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Author Topic: Carol Krukoff's Washington Post Article on Watch and Wait/Radiate  (Read 5121 times)

Mei Mei

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Carol Krukoff's Washington Post Article on Watch and Wait/Radiate
« on: February 05, 2016, 07:40:33 pm »
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

ANGuy

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Re: Carol Krukoff's Washington Post Article on Watch and Wait/Radiate
« Reply #1 on: February 05, 2016, 09:23:07 pm »
It's a brilliant article.  Thanks for posting it.  She has a great attitude which makes the article worth reading and the accurate medical information contained in the article is valuable as well.  This article should be sticky-ed in the WW or Pre-treatment or whatever section is most appropriate.
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Diagnosed June 2014 1cm AN at 47 years of age.  Had fluctuating symptoms since 2006.    6 mos MRI (Dec 2014) showed no growth, MRI  in July 2015 showed no growth.  MRI Jan 2016 showed no growth.  MRI Aug 2016 showed no growth.  I'm gonna ride the WW train as long as I can.

Mei Mei

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Re: Carol Krukoff's Washington Post Article on Watch and Wait/Radiate
« Reply #2 on: February 06, 2016, 07:42:50 am »
I agree but watch and wait and  Hearing have been missing from my page on the Forum for years    I had no choice   But it is also appropriate for Post Treatment because she was eventually treated so illustrates her whole ride
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Patti

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Re: Carol Krukoff's Washington Post Article on Watch and Wait/Radiate
« Reply #3 on: February 06, 2016, 08:26:41 am »
that was great to read!  thanks for sharing!
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4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

Mei Mei

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Re: Carol Krukoff's Washington Post Article on Watch and Wait/Radiate
« Reply #4 on: February 07, 2016, 11:42:55 am »
I'll try to get it posted on W&W and Pre.
MM
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

arizonajack

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  • Arizona - It's a Dry Heat
Re: Carol Krukoff's Washington Post Article on Watch and Wait/Radiate
« Reply #5 on: February 07, 2016, 02:21:14 pm »
Quote from: Mei Mei on February 07, 2016, 11:42:55 am
I'll try to get it posted on W&W and Pre.
MM

Wish you hadn't.

Now you've got three identical posts that all appear at the top of the list when a member signs on to the site.

Sigh.
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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

Mei Mei

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Re: Carol Krukoff's Washington Post Article on Watch and Wait/Radiate
« Reply #6 on: February 09, 2016, 07:48:31 pm »
OK, then I'll take them down from Pre and W&W
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

keithmac

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Re: Carol Krukoff's Washington Post Article on Watch and Wait/Radiate
« Reply #7 on: February 10, 2016, 07:51:26 am »
I also thought it was a great read and have posted a link for members of BANA including an acknowledgement and thank-you for the poster.    :)
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Mei Mei

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Re: Carol Krukoff's Washington Post Article on Watch and Wait/Radiate
« Reply #8 on: February 10, 2016, 07:21:57 pm »
Thank you Keith.   I appreciate you acknowledgement for my efforts
Can you tell me what BANA is?
Sincerely,
Mei Mei :)
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

keithmac

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Re: Carol Krukoff's Washington Post Article on Watch and Wait/Radiate
« Reply #9 on: February 10, 2016, 08:05:37 pm »
Quote from: Mei Mei on February 10, 2016, 07:21:57 pm
Thank you Keith.   I appreciate you acknowledgement for my efforts
Can you tell me what BANA is?
Sincerely,
Mei Mei :)

BANA?  British Acoustic Neuroma Association!  Much smaller than ANA with far-fewer members.  I encourage members there to join ANA as well because of its huge database of experiences.
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Mei Mei

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Re: Carol Krukoff's Washington Post Article on Watch and Wait/Radiate
« Reply #10 on: February 12, 2016, 06:00:54 pm »
Thank you and welcome here.    I do hope you are feeling well…all of you!
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

keithmac

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Re: Carol Krukoff's Washington Post Article on Watch and Wait/Radiate
« Reply #11 on: February 12, 2016, 07:21:54 pm »
Quote from: keithmac on February 10, 2016, 08:05:37 pm
Quote from: Mei Mei on February 10, 2016, 07:21:57 pm
Thank you Keith.   I appreciate you acknowledgement for my efforts
Can you tell me what BANA is?
Sincerely,
Mei Mei :)

BANA?  British Acoustic Neuroma Association!  Much smaller than ANA with far-fewer members.  I encourage members there to join ANA as well because of its huge database of experiences.

thanks - This is my second year with ANA and thus far, seven years since my first symptoms, I reckon I'm doing pretty well.
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