ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: Trinityfilled on August 22, 2018, 09:50:31 pm

Title: CSF leak question, please help
Post by: Trinityfilled on August 22, 2018, 09:50:31 pm
I had my translab surgery with Dr Friedman and Dr Schwartz on Aug 7th. The day they took my sutures out, I immediately started leaking csf from the incision site. Dr Saliba, the Dr who works with Dr Friedman stitched up the 2 places I was leaking from again and they let me come home to NY the next day with instructions to have the new sutures removed in about 2 weeks. Wondering if anyone has had this happen before and if the stitches were a successful? I read a statistic that conservative measures for treatment of csf leaks are only successful about 25% of the time?!?! That makes me super nervous since I live across the country from UCSD.
Title: Re: CSF leak question, please help
Post by: v357139 on August 23, 2018, 08:38:04 pm
I have no info on that sorry.  Who is going to remove the stitches?  Maybe good to have someone who is familiar with AN to do it?  That might give you a better level of comfort.
Title: Re: CSF leak question, please help
Post by: Trinityfilled on August 24, 2018, 08:29:26 am
Yes, my previous neurosurgeon is going to remove the new stitches  :)
Title: Re: CSF leak question, please help
Post by: Abetpds on August 24, 2018, 11:29:00 am
I remember asking Dr Friedman after my surgery on June 26th what I would do if, after I returned home to GA i had some issues with the surgery like csf leaks, severe pain etc.  Would I have to return to UCSD  He said that he knew few doctors in GA that he would recommend me to go to.  Maybe ask him if he knows someone in the NY area that he would recommend.  I'd feel better that he's involved in picking my doctor.
Title: Re: CSF leak question, please help
Post by: Trinityfilled on August 24, 2018, 05:30:08 pm
Yes, I did that too. He actually recommended my previous neurosurgeon  :)
Title: Re: CSF leak question, please help
Post by: kgs123 on January 23, 2019, 07:12:45 pm
Just reading this now. I had something similar and had to go back in for a second surgery to repair the CSF leak. Mine was external when so many other people's CSF leak was internal. How did you fare? How are you doing now?
Title: Re: CSF leak question, please help
Post by: PranaRN on January 29, 2019, 03:53:49 pm
Hi!  I’m just reading this. I had a CSF leak.  Went and had a stitch put in to stop it.  I was admitted and spent 5 weeks in hospital. I had two more surgeries. They had to put a plate in to hold it all together!!  It worked!  Hope you are doing well. Best wishes.