General Category > AN Issues

talk about confused!!!

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bikerguy:
house of ear , dr. freeman called and said small an, says surgery is the best route. hershey med center dr. says dont worry unless the mri reads over 4mm. that its possible its nothing. just looking for someone who cares enough to study this small thing in my ear!

Kerrybr92:
Although I did not have my surgery at House I know that they are very well respected.  I am not sure how experienced in Acoustic Neuromas the Doctor from Hershey is.  Possibly this is a situation where a third opinion would be a great idea for you.

This is hard enough to go through when you know what to do but when you get conflicting advice it is even harder.  But I am sure you will find the information you need.

Good luck.

Kerry

arizonajack:
House always recommends surgery. That's what they sell.

I got the same pitch when I sent my MRIs a few years ago.

I'm fortunate to live in Phoenix where the famous Barrow Neurological Institute is located. BNI has an Acoustic Neuroma Center and does both surgery and radiation. I had a consult with a neurosurgeon, a neuro-otologist, and radiation oncologist, reviewed all the options and opted for radiation since I no longer had any hearing on the AN side.

I recommend that you be evaluated by a facility staffed by acoustic neuroma specialists that do both radiation and surgery and explore all of the options.

By the way, it is possible to have tinnitus in both ears and have an AN on one side. I had tinnitus in my good ear for about ten years before it started on the AN side.

Your bilateral tinnitus might have more to do with 28 years working in a noisy environment and might be unrelated to the AN.

bikerguy:
oh, yes! i feel like im being robbed,kicked in the butt, and left out in the cold. did anyone ever hear of anything less then 4mm could be nothing? has to be something in my opinion! i live in pennsylvania. from the research i was doing, pittsburg or philadelphia is the better hospitals around for treating these an's. research, research and more research!!!

arizonajack:
Obviously, the Hershey Med Ctr Dr is not the one you should be consulting about this.

Mine was under a centimeter and the shape of a Tic Tac when I was diagnosed and it took out my hearing and caused me balance issues.

Even a small AN is problematic.

Check out this facility that was listed on the ANA website:

Jefferson's Multidisciplinary Brain Tumor Center
909 Walnut Street, 2nd Floor
Philadelphia PA 19107

Telephone: 215-955-7000
Fax: 215-503-7038
Website: www.jefferson.edu/neurosurgery


Statement about the Center

Our multidisciplinary team has worked together for over 18 years in the management of acoustic tumors. We believe in the integrated care of acoustic tumor patients, utilizing the most suitable tool(s) available. The team evaluates between 40 to 60 acoustic tumor patients a year with a cumulative experience of over 750 acoustic tumor patients. Among our innovations:
- William A. Buchheit was the first to establish neurophysiologic monitoring of the VIIth nerve during acoustic neuroma surgery.
- Development and ongoing refinement of fractionated stereotactic radiotherapy.

https://www.anausa.org/resources/medical-resources/medical-center-directory/39-menu-articles/medical-centers-1/165-jeffersons-multidisciplinary-brain-tumor-center

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