Author Topic: 2 Years Post Gamma Results  (Read 2898 times)

Echo

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2 Years Post Gamma Results
« on: September 30, 2015, 06:54:23 pm »
I met with my neurosurgeon today to review my 2 year post GK MRI.  Everything is stable.  My AN was 2.4 cm when zapped Sept. 2013.  It had reduced in size to 1.8cm by Sept. 2014, and appears to be only slightly smaller today depending on which image you look at.  The neurosurgeon told me he expects to see more reduction in size and some necrosis developing by Sept. 2016 and that he is pleased with where I am right now - stable with no growth!

All of the issues that came and went at different times during year one (extreme exhaustion, balance issues, wonky head, ocular motor problems) have been gone for most of this second year.  I have had an ongoing dry eye, with the occasional dry spot coming and going on the cornea, so I am being checked out every 3 months by a neuro ophthalmologist. I use Alcon light gel through the day and Lacri-Lube at night to try and avoid any dryness.

I still have some ability to hear out of my AN ear. I am a very active Phonak Bi-Cros user and absolutely love it!  My word discrimination keeps bouncing around from 40% to 20%.  It was at 40% pre GK, 20% six months post treatment, 40% one year post treatment, 40% this past July when I had a test due to allergies and head pressure effecting my hearing, and 20% last week when I felt great and did not have any allergies.  I expect at some point to lose the hearing completely, but am grateful it's still functioning.

Overall, I'm feeling great. It's a rocky road we all take when moving forward with treatment, but life does get better.

Cathie.



Diagnosed: June 2012, right side AN 1.8cm
June 2013: AN has grown to 2.4 cm.
Gamma Knife: Sept. 11, 2013 Toronto Western Hospital

Glupson

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Re: 2 Years Post Gamma Results
« Reply #1 on: October 01, 2015, 01:07:28 am »
Hello Cathie,

Thank you for keeping us informed. I am happy for your good result, but also for good perspectives for the others here. Me included  ;D

sunny

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Re: 2 Years Post Gamma Results
« Reply #2 on: October 03, 2015, 02:54:42 pm »
Cathie,

Congratulations on your results, and thank you for posting them.
I ditto everything Glupson says!!

All the best to you.

sunny
Right side A.N.  (11 x 9 x 5)
Symptoms -- 2/18/15 sudden partial hearing loss and constant tinnitus
Diagnosed -- 4/24/15 by my ENT with MRI
Treatment -- 6/17/15 first of three CK treatments @ Stanford with Drs. Chang and Hancock
Treatment Completed! -- 6/19/19

cathyroe

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Re: 2 Years Post Gamma Results
« Reply #3 on: October 05, 2015, 03:33:09 pm »
Thank you Cathie for the uplifting news. I am 14 months post GK and the last month has been very rocky. Vertigo, wonky dizzy, worse fatigue . I was better in year one! I keep your words "it does get better" in my mind at all times. Thanks for giving us all hope that it gets better.
Cathy
11/02/12  Diagnosed with AN  11mm X 5mm
05/29/13  MRI reports no change, stable
11/20/13  MRI reports 13mm X 7mm X5mm
5/20/14 MRI reports 14mm x 8 mm x 6 mm
7/29/14 GK at UPMC Lunsford. Now a Postie Toastie
1/14/15 Six Month MRI growth. 16mm X 8 mm
11/09/15  16 mm X 9 mm
9/15/16   17 mm x 11 mm x 8