ANA Discussion Forum

General Category => AN Issues => Topic started by: jbbrown15 on October 06, 2010, 07:42:45 pm

Title: Headache/pressure upon standing
Post by: jbbrown15 on October 06, 2010, 07:42:45 pm
I've been diagnosed with a 2.9 AN on my left side.  Doctors looked confused when I described one of my symptoms.  A lot of times when I stand from sitting I feel like my head fills up.  I can feel painful pressure in my head and hear a whooshing sound in my ear that muffles my hearing - on both sides.

Has anyone else had this symptom?  Was it realted to you AN?  Did it get better after treatment?

Thanks.

Jean
Title: Re: Headache/pressure upon standing
Post by: CHD63 on October 06, 2010, 09:16:07 pm
Hi Jean and welcome to this forum .....

My AN was 2.6cm at the time of removal and yes, I had that same symptom.  However, I still have it occasionally ..... at 2 1/2 years post-op, especially when I stand up too fast.  I have always thought it was related to hypotension (low blood pressure) and somehow the reduced hearing causes me to be more aware of it.

It will be interesting to see what others say about it.

Clarice
Title: Re: Headache/pressure upon standing
Post by: Syl on October 06, 2010, 09:54:55 pm
Jean:

I get that pressure all the time when I stand up & the whooshing sound too. I don't know that  I had it before surgery, but I sure have it now, even at almost 2.5 years post-op.

Syl
Title: Re: Headache/pressure upon standing
Post by: opp2 on October 07, 2010, 06:54:50 am
I've been diagnosed with a 2.9 AN on my left side.  Doctors looked confused when I described one of my symptoms.  A lot of times when I stand from sitting I feel like my head fills up.  I can feel painful pressure in my head and hear a whooshing sound in my ear that muffles my hearing - on both sides.

Has anyone else had this symptom?  Was it realted to you AN?  Did it get better after treatment?

Thanks.

Jean

Hello Jean,

Welcome to the forum, so sorry you have an AN.

I too had the pressure and whooshing (in since with my heart rate) . Does it subside relatively quickly if you sit back down? Mine did. These were the symptoms that drove me to the doctor in the first place. I was diagnosed with migraine, as my pressure and whooshing was accompanied by bright scintilating scotoma if I didn't sit down within a few seconds.

My doctors  and especially my surgeons told me they'd never heard of these symptoms associated to AN prior. Dr Akagami also was not familiar but did tell me that mass effect on the brain can do many things. He suggested I wait until after the surgery to see if the symptoms persisted, and then pursue treatment if they didn't. For me I have had only one minor bout since my surgery in July. That happened about 7 days after the surgery.

My tumour was around 3cm and was pushing on the brain stem.

All the best to you, email or PM if you want to talk more.

Nikki

Title: Re: Headache/pressure upon standing
Post by: Lizard on October 07, 2010, 10:20:36 am
Yep, pressure and wooshing here too! Although I did not have it pre-op.
Liz
Title: Re: Headache/pressure upon standing
Post by: kenneth_k on October 07, 2010, 11:27:38 am
Could it be some disturbance in CSF flow?

Best regards, Kenneth
Title: Re: Headache/pressure upon standing
Post by: jerseygirl on October 07, 2010, 02:27:36 pm
Hi,

I also had the same thing but that was, indeed, CSF disturbance. I had normal pressure hydrocephalus and the symptoms went away a few months after I got a shunt.

                     Eve