Post-Treatment => Facial Issues => Topic started by: Kaybo on November 25, 2010, 10:33:59 am
Title: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: Kaybo on November 25, 2010, 10:33:59 am
I am excited to announce that I have just realized that my mouth is moving ON IT'S OWN!! I had the T3 surgery about 2.5 years ago and the way it works is that when you clench your jaw, you get a bit of movement (& really, they don't hope or promise for any more!). I realized last week that I can move my mouth without clenching (or even using my tongue, like I previously did with the 7/12)! We are not talking major movement here - pretty much like I had, maybe a bit more, but at this stage in the game, I am over the moon with ANY movement.
The following is from the response I received from Dr. Byrne:
"Of course I remember you! You are not easy to forget (this is meant as a big compliment).
Thats really cool about your movement.
I have seen such delayed improvements on occasion before. It would be difficult to definitely tease out what is happening, but it is definitely a good thing.
One possibility is that the 7th nerve is awakening a bit. The other is that your central nervous system is rewiring to allow the temporalis to fire independantly of any teeth clenching. The second theory is more likely. Pretty sophisticated electrophysiologic testing / imaging would be required to try and determine which.
Either way, it is hopeful for continued good outcomes.
We are great. My boy is two and has a one year old sister.
Happy thanksgiving...I have thought of you and hoped you are doing well...
P"
I have always said God can do anything at anytime using anyone...truly a modern day miracle through medicine!!
Just wanted to share my special Thanksgiving blessing with my AN family!!
K ;D
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: jazzfunkanne on November 25, 2010, 10:52:37 am
kay is it 25 years since your surgery?
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: lholl36233 on November 25, 2010, 10:54:31 am
Congratulations. This is very exciting!
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: jazzfunkanne on November 25, 2010, 10:54:56 am
kay am getting confused you said you had one boy who has a sister , i thought you had three girls??
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: Adrienne on November 25, 2010, 10:57:51 am
Thrilled for you! Something else to be thankful for.......
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: Jim Scott on November 25, 2010, 11:03:32 am
Kay ~
Congratulations! What a wonderful Thanksgiving Day 'gift' and definitely one to be hugely thankful for, as I know you are. :)
Jim
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: Kaybo on November 25, 2010, 11:29:11 am
I had AN surgery 15 years ago...I had a 7/12 graft a year later and then the T3 in March of 2008 (2.5 years ago)! I have 3 girlies - that was from Dr. Byrne's response...
Sorry for the confusion...
K ;D
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: Tod on November 25, 2010, 11:35:41 am
This is really great news, Kay! It just shows all of us that hope never has to go away.
Here's hoping for even more improvement,
Tod
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: sgerrard on November 25, 2010, 12:01:23 pm
Awesome squared. 8)
Steve
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: texsooner on November 25, 2010, 12:11:04 pm
Awesome Kay....so excited for you. Happy Thanksgiving.
Patrick
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: Brewers7 on November 25, 2010, 12:46:49 pm
So happy for you, Kay!
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: joebloggs on November 25, 2010, 01:38:08 pm
Hi Kay,
I saw your news on Facebook - truly fabulous! I'm really pleased for you!!
Hope you and your family (and indeed all the Americans on here) are enjoying their turkey today!
Cheerio
JB x
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: CHD63 on November 25, 2010, 03:30:50 pm
Over the moon with you!!!!
Clarice
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: nancyann on November 25, 2010, 05:03:55 pm
WHOO HOO, What a Happy Thanksgiving this is !!! Congratulations K, will keep praying for more movement coming your way !!! Thanks for posting Dr. Byrne's response, fantastic !! Always good thoughts, Nancy
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: saralynn143 on November 25, 2010, 09:20:42 pm
Wow. I'm speechless with delight. Happy thanksgiving, indeed.
Sara
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: Nickittynic on November 27, 2010, 04:09:54 am
HOORAY! Congrats! Here's hoping for continued improvement! I can only imagine how thrilling it must be after such a long time!
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: deheisel11 on November 27, 2010, 09:16:19 am
You have been a comfort to many people on this site. Good things happen to good people! Congrats!
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: Tumbleweed on November 27, 2010, 12:59:34 pm
Kay, I am so happy for you! And it gives us all hope that we, too, might regain some of our lost function at some point in the future. Thank you for your inspiring report.
Sincerely, TW
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: cindyj on November 27, 2010, 02:10:23 pm
Wow! How exciting for you, Kaybo! So very happy for you! Talk about patience paying off :)
Cindy
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: kraynok2 on November 27, 2010, 08:28:40 pm
What great news Kay! You have been an inspiration to so many people. I am so happy for you. Sandy
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: arkansasfarmgirl on November 29, 2010, 01:17:31 pm
Woohoo!!!!!!!!!!
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: ombrerose4 on November 29, 2010, 01:24:29 pm
OMG!!! How exciting for you. I am so happy for you, this shows all of us that good things do happen! :) :) :) :) :) :) :) :) :)
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: Lizard on November 29, 2010, 08:45:13 pm
Weeeeeee!!!! Yippee!!!!!
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: moe on November 29, 2010, 11:12:52 pm
YAY! Just saw this. Congrats and keep on moving that mouth! Maureen
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: Mickey on November 30, 2010, 04:33:20 pm
Thats great news! It`s such a nice thing to hear stuff like this. When I go to my ANANJ meetings and see such improvements from the periods before it gives a good feeling for all we share in being AN survivors. Best wishes, Mickey
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: SML on November 30, 2010, 04:38:00 pm
Awesome news! We are VERY happy for you!
Scarlett & Rich
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: swhite on November 30, 2010, 05:49:35 pm
Congratulations and thanks for sharing. This gives us all hope and something I've always prayed for. So happy for you.
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: rosie_p on January 04, 2011, 01:30:10 am
:D I am all smiles for you! This is really amazing news. Congratulations!
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: rayden1 on February 07, 2011, 02:07:31 pm
Hi Kay
Am new so late reply. So happy for you. Have read all about you. You are an inspiration. May you continue to have more improvements.
Annx
Title: Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
Post by: Glenda on February 07, 2011, 09:47:54 pm
Kay,
I am just reading this as I don't log in very often anymore....life is so very busy! I am absolutely THRILLED for you! You know you have always been such an inspiration to me! Good things do happen to good people! No one deserves "good" more than you!!! I hope the "girlies" are doing well :D