Author Topic: What is the percentage of Acoustic Neuroma regrowth?  (Read 2133 times)

kareno

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What is the percentage of Acoustic Neuroma regrowth?
« on: March 11, 2011, 09:27:46 am »
On Monday March 14th my husband will have his first year MRI.  He is doing very well besides SSD, Tinnitus, and tiredness.  He had minimal headaches but recently complained of a few mild headaches in the back of his head which I thought was different.  Does anyone know the chances of a possible AN regrowth.  My husband had surgery with Dr. Heilman Tufts and the entire 3cm tumor was removed.  He did very well after surgery no complications besides an allergic reaction to steroids and was back working full-time within 4-5 weeks.

I have been following this forum for a year and it has helped me tremendously.  Thank you everyone!!

Karen
Caregiver:  Husband 3.0cm diagnosed 1/10, Retrosigmoid Surgery 4/10 Tufts Medical CTR Boston, Dr. Carl Heilman-Exceptional Surgeon

CHD63

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Re: What is the percentage of Acoustic Neuroma regrowth?
« Reply #1 on: March 11, 2011, 01:36:20 pm »
Cannot seem to find the referenced article, but as I recall the regrowth possibility after surgery is only a 5 to 9% chance and most frequently following retrosigmoid (suboccipital) approach.  The stats for knowingly leaving some of the tumor would be different.  And, of course, different stats for people after radiation treatment.

Did he have an MRI at six months?  If so, was it completely clean?  If not or he did not have one at six months, you will know on Monday's MRI whether there are any areas of post-op changes or recurrence to watch.

Keep in mind that headaches can be caused from many things besides an AN.  Oh, how easy it is for me to jump to any new symptom as being related to the AN!  Some are, of course, but some are not.  Try to relax until you have the report from this MRI.

Many thoughts and prayers.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

leapyrtwins

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Re: What is the percentage of Acoustic Neuroma regrowth?
« Reply #2 on: March 11, 2011, 04:29:27 pm »
I had my AN (almost 3 cms) removed via the retrosigmoid approach almost 4 years ago.

I was told by my neurotologist that my chances of regrowth are approximately 1-2% since as far as he and my neurosurgeon could tell they removed 100% of the tumor.

I say "as far as they could tell" because surgeons do their best, but even one cell left behind has the potential of regrowth.

Sometimes sh*t happens.

Jan
Retrosigmoid 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
AN 3.0 cm left side (1.5 cm @ diagnosis 6 wks prior) SSD.  BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Tumbleweed

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Re: What is the percentage of Acoustic Neuroma regrowth?
« Reply #3 on: March 13, 2011, 11:03:02 pm »
What I've been told by AN specialists who practice microsurgery and radiosurgery is that the chance of recurrence is about the same with either type of treatment: 2%. The odds are overwhelmingly in his favor that he is done with this tumor for life.

Best wishes,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
13x8x6 mm, Sep. 2013; shrank >70% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

kareno

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Re: What is the percentage of Acoustic Neuroma regrowth?
« Reply #4 on: March 16, 2011, 09:21:47 am »


Good News!!  There was NOT any sign of tumor regrowth on the MRI.  The Neurosurgeon said that it is a 1% chance for the AN to return.  He will have another MRI in 4 years.    Thank you to ALL of you on the Forum!!!
Caregiver:  Husband 3.0cm diagnosed 1/10, Retrosigmoid Surgery 4/10 Tufts Medical CTR Boston, Dr. Carl Heilman-Exceptional Surgeon

leapyrtwins

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Re: What is the percentage of Acoustic Neuroma regrowth?
« Reply #5 on: March 22, 2011, 11:26:00 pm »
So glad his MRI was "clean".  YEAH!!  ;D

Thanks for letting us know!

Jan
Retrosigmoid 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
AN 3.0 cm left side (1.5 cm @ diagnosis 6 wks prior) SSD.  BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways