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Old timer returns to the Forum (briefly)

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leapyrtwins:
Haven't been on the Forum in ages, I'm an old timer now (almost 10 years post op with no regrowth) doing well and living my life.  Still very happy with my choice of surgery (retrosigmoid) and my decision to get a BAHA implant (upgraded to a Cochlear BAHA 5 last year and it rocks).  Still think my docs, Robert Battista & Robert Kazan, are two of the very best. 

Have answered many PMs and emails from members since I've been off the Forum, so just want to encourage anyone who wants to contact me to feel free to do so.  Always happy to share my insights and my experience.

Best,

Jan

andrea in slc:
Hi Jan

I remember seeing you on here when I was first diagnosed 8 years ago!  Guess that makes me an old timer too?  ;) I'm glad you are doing well, it's so nice to hear with these darn tumors!

Unfortunately, I'm in the "lucky" 2% with regrowth, even after translab surgery. So I'm looking at optioms again. I did tell my husband we should go to Vegas because apparently "the odds are ever in my favor!" ;D

Anybody know how Patti in UT is doing? I have lost her email.

Hope all continues to go well for you Jan!!  :)

leapyrtwins:
Hi, Andrea.  I remember you, too - and yes, you are officially an old-timer  ;D

I'm sorry to hear you're one of the "lucky" 2%.  In the past few years I've heard of several people who have had regrowth, although some of them originally had radiation not surgery. 

The last time I checked (had an MRI) was 4 1/2 years ago and at the time I was still "clean".  I'm due for an MRI @ my ten year ANniversary, so I'll know more then.

Don't have any contact info for Patti in UT, but there are several AN groups on Facebook.  Seems like the majority of us have migrated there; most people I met on this Forum haven't been here in ages. 

Good luck in Vegas; hope you win big  ;)

Jan

rupert:
I don't actually "make" trouble..........    Hahahahahahah   ;)

v357139:
Congratulations on your ten years!!! I remember reading many of your posts several years ago.  Keep magnifying trouble, I think its working.

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