Useful Information > Physicians

Looking for a Team...

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TrueClarence:
Thanks GreeceLover. Yeah, I'm seeing that most doctors lean heavily toward one approach and so I'm trying to do what you mentioned in terms of getting consults from doctors from each approach and then make a more informed decision. It's a tough decision for sure!
Thanks Bfoley. I'm considering getting a fourth opinion from Mayo because I like that they do both surgery and radiation and seem to be less biased. Did you have balance issues before radiation? Wondering if there were any adverse outcomes from the radiation, other than losing hearing. Thanks!

Greece Lover:
Great to hear of a more roundtable type of process at Mayo. They obviously have the resources to do it!

bfoley:
TrueClarence-
I had both the SSD and the balance issues prior to the Gamma Knife. 

As far as balance, I had been working with vestibular therapy for balance prior to the gamma, and continue to work on it daily.  I guess it will be a constant thing for me.  Walking on "uneven" surfaces is something I can do when taking my dogs to our off leash dog park, as the path is 3-5' of wood chips that are not spread evenly.  I have even gotten brave enough to close my eyes and take 5 - 10 steps at times.  At first I had to hang on to my husband, because I am relying heavily on my eyes to know which way is up.  Core is also key for me in keeping balance.  Hopefully I can get back to my community yoga class, which was stopped due to Covid.  I find that being active and challenging myself keeps things better. 

My first goal was facial movement preservation. I told myself that if it got no worse, I could deal with it.  I now have the Starkey livio hearing aid as a "cros" system, (microphone on deaf side, receiver in good ear) for the SSD.  Of course with WFH, I only wear it when I need to go out!

My mantra in explaining what this tumor is to others is "life altering not life ending."

Wishing you success in your selection, and please let us know how you are doing.

 

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