General Category > AN Issues

June 28th????????

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InnerGrace:
I just got a hold of the doctors office that my ENT referred me to and that's the soonest they can get me in?????  What the....???  Is this normal?  I know these are slow growing but I can't help but think this thing is going to grow twice the size before then and honestly....I don't think my nerves can wait that long to get in......

caryawilson:
Often times it's hard to see one of the better doctors. I literally got on a plane and walked into John Hopkins with my MRI showing a 4.5 cm tumor. They took me and I saw the main AN surgeons.

However, I had a very large tumor so they knew I needed surgery promptly.

What is the size of your tumor? Normally, not always, these are slow growing so waiting is not normally an issue.

Where are you located?

researcher:
Are you having radiation? Surgery? Or just waiting to see a specialist?

Sorry, I don't know where you are in the process or any of your circumstances. So pardon me if the rest of my post doesn't go with your situation.

It is hard to wait once you have made the decision to have treatment. You can use the time to set up your household for your return. If I were to redo my experience I would buy lots of different frozen meals. I had taste disturbance issues.

Teach your Husband/wife/children to do the chores that you normally do.

Find a vestibular therapist.

You may have a litany of problems afterwards (hopefully not). Try to figure out the products you might buy or the specialists you might see for these problems.

In my case, I needed an immediate eye appointment. It was difficult for me to use the computer and look up a doctor that was in-network, etc. It would have been easier to travel down that road ahead of time.

That's how you can spend your time waiting. I know it's not easy. Just take it easy on yourself. You will get through it!

Sheba:

When I tried to schedule my initial consult here in Dallas area, one office gave an appointment date one month out;  when I pushed back and said it's an AN, the receptionist seemed to check with someone else, and they "worked me in" the next day.

So just call back, let them know you need to see them sooner than a month from now.

And you may want to make copies of your MRI CD and send packets to House and/or Keck in LA for their perspective.

InnerGrace:
I'm sorry for my outburst... lol. I'm just stressed.  Just to update as I am newly diagnosed so this is just to get in to see a specialist, researcher.... I honestly just want answers to try and give me some sort of reassurance so I can relax some... I am in a small town in Pa...but being referred to Dr Hirsh at UPMC in Pittsburgh... Size of tumor is 2.4 cm.

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