA implanted at the same time as her surgery. I think her name is Patricia. I will ask her to write to you. Her surgery was at HEI.
Mei Mei
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Clarice~
I still REALLY enjoy music with just one ear - of course, I don't hear it the same way you do, since you are trained in that area. The way I see it, it is better to get it when you have the translab and then decide which way you like to listen to music better - you can always take it off! Whether you have the BAHA or not, unforunately, you still won't be able to hear out of that ear. DO IT!!!!
K ;D
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Clarice,
Are you a singer or teacher?
I work in the music industry and I must say, my SSD has really affected me. I got to take home the BAHA simulator yesterday and it helps a little with the listening part, but not a lot. I do anticipate that once I get the real thing I might notice some difference.
I am also getting a simultaneous AN translab and Baha in April - a lot of your questions are some of the same questions I had. Thanks for asking them.
Good luck with everything!
- Joey
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Joey .....
I am both a singer and an accompanist. I no longer do solo work, but still sing in two choral groups and it is most frustrating not to have accurate hearing of my own voice while surrounded by other singers. Similar problem when I accompany, it makes me uneasy not to hear the performer(s) clearly to be accurate in my accompaniment level, etc.
I was a choral music teacher for many years and a church organist all of my adult life (I am now retired from full-time at either one.)
Thanks for sharing your experience with the BAHA simulator. I have not done that yet, because I still have partial hearing and not sure how much I would be able to tell until I am totally deaf in that ear. That's why I asked the questions.
Best wishes to you and please let me know how it all goes.
Clarice
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Combining AN and BAHA surgery is one of those doctor preference things. Some docs combine, some don't. Mine doesn't - but that's his personal choice.
I have no issues listening to music with my BAHA. I use an MP3 adapter for my iPod but nothing but my processor when I listen to music in my car (either the radio or my iPod - I have a car adapter).
I'm happy with the sound I hear, but I'm neither a musician nor a singer (except in my own mind) ;D
When I use my iPod and the MP3 adapter, I use setting #3 on my BP100. It's programmed for music.
I don't think demo'ing a BAHA prior to your AN surgery would be the best idea; if it were me, I'd wait.
Once you do try the demo though, keep in mind that the real thing is much better than the demo. The demo is just the best they can show you without the actual surgery.
Jan
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Jan .....
I will need to check in to the adapters for listening to music. Right now, I find it much more satisfying to use my single sided stereo ear bud for hearing both channels.
It is the performance angle that has me concerned. I have not checked with my insurance yet to see if they will pay for a BAHA, but if they do not, I am hesitant to shell out another $4,000 for hearing assistance if it is not going to be extremely satisfying ...... after spending $5,000 on two different hearing aids since my original AN surgery.
Thanks for the thoughts on the MP3 adapter.
Clarice
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I remove my BAHA when I wear a hat, work outdoors, etc, and do not put it right back on. I listen to music a lot, without the BAHA on, and do not have a very critical ear, and it really does not bother me to listen without the BAHA. But, I still enjoy the music.
This kind of goes back to one of my replies about one of "us" mourning the loss of their hearing, and it depressing them. I understand the loss of the hearing, being depressed, and being SSD, but but my approach was, if you are almost SSD, it probably won't have that much impact on you when you loose it all. If you had perfect hearing or 80% hearing and then you lost it all tomorrow, that would be a profound difference. I had 15% when I had a translab, and it just did not bother me to be SSD...darn near deaf anyway! You have 20% remaining, not much better than mine. But, you are a musician, probably have a critical ear, and your loss of 20% might bother you. I will bet the loss of the hearing will not bother you as much as the loss of stereo hearing will bother you. SSD is not that bad to me, but the loss of stereo bothers me a lot.
In any event, life goes on, you will enjoy your music, and it will continue to add value to your life. WE are survivors. There is a lot of LIFE out there just waiting for us to participate in. Don't let SSD keep you from enjoying it.
James
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Clarice,
I'm always happy to meet people in the music industry when the same issues as I have. Maybe happy isn't the word I am looking for - since it's a real pain when we have hearing issues. Nevertheless, I'm glad to know that I am not the only one in the world with these problems. This forum is wonderful.
I am an editor and publisher for Sweet Adelines International. Have you heard of us? I don't sing, but I am extremely immersed in the industry.
I wish you loads and loads and tons and tons of luck getting the BAHA - I think we will both love it. Medical science is incredible.
- Joey Mechelle
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Joey Mechelle .....
Although I am not in a barbershop group, I am very familiar with Sweet Adelines International. Wonderful singing! You know very well, then, how important it is to have sound input from both sides.
I am deep in the throes of trying to decide between the Cochlear and the Oticon ..... wish there was a way to test each one before total deafness occurs. I'm afraid it would not be very reliable to demo either one at the moment, when I still have partial hearing in the AN ear.
Best to you, as well!
Clarice
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Dear Clarice,
Have you tried checking into the TransEar and the Sonitus which was just passed by the FDA?
Mei Mei
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Clarice, I would demo them both anyway, even if you have not lost all your hearing. You will see which style suits you, how the buttons/controls feel and you will hear some difference even with out having ALL your hearing gone. Hands on is the best way for you to gauge what is best for you.
~Dale
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Dale .....
Good point about checking out the mechanics/style of both. Just looking at pictures of the two processors does not give you the actual way they work. Thanks for the suggestion.
Mei Mei .....
I have pretty much eliminated both the Transear and the Sonitus ..... the Transear because I have very tiny (and itchy) ear canals so it would be problematic to try to fit the device tightly in my ear without major discomfort. The Sonitus because I just do not like the thought of having something in my mouth to deal with when eating and/or singing.
So, I pretty much will be left being totally SSD or using a BAHA.
Thanks for the suggestions, however.
Clarice