Author Topic: Steroid Titration  (Read 6147 times)

Catflower

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Steroid Titration
« on: May 05, 2007, 08:33:03 am »
As I posted earlier in the week I had to resume another course of Decadron with a slower titration due to brain swelling (surgery, April 17)  I am experiencing horrible mood swings and as as mean as a "junkyard" dog.  It this typical during sterioid titration?

I'm having a pretty difficult go of it with the fatigue, right side deafness, ruptured eardrum in my left ear, facial paralysis, blurry vision on that side.  If I could just get some energy back maybe I would deal better with all the other stuff.

God Grant Me Patience (and I want it now)  :)

Linda in WV

CortezTod

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Re: Steroid Titration
« Reply #1 on: March 13, 2017, 01:14:16 am »
Some of me want to know the same.

PaulW

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Re: Steroid Titration
« Reply #2 on: March 21, 2017, 02:17:08 pm »
Steroids..... yep.
Not so bad when you are taking the full dose, but as you come off of them things are not as good.
The last time I came off of them I decided to work from home. and not go into the office.
If I had gone into the office guaranteed I would have lost my temper with somebody who probably deserved it. But I probably would have created an HR issue...
10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!

sheren

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Re: Steroid Titration
« Reply #3 on: April 09, 2017, 02:55:55 pm »
had to reply to this post because i hated those steroids. i was prescribed dexamethasone for about 1 half months and i gained 7 kg in that short period of time. my mood and temper were very bad BUT it all disappears once your body is used to go without it (:
Translab surgery done on 24th february 2016 when I was 24 years old.
3.4cm tumor on the right
Dr Friedman & Giannotta of Keck Hospital USC

Anyone who needs to talk, get informations or needs support please don't hesitate to email me (: sherenhl@hotmail.com

LakeErie

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Re: Steroid Titration
« Reply #4 on: April 10, 2017, 05:19:44 pm »
I had a 2 week Dex taper following microsurgery in 2011 with no real side effects. After facial palsy following GK in Jan 2017 I had a 4 week course of Dex with taper over the latter 2 weeks and again had no real side effects other than some difficulty staying  asleep at night and the standard rise in glucose.

Maybe dosage matters, in Jan I  was Rx'd one 2 mg Dex tablet twice per day for 14 days, then one 2 mg tablet per day for 7 days, finally one 2 mg tablet per day alternate days for 8 days. Perhaps higher dosages have more extreme reactions?
« Last Edit: April 10, 2017, 05:22:38 pm by LakeErie »
4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

PaulW

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Re: Steroid Titration
« Reply #5 on: April 19, 2017, 02:14:42 pm »
I was prescribed prednisilone at a high dose without a taper.
Apparently the latest thinking is that if you only receive a short dose the taper is unnecessary.
But if you take steroids for longer than a week, the taper is required...
I had super powers, and became a super hero while I was on them.. but did turn into a lethargic, grumpy not so old man, for a few days afterwards.
10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!