Author Topic: Tool Kit for the Newly Diagnosed-Getting Started  (Read 1795 times)

Kate B

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Tool Kit for the Newly Diagnosed-Getting Started
« on: February 10, 2008, 08:11:37 am »
Welcome to this forum.  If you are here as a newly diagnosed person or one related to a newly diagnosed person, you have come to the right place. You will soon learn that there exist several types of treatments which can become overwhelming. This is a wonderful place to gather information that can be used in the decision making process.

To assist you in your journey, there are several tools that may help you along the way.

1. A guide to the decision making process is a thread on this board.  There are questions to use that can help you narrow your choices. http://anausa.org/forum/index.php?topic=5786.0

2.  Questions to ask the Doctor: I found it absolutely necessary to come in prepared with a list of questions to ask the doctor. Otherwise the doctors say what they want to say and are out of the room before you have a chance to digest what they have said and then to gather your thoughts enough to ask intelligent questions.The beauty of it is that you can print it out as many times as is necessary and there is a space for you to write notes.
http://anworld.com/questions/
http://anausa.org/forum/index.php?topic=53.msg266#msg266

3.  Information to the ANWORLD website (put together by four patients with different treatment experiences)
http://anausa.org/forum/index.php?topic=5829.0

4.  I have compiled a chart comparing some of the outcomes related to each procedure. It is an attempt to look at the patterns of outcomes related to various treatments (Send me a personal message and I will send you a copy of the chart)

5. The ANA organization and the Willing to Talk forum as mentioned in the thread http://anausa.org/forum/index.php?topic=3252.0

6. All of us on this site who are willing to share their personal experiences!

All the Best,
Kate
« Last Edit: June 04, 2009, 01:14:44 am by Kate B »
Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

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ppearl214

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Re: Tool Kit for the Newly Diagnosed-Getting Started
« Reply #1 on: February 10, 2008, 08:19:31 am »
Hi Kate and thank you.  Much of what you shared has been helpful to many (myself included) and thank you for sharing this all.

for me, I would like to see more cyberknife, trilogy and other modern forms for radiosurgery techniques noted on the AN World to make it a more fully-rounded discussion of all AN treatment options. Is there anyway you all can add info there as radioation/radiosurgery is now being considered as the intial form of treatment (standard) for all small to mid-size AN's?  There is plenty of public studies to be found on the internet and by grouping it all together in one location would be, to me, a great benefit for newly diagnosed.

Thanks for the consideration.
Phyl
« Last Edit: February 10, 2008, 08:59:07 am by ppearl214 »
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