ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: frenchgirl on September 20, 2021, 11:53:10 am
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Hello,
First of all, sorry for my english, I am still french ! I've aged a bit since my last message, now I'm 36.
I had translab surgery in March 2018 for an AN of 3.2 cm.
A residue of about 1.3 cm remained. I was treated by Gammaknife in February 2020
During my last MRI (last week), the tumor had grown to 1.5 cm. The surgeon who first operated on me in transalb told me yesterday that for him Gammaknife did not work, otherwise there would be signs of necrosis (black in the center of the tumor on MRI) 18 months after the treatment. For him, the new growth of the tumor is not due to the gammaknife but to the regrowth of the tumor ... He tells me about a probable new operation (translab again...) following the next MRI in 6 months. I would like to know if some of you had the onset of necrosis following Gammaknife but late like me, that is to say 18 months after the treatment ?I have read that gamma knife can provide growths for up to 3.5 years, but do these growths show signs of necrosis early (at the same time), or it can come late. I'm afraid to be part of the 2% of people for whom Gammaknife fails ... :(
Thank you so much for your answers and your help, and sorry sorry for my bad english !
Melanie
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I'm not in the gamma knife club, but I'm really sorry to hear about this. I wish you strength in your journey.
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My doctor had a patient who started showing necrosis 3 years after GK. Why not wait another 12 months? 3mm is not much growth after 18 months, even if yours is still growing. Good luck, whatever you choose to do. I'm sorry the dang thing isn't cooperating.